School problems continued...

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sdelorenzo

Guest
I went through the same thing when my daughter started Kindergarten last year. Her cf dr and social worker wrote a five page letter with recommendations for a 504 plan. The principal denied the 504 request over the phone a few times. So I requested a meeting. I knew from being a teacher and having many of my students with 504 plans that kids with cf qualify. Beth Sufian lives in my neighborhood. She also gave me good advice and told me Sophia most definitely should have a 504 plan. But I did not want to have to bring in a lawyer for our first meeting. The head of the school district special education dept (Houston ISD - very large school district) was at the meeting to tell me once again no. My only choice was to take legal action.

Turns out I just gave in. We are planning to move to a new district in a few years anyway. My daughter's school said they would abide by the letter just without a legal plan (504). They said they would review our request when my daughter missed enough school to affect her grades. In the past year the school has done everything that is needed for my daughter, so at this point I don't have complaints.
Sharon, mom of Sophia, 7 and Jack, 5 both with cf
 
S

sdelorenzo

Guest
I went through the same thing when my daughter started Kindergarten last year. Her cf dr and social worker wrote a five page letter with recommendations for a 504 plan. The principal denied the 504 request over the phone a few times. So I requested a meeting. I knew from being a teacher and having many of my students with 504 plans that kids with cf qualify. Beth Sufian lives in my neighborhood. She also gave me good advice and told me Sophia most definitely should have a 504 plan. But I did not want to have to bring in a lawyer for our first meeting. The head of the school district special education dept (Houston ISD - very large school district) was at the meeting to tell me once again no. My only choice was to take legal action.

Turns out I just gave in. We are planning to move to a new district in a few years anyway. My daughter's school said they would abide by the letter just without a legal plan (504). They said they would review our request when my daughter missed enough school to affect her grades. In the past year the school has done everything that is needed for my daughter, so at this point I don't have complaints.
Sharon, mom of Sophia, 7 and Jack, 5 both with cf
 
S

sdelorenzo

Guest
I went through the same thing when my daughter started Kindergarten last year. Her cf dr and social worker wrote a five page letter with recommendations for a 504 plan. The principal denied the 504 request over the phone a few times. So I requested a meeting. I knew from being a teacher and having many of my students with 504 plans that kids with cf qualify. Beth Sufian lives in my neighborhood. She also gave me good advice and told me Sophia most definitely should have a 504 plan. But I did not want to have to bring in a lawyer for our first meeting. The head of the school district special education dept (Houston ISD - very large school district) was at the meeting to tell me once again no. My only choice was to take legal action.

Turns out I just gave in. We are planning to move to a new district in a few years anyway. My daughter's school said they would abide by the letter just without a legal plan (504). They said they would review our request when my daughter missed enough school to affect her grades. In the past year the school has done everything that is needed for my daughter, so at this point I don't have complaints.
Sharon, mom of Sophia, 7 and Jack, 5 both with cf
 
S

sdelorenzo

Guest
I went through the same thing when my daughter started Kindergarten last year. Her cf dr and social worker wrote a five page letter with recommendations for a 504 plan. The principal denied the 504 request over the phone a few times. So I requested a meeting. I knew from being a teacher and having many of my students with 504 plans that kids with cf qualify. Beth Sufian lives in my neighborhood. She also gave me good advice and told me Sophia most definitely should have a 504 plan. But I did not want to have to bring in a lawyer for our first meeting. The head of the school district special education dept (Houston ISD - very large school district) was at the meeting to tell me once again no. My only choice was to take legal action.

Turns out I just gave in. We are planning to move to a new district in a few years anyway. My daughter's school said they would abide by the letter just without a legal plan (504). They said they would review our request when my daughter missed enough school to affect her grades. In the past year the school has done everything that is needed for my daughter, so at this point I don't have complaints.
Sharon, mom of Sophia, 7 and Jack, 5 both with cf
 
S

sdelorenzo

Guest
I went through the same thing when my daughter started Kindergarten last year. Her cf dr and social worker wrote a five page letter with recommendations for a 504 plan. The principal denied the 504 request over the phone a few times. So I requested a meeting. I knew from being a teacher and having many of my students with 504 plans that kids with cf qualify. Beth Sufian lives in my neighborhood. She also gave me good advice and told me Sophia most definitely should have a 504 plan. But I did not want to have to bring in a lawyer for our first meeting. The head of the school district special education dept (Houston ISD - very large school district) was at the meeting to tell me once again no. My only choice was to take legal action.
<br />
<br />Turns out I just gave in. We are planning to move to a new district in a few years anyway. My daughter's school said they would abide by the letter just without a legal plan (504). They said they would review our request when my daughter missed enough school to affect her grades. In the past year the school has done everything that is needed for my daughter, so at this point I don't have complaints.
<br />Sharon, mom of Sophia, 7 and Jack, 5 both with cf
 
F

fourkidsmom

New member
My son got his 504 plan and they also added OHI which is Other Health Impaired (because of the CF) Stand your ground. Your child is entitled to the 504 due to her CF. Have your doctor write them a letter, that is what we did and it really helped.
 
F

fourkidsmom

New member
My son got his 504 plan and they also added OHI which is Other Health Impaired (because of the CF) Stand your ground. Your child is entitled to the 504 due to her CF. Have your doctor write them a letter, that is what we did and it really helped.
 
F

fourkidsmom

New member
My son got his 504 plan and they also added OHI which is Other Health Impaired (because of the CF) Stand your ground. Your child is entitled to the 504 due to her CF. Have your doctor write them a letter, that is what we did and it really helped.
 
F

fourkidsmom

New member
My son got his 504 plan and they also added OHI which is Other Health Impaired (because of the CF) Stand your ground. Your child is entitled to the 504 due to her CF. Have your doctor write them a letter, that is what we did and it really helped.
 
F

fourkidsmom

New member
My son got his 504 plan and they also added OHI which is Other Health Impaired (because of the CF) Stand your ground. Your child is entitled to the 504 due to her CF. Have your doctor write them a letter, that is what we did and it really helped.
<br />
<br />
 
J

Jane

Digital opinion leader
GRRRRRRR, its unthinkable that schools give a hard time to families of chronically ill children! I'm so sorry you have to fight for this. I know that schools have to justify the need for the 504. My kids have been on 504 plans for several years. We had no problem putting it in place because we could prove that tardies, missed days, visits to the nurse all impact my boys' education. We have not needed to "enforce" it because everyone involved has been cooperative.

But, while I had no problem with my boys's 504, I recently found out that another cf family in our school was almost denied a 504 for her daughter. WHAT?!!! Same school. Go figure.

Please don't wait for Beth (although she will be helpful). Call the social worker at your clinic for advice, also call the superintendant. That school needs to be educated.

Good luck!
 
J

Jane

Digital opinion leader
GRRRRRRR, its unthinkable that schools give a hard time to families of chronically ill children! I'm so sorry you have to fight for this. I know that schools have to justify the need for the 504. My kids have been on 504 plans for several years. We had no problem putting it in place because we could prove that tardies, missed days, visits to the nurse all impact my boys' education. We have not needed to "enforce" it because everyone involved has been cooperative.

But, while I had no problem with my boys's 504, I recently found out that another cf family in our school was almost denied a 504 for her daughter. WHAT?!!! Same school. Go figure.

Please don't wait for Beth (although she will be helpful). Call the social worker at your clinic for advice, also call the superintendant. That school needs to be educated.

Good luck!
 
J

Jane

Digital opinion leader
GRRRRRRR, its unthinkable that schools give a hard time to families of chronically ill children! I'm so sorry you have to fight for this. I know that schools have to justify the need for the 504. My kids have been on 504 plans for several years. We had no problem putting it in place because we could prove that tardies, missed days, visits to the nurse all impact my boys' education. We have not needed to "enforce" it because everyone involved has been cooperative.

But, while I had no problem with my boys's 504, I recently found out that another cf family in our school was almost denied a 504 for her daughter. WHAT?!!! Same school. Go figure.

Please don't wait for Beth (although she will be helpful). Call the social worker at your clinic for advice, also call the superintendant. That school needs to be educated.

Good luck!
 
J

Jane

Digital opinion leader
GRRRRRRR, its unthinkable that schools give a hard time to families of chronically ill children! I'm so sorry you have to fight for this. I know that schools have to justify the need for the 504. My kids have been on 504 plans for several years. We had no problem putting it in place because we could prove that tardies, missed days, visits to the nurse all impact my boys' education. We have not needed to "enforce" it because everyone involved has been cooperative.

But, while I had no problem with my boys's 504, I recently found out that another cf family in our school was almost denied a 504 for her daughter. WHAT?!!! Same school. Go figure.

Please don't wait for Beth (although she will be helpful). Call the social worker at your clinic for advice, also call the superintendant. That school needs to be educated.

Good luck!
 
J

Jane

Digital opinion leader
GRRRRRRR, its unthinkable that schools give a hard time to families of chronically ill children! I'm so sorry you have to fight for this. I know that schools have to justify the need for the 504. My kids have been on 504 plans for several years. We had no problem putting it in place because we could prove that tardies, missed days, visits to the nurse all impact my boys' education. We have not needed to "enforce" it because everyone involved has been cooperative.
<br />
<br />But, while I had no problem with my boys's 504, I recently found out that another cf family in our school was almost denied a 504 for her daughter. WHAT?!!! Same school. Go figure.
<br />
<br />Please don't wait for Beth (although she will be helpful). Call the social worker at your clinic for advice, also call the superintendant. That school needs to be educated.
<br />
<br />Good luck!
 
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