Resting vs. Max heart rate

L

ladybug

New member
Chris,

Thank you so much for your supportive words. I ask TONS of questions in general and, as you say, for something that none of us want to do but may be necessary, it is expected I will ask even more. I think knowledge is power and if I know everything about the what, when, where and WHY, I will be more at peace when I make a change in my CF routine. I am inquistitive in general and want to know WHY desatting happens and what, if anything, other than having lung disease, can cause desatting. I also don't feel its a particularily odd question to ask (and believe me, I've asked LOTS of odd ones! LOL) So, I appreciate you coming to my defense and putting my mind at ease. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Lindsey,

Thank you for your informative post. I totally agree that this disease is so unpredictable and that is probably the worst part for me. Yet, I look back and think I've never actually followed my O2 sats before so who knows if they've been this low for years (in that case O2 is warranted much quicker, I think) or if this is something acute that is happening. Would have been interesting to have tracked this in the several different states I've lived in to see if it is air quality, etc. related. Either way, I know how it stands now that O2 is of high priority and I personally think the clinic should be jumping on this right away (at the very least the doc should be responding to my concerns).

I find the info. on ECHOS and EKGs, etc. interesting. Makes me loose a little bit of faith in these tests that are supposed to show any abnormalities. I guess it is sort of like a bronch though... you give sputum that you can cough up and they test that and plan accordingly until you have new or worsening symptoms and only then do they go in and get a better sample. So, with the invasive heart test you had, I'm sure it is looked at as something they do if there are problems as well (or in your case for tx) and not a usual heart test if all else comes back ok.

... Anyway, to make a long response short, I appreciate everyone replying. I really didn't imagine I would get so much great information, stories, and support on this. It really is amazing to have people that will take the time to sit down and go through this with me.

I will keep everyone posted on what the doc says.

Thanks,
 
L

ladybug

New member
Chris,

Thank you so much for your supportive words. I ask TONS of questions in general and, as you say, for something that none of us want to do but may be necessary, it is expected I will ask even more. I think knowledge is power and if I know everything about the what, when, where and WHY, I will be more at peace when I make a change in my CF routine. I am inquistitive in general and want to know WHY desatting happens and what, if anything, other than having lung disease, can cause desatting. I also don't feel its a particularily odd question to ask (and believe me, I've asked LOTS of odd ones! LOL) So, I appreciate you coming to my defense and putting my mind at ease. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Lindsey,

Thank you for your informative post. I totally agree that this disease is so unpredictable and that is probably the worst part for me. Yet, I look back and think I've never actually followed my O2 sats before so who knows if they've been this low for years (in that case O2 is warranted much quicker, I think) or if this is something acute that is happening. Would have been interesting to have tracked this in the several different states I've lived in to see if it is air quality, etc. related. Either way, I know how it stands now that O2 is of high priority and I personally think the clinic should be jumping on this right away (at the very least the doc should be responding to my concerns).

I find the info. on ECHOS and EKGs, etc. interesting. Makes me loose a little bit of faith in these tests that are supposed to show any abnormalities. I guess it is sort of like a bronch though... you give sputum that you can cough up and they test that and plan accordingly until you have new or worsening symptoms and only then do they go in and get a better sample. So, with the invasive heart test you had, I'm sure it is looked at as something they do if there are problems as well (or in your case for tx) and not a usual heart test if all else comes back ok.

... Anyway, to make a long response short, I appreciate everyone replying. I really didn't imagine I would get so much great information, stories, and support on this. It really is amazing to have people that will take the time to sit down and go through this with me.

I will keep everyone posted on what the doc says.

Thanks,
 
L

ladybug

New member
Chris,

Thank you so much for your supportive words. I ask TONS of questions in general and, as you say, for something that none of us want to do but may be necessary, it is expected I will ask even more. I think knowledge is power and if I know everything about the what, when, where and WHY, I will be more at peace when I make a change in my CF routine. I am inquistitive in general and want to know WHY desatting happens and what, if anything, other than having lung disease, can cause desatting. I also don't feel its a particularily odd question to ask (and believe me, I've asked LOTS of odd ones! LOL) So, I appreciate you coming to my defense and putting my mind at ease. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Lindsey,

Thank you for your informative post. I totally agree that this disease is so unpredictable and that is probably the worst part for me. Yet, I look back and think I've never actually followed my O2 sats before so who knows if they've been this low for years (in that case O2 is warranted much quicker, I think) or if this is something acute that is happening. Would have been interesting to have tracked this in the several different states I've lived in to see if it is air quality, etc. related. Either way, I know how it stands now that O2 is of high priority and I personally think the clinic should be jumping on this right away (at the very least the doc should be responding to my concerns).

I find the info. on ECHOS and EKGs, etc. interesting. Makes me loose a little bit of faith in these tests that are supposed to show any abnormalities. I guess it is sort of like a bronch though... you give sputum that you can cough up and they test that and plan accordingly until you have new or worsening symptoms and only then do they go in and get a better sample. So, with the invasive heart test you had, I'm sure it is looked at as something they do if there are problems as well (or in your case for tx) and not a usual heart test if all else comes back ok.

... Anyway, to make a long response short, I appreciate everyone replying. I really didn't imagine I would get so much great information, stories, and support on this. It really is amazing to have people that will take the time to sit down and go through this with me.

I will keep everyone posted on what the doc says.

Thanks,
 
L

ladybug

New member
Chris,

Thank you so much for your supportive words. I ask TONS of questions in general and, as you say, for something that none of us want to do but may be necessary, it is expected I will ask even more. I think knowledge is power and if I know everything about the what, when, where and WHY, I will be more at peace when I make a change in my CF routine. I am inquistitive in general and want to know WHY desatting happens and what, if anything, other than having lung disease, can cause desatting. I also don't feel its a particularily odd question to ask (and believe me, I've asked LOTS of odd ones! LOL) So, I appreciate you coming to my defense and putting my mind at ease. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Lindsey,

Thank you for your informative post. I totally agree that this disease is so unpredictable and that is probably the worst part for me. Yet, I look back and think I've never actually followed my O2 sats before so who knows if they've been this low for years (in that case O2 is warranted much quicker, I think) or if this is something acute that is happening. Would have been interesting to have tracked this in the several different states I've lived in to see if it is air quality, etc. related. Either way, I know how it stands now that O2 is of high priority and I personally think the clinic should be jumping on this right away (at the very least the doc should be responding to my concerns).

I find the info. on ECHOS and EKGs, etc. interesting. Makes me loose a little bit of faith in these tests that are supposed to show any abnormalities. I guess it is sort of like a bronch though... you give sputum that you can cough up and they test that and plan accordingly until you have new or worsening symptoms and only then do they go in and get a better sample. So, with the invasive heart test you had, I'm sure it is looked at as something they do if there are problems as well (or in your case for tx) and not a usual heart test if all else comes back ok.

... Anyway, to make a long response short, I appreciate everyone replying. I really didn't imagine I would get so much great information, stories, and support on this. It really is amazing to have people that will take the time to sit down and go through this with me.

I will keep everyone posted on what the doc says.

Thanks,
 
L

ladybug

New member
Thought I'd post another update. Sorry if people are getting sick of this topic. LOL

I just went to the gym and did a workout on the elliptical machine. I pushed myself pretty hard (though not as hard as when I run) and was sweating and even coughing more than when I run. Well, my sats stayed at about 93-96 the entire first 15 minutes, dropping to about 90 toward the 20 minute mark and then when I finished my workout at the very end when I was SLOWING DOWN and doing a cool down, my O2 went to 87! WTF?!? It showed my HR at 174 the entire time I was working out hard until my cool down when it dropped to 160. So, now I"m totally confused. Do I do a workout that is still getting my HR up and getting my O2 at a decent level? OR, do I continue insisting on my hard run and get supplemental O2? I have no idea what is the better thing in the low run to do... Is it possible my run is just WAY too intense for my lung capacity to keep up with and I need to SLOW DOWN my workouts?? If my HR and O2 get in a more normal range with a slower pace, I'm still benefitting from the workout as much as if I wore O2 but worked out harder, right? Urgh..... I'm so confused what to do.

I will keep everyone posted as I track my results and let ya'll know what my doc says (still hasn't responded... **sigh**)... I guess I should have a blog for this sort of thing, eh?

I haven't done the elliptical in years (since I started running), so this was a new sort of workout for me.... definitely less cardio and more muscular involvement! LOL I also think its interesting I coughed a TON more when using the elliptical. I rarely cough at all when I run. Hmmmm.....

If anyone has anything to comment on after tonight's better O2 numbers, let me know.

Thanks!
 
L

ladybug

New member
Thought I'd post another update. Sorry if people are getting sick of this topic. LOL

I just went to the gym and did a workout on the elliptical machine. I pushed myself pretty hard (though not as hard as when I run) and was sweating and even coughing more than when I run. Well, my sats stayed at about 93-96 the entire first 15 minutes, dropping to about 90 toward the 20 minute mark and then when I finished my workout at the very end when I was SLOWING DOWN and doing a cool down, my O2 went to 87! WTF?!? It showed my HR at 174 the entire time I was working out hard until my cool down when it dropped to 160. So, now I"m totally confused. Do I do a workout that is still getting my HR up and getting my O2 at a decent level? OR, do I continue insisting on my hard run and get supplemental O2? I have no idea what is the better thing in the low run to do... Is it possible my run is just WAY too intense for my lung capacity to keep up with and I need to SLOW DOWN my workouts?? If my HR and O2 get in a more normal range with a slower pace, I'm still benefitting from the workout as much as if I wore O2 but worked out harder, right? Urgh..... I'm so confused what to do.

I will keep everyone posted as I track my results and let ya'll know what my doc says (still hasn't responded... **sigh**)... I guess I should have a blog for this sort of thing, eh?

I haven't done the elliptical in years (since I started running), so this was a new sort of workout for me.... definitely less cardio and more muscular involvement! LOL I also think its interesting I coughed a TON more when using the elliptical. I rarely cough at all when I run. Hmmmm.....

If anyone has anything to comment on after tonight's better O2 numbers, let me know.

Thanks!
 
L

ladybug

New member
Thought I'd post another update. Sorry if people are getting sick of this topic. LOL

I just went to the gym and did a workout on the elliptical machine. I pushed myself pretty hard (though not as hard as when I run) and was sweating and even coughing more than when I run. Well, my sats stayed at about 93-96 the entire first 15 minutes, dropping to about 90 toward the 20 minute mark and then when I finished my workout at the very end when I was SLOWING DOWN and doing a cool down, my O2 went to 87! WTF?!? It showed my HR at 174 the entire time I was working out hard until my cool down when it dropped to 160. So, now I"m totally confused. Do I do a workout that is still getting my HR up and getting my O2 at a decent level? OR, do I continue insisting on my hard run and get supplemental O2? I have no idea what is the better thing in the low run to do... Is it possible my run is just WAY too intense for my lung capacity to keep up with and I need to SLOW DOWN my workouts?? If my HR and O2 get in a more normal range with a slower pace, I'm still benefitting from the workout as much as if I wore O2 but worked out harder, right? Urgh..... I'm so confused what to do.

I will keep everyone posted as I track my results and let ya'll know what my doc says (still hasn't responded... **sigh**)... I guess I should have a blog for this sort of thing, eh?

I haven't done the elliptical in years (since I started running), so this was a new sort of workout for me.... definitely less cardio and more muscular involvement! LOL I also think its interesting I coughed a TON more when using the elliptical. I rarely cough at all when I run. Hmmmm.....

If anyone has anything to comment on after tonight's better O2 numbers, let me know.

Thanks!
 
L

ladybug

New member
Thought I'd post another update. Sorry if people are getting sick of this topic. LOL

I just went to the gym and did a workout on the elliptical machine. I pushed myself pretty hard (though not as hard as when I run) and was sweating and even coughing more than when I run. Well, my sats stayed at about 93-96 the entire first 15 minutes, dropping to about 90 toward the 20 minute mark and then when I finished my workout at the very end when I was SLOWING DOWN and doing a cool down, my O2 went to 87! WTF?!? It showed my HR at 174 the entire time I was working out hard until my cool down when it dropped to 160. So, now I"m totally confused. Do I do a workout that is still getting my HR up and getting my O2 at a decent level? OR, do I continue insisting on my hard run and get supplemental O2? I have no idea what is the better thing in the low run to do... Is it possible my run is just WAY too intense for my lung capacity to keep up with and I need to SLOW DOWN my workouts?? If my HR and O2 get in a more normal range with a slower pace, I'm still benefitting from the workout as much as if I wore O2 but worked out harder, right? Urgh..... I'm so confused what to do.

I will keep everyone posted as I track my results and let ya'll know what my doc says (still hasn't responded... **sigh**)... I guess I should have a blog for this sort of thing, eh?

I haven't done the elliptical in years (since I started running), so this was a new sort of workout for me.... definitely less cardio and more muscular involvement! LOL I also think its interesting I coughed a TON more when using the elliptical. I rarely cough at all when I run. Hmmmm.....

If anyone has anything to comment on after tonight's better O2 numbers, let me know.

Thanks!
 
L

ladybug

New member
Thought I'd post another update. Sorry if people are getting sick of this topic. LOL

I just went to the gym and did a workout on the elliptical machine. I pushed myself pretty hard (though not as hard as when I run) and was sweating and even coughing more than when I run. Well, my sats stayed at about 93-96 the entire first 15 minutes, dropping to about 90 toward the 20 minute mark and then when I finished my workout at the very end when I was SLOWING DOWN and doing a cool down, my O2 went to 87! WTF?!? It showed my HR at 174 the entire time I was working out hard until my cool down when it dropped to 160. So, now I"m totally confused. Do I do a workout that is still getting my HR up and getting my O2 at a decent level? OR, do I continue insisting on my hard run and get supplemental O2? I have no idea what is the better thing in the low run to do... Is it possible my run is just WAY too intense for my lung capacity to keep up with and I need to SLOW DOWN my workouts?? If my HR and O2 get in a more normal range with a slower pace, I'm still benefitting from the workout as much as if I wore O2 but worked out harder, right? Urgh..... I'm so confused what to do.

I will keep everyone posted as I track my results and let ya'll know what my doc says (still hasn't responded... **sigh**)... I guess I should have a blog for this sort of thing, eh?

I haven't done the elliptical in years (since I started running), so this was a new sort of workout for me.... definitely less cardio and more muscular involvement! LOL I also think its interesting I coughed a TON more when using the elliptical. I rarely cough at all when I run. Hmmmm.....

If anyone has anything to comment on after tonight's better O2 numbers, let me know.

Thanks!
 
L

ladybug

New member
Thought I'd post another update. Sorry if people are getting sick of this topic. LOL

I just went to the gym and did a workout on the elliptical machine. I pushed myself pretty hard (though not as hard as when I run) and was sweating and even coughing more than when I run. Well, my sats stayed at about 93-96 the entire first 15 minutes, dropping to about 90 toward the 20 minute mark and then when I finished my workout at the very end when I was SLOWING DOWN and doing a cool down, my O2 went to 87! WTF?!? It showed my HR at 174 the entire time I was working out hard until my cool down when it dropped to 160. So, now I"m totally confused. Do I do a workout that is still getting my HR up and getting my O2 at a decent level? OR, do I continue insisting on my hard run and get supplemental O2? I have no idea what is the better thing in the low run to do... Is it possible my run is just WAY too intense for my lung capacity to keep up with and I need to SLOW DOWN my workouts?? If my HR and O2 get in a more normal range with a slower pace, I'm still benefitting from the workout as much as if I wore O2 but worked out harder, right? Urgh..... I'm so confused what to do.

I will keep everyone posted as I track my results and let ya'll know what my doc says (still hasn't responded... **sigh**)... I guess I should have a blog for this sort of thing, eh?

I haven't done the elliptical in years (since I started running), so this was a new sort of workout for me.... definitely less cardio and more muscular involvement! LOL I also think its interesting I coughed a TON more when using the elliptical. I rarely cough at all when I run. Hmmmm.....

If anyone has anything to comment on after tonight's better O2 numbers, let me know.

Thanks!
 
K

kybert

New member
i still feel you are working out way too hard. exercise is great and all but pushing yourself too hard is pointless. yes, your body will still benefit from exercise if you slow down. it seems as if you are scared to slow down. why? is it because you think your lung function will drop? because it shouldnt as long as you still do moderate exercise.

but either way, using oxygen or slowing down, it will acheive the same result and thats keeping your o2 up. so go with whatever, but make sure you do something about it!
 
K

kybert

New member
i still feel you are working out way too hard. exercise is great and all but pushing yourself too hard is pointless. yes, your body will still benefit from exercise if you slow down. it seems as if you are scared to slow down. why? is it because you think your lung function will drop? because it shouldnt as long as you still do moderate exercise.

but either way, using oxygen or slowing down, it will acheive the same result and thats keeping your o2 up. so go with whatever, but make sure you do something about it!
 
K

kybert

New member
i still feel you are working out way too hard. exercise is great and all but pushing yourself too hard is pointless. yes, your body will still benefit from exercise if you slow down. it seems as if you are scared to slow down. why? is it because you think your lung function will drop? because it shouldnt as long as you still do moderate exercise.

but either way, using oxygen or slowing down, it will acheive the same result and thats keeping your o2 up. so go with whatever, but make sure you do something about it!
 
K

kybert

New member
i still feel you are working out way too hard. exercise is great and all but pushing yourself too hard is pointless. yes, your body will still benefit from exercise if you slow down. it seems as if you are scared to slow down. why? is it because you think your lung function will drop? because it shouldnt as long as you still do moderate exercise.

but either way, using oxygen or slowing down, it will acheive the same result and thats keeping your o2 up. so go with whatever, but make sure you do something about it!
 
K

kybert

New member
i still feel you are working out way too hard. exercise is great and all but pushing yourself too hard is pointless. yes, your body will still benefit from exercise if you slow down. it seems as if you are scared to slow down. why? is it because you think your lung function will drop? because it shouldnt as long as you still do moderate exercise.

but either way, using oxygen or slowing down, it will acheive the same result and thats keeping your o2 up. so go with whatever, but make sure you do something about it!
 
K

kybert

New member
i still feel you are working out way too hard. exercise is great and all but pushing yourself too hard is pointless. yes, your body will still benefit from exercise if you slow down. it seems as if you are scared to slow down. why? is it because you think your lung function will drop? because it shouldnt as long as you still do moderate exercise.

but either way, using oxygen or slowing down, it will acheive the same result and thats keeping your o2 up. so go with whatever, but make sure you do something about it!
 
L

ladybug

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kybert</b></i>

i still feel you are working out way too hard. exercise is great and all but pushing yourself too hard is pointless. yes, your body will still benefit from exercise if you slow down. it seems as if you are scared to slow down. why? is it because you think your lung function will drop? because it shouldnt as long as you still do moderate exercise.



but either way, using oxygen or slowing down, it will acheive the same result and thats keeping your o2 up. so go with whatever, but make sure you do something about it!</end quote></div>

Kylie:

Yes, I'm very afraid that if I don't run as hard as I have been (which resulted in a 7% increase in FEV1 over the past couple of years), I may loose some of what I've gained. I know its kinda silly, but I actually didn't gain the FEV1 when I just did elliptical. So, I do worry very much that I will slide backward if I slow anything down. I know I'm probably just really paranoid. And, I feel GOOD that I was able to keep my O2 sats and HR (though still a bit high) at a decent level with the elliptical. Plus, I really felt it helped me cough more out, which is odd, cause like I said, running NEVER has this effect. *** sigh *** Sorry if I'm a broken record. I love that people are giving their thoughts on this. It really does help me look at the different perspectives while I impatiently wait to hear from the doc! LOL
 
L

ladybug

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kybert</b></i>

i still feel you are working out way too hard. exercise is great and all but pushing yourself too hard is pointless. yes, your body will still benefit from exercise if you slow down. it seems as if you are scared to slow down. why? is it because you think your lung function will drop? because it shouldnt as long as you still do moderate exercise.



but either way, using oxygen or slowing down, it will acheive the same result and thats keeping your o2 up. so go with whatever, but make sure you do something about it!</end quote></div>

Kylie:

Yes, I'm very afraid that if I don't run as hard as I have been (which resulted in a 7% increase in FEV1 over the past couple of years), I may loose some of what I've gained. I know its kinda silly, but I actually didn't gain the FEV1 when I just did elliptical. So, I do worry very much that I will slide backward if I slow anything down. I know I'm probably just really paranoid. And, I feel GOOD that I was able to keep my O2 sats and HR (though still a bit high) at a decent level with the elliptical. Plus, I really felt it helped me cough more out, which is odd, cause like I said, running NEVER has this effect. *** sigh *** Sorry if I'm a broken record. I love that people are giving their thoughts on this. It really does help me look at the different perspectives while I impatiently wait to hear from the doc! LOL
 
L

ladybug

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kybert</b></i>

i still feel you are working out way too hard. exercise is great and all but pushing yourself too hard is pointless. yes, your body will still benefit from exercise if you slow down. it seems as if you are scared to slow down. why? is it because you think your lung function will drop? because it shouldnt as long as you still do moderate exercise.



but either way, using oxygen or slowing down, it will acheive the same result and thats keeping your o2 up. so go with whatever, but make sure you do something about it!</end quote></div>

Kylie:

Yes, I'm very afraid that if I don't run as hard as I have been (which resulted in a 7% increase in FEV1 over the past couple of years), I may loose some of what I've gained. I know its kinda silly, but I actually didn't gain the FEV1 when I just did elliptical. So, I do worry very much that I will slide backward if I slow anything down. I know I'm probably just really paranoid. And, I feel GOOD that I was able to keep my O2 sats and HR (though still a bit high) at a decent level with the elliptical. Plus, I really felt it helped me cough more out, which is odd, cause like I said, running NEVER has this effect. *** sigh *** Sorry if I'm a broken record. I love that people are giving their thoughts on this. It really does help me look at the different perspectives while I impatiently wait to hear from the doc! LOL
 
L

ladybug

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kybert</b></i>

i still feel you are working out way too hard. exercise is great and all but pushing yourself too hard is pointless. yes, your body will still benefit from exercise if you slow down. it seems as if you are scared to slow down. why? is it because you think your lung function will drop? because it shouldnt as long as you still do moderate exercise.



but either way, using oxygen or slowing down, it will acheive the same result and thats keeping your o2 up. so go with whatever, but make sure you do something about it!</end quote></div>

Kylie:

Yes, I'm very afraid that if I don't run as hard as I have been (which resulted in a 7% increase in FEV1 over the past couple of years), I may loose some of what I've gained. I know its kinda silly, but I actually didn't gain the FEV1 when I just did elliptical. So, I do worry very much that I will slide backward if I slow anything down. I know I'm probably just really paranoid. And, I feel GOOD that I was able to keep my O2 sats and HR (though still a bit high) at a decent level with the elliptical. Plus, I really felt it helped me cough more out, which is odd, cause like I said, running NEVER has this effect. *** sigh *** Sorry if I'm a broken record. I love that people are giving their thoughts on this. It really does help me look at the different perspectives while I impatiently wait to hear from the doc! LOL
 
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