Severe Migraines

[JennifersHope]

Hey,

I had the same experience.. It took a long time to figure it out.. Google Bickerstaff syndrome, or Basilar artery migraines. You will see that is the same symptoms..

I had numbness in my arms and legs, forgetfulness, severe migrains that made me vomit non stop.

I couldn't lift my head off the pillow...

I only had it happen once, it lasted about a week and since then I am scared to death of that happening again

Good luck and please google those two things, they are the same disease different names

Basilar-Type Migraine is a Migraine that has aura symptoms originating from the brainstem and/or affecting both hemispheres of the brain at the same time, but with no motor weakness. The aura of BTM usually lasts less than 60 minutes, but in some cases can be more extended. Many Migraineurs who have BTM also report Migraine with typical aura. The aura of Basilar-Type Migraine can include temporary blindness, which is one reason they can be quite terrifying. However, BTM is actually essentially Migraine with aura with the aura localized to the brainstem. Still, because of that localization, Migraine-specific medications such as the triptans and ergotamines are contraindicated for BTM. Of the preventive medications, it's recommended that beta blockers be avoided in cases of BTM. Because of the medication contraindications, I highly recommend that Migraineurs who experience BTM wear some kind of medical identification at all times. Diagnosis of Basilar-Type Migraine requires at least two attacks meeting the following criteria:

Aura consisting of at least two of the following fully reversible symptoms, but no motor weakness:
dysarthria (impairments or clumsiness in the speaking of words due to diseases that affect the oral, lingual, or pharyngeal muscles)
vertigo (sense of spinning)
tinnitus
hypacusia (impaired hearing)
diplopia (double vision)
visual symptoms simultaneously in both temporal and nasal fields of both eyes
ataxia (incoordination and unsteadiness)
decreased level of consciousness
simultaneously bilateral paresthesias (abnormal or unpleasant sensation often described as numbness or as a prickly, stinging, or burning feeling)

 

[JennifersHope]

Hey,

I had the same experience.. It took a long time to figure it out.. Google Bickerstaff syndrome, or Basilar artery migraines. You will see that is the same symptoms..

I had numbness in my arms and legs, forgetfulness, severe migrains that made me vomit non stop.

I couldn't lift my head off the pillow...

I only had it happen once, it lasted about a week and since then I am scared to death of that happening again

Good luck and please google those two things, they are the same disease different names

Basilar-Type Migraine is a Migraine that has aura symptoms originating from the brainstem and/or affecting both hemispheres of the brain at the same time, but with no motor weakness. The aura of BTM usually lasts less than 60 minutes, but in some cases can be more extended. Many Migraineurs who have BTM also report Migraine with typical aura. The aura of Basilar-Type Migraine can include temporary blindness, which is one reason they can be quite terrifying. However, BTM is actually essentially Migraine with aura with the aura localized to the brainstem. Still, because of that localization, Migraine-specific medications such as the triptans and ergotamines are contraindicated for BTM. Of the preventive medications, it's recommended that beta blockers be avoided in cases of BTM. Because of the medication contraindications, I highly recommend that Migraineurs who experience BTM wear some kind of medical identification at all times. Diagnosis of Basilar-Type Migraine requires at least two attacks meeting the following criteria:

Aura consisting of at least two of the following fully reversible symptoms, but no motor weakness:
dysarthria (impairments or clumsiness in the speaking of words due to diseases that affect the oral, lingual, or pharyngeal muscles)
vertigo (sense of spinning)
tinnitus
hypacusia (impaired hearing)
diplopia (double vision)
visual symptoms simultaneously in both temporal and nasal fields of both eyes
ataxia (incoordination and unsteadiness)
decreased level of consciousness
simultaneously bilateral paresthesias (abnormal or unpleasant sensation often described as numbness or as a prickly, stinging, or burning feeling)

 

[JennifersHope]

Hey,

I had the same experience.. It took a long time to figure it out.. Google Bickerstaff syndrome, or Basilar artery migraines. You will see that is the same symptoms..

I had numbness in my arms and legs, forgetfulness, severe migrains that made me vomit non stop.

I couldn't lift my head off the pillow...

I only had it happen once, it lasted about a week and since then I am scared to death of that happening again

Good luck and please google those two things, they are the same disease different names

Basilar-Type Migraine is a Migraine that has aura symptoms originating from the brainstem and/or affecting both hemispheres of the brain at the same time, but with no motor weakness. The aura of BTM usually lasts less than 60 minutes, but in some cases can be more extended. Many Migraineurs who have BTM also report Migraine with typical aura. The aura of Basilar-Type Migraine can include temporary blindness, which is one reason they can be quite terrifying. However, BTM is actually essentially Migraine with aura with the aura localized to the brainstem. Still, because of that localization, Migraine-specific medications such as the triptans and ergotamines are contraindicated for BTM. Of the preventive medications, it's recommended that beta blockers be avoided in cases of BTM. Because of the medication contraindications, I highly recommend that Migraineurs who experience BTM wear some kind of medical identification at all times. Diagnosis of Basilar-Type Migraine requires at least two attacks meeting the following criteria:

Aura consisting of at least two of the following fully reversible symptoms, but no motor weakness:
dysarthria (impairments or clumsiness in the speaking of words due to diseases that affect the oral, lingual, or pharyngeal muscles)
vertigo (sense of spinning)
tinnitus
hypacusia (impaired hearing)
diplopia (double vision)
visual symptoms simultaneously in both temporal and nasal fields of both eyes
ataxia (incoordination and unsteadiness)
decreased level of consciousness
simultaneously bilateral paresthesias (abnormal or unpleasant sensation often described as numbness or as a prickly, stinging, or burning feeling)

 

[JennifersHope]

Hey,

I had the same experience.. It took a long time to figure it out.. Google Bickerstaff syndrome, or Basilar artery migraines. You will see that is the same symptoms..

I had numbness in my arms and legs, forgetfulness, severe migrains that made me vomit non stop.

I couldn't lift my head off the pillow...

I only had it happen once, it lasted about a week and since then I am scared to death of that happening again

Good luck and please google those two things, they are the same disease different names

Basilar-Type Migraine is a Migraine that has aura symptoms originating from the brainstem and/or affecting both hemispheres of the brain at the same time, but with no motor weakness. The aura of BTM usually lasts less than 60 minutes, but in some cases can be more extended. Many Migraineurs who have BTM also report Migraine with typical aura. The aura of Basilar-Type Migraine can include temporary blindness, which is one reason they can be quite terrifying. However, BTM is actually essentially Migraine with aura with the aura localized to the brainstem. Still, because of that localization, Migraine-specific medications such as the triptans and ergotamines are contraindicated for BTM. Of the preventive medications, it's recommended that beta blockers be avoided in cases of BTM. Because of the medication contraindications, I highly recommend that Migraineurs who experience BTM wear some kind of medical identification at all times. Diagnosis of Basilar-Type Migraine requires at least two attacks meeting the following criteria:

Aura consisting of at least two of the following fully reversible symptoms, but no motor weakness:
dysarthria (impairments or clumsiness in the speaking of words due to diseases that affect the oral, lingual, or pharyngeal muscles)
vertigo (sense of spinning)
tinnitus
hypacusia (impaired hearing)
diplopia (double vision)
visual symptoms simultaneously in both temporal and nasal fields of both eyes
ataxia (incoordination and unsteadiness)
decreased level of consciousness
simultaneously bilateral paresthesias (abnormal or unpleasant sensation often described as numbness or as a prickly, stinging, or burning feeling)

 

[JennifersHope]

Hey,
<br />
<br />I had the same experience.. It took a long time to figure it out.. Google Bickerstaff syndrome, or Basilar artery migraines. You will see that is the same symptoms..
<br />
<br />I had numbness in my arms and legs, forgetfulness, severe migrains that made me vomit non stop.
<br />
<br />I couldn't lift my head off the pillow...
<br />
<br />I only had it happen once, it lasted about a week and since then I am scared to death of that happening again
<br />
<br />Good luck and please google those two things, they are the same disease different names
<br />
<br /> Basilar-Type Migraine is a Migraine that has aura symptoms originating from the brainstem and/or affecting both hemispheres of the brain at the same time, but with no motor weakness. The aura of BTM usually lasts less than 60 minutes, but in some cases can be more extended. Many Migraineurs who have BTM also report Migraine with typical aura. The aura of Basilar-Type Migraine can include temporary blindness, which is one reason they can be quite terrifying. However, BTM is actually essentially Migraine with aura with the aura localized to the brainstem. Still, because of that localization, Migraine-specific medications such as the triptans and ergotamines are contraindicated for BTM. Of the preventive medications, it's recommended that beta blockers be avoided in cases of BTM. Because of the medication contraindications, I highly recommend that Migraineurs who experience BTM wear some kind of medical identification at all times. Diagnosis of Basilar-Type Migraine requires at least two attacks meeting the following criteria:
<br />
<br />Aura consisting of at least two of the following fully reversible symptoms, but no motor weakness:
<br />dysarthria (impairments or clumsiness in the speaking of words due to diseases that affect the oral, lingual, or pharyngeal muscles)
<br />vertigo (sense of spinning)
<br />tinnitus
<br />hypacusia (impaired hearing)
<br />diplopia (double vision)
<br />visual symptoms simultaneously in both temporal and nasal fields of both eyes
<br />ataxia (incoordination and unsteadiness)
<br />decreased level of consciousness
<br />simultaneously bilateral paresthesias (abnormal or unpleasant sensation often described as numbness or as a prickly, stinging, or burning feeling)

 

[mamerth]

I get horrible migraines. Mine are usually stress induced. I usually have to stay in a dark room with lots of quietness. I am no good for 24-48 hours after a migraine-- very tired. I have tried eliminating possible food triggers from my diet but nothing was very conclusive. Stress seems to be the big thing for me-- I can feel it start in my jaw and muscles in my neck.

 

[mamerth]

I get horrible migraines. Mine are usually stress induced. I usually have to stay in a dark room with lots of quietness. I am no good for 24-48 hours after a migraine-- very tired. I have tried eliminating possible food triggers from my diet but nothing was very conclusive. Stress seems to be the big thing for me-- I can feel it start in my jaw and muscles in my neck.

 

[mamerth]

I get horrible migraines. Mine are usually stress induced. I usually have to stay in a dark room with lots of quietness. I am no good for 24-48 hours after a migraine-- very tired. I have tried eliminating possible food triggers from my diet but nothing was very conclusive. Stress seems to be the big thing for me-- I can feel it start in my jaw and muscles in my neck.

 

[mamerth]

I get horrible migraines. Mine are usually stress induced. I usually have to stay in a dark room with lots of quietness. I am no good for 24-48 hours after a migraine-- very tired. I have tried eliminating possible food triggers from my diet but nothing was very conclusive. Stress seems to be the big thing for me-- I can feel it start in my jaw and muscles in my neck.

 

[mamerth]

I get horrible migraines. Mine are usually stress induced. I usually have to stay in a dark room with lots of quietness. I am no good for 24-48 hours after a migraine-- very tired. I have tried eliminating possible food triggers from my diet but nothing was very conclusive. Stress seems to be the big thing for me-- I can feel it start in my jaw and muscles in my neck.

 

[MicheleGazelle]

I used to get migraines. For me, it was from taking the birth control pill -- though I had been on it for years without a problem, suddenly one day it was a problem. Once I was sure that was the cause, I informed my then husband that I would finish out my prescription and then we would need to find an alternative. Going off the pill cured mine and they never came back. Hormonal stuff is frequently cited as a trigger for migraines.

I also belong to a Celiac's list where, coincidentally, we have been discussing migraines this past week. A number of people on it went GFCF (gluten free, casein free) and it was "a miracle cure" for their migraines. For others, they had to do more than that but going GFCF did usually help. I don't have Celiac's but I belong to the group because people with CF are at higher than normal risk for Celiac's and even when we don't have it, a lot of folks report having difficulty with wheat and dairy.

There are some books on the subject that have helped folks figure out the triggers. One I recently heard of is "Heal your headache".

Good luck with this.

 

[MicheleGazelle]

I used to get migraines. For me, it was from taking the birth control pill -- though I had been on it for years without a problem, suddenly one day it was a problem. Once I was sure that was the cause, I informed my then husband that I would finish out my prescription and then we would need to find an alternative. Going off the pill cured mine and they never came back. Hormonal stuff is frequently cited as a trigger for migraines.

I also belong to a Celiac's list where, coincidentally, we have been discussing migraines this past week. A number of people on it went GFCF (gluten free, casein free) and it was "a miracle cure" for their migraines. For others, they had to do more than that but going GFCF did usually help. I don't have Celiac's but I belong to the group because people with CF are at higher than normal risk for Celiac's and even when we don't have it, a lot of folks report having difficulty with wheat and dairy.

There are some books on the subject that have helped folks figure out the triggers. One I recently heard of is "Heal your headache".

Good luck with this.

 

[MicheleGazelle]

I used to get migraines. For me, it was from taking the birth control pill -- though I had been on it for years without a problem, suddenly one day it was a problem. Once I was sure that was the cause, I informed my then husband that I would finish out my prescription and then we would need to find an alternative. Going off the pill cured mine and they never came back. Hormonal stuff is frequently cited as a trigger for migraines.

I also belong to a Celiac's list where, coincidentally, we have been discussing migraines this past week. A number of people on it went GFCF (gluten free, casein free) and it was "a miracle cure" for their migraines. For others, they had to do more than that but going GFCF did usually help. I don't have Celiac's but I belong to the group because people with CF are at higher than normal risk for Celiac's and even when we don't have it, a lot of folks report having difficulty with wheat and dairy.

There are some books on the subject that have helped folks figure out the triggers. One I recently heard of is "Heal your headache".

Good luck with this.

 

[MicheleGazelle]

I used to get migraines. For me, it was from taking the birth control pill -- though I had been on it for years without a problem, suddenly one day it was a problem. Once I was sure that was the cause, I informed my then husband that I would finish out my prescription and then we would need to find an alternative. Going off the pill cured mine and they never came back. Hormonal stuff is frequently cited as a trigger for migraines.

I also belong to a Celiac's list where, coincidentally, we have been discussing migraines this past week. A number of people on it went GFCF (gluten free, casein free) and it was "a miracle cure" for their migraines. For others, they had to do more than that but going GFCF did usually help. I don't have Celiac's but I belong to the group because people with CF are at higher than normal risk for Celiac's and even when we don't have it, a lot of folks report having difficulty with wheat and dairy.

There are some books on the subject that have helped folks figure out the triggers. One I recently heard of is "Heal your headache".

Good luck with this.

 

[MicheleGazelle]

I used to get migraines. For me, it was from taking the birth control pill -- though I had been on it for years without a problem, suddenly one day it was a problem. Once I was sure that was the cause, I informed my then husband that I would finish out my prescription and then we would need to find an alternative. Going off the pill cured mine and they never came back. Hormonal stuff is frequently cited as a trigger for migraines.
<br />
<br />I also belong to a Celiac's list where, coincidentally, we have been discussing migraines this past week. A number of people on it went GFCF (gluten free, casein free) and it was "a miracle cure" for their migraines. For others, they had to do more than that but going GFCF did usually help. I don't have Celiac's but I belong to the group because people with CF are at higher than normal risk for Celiac's and even when we don't have it, a lot of folks report having difficulty with wheat and dairy.
<br />
<br />There are some books on the subject that have helped folks figure out the triggers. One I recently heard of is "Heal your headache".
<br />
<br />Good luck with this.

 

[BaylorCrew07]

thanks for all the responses/input...it's good to know I'm not alone!

I also thought the change in migraines could be due to birth control (I started that about a year ago, otherwise no change in meds) but my neurologist thinks that is probably not the issue. Not sure why?! I'm going to check w/ my OB/GYN just in chase to see if I can change contraceptives and see if it helps at all.

Thanks again

 

[BaylorCrew07]

thanks for all the responses/input...it's good to know I'm not alone!

I also thought the change in migraines could be due to birth control (I started that about a year ago, otherwise no change in meds) but my neurologist thinks that is probably not the issue. Not sure why?! I'm going to check w/ my OB/GYN just in chase to see if I can change contraceptives and see if it helps at all.

Thanks again

 

[BaylorCrew07]

thanks for all the responses/input...it's good to know I'm not alone!

I also thought the change in migraines could be due to birth control (I started that about a year ago, otherwise no change in meds) but my neurologist thinks that is probably not the issue. Not sure why?! I'm going to check w/ my OB/GYN just in chase to see if I can change contraceptives and see if it helps at all.

Thanks again

 

[BaylorCrew07]

thanks for all the responses/input...it's good to know I'm not alone!

I also thought the change in migraines could be due to birth control (I started that about a year ago, otherwise no change in meds) but my neurologist thinks that is probably not the issue. Not sure why?! I'm going to check w/ my OB/GYN just in chase to see if I can change contraceptives and see if it helps at all.

Thanks again

 

[BaylorCrew07]

thanks for all the responses/input...it's good to know I'm not alone!
<br />
<br />I also thought the change in migraines could be due to birth control (I started that about a year ago, otherwise no change in meds) but my neurologist thinks that is probably not the issue. Not sure why?! I'm going to check w/ my OB/GYN just in chase to see if I can change contraceptives and see if it helps at all.
<br />
<br />Thanks again