Round one with facial sauna/inhaler and oils.

Faust

New member
Got all but one of my oils in, still waiting on the clove oil.

Got my facial sauna/inhaler a few days ago. Added the "15 minutes" level of distilled water, then added 3 drops of cinnamon oil (the ceylon bark oil), red thyme oil, and oregano oil. First impression: I think I added too much cinnamon oil, that stuff is GNARLY to inhale. Had to back off a bit from the inhaler at first. Gonna do 1 drop of each to start. I coughed up a ton of goo, and blew my nose like mad. I will keep peeps informed how it goes.
 

nickandlivsmom

New member
SeanDavis
I've been thinking about trying the oregano oil........what do you suggest I buy, the essential oil or pills? I think you said the oil works better??? So, if I start the oil, do I drop it on my tounge or nebulize it? If nebulize, before or after vest and tobi and morning or night? Sorry about all the questions- I'm kind of new to the herbal remedies! Thanks for your help.<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

anonymous

New member
Hehe, yep it can be pretty potent to inhale - did you add Oregano Oil to it? I find one drop of each oil is all i can handle and even that took a bit of getting used to. Unfortunately I seem unable to find decent Oregano Oil in New Zealand so am in the process of ordering some from the US. The Thyme oil I use is clear, so is probably not the red thyme you talk about although I will need to read the back of the bottle to be sure.
Keep it up Sean and keep us/me posted on your progress.
Cheers Kat (37 with CF, NZ)
 

EB24

New member
Now I think SeanDavis will disagree with me, but I take 2 of the Oregenol P73 Super Strength pills in the am, and 2 in the pm. They have been kicking some major mucus butt. So that's my opinion.
 

Faust

New member
<blockquote>Quote<br><hr><i>Originally posted by: <b>EB24</b></i><br>Now I think SeanDavis will disagree with me, but I take 2 of the Oregenol P73 Super Strength pills in the am, and 2 in the pm. They have been kicking some major mucus butt. So that's my opinion.<hr></blockquote>


No I don't disagree with you...What ever works good for you, is what you should do. All of us are different, and have vastly different bugs/strains of bugs/severity of CF. I just want people with CF to get better period, regardless how they do it, and for us all to share our information. As per your question directed to me, I personally use both the oil and the capsules. I'm a very healthy cystic in general, so maybe another healthy cystic could do both also. I general advocate the oil because it can be applied in other ways, unlike the pills that are just meant to be swallowed. Unless of course you wanted to break open the pills and try to extract the oil that way or something.


My personal regimen was to wake up and do 3-4 drops of the oil in my nebuliser with albuterol, then my collistin neb. Then take my 2 capsules with a meal. And then at night put 3 drops under my tongue. After a while I ran out of the pills, and felt like I had a decent foothold established, so i chilled out on the pills...just recently I reordered the super strength caps and am now taking one of those a day cause it's 300% stronger than the reg caps.


Right now im planning on doing my water soluble (well tomorrow starts that) oil of oregano in albuterol neb in the morning, then an oregano oil cap, then 1 drop of each oregano, clove (when it arrives), cinnamon, and red thyme oil in my facial sauna/inhaler for 10-15 mins, taking deep breaths through my nose and mouth. Then followed with 3 drops of oregano oil under the tongue at night before bed.

So far the only down side i've seen to essential oils, and especially the ones we are discussing for CF use, is that they seem to all generally be antiplatelet substances. Meaning they will "thin" your blood. So the more you take, the more your blood will thin. "Normal" doseage (last I read was a couple drops under the tongue when you wake, and then a couple drops under tongue when you go to bed) equated to the same blood thinning abilities that aspirin gave. I also take vitamin K supplement to help lower that effect, but not 100% sure if it counters it any.


Essential oils are amazing substances for us cystics, and people in general. The thing is, you need to find out through research and experimentation, what oils, what doseage of oils, and what delivery method of those oils work best for you. Where someone might have amazing results with just the capsules, someone else might only get good results from inhaling the oil via neb/steam inhaler.

Some essential oils do carry some inherant dangers also, but usually those dangers are only evident when taking very large doses of the oils. An example of that is Tea Tree oil. It's an amazing antiseptic, but if you take a few teaspoons of the oil and swallow it, you can develope weird mind symptoms like confusion, etc. If you take even more, you could go into a coma. By even more I mean drinking a cup or two of the stuff, which isn't how we use the substances. I think the safest overall way of delivery, regardless what oil you are using (aside from oregano cause that seems the overall safest in any delivery), would be the facial sauna/inhaler route. It's pretty close to the original suggestion in aromatherapy of just breathing the fumes, but delivered via steam, and fairly diluted due to ratio of water<img src="i/expressions/face-icon-small-blush.gif" border="0">il.


As I've said before, I had to find an alternative to the sick/nuke/sick/resistant straint/sick/nuke, because it wasn't working for me anymore. I want to keep antibiotics as a last resort, and use oils to keep my lungs healthy between nuke sessions. Do your own research into the different helpful oils (many out there, but there are some with more outright antiseptic/anti cf bug properties), start small with one or more of them and experiment with the delivery method and the doseage. Hopefully, eventually you will find that "sweet spot" you are looking for.
 

Ender

New member
Hahaha, awesome Sean, awesome. I will see how it goes for my robust little guinae pig, and as soon as I get a job hahaha, i will look into the facial sauna and other oils.

I recently got sick. Like, pretty sick...and was kinda annoyed, seeing as the treatments i have been doing. However, after only 3 days of feeling like this, i am getting better, which is unheard of. Usually when i get sick the way I feel i am now, I'm am finished for 2 weeks.
A couple of things i want to do different. I want to start ingesting the oregano oil as well in pill form...and see how that goes. As well, get some monolaurin, as I've stated many times, to coincide with the oregano oil.

Before all this though, I want to do a huge nuke with antibiotics to get rid of this &^&*^*&^* mrsa. It's killing me, and I can't seem to get rid of it. I don't culture pseudo, so if i can eliminate it, and then start a regimen of: Oregano oil, monolaurin, gsh, curcumin, hypteronic saline, my inhaler, tons of exercise and zithromax to keep the levels down...I dunno, but I think it should kick anythings ass.

I have a doc appointment next tues. We'll see what they can give me. Without this site and you guys, I would probably be feeling quite hopeless, cause the docs just are aggresive enough, and they don't seem to have many answers other than..."Don't worry" and wait for me to get sick. But man, I really truly believe that it's not the infections that get us, it's the ongoing, untreated bugs that passively reside in our lungs that slowly, but surely do most of the damage. It's the only reason that can explain why I have been getting worse, cause i hardly get sick. Yet, they do nothing......

So fustrating sometimes...

No worries.....it will all get worked out.

Anyways, cheers. Here's to us, and trying to control our own destinies.
Kiel
 

Faust

New member
About to start round 3 in a second (what is usually my morning thing, but I had stuff to do). My second round with the oils and inhaler was similarly strong, but I suspect it's the cinnamon oil. Yes it's the same oil that we used to soak our toothpicks in when we were in school, and it could blister your mouth/lips if left in one spot too long, so it's a very potent oil. I might just use one drop of the cinnamon oil in the morning, and then not add to it at night. Cause while it seems to really help me get the gunk out of both my sinuses and lungs, man, that cinnamon oil is rough. I'll keep trudging on though. The cinnamon oil itself (the good ceylon kind from the bark) is good to eat though (dejavu of the cinnamon toothpick days in grade school), ill sit there gaming and put a small amount on my finger and touch it to my tounge....Very strong, but quite yummy.
 

Faust

New member
I'm glad to hear man. If I die tomorrow i'll know that i've passed along the word to quite a few cf's about oregano oil, and helped them.


Heres the model I got, i got it off target.com



http://www.target.com/gp/detail.html/sr=2-1/qid=1137034034/ref=sr_2_1/601-1714783-0516958?%5Fencoding=UTF8&asin=B00009KGGG


If you get a different one, try and make sure it has an inhaler attachment for it. You could probably get by fine with just the regular facial attachment, but the inhaler is useful. If cinnamon oil is too harsh for ya, you can always just neb the oregano, thyme, and sage. Ill do that tonight and huff like mad on it.


If the above link doesnt work, just go to www.target.com and type in "facial", you will see like 3 different models, the one I bought was the homedics facial spa sauna and inhaler.
 

anonymous

New member
SeanDavis,

I was wondering where did you first hear about the oregano oil? This was probably covered somewhere else, but sorry.
Do you reccomend any site, I can read more about it? Have there been any studies on it yet?
Thanks,
Christian
 

Faust

New member
<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i><br>SeanDavis,



I was wondering where did you first hear about the oregano oil? This was probably covered somewhere else, but sorry.

Do you reccomend any site, I can read more about it? Have there been any studies on it yet?

Thanks,

Christian<hr></blockquote>

Oddly enough, it was from my sister. She is a massive hippy/earthy chick and saw that I was despondent with regards to how my normal treatment for CF wasn't really working anymore, and I was getting worse. She saw something somewhere about how oil of oregano did this and did that, and she related it to me. I thought it was too good to be true, but i humored her and looked into it myself. The more I tried to disprove it as BS, the more I saw it wasn't BS, and held very strong promise for cystic fibrosis patients, to keep their lung/body bugs down, and hopefully at the least not hospitalized nearly as much. I'm a pretty thorough person when it comes to something I am interested in, so basically for the last several months i've been doing nothing but researching oregano oil, and other essential oils for the possible treatment of cystic fibrosis. What i've found is pretty amazing, and has had amazing positive results for myself, and others that I know, even those without CF. I knew before that cinnamon oil, thyme oil, clove oil, and other oils were amazing antimicrobials (both bacteria and viruses, each oil having a different potency to different things), but some are a tad more "questionable" with regards to internal intake, so I was a tad stymied on what to take and how before that other person on here discussed how they use the facial steamer for their delivery.


The use of oregano oil has also fully eradicated my gout that has plagued me for quite a while before I started taking it. I used to also have other various joint pain throughout my body, which I took as a sign of just getting older, but that is now gone also. My skin has cleared up by leaps and bounds (used to get fairly bad back acne, probably partially due to bacteria in my system). My blood pressure has dropped a decent amount. With just oregano oil being used before i started the sauna inahler treatment with multi oils, my CF symptoms were pretty much eradicated (hardly any congestion - pretty much crystal clear, change of color in mucous - from thick green to light green/clear, and I know for sure that my lung capacity has increased).


After my third treatment with the inhaled multi oils tonight, i got a ton of snot out of my nose, and coughed up some gunk (though not a large amount). After a while, It felt like my treatment had fully broken up the stuff in my lungs to an almost pure fluid form, as in nearly like water. I was tempted to use my vest to get EVERYTHING out of my lungs, but alas i'm a pretty lazy person, especially now. We all know our bodies, it felt like I had some old remnants still in my bronchials that used to be thick/hard and weren't moving at all, and then after the treatment they were for sure moving.


Anyways enough rambling, sorry if you have heard variations on this before from me, but im tired and just explaining it again to someone who apparently didn't get the info from any of the other posts.

As for your request for research information, there is a TON of it regarding oil of oregano, monolaurin, and other essential oils for health benefit all over the internet. Ill link one of the good scientific research databases that I used while researching the substance, and you can go from there.

http://www.ingentaconnect.com/

Go there and just type in oregano oil and have electronic content checked, you will get 3-4 pages of 57 hits each relating to oregano oil and other essential oils with regards to their findings in scientific research. Google also can find a tremendous amount of information on oregano and other essential oils and their role in medicinal applications for CF. In the very end, i'm lead to believe that the proper selection of oil(s), doseage, and delivery of those oils with possible other supplements like monolaurin, can increase both quality and longevity of life in CF patients.


As i've said countless times in the past though, don't take my word for anything. Do your own research, and run your findings past your doctor/pulmonologist, and then make the decision to see if it helps you or not. So far nothing is 100%, but from what i've been told by other people using the substance from many different sources, all of them have had positive results except one person that I can recall (reports of bad headaches, from a post transplant CF patient using the oil), and out of those positive results, quite a few have reported "amazing results".

Now all I want is to try and get actual clinical trials for oregano oil (and possibly other essential oils and combinations of those) and CF patients, but i'm pretty sure that will be a cold day in hell because it requires quite a bit of fundind, and that funding usually comes from pharmaceutical companies looking to $$$$ in on the findings, and there just isn't any money in something thats natural that can be bought off the internet for as low as 15-25 dollars, as opposed to the massive prices they can get off of other medications to treat our symptoms.
 

LouLou

New member
Sean,

I'm interested in giving oils a try. Could you tell what I need to buy and where you get your oils from (I'm in the US). What is the procedure with the items? Also, can you suggest a certain brand of facial sauna?

Has anyone tried this out and had adverse reactions? or no reaction?
 

littledebbie

New member
Oregano guru,

Ughh, I cannot get anyone on the phone to buy the H2O orgeno stuff from the p-73 website, any suggestions for getting them on the line?
 

Faust

New member
<blockquote>Quote<br><hr><i>Originally posted by: <b>LouLou</b></i><br>Sean,



I'm interested in giving oils a try. Could you tell what I need to buy and where you get your oils from (I'm in the US). What is the procedure with the items? Also, can you suggest a certain brand of facial sauna?



Has anyone tried this out and had adverse reactions? or no reaction?<hr></blockquote>

I didn't start the facial sauna + essential oils thing, someone else on here did. Forget their name, but search for cepacia and it's in one of those threads, and they detail what they do.

Either that or read the attachment I have enclosed. You will need adobe reader and either winzip or winrar to extract the file. (if the attachment they sent isn't too big).


Yeah sorry it was too big.

Here is the thread where the person posted about what they do with a facial sauna and what oils they use:
http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=5129&FTVAR_MSGDBTABLE=




@Littledebbie: As for how to get it, just call their contact # during regular business hours, and tell the person on the phone you are looking to purchase the H2 Orega product directly from them since you couldn't find it anywhere on the net. They will be happy to sell you some, as they did me.

@whoever else asked about what facial sauna to use: I looked around some, but just went to www.target.com and put in facial as search criteria, and I bought the middle product from homedics. It has a cool inhaler attachment, but any brand inhaler will do, especially one with an inhaler attachment.
 
S

skh

Guest
I too am going to check into the facial sauna for my daughter with CF as well as my daughter who has always had sinus problems. This sounds like something they would both benefit from.

Sean, I want to thank you for the information that you have provided on the oregano. I am hoping that my14 yr. old daughter with CF will be receptive to trying something new. She has been doing great for the past year but I would love to find something that help with chronic sinus problems.
 

Faust

New member
<blockquote>Quote<br><hr><i>Originally posted by: <b>skh</b></i><br>I too am going to check into the facial sauna for my daughter with CF as well as my daughter who has always had sinus problems. This sounds like something they would both benefit from.



Sean, I want to thank you for the information that you have provided on the oregano. I am hoping that my14 yr. old daughter with CF will be receptive to trying something new. She has been doing great for the past year but I would love to find something that help with chronic sinus problems.<hr></blockquote>


No prob at all. If she has bad sinus probs, start doing research into essential oils, some out there (like the combinations in the other persons sauna info post) are awesome for sinus problems. Oil of oregano is great also. Hope she gets better. As the other person noted, with the proper use and proper types of essential oils, you can get rid of pseudomonas.
 

LouLou

New member
Are you newbies to the sauna/essential oils process sticking with it? Do you feel it has more of an effect than the oil of oregano by itself? I'm looking for more feedback. I have the sauna and am getting ready to order the oils.
 

LouLou

New member
Are you newbies to the sauna/essential oils process sticking with it? Do you feel it has more of an effect than the oil of oregano by itself? I'm looking for more feedback. I have the sauna and am getting ready to order the oils.
 
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