Resting vs. Max heart rate

[ladybug]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kybert</b></i>

i still feel you are working out way too hard. exercise is great and all but pushing yourself too hard is pointless. yes, your body will still benefit from exercise if you slow down. it seems as if you are scared to slow down. why? is it because you think your lung function will drop? because it shouldnt as long as you still do moderate exercise.



but either way, using oxygen or slowing down, it will acheive the same result and thats keeping your o2 up. so go with whatever, but make sure you do something about it!</end quote>

Kylie:

Yes, I'm very afraid that if I don't run as hard as I have been (which resulted in a 7% increase in FEV1 over the past couple of years), I may loose some of what I've gained. I know its kinda silly, but I actually didn't gain the FEV1 when I just did elliptical. So, I do worry very much that I will slide backward if I slow anything down. I know I'm probably just really paranoid. And, I feel GOOD that I was able to keep my O2 sats and HR (though still a bit high) at a decent level with the elliptical. Plus, I really felt it helped me cough more out, which is odd, cause like I said, running NEVER has this effect. *** sigh *** Sorry if I'm a broken record. I love that people are giving their thoughts on this. It really does help me look at the different perspectives while I impatiently wait to hear from the doc! LOL

 

[ladybug]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kybert</b></i>

i still feel you are working out way too hard. exercise is great and all but pushing yourself too hard is pointless. yes, your body will still benefit from exercise if you slow down. it seems as if you are scared to slow down. why? is it because you think your lung function will drop? because it shouldnt as long as you still do moderate exercise.



but either way, using oxygen or slowing down, it will acheive the same result and thats keeping your o2 up. so go with whatever, but make sure you do something about it!</end quote>

Kylie:

Yes, I'm very afraid that if I don't run as hard as I have been (which resulted in a 7% increase in FEV1 over the past couple of years), I may loose some of what I've gained. I know its kinda silly, but I actually didn't gain the FEV1 when I just did elliptical. So, I do worry very much that I will slide backward if I slow anything down. I know I'm probably just really paranoid. And, I feel GOOD that I was able to keep my O2 sats and HR (though still a bit high) at a decent level with the elliptical. Plus, I really felt it helped me cough more out, which is odd, cause like I said, running NEVER has this effect. *** sigh *** Sorry if I'm a broken record. I love that people are giving their thoughts on this. It really does help me look at the different perspectives while I impatiently wait to hear from the doc! LOL

 

[kybert]

lets say you lose 7% if you cut back, would it really be that bad? as long as you still feel good and thats all it drops it doesnt seem like a huge issue. its not like you will go into a downward spiral. in most circumstanes losing lung function would be disastrous but in yours it doesnt seem all that bad considering its not too far off the baseline you had a couple of years ago. it just seems like so much effort for such little gain. you might have that extra 7% but you are also having low sats and giving your heart one hell of a thrashing. if the thought of losing the lung function you gained worries you a lot then go for the oxygen. im sure you will adjust to o2 just fine.

 

[kybert]

lets say you lose 7% if you cut back, would it really be that bad? as long as you still feel good and thats all it drops it doesnt seem like a huge issue. its not like you will go into a downward spiral. in most circumstanes losing lung function would be disastrous but in yours it doesnt seem all that bad considering its not too far off the baseline you had a couple of years ago. it just seems like so much effort for such little gain. you might have that extra 7% but you are also having low sats and giving your heart one hell of a thrashing. if the thought of losing the lung function you gained worries you a lot then go for the oxygen. im sure you will adjust to o2 just fine.

 

[kybert]

lets say you lose 7% if you cut back, would it really be that bad? as long as you still feel good and thats all it drops it doesnt seem like a huge issue. its not like you will go into a downward spiral. in most circumstanes losing lung function would be disastrous but in yours it doesnt seem all that bad considering its not too far off the baseline you had a couple of years ago. it just seems like so much effort for such little gain. you might have that extra 7% but you are also having low sats and giving your heart one hell of a thrashing. if the thought of losing the lung function you gained worries you a lot then go for the oxygen. im sure you will adjust to o2 just fine.

 

[kybert]

lets say you lose 7% if you cut back, would it really be that bad? as long as you still feel good and thats all it drops it doesnt seem like a huge issue. its not like you will go into a downward spiral. in most circumstanes losing lung function would be disastrous but in yours it doesnt seem all that bad considering its not too far off the baseline you had a couple of years ago. it just seems like so much effort for such little gain. you might have that extra 7% but you are also having low sats and giving your heart one hell of a thrashing. if the thought of losing the lung function you gained worries you a lot then go for the oxygen. im sure you will adjust to o2 just fine.

 

[kybert]

lets say you lose 7% if you cut back, would it really be that bad? as long as you still feel good and thats all it drops it doesnt seem like a huge issue. its not like you will go into a downward spiral. in most circumstanes losing lung function would be disastrous but in yours it doesnt seem all that bad considering its not too far off the baseline you had a couple of years ago. it just seems like so much effort for such little gain. you might have that extra 7% but you are also having low sats and giving your heart one hell of a thrashing. if the thought of losing the lung function you gained worries you a lot then go for the oxygen. im sure you will adjust to o2 just fine.

 

[kybert]

lets say you lose 7% if you cut back, would it really be that bad? as long as you still feel good and thats all it drops it doesnt seem like a huge issue. its not like you will go into a downward spiral. in most circumstanes losing lung function would be disastrous but in yours it doesnt seem all that bad considering its not too far off the baseline you had a couple of years ago. it just seems like so much effort for such little gain. you might have that extra 7% but you are also having low sats and giving your heart one hell of a thrashing. if the thought of losing the lung function you gained worries you a lot then go for the oxygen. im sure you will adjust to o2 just fine.

 

[LisaV]

Hah. Never tired of this discussion since staying in as good as shape as possible was key to my late husband's longevity with decent quality of life. (And for others important for good tx results. )Here's some more reading....

National Guidelines for pulmonary rehabilitation <a target=_blank class=ftalternatingbarlinklarge href="http://www.guideline.gov/summary/summary.aspx?ss=15&doc_id=3211&nbr=2437
">http://www.guideline.gov/summa...&doc_id=3211&nbr=2437
</a>See the paper at <a target=_blank class=ftalternatingbarlinklarge href="http://www.rehab.research.va.gov/jour/03/40/5Sup2/Rochester.html">http://www.rehab.research.va.g...0/5Sup2/Rochester.html</a> for a brief discussion of the rationale for exercise training and a discussion of virtues of different types of traning (for examnple, Aerobic Versus Strength Training).
I can't find the article now, but I remember reading that when your big muscles (like thigh muscles) get weak that it takes a heck of a lot more oxygen to use them than when they are strong. Of course, once one is really badly deconditioned then doing most anything really takes lots of O2.

 

[LisaV]

Hah. Never tired of this discussion since staying in as good as shape as possible was key to my late husband's longevity with decent quality of life. (And for others important for good tx results. )Here's some more reading....

National Guidelines for pulmonary rehabilitation <a target=_blank class=ftalternatingbarlinklarge href="http://www.guideline.gov/summary/summary.aspx?ss=15&doc_id=3211&nbr=2437
">http://www.guideline.gov/summa...&doc_id=3211&nbr=2437
</a>See the paper at <a target=_blank class=ftalternatingbarlinklarge href="http://www.rehab.research.va.gov/jour/03/40/5Sup2/Rochester.html">http://www.rehab.research.va.g...0/5Sup2/Rochester.html</a> for a brief discussion of the rationale for exercise training and a discussion of virtues of different types of traning (for examnple, Aerobic Versus Strength Training).
I can't find the article now, but I remember reading that when your big muscles (like thigh muscles) get weak that it takes a heck of a lot more oxygen to use them than when they are strong. Of course, once one is really badly deconditioned then doing most anything really takes lots of O2.

 

[LisaV]

Hah. Never tired of this discussion since staying in as good as shape as possible was key to my late husband's longevity with decent quality of life. (And for others important for good tx results. )Here's some more reading....

National Guidelines for pulmonary rehabilitation <a target=_blank class=ftalternatingbarlinklarge href="http://www.guideline.gov/summary/summary.aspx?ss=15&doc_id=3211&nbr=2437
">http://www.guideline.gov/summa...&doc_id=3211&nbr=2437
</a>See the paper at <a target=_blank class=ftalternatingbarlinklarge href="http://www.rehab.research.va.gov/jour/03/40/5Sup2/Rochester.html">http://www.rehab.research.va.g...0/5Sup2/Rochester.html</a> for a brief discussion of the rationale for exercise training and a discussion of virtues of different types of traning (for examnple, Aerobic Versus Strength Training).
I can't find the article now, but I remember reading that when your big muscles (like thigh muscles) get weak that it takes a heck of a lot more oxygen to use them than when they are strong. Of course, once one is really badly deconditioned then doing most anything really takes lots of O2.

 

[LisaV]

Hah. Never tired of this discussion since staying in as good as shape as possible was key to my late husband's longevity with decent quality of life. (And for others important for good tx results. )Here's some more reading....

National Guidelines for pulmonary rehabilitation <a target=_blank class=ftalternatingbarlinklarge href="http://www.guideline.gov/summary/summary.aspx?ss=15&doc_id=3211&nbr=2437
">http://www.guideline.gov/summa...&doc_id=3211&nbr=2437
</a>See the paper at <a target=_blank class=ftalternatingbarlinklarge href="http://www.rehab.research.va.gov/jour/03/40/5Sup2/Rochester.html">http://www.rehab.research.va.g...0/5Sup2/Rochester.html</a> for a brief discussion of the rationale for exercise training and a discussion of virtues of different types of traning (for examnple, Aerobic Versus Strength Training).
I can't find the article now, but I remember reading that when your big muscles (like thigh muscles) get weak that it takes a heck of a lot more oxygen to use them than when they are strong. Of course, once one is really badly deconditioned then doing most anything really takes lots of O2.

 

[LisaV]

Hah. Never tired of this discussion since staying in as good as shape as possible was key to my late husband's longevity with decent quality of life. (And for others important for good tx results. )Here's some more reading....

National Guidelines for pulmonary rehabilitation <a target=_blank class=ftalternatingbarlinklarge href="http://www.guideline.gov/summary/summary.aspx?ss=15&doc_id=3211&nbr=2437
">http://www.guideline.gov/summa...&doc_id=3211&nbr=2437
</a>See the paper at <a target=_blank class=ftalternatingbarlinklarge href="http://www.rehab.research.va.gov/jour/03/40/5Sup2/Rochester.html">http://www.rehab.research.va.g...0/5Sup2/Rochester.html</a> for a brief discussion of the rationale for exercise training and a discussion of virtues of different types of traning (for examnple, Aerobic Versus Strength Training).
I can't find the article now, but I remember reading that when your big muscles (like thigh muscles) get weak that it takes a heck of a lot more oxygen to use them than when they are strong. Of course, once one is really badly deconditioned then doing most anything really takes lots of O2.

 

[LisaV]

Hah. Never tired of this discussion since staying in as good as shape as possible was key to my late husband's longevity with decent quality of life. (And for others important for good tx results. )Here's some more reading....

National Guidelines for pulmonary rehabilitation <a target=_blank class=ftalternatingbarlinklarge href="http://www.guideline.gov/summary/summary.aspx?ss=15&doc_id=3211&nbr=2437
">http://www.guideline.gov/summa...&doc_id=3211&nbr=2437
</a>See the paper at <a target=_blank class=ftalternatingbarlinklarge href="http://www.rehab.research.va.gov/jour/03/40/5Sup2/Rochester.html">http://www.rehab.research.va.g...0/5Sup2/Rochester.html</a> for a brief discussion of the rationale for exercise training and a discussion of virtues of different types of traning (for examnple, Aerobic Versus Strength Training).
I can't find the article now, but I remember reading that when your big muscles (like thigh muscles) get weak that it takes a heck of a lot more oxygen to use them than when they are strong. Of course, once one is really badly deconditioned then doing most anything really takes lots of O2.

 

[LouLou]

I think you should get O2 Sonia. If your cf doctor won't prescribe it tell them you'll have to get it from your general practicioner. Don't waste your time trying to debate whether it's necessary, especially with a nurse. 87 is unacceptable to you and to everyone on this site. I don't think you should cut back your exercise capacity. Use it or lose it. If you are able to maintain a pace for 20 minutes I would say you can handle it. But your O2 sat is concerning.

 

[LouLou]

I think you should get O2 Sonia. If your cf doctor won't prescribe it tell them you'll have to get it from your general practicioner. Don't waste your time trying to debate whether it's necessary, especially with a nurse. 87 is unacceptable to you and to everyone on this site. I don't think you should cut back your exercise capacity. Use it or lose it. If you are able to maintain a pace for 20 minutes I would say you can handle it. But your O2 sat is concerning.

 

[LouLou]

I think you should get O2 Sonia. If your cf doctor won't prescribe it tell them you'll have to get it from your general practicioner. Don't waste your time trying to debate whether it's necessary, especially with a nurse. 87 is unacceptable to you and to everyone on this site. I don't think you should cut back your exercise capacity. Use it or lose it. If you are able to maintain a pace for 20 minutes I would say you can handle it. But your O2 sat is concerning.

 

[LouLou]

I think you should get O2 Sonia. If your cf doctor won't prescribe it tell them you'll have to get it from your general practicioner. Don't waste your time trying to debate whether it's necessary, especially with a nurse. 87 is unacceptable to you and to everyone on this site. I don't think you should cut back your exercise capacity. Use it or lose it. If you are able to maintain a pace for 20 minutes I would say you can handle it. But your O2 sat is concerning.

 

[LouLou]

I think you should get O2 Sonia. If your cf doctor won't prescribe it tell them you'll have to get it from your general practicioner. Don't waste your time trying to debate whether it's necessary, especially with a nurse. 87 is unacceptable to you and to everyone on this site. I don't think you should cut back your exercise capacity. Use it or lose it. If you are able to maintain a pace for 20 minutes I would say you can handle it. But your O2 sat is concerning.

 

[LouLou]

I think you should get O2 Sonia. If your cf doctor won't prescribe it tell them you'll have to get it from your general practicioner. Don't waste your time trying to debate whether it's necessary, especially with a nurse. 87 is unacceptable to you and to everyone on this site. I don't think you should cut back your exercise capacity. Use it or lose it. If you are able to maintain a pace for 20 minutes I would say you can handle it. But your O2 sat is concerning.