School Attendance

hope0508

New member
I have a family memeber that is in 3rd grade and just started receiving treatment for CF. She had no signs or symptons until earlier this year. Does having CF give the child the right not to attend school but still pass? My niece only attends school maybe two days a week but her mother thinks that because she has CF she automatcially will move to the next grade. Can anyone give me some advise on how this works? She is not missing because she is in the hospital just because she doesn't feel well, is tired or has a runny nose. It's not anything major like pneumonia, etc. Thank you.
 

hope0508

New member
I have a family memeber that is in 3rd grade and just started receiving treatment for CF. She had no signs or symptons until earlier this year. Does having CF give the child the right not to attend school but still pass? My niece only attends school maybe two days a week but her mother thinks that because she has CF she automatcially will move to the next grade. Can anyone give me some advise on how this works? She is not missing because she is in the hospital just because she doesn't feel well, is tired or has a runny nose. It's not anything major like pneumonia, etc. Thank you.
 

hope0508

New member
I have a family memeber that is in 3rd grade and just started receiving treatment for CF. She had no signs or symptons until earlier this year. Does having CF give the child the right not to attend school but still pass? My niece only attends school maybe two days a week but her mother thinks that because she has CF she automatcially will move to the next grade. Can anyone give me some advise on how this works? She is not missing because she is in the hospital just because she doesn't feel well, is tired or has a runny nose. It's not anything major like pneumonia, etc. Thank you.
 

hope0508

New member
I have a family memeber that is in 3rd grade and just started receiving treatment for CF. She had no signs or symptons until earlier this year. Does having CF give the child the right not to attend school but still pass? My niece only attends school maybe two days a week but her mother thinks that because she has CF she automatcially will move to the next grade. Can anyone give me some advise on how this works? She is not missing because she is in the hospital just because she doesn't feel well, is tired or has a runny nose. It's not anything major like pneumonia, etc. Thank you.
 

hope0508

New member
I have a family memeber that is in 3rd grade and just started receiving treatment for CF. She had no signs or symptons until earlier this year. Does having CF give the child the right not to attend school but still pass? My niece only attends school maybe two days a week but her mother thinks that because she has CF she automatcially will move to the next grade. Can anyone give me some advise on how this works? She is not missing because she is in the hospital just because she doesn't feel well, is tired or has a runny nose. It's not anything major like pneumonia, etc. Thank you.
 

Alexandria

New member
Hi my name is Alexandria and I have CF,

I have missed months and months of school in one year and I still am allowed to go to the next grade. Its a law for CF'ers bcs they cant hold you back if you miss tons of school if u have CF. No matter what the problem is about ur cf. I will even miss school bcs of a cough and my teachers and everyone understand so they dont count that against me.
Hopefully I helped some <img src="i/expressions/face-icon-small-confused.gif" border="0">
Alexandria
 

Alexandria

New member
Hi my name is Alexandria and I have CF,

I have missed months and months of school in one year and I still am allowed to go to the next grade. Its a law for CF'ers bcs they cant hold you back if you miss tons of school if u have CF. No matter what the problem is about ur cf. I will even miss school bcs of a cough and my teachers and everyone understand so they dont count that against me.
Hopefully I helped some <img src="i/expressions/face-icon-small-confused.gif" border="0">
Alexandria
 

Alexandria

New member
Hi my name is Alexandria and I have CF,

I have missed months and months of school in one year and I still am allowed to go to the next grade. Its a law for CF'ers bcs they cant hold you back if you miss tons of school if u have CF. No matter what the problem is about ur cf. I will even miss school bcs of a cough and my teachers and everyone understand so they dont count that against me.
Hopefully I helped some <img src="i/expressions/face-icon-small-confused.gif" border="0">
Alexandria
 

Alexandria

New member
Hi my name is Alexandria and I have CF,

I have missed months and months of school in one year and I still am allowed to go to the next grade. Its a law for CF'ers bcs they cant hold you back if you miss tons of school if u have CF. No matter what the problem is about ur cf. I will even miss school bcs of a cough and my teachers and everyone understand so they dont count that against me.
Hopefully I helped some <img src="i/expressions/face-icon-small-confused.gif" border="0">
Alexandria
 

Alexandria

New member
Hi my name is Alexandria and I have CF,
<br />
<br />I have missed months and months of school in one year and I still am allowed to go to the next grade. Its a law for CF'ers bcs they cant hold you back if you miss tons of school if u have CF. No matter what the problem is about ur cf. I will even miss school bcs of a cough and my teachers and everyone understand so they dont count that against me.
<br />Hopefully I helped some <img src="i/expressions/face-icon-small-confused.gif" border="0">
<br />Alexandria
 

pjspiegle

New member
I think it depends on what plan she has with the school and what the doctors say and the school itself. I do believe that she has to do the make-up work. I know that here in Denver they have tutors that work with the kids when they are in the hospital and some get them to help them at home. Others homeschool because it ends up being easier than fighting the schools and others do virtual school on the computer.
For us, mine is going to start in August on a reduced schedule, meaning he is going to do some of his classes at school and we are going to continue to homeschool some of his classes.
Bottom line, they still have to do the work to pass. It is also easier with what I think is called an IPR plan (something like that). They do not have to pass her on to the next grade if she does not have the work completed, on top of the fact that that would just be setting her up to fail without the proper foundations to build on.
Don't know if this helps or not, encourage her to make sure her daughter is doing the work and not to fall into the trap of being manipulated because she is feeling sorry for herself or her daughter with the new diagnosis. LOL
 

pjspiegle

New member
I think it depends on what plan she has with the school and what the doctors say and the school itself. I do believe that she has to do the make-up work. I know that here in Denver they have tutors that work with the kids when they are in the hospital and some get them to help them at home. Others homeschool because it ends up being easier than fighting the schools and others do virtual school on the computer.
For us, mine is going to start in August on a reduced schedule, meaning he is going to do some of his classes at school and we are going to continue to homeschool some of his classes.
Bottom line, they still have to do the work to pass. It is also easier with what I think is called an IPR plan (something like that). They do not have to pass her on to the next grade if she does not have the work completed, on top of the fact that that would just be setting her up to fail without the proper foundations to build on.
Don't know if this helps or not, encourage her to make sure her daughter is doing the work and not to fall into the trap of being manipulated because she is feeling sorry for herself or her daughter with the new diagnosis. LOL
 

pjspiegle

New member
I think it depends on what plan she has with the school and what the doctors say and the school itself. I do believe that she has to do the make-up work. I know that here in Denver they have tutors that work with the kids when they are in the hospital and some get them to help them at home. Others homeschool because it ends up being easier than fighting the schools and others do virtual school on the computer.
For us, mine is going to start in August on a reduced schedule, meaning he is going to do some of his classes at school and we are going to continue to homeschool some of his classes.
Bottom line, they still have to do the work to pass. It is also easier with what I think is called an IPR plan (something like that). They do not have to pass her on to the next grade if she does not have the work completed, on top of the fact that that would just be setting her up to fail without the proper foundations to build on.
Don't know if this helps or not, encourage her to make sure her daughter is doing the work and not to fall into the trap of being manipulated because she is feeling sorry for herself or her daughter with the new diagnosis. LOL
 

pjspiegle

New member
I think it depends on what plan she has with the school and what the doctors say and the school itself. I do believe that she has to do the make-up work. I know that here in Denver they have tutors that work with the kids when they are in the hospital and some get them to help them at home. Others homeschool because it ends up being easier than fighting the schools and others do virtual school on the computer.
For us, mine is going to start in August on a reduced schedule, meaning he is going to do some of his classes at school and we are going to continue to homeschool some of his classes.
Bottom line, they still have to do the work to pass. It is also easier with what I think is called an IPR plan (something like that). They do not have to pass her on to the next grade if she does not have the work completed, on top of the fact that that would just be setting her up to fail without the proper foundations to build on.
Don't know if this helps or not, encourage her to make sure her daughter is doing the work and not to fall into the trap of being manipulated because she is feeling sorry for herself or her daughter with the new diagnosis. LOL
 

pjspiegle

New member
I think it depends on what plan she has with the school and what the doctors say and the school itself. I do believe that she has to do the make-up work. I know that here in Denver they have tutors that work with the kids when they are in the hospital and some get them to help them at home. Others homeschool because it ends up being easier than fighting the schools and others do virtual school on the computer.
<br />For us, mine is going to start in August on a reduced schedule, meaning he is going to do some of his classes at school and we are going to continue to homeschool some of his classes.
<br />Bottom line, they still have to do the work to pass. It is also easier with what I think is called an IPR plan (something like that). They do not have to pass her on to the next grade if she does not have the work completed, on top of the fact that that would just be setting her up to fail without the proper foundations to build on.
<br />Don't know if this helps or not, encourage her to make sure her daughter is doing the work and not to fall into the trap of being manipulated because she is feeling sorry for herself or her daughter with the new diagnosis. LOL
 
T

TonyaH

Guest
Hi Hope,
We are dealing with attendance issues for the first time this year. My son is in fourth grade and has, up until about a year ago, had mostly digestive issues and has been able to attend school regularly. This year, however, his disease has become more respiratory and we have been in the hospital twice since November to try to maintain his high lung function. In November, he went to school with his picc line in place for two weeks after our admittance. This time, because of some bullying issues, it was not smart to send him to school with his picc line and I am home schooling him during these few weeks of iv meds. I tend to keep my children home sooner than most parents, simply because having Andrew, I am more aware of how common cold viruses can affect others. My children both do very well in school and I am a very involved Mom, so keeping them caught up on school curriculum is not a problem.

The issue is that most of the time, CFers do not "look" sick. When Andrew was beginning his most recent exacerbation, he was still going to school, running on the playground, participating in PE...but nobody knew that when he came home he was wiped out. He would hang out on the couch the rest of the afternoon. And when he did run around, his endurance was not nearly what it normally is. These are clues that school staff do not look for. They have 30 kids they are responsible for and Andrew being short of breath in the back of the classroom is not something they are going to notice right away. It is up to us as parents to catch all of these early signs of lung infection so we can get a jump on fighting it before it causes lung damage. That is our job. And it has to come before school attendance records.

As long as your niece stays caught up with her school work, absences should not affect her progress in school. If there are legitimate reasons why she should be home, then she should be home. A common cough to some could be a start of a lung infection for her. A day or two at home to lay low and stay away from a room full of infected kids could keep her from getting really sick.

I must also add that, as a parent, sometimes it is hard to make that call. Sometimes we will make good decisions, sometimes we will look back and wish we had thought through things a little more. But at the end of the day, we can only do our best. Sometimes that means keeping our eye on the big picture of maintaining lung health and realizing that a spelling test can be made up on Monday.
 
T

TonyaH

Guest
Hi Hope,
We are dealing with attendance issues for the first time this year. My son is in fourth grade and has, up until about a year ago, had mostly digestive issues and has been able to attend school regularly. This year, however, his disease has become more respiratory and we have been in the hospital twice since November to try to maintain his high lung function. In November, he went to school with his picc line in place for two weeks after our admittance. This time, because of some bullying issues, it was not smart to send him to school with his picc line and I am home schooling him during these few weeks of iv meds. I tend to keep my children home sooner than most parents, simply because having Andrew, I am more aware of how common cold viruses can affect others. My children both do very well in school and I am a very involved Mom, so keeping them caught up on school curriculum is not a problem.

The issue is that most of the time, CFers do not "look" sick. When Andrew was beginning his most recent exacerbation, he was still going to school, running on the playground, participating in PE...but nobody knew that when he came home he was wiped out. He would hang out on the couch the rest of the afternoon. And when he did run around, his endurance was not nearly what it normally is. These are clues that school staff do not look for. They have 30 kids they are responsible for and Andrew being short of breath in the back of the classroom is not something they are going to notice right away. It is up to us as parents to catch all of these early signs of lung infection so we can get a jump on fighting it before it causes lung damage. That is our job. And it has to come before school attendance records.

As long as your niece stays caught up with her school work, absences should not affect her progress in school. If there are legitimate reasons why she should be home, then she should be home. A common cough to some could be a start of a lung infection for her. A day or two at home to lay low and stay away from a room full of infected kids could keep her from getting really sick.

I must also add that, as a parent, sometimes it is hard to make that call. Sometimes we will make good decisions, sometimes we will look back and wish we had thought through things a little more. But at the end of the day, we can only do our best. Sometimes that means keeping our eye on the big picture of maintaining lung health and realizing that a spelling test can be made up on Monday.
 
T

TonyaH

Guest
Hi Hope,
We are dealing with attendance issues for the first time this year. My son is in fourth grade and has, up until about a year ago, had mostly digestive issues and has been able to attend school regularly. This year, however, his disease has become more respiratory and we have been in the hospital twice since November to try to maintain his high lung function. In November, he went to school with his picc line in place for two weeks after our admittance. This time, because of some bullying issues, it was not smart to send him to school with his picc line and I am home schooling him during these few weeks of iv meds. I tend to keep my children home sooner than most parents, simply because having Andrew, I am more aware of how common cold viruses can affect others. My children both do very well in school and I am a very involved Mom, so keeping them caught up on school curriculum is not a problem.

The issue is that most of the time, CFers do not "look" sick. When Andrew was beginning his most recent exacerbation, he was still going to school, running on the playground, participating in PE...but nobody knew that when he came home he was wiped out. He would hang out on the couch the rest of the afternoon. And when he did run around, his endurance was not nearly what it normally is. These are clues that school staff do not look for. They have 30 kids they are responsible for and Andrew being short of breath in the back of the classroom is not something they are going to notice right away. It is up to us as parents to catch all of these early signs of lung infection so we can get a jump on fighting it before it causes lung damage. That is our job. And it has to come before school attendance records.

As long as your niece stays caught up with her school work, absences should not affect her progress in school. If there are legitimate reasons why she should be home, then she should be home. A common cough to some could be a start of a lung infection for her. A day or two at home to lay low and stay away from a room full of infected kids could keep her from getting really sick.

I must also add that, as a parent, sometimes it is hard to make that call. Sometimes we will make good decisions, sometimes we will look back and wish we had thought through things a little more. But at the end of the day, we can only do our best. Sometimes that means keeping our eye on the big picture of maintaining lung health and realizing that a spelling test can be made up on Monday.
 
T

TonyaH

Guest
Hi Hope,
We are dealing with attendance issues for the first time this year. My son is in fourth grade and has, up until about a year ago, had mostly digestive issues and has been able to attend school regularly. This year, however, his disease has become more respiratory and we have been in the hospital twice since November to try to maintain his high lung function. In November, he went to school with his picc line in place for two weeks after our admittance. This time, because of some bullying issues, it was not smart to send him to school with his picc line and I am home schooling him during these few weeks of iv meds. I tend to keep my children home sooner than most parents, simply because having Andrew, I am more aware of how common cold viruses can affect others. My children both do very well in school and I am a very involved Mom, so keeping them caught up on school curriculum is not a problem.

The issue is that most of the time, CFers do not "look" sick. When Andrew was beginning his most recent exacerbation, he was still going to school, running on the playground, participating in PE...but nobody knew that when he came home he was wiped out. He would hang out on the couch the rest of the afternoon. And when he did run around, his endurance was not nearly what it normally is. These are clues that school staff do not look for. They have 30 kids they are responsible for and Andrew being short of breath in the back of the classroom is not something they are going to notice right away. It is up to us as parents to catch all of these early signs of lung infection so we can get a jump on fighting it before it causes lung damage. That is our job. And it has to come before school attendance records.

As long as your niece stays caught up with her school work, absences should not affect her progress in school. If there are legitimate reasons why she should be home, then she should be home. A common cough to some could be a start of a lung infection for her. A day or two at home to lay low and stay away from a room full of infected kids could keep her from getting really sick.

I must also add that, as a parent, sometimes it is hard to make that call. Sometimes we will make good decisions, sometimes we will look back and wish we had thought through things a little more. But at the end of the day, we can only do our best. Sometimes that means keeping our eye on the big picture of maintaining lung health and realizing that a spelling test can be made up on Monday.
 
T

TonyaH

Guest
Hi Hope,
<br />We are dealing with attendance issues for the first time this year. My son is in fourth grade and has, up until about a year ago, had mostly digestive issues and has been able to attend school regularly. This year, however, his disease has become more respiratory and we have been in the hospital twice since November to try to maintain his high lung function. In November, he went to school with his picc line in place for two weeks after our admittance. This time, because of some bullying issues, it was not smart to send him to school with his picc line and I am home schooling him during these few weeks of iv meds. I tend to keep my children home sooner than most parents, simply because having Andrew, I am more aware of how common cold viruses can affect others. My children both do very well in school and I am a very involved Mom, so keeping them caught up on school curriculum is not a problem.
<br />
<br />The issue is that most of the time, CFers do not "look" sick. When Andrew was beginning his most recent exacerbation, he was still going to school, running on the playground, participating in PE...but nobody knew that when he came home he was wiped out. He would hang out on the couch the rest of the afternoon. And when he did run around, his endurance was not nearly what it normally is. These are clues that school staff do not look for. They have 30 kids they are responsible for and Andrew being short of breath in the back of the classroom is not something they are going to notice right away. It is up to us as parents to catch all of these early signs of lung infection so we can get a jump on fighting it before it causes lung damage. That is our job. And it has to come before school attendance records.
<br />
<br />As long as your niece stays caught up with her school work, absences should not affect her progress in school. If there are legitimate reasons why she should be home, then she should be home. A common cough to some could be a start of a lung infection for her. A day or two at home to lay low and stay away from a room full of infected kids could keep her from getting really sick.
<br />
<br />I must also add that, as a parent, sometimes it is hard to make that call. Sometimes we will make good decisions, sometimes we will look back and wish we had thought through things a little more. But at the end of the day, we can only do our best. Sometimes that means keeping our eye on the big picture of maintaining lung health and realizing that a spelling test can be made up on Monday.
 
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