Risky or not?

[Shine]

Hi,

Sorry I haven't been on this forum for quite a long time and for not keeping people updated on how things are going with our fertility journey.
I've just been quite depressed over last 7 months as my dad passed away last August and I'm having a hard time coming to term with it.

So anyway... here's my situation.

I'm a 28yrs old female w cf gene DDF05, pancreatic insufficient and have been married for just over 4 years now.

Since we got married, the doc gave me the go ahead and said I was fine to become pregnant. But since that time, I haven't been able to conceive.

So about a 2 years ago we were seen by a fertility specialist.
Both of us went through the necessary testing to see if both or one of us was infertile.
The test results came back fine.
The report said no obvious signs of infertility and at the end of it all it was revealed that we were an 'unexplained fertility case'.
That's when our fertility specialist recommended we go for the IUI or IVF.

Currently I'm deciding whether or not to going through with 3 -4 cycles of IUI.
but I have a concerns that my health might get worse if I was to become pregnant.

My lung function can fluctuate anywhere between 47% to the low 50s.

So my question is...
Is it risky (health wise) to be pregnant between a lung function of 47 - 50% fev1?

The reason I ask, is that I've read a few of your comments on this subject that a cfer who has a lung function lower than 60% may be risky for them.
Is this true?

My doc thinks I'm perfectly fine to go ahead with the process regardless of my lung function level.
I'm so confused with what is the right decision in this case. Should I risk it or accept the fact that maybe it's too late?
I really want to become a mother but I feel time is running out! Help!

I would really appreciate your thoughts on this.
Thanks in advance

Sarah

 

[Shine]

Hi,

Sorry I haven't been on this forum for quite a long time and for not keeping people updated on how things are going with our fertility journey.
I've just been quite depressed over last 7 months as my dad passed away last August and I'm having a hard time coming to term with it.

So anyway... here's my situation.

I'm a 28yrs old female w cf gene DDF05, pancreatic insufficient and have been married for just over 4 years now.

Since we got married, the doc gave me the go ahead and said I was fine to become pregnant. But since that time, I haven't been able to conceive.

So about a 2 years ago we were seen by a fertility specialist.
Both of us went through the necessary testing to see if both or one of us was infertile.
The test results came back fine.
The report said no obvious signs of infertility and at the end of it all it was revealed that we were an 'unexplained fertility case'.
That's when our fertility specialist recommended we go for the IUI or IVF.

Currently I'm deciding whether or not to going through with 3 -4 cycles of IUI.
but I have a concerns that my health might get worse if I was to become pregnant.

My lung function can fluctuate anywhere between 47% to the low 50s.

So my question is...
Is it risky (health wise) to be pregnant between a lung function of 47 - 50% fev1?

The reason I ask, is that I've read a few of your comments on this subject that a cfer who has a lung function lower than 60% may be risky for them.
Is this true?

My doc thinks I'm perfectly fine to go ahead with the process regardless of my lung function level.
I'm so confused with what is the right decision in this case. Should I risk it or accept the fact that maybe it's too late?
I really want to become a mother but I feel time is running out! Help!

I would really appreciate your thoughts on this.
Thanks in advance

Sarah

 

[Shine]

Hi,

Sorry I haven't been on this forum for quite a long time and for not keeping people updated on how things are going with our fertility journey.
I've just been quite depressed over last 7 months as my dad passed away last August and I'm having a hard time coming to term with it.

So anyway... here's my situation.

I'm a 28yrs old female w cf gene DDF05, pancreatic insufficient and have been married for just over 4 years now.

Since we got married, the doc gave me the go ahead and said I was fine to become pregnant. But since that time, I haven't been able to conceive.

So about a 2 years ago we were seen by a fertility specialist.
Both of us went through the necessary testing to see if both or one of us was infertile.
The test results came back fine.
The report said no obvious signs of infertility and at the end of it all it was revealed that we were an 'unexplained fertility case'.
That's when our fertility specialist recommended we go for the IUI or IVF.

Currently I'm deciding whether or not to going through with 3 -4 cycles of IUI.
but I have a concerns that my health might get worse if I was to become pregnant.

My lung function can fluctuate anywhere between 47% to the low 50s.

So my question is...
Is it risky (health wise) to be pregnant between a lung function of 47 - 50% fev1?

The reason I ask, is that I've read a few of your comments on this subject that a cfer who has a lung function lower than 60% may be risky for them.
Is this true?

My doc thinks I'm perfectly fine to go ahead with the process regardless of my lung function level.
I'm so confused with what is the right decision in this case. Should I risk it or accept the fact that maybe it's too late?
I really want to become a mother but I feel time is running out! Help!

I would really appreciate your thoughts on this.
Thanks in advance

Sarah

 

[Shine]

Hi,

Sorry I haven't been on this forum for quite a long time and for not keeping people updated on how things are going with our fertility journey.
I've just been quite depressed over last 7 months as my dad passed away last August and I'm having a hard time coming to term with it.

So anyway... here's my situation.

I'm a 28yrs old female w cf gene DDF05, pancreatic insufficient and have been married for just over 4 years now.

Since we got married, the doc gave me the go ahead and said I was fine to become pregnant. But since that time, I haven't been able to conceive.

So about a 2 years ago we were seen by a fertility specialist.
Both of us went through the necessary testing to see if both or one of us was infertile.
The test results came back fine.
The report said no obvious signs of infertility and at the end of it all it was revealed that we were an 'unexplained fertility case'.
That's when our fertility specialist recommended we go for the IUI or IVF.

Currently I'm deciding whether or not to going through with 3 -4 cycles of IUI.
but I have a concerns that my health might get worse if I was to become pregnant.

My lung function can fluctuate anywhere between 47% to the low 50s.

So my question is...
Is it risky (health wise) to be pregnant between a lung function of 47 - 50% fev1?

The reason I ask, is that I've read a few of your comments on this subject that a cfer who has a lung function lower than 60% may be risky for them.
Is this true?

My doc thinks I'm perfectly fine to go ahead with the process regardless of my lung function level.
I'm so confused with what is the right decision in this case. Should I risk it or accept the fact that maybe it's too late?
I really want to become a mother but I feel time is running out! Help!

I would really appreciate your thoughts on this.
Thanks in advance

Sarah

 

[Shine]

Hi,
<br />
<br />Sorry I haven't been on this forum for quite a long time and for not keeping people updated on how things are going with our fertility journey.
<br />I've just been quite depressed over last 7 months as my dad passed away last August and I'm having a hard time coming to term with it.
<br />
<br />So anyway... here's my situation.
<br />
<br />I'm a 28yrs old female w cf gene DDF05, pancreatic insufficient and have been married for just over 4 years now.
<br />
<br />Since we got married, the doc gave me the go ahead and said I was fine to become pregnant. But since that time, I haven't been able to conceive.
<br />
<br />So about a 2 years ago we were seen by a fertility specialist.
<br />Both of us went through the necessary testing to see if both or one of us was infertile.
<br />The test results came back fine.
<br />The report said no obvious signs of infertility and at the end of it all it was revealed that we were an 'unexplained fertility case'.
<br />That's when our fertility specialist recommended we go for the IUI or IVF.
<br />
<br />Currently I'm deciding whether or not to going through with 3 -4 cycles of IUI.
<br />but I have a concerns that my health might get worse if I was to become pregnant.
<br />
<br />My lung function can fluctuate anywhere between 47% to the low 50s.
<br />
<br />So my question is...
<br />Is it risky (health wise) to be pregnant between a lung function of 47 - 50% fev1?
<br />
<br />The reason I ask, is that I've read a few of your comments on this subject that a cfer who has a lung function lower than 60% may be risky for them.
<br />Is this true?
<br />
<br />My doc thinks I'm perfectly fine to go ahead with the process regardless of my lung function level.
<br />I'm so confused with what is the right decision in this case. Should I risk it or accept the fact that maybe it's too late?
<br />I really want to become a mother but I feel time is running out! Help!
<br />
<br />I would really appreciate your thoughts on this.
<br />Thanks in advance
<br />
<br />Sarah

 

[Shine]

Also if there is any info/research out there what percentage your fev1 should be concerning pregnancy. This would also be much appreciated.

 

[Shine]

Also if there is any info/research out there what percentage your fev1 should be concerning pregnancy. This would also be much appreciated.

 

[Shine]

Also if there is any info/research out there what percentage your fev1 should be concerning pregnancy. This would also be much appreciated.

 

[Shine]

Also if there is any info/research out there what percentage your fev1 should be concerning pregnancy. This would also be much appreciated.

 

[Shine]

Also if there is any info/research out there what percentage your fev1 should be concerning pregnancy. This would also be much appreciated.

 

[NYCLawGirl]

Hi shine, I'm not the best person to answer this b/c I'm not trying to conceive and I've never been pregnant, so hopefully some of our many CF moms will chime in as well. I will say that I once spoke with my doctor about the issue and was told that all CF pregnancies are "high risk" in the sense that they may have additional complications or health issues, but that the "absolute cutoff" (for this particular doc, of course, other doctors may have different opinions) was 40% FEV1. I was also told that he would have "concerns" about anyone with below 50% FEV1.

Lots of factors besides PFTs play into health, so if your doctor isn't concerned it may be b/c she or he thinks you are otherwise pretty healthy, don't have a history of terrible infections, etc. I guess only she or he can answer the question of why s/he's giving you the green light.

I hope you get some answers! Also, so sorry to hear about your dad. Your family is in my thoughts for sure.

 

[NYCLawGirl]

Hi shine, I'm not the best person to answer this b/c I'm not trying to conceive and I've never been pregnant, so hopefully some of our many CF moms will chime in as well. I will say that I once spoke with my doctor about the issue and was told that all CF pregnancies are "high risk" in the sense that they may have additional complications or health issues, but that the "absolute cutoff" (for this particular doc, of course, other doctors may have different opinions) was 40% FEV1. I was also told that he would have "concerns" about anyone with below 50% FEV1.

Lots of factors besides PFTs play into health, so if your doctor isn't concerned it may be b/c she or he thinks you are otherwise pretty healthy, don't have a history of terrible infections, etc. I guess only she or he can answer the question of why s/he's giving you the green light.

I hope you get some answers! Also, so sorry to hear about your dad. Your family is in my thoughts for sure.

 

[NYCLawGirl]

Hi shine, I'm not the best person to answer this b/c I'm not trying to conceive and I've never been pregnant, so hopefully some of our many CF moms will chime in as well. I will say that I once spoke with my doctor about the issue and was told that all CF pregnancies are "high risk" in the sense that they may have additional complications or health issues, but that the "absolute cutoff" (for this particular doc, of course, other doctors may have different opinions) was 40% FEV1. I was also told that he would have "concerns" about anyone with below 50% FEV1.

Lots of factors besides PFTs play into health, so if your doctor isn't concerned it may be b/c she or he thinks you are otherwise pretty healthy, don't have a history of terrible infections, etc. I guess only she or he can answer the question of why s/he's giving you the green light.

I hope you get some answers! Also, so sorry to hear about your dad. Your family is in my thoughts for sure.

 

[NYCLawGirl]

Hi shine, I'm not the best person to answer this b/c I'm not trying to conceive and I've never been pregnant, so hopefully some of our many CF moms will chime in as well. I will say that I once spoke with my doctor about the issue and was told that all CF pregnancies are "high risk" in the sense that they may have additional complications or health issues, but that the "absolute cutoff" (for this particular doc, of course, other doctors may have different opinions) was 40% FEV1. I was also told that he would have "concerns" about anyone with below 50% FEV1.

Lots of factors besides PFTs play into health, so if your doctor isn't concerned it may be b/c she or he thinks you are otherwise pretty healthy, don't have a history of terrible infections, etc. I guess only she or he can answer the question of why s/he's giving you the green light.

I hope you get some answers! Also, so sorry to hear about your dad. Your family is in my thoughts for sure.

 

[NYCLawGirl]

Hi shine, I'm not the best person to answer this b/c I'm not trying to conceive and I've never been pregnant, so hopefully some of our many CF moms will chime in as well. I will say that I once spoke with my doctor about the issue and was told that all CF pregnancies are "high risk" in the sense that they may have additional complications or health issues, but that the "absolute cutoff" (for this particular doc, of course, other doctors may have different opinions) was 40% FEV1. I was also told that he would have "concerns" about anyone with below 50% FEV1.
<br />
<br />Lots of factors besides PFTs play into health, so if your doctor isn't concerned it may be b/c she or he thinks you are otherwise pretty healthy, don't have a history of terrible infections, etc. I guess only she or he can answer the question of why s/he's giving you the green light.
<br />
<br />I hope you get some answers! Also, so sorry to hear about your dad. Your family is in my thoughts for sure.

 

[jennylivingston]

I was told by an OB specializing in high-risk pregnancies that her "magic number" was 70%, but my doctor at the CF clinic strongly disagreed. She seemed to think there were other factors that played a bigger role in pregnancy than any specific number.

For me personally (which is not to say it would be the case for everyone) my lung function dropped a LITTLE during pregnancy, but it was the demands of taking care of a newborn (among other things) that really took a toll on my body. I spent most of my life with an FEV1 in the high 90's, but by the time my baby was 3 months old I was at 27%. I'm doing A LOT BETTER now, but I'm still nowhere near that 90%...

There are a lot of things to think about when it comes to such a big decision. Best of luck in your research and decision making! <img src="i/expressions/face-icon-small-wink.gif" border="0">

 

[jennylivingston]

I was told by an OB specializing in high-risk pregnancies that her "magic number" was 70%, but my doctor at the CF clinic strongly disagreed. She seemed to think there were other factors that played a bigger role in pregnancy than any specific number.

For me personally (which is not to say it would be the case for everyone) my lung function dropped a LITTLE during pregnancy, but it was the demands of taking care of a newborn (among other things) that really took a toll on my body. I spent most of my life with an FEV1 in the high 90's, but by the time my baby was 3 months old I was at 27%. I'm doing A LOT BETTER now, but I'm still nowhere near that 90%...

There are a lot of things to think about when it comes to such a big decision. Best of luck in your research and decision making! <img src="i/expressions/face-icon-small-wink.gif" border="0">

 

[jennylivingston]

I was told by an OB specializing in high-risk pregnancies that her "magic number" was 70%, but my doctor at the CF clinic strongly disagreed. She seemed to think there were other factors that played a bigger role in pregnancy than any specific number.

For me personally (which is not to say it would be the case for everyone) my lung function dropped a LITTLE during pregnancy, but it was the demands of taking care of a newborn (among other things) that really took a toll on my body. I spent most of my life with an FEV1 in the high 90's, but by the time my baby was 3 months old I was at 27%. I'm doing A LOT BETTER now, but I'm still nowhere near that 90%...

There are a lot of things to think about when it comes to such a big decision. Best of luck in your research and decision making! <img src="i/expressions/face-icon-small-wink.gif" border="0">

 

[jennylivingston]

I was told by an OB specializing in high-risk pregnancies that her "magic number" was 70%, but my doctor at the CF clinic strongly disagreed. She seemed to think there were other factors that played a bigger role in pregnancy than any specific number.

For me personally (which is not to say it would be the case for everyone) my lung function dropped a LITTLE during pregnancy, but it was the demands of taking care of a newborn (among other things) that really took a toll on my body. I spent most of my life with an FEV1 in the high 90's, but by the time my baby was 3 months old I was at 27%. I'm doing A LOT BETTER now, but I'm still nowhere near that 90%...

There are a lot of things to think about when it comes to such a big decision. Best of luck in your research and decision making! <img src="i/expressions/face-icon-small-wink.gif" border="0">

 

[jennylivingston]

I was told by an OB specializing in high-risk pregnancies that her "magic number" was 70%, but my doctor at the CF clinic strongly disagreed. She seemed to think there were other factors that played a bigger role in pregnancy than any specific number.
<br />
<br />For me personally (which is not to say it would be the case for everyone) my lung function dropped a LITTLE during pregnancy, but it was the demands of taking care of a newborn (among other things) that really took a toll on my body. I spent most of my life with an FEV1 in the high 90's, but by the time my baby was 3 months old I was at 27%. I'm doing A LOT BETTER now, but I'm still nowhere near that 90%...
<br />
<br />There are a lot of things to think about when it comes to such a big decision. Best of luck in your research and decision making! <img src="i/expressions/face-icon-small-wink.gif" border="0">