shocked at how people talk to each other on this site

K

kayleesgrandma

New member
I am trying to leave, really I am...but let me say this about this thread--Light was right on when she said we don't "feel" the voice (infection)--or the gestures--I do not feel she was offended that not many responded to the anniversay post. There is evidence to show that a lot of people viewed it--just didn't repond. Big deal, she is not going to kill herself over it, and I am not going to feel bad either. And calling out Emily because she said "fricking" let's stop nit-picking--this is a place to express ourselves, and no one should be "language police"--jeez! Read the post, and move one. Just like the birthday posts--sure we should wish everybody happy birthday--but some of us have been here a while and we know them, as was said, the more you are on here, the sooner we get to know you. I don't have time to wish every one a birthday--the mods do that for all of us...I will take time to wish a friend happy birthday...
This is a discussion thread, so don't sweat the differing opinions--that's all they are--good grief! <img src="i/expressions/face-icon-small-disgusted.gif" border="0">
 
K

kayleesgrandma

New member
I am trying to leave, really I am...but let me say this about this thread--Light was right on when she said we don't "feel" the voice (infection)--or the gestures--I do not feel she was offended that not many responded to the anniversay post. There is evidence to show that a lot of people viewed it--just didn't repond. Big deal, she is not going to kill herself over it, and I am not going to feel bad either. And calling out Emily because she said "fricking" let's stop nit-picking--this is a place to express ourselves, and no one should be "language police"--jeez! Read the post, and move one. Just like the birthday posts--sure we should wish everybody happy birthday--but some of us have been here a while and we know them, as was said, the more you are on here, the sooner we get to know you. I don't have time to wish every one a birthday--the mods do that for all of us...I will take time to wish a friend happy birthday...
This is a discussion thread, so don't sweat the differing opinions--that's all they are--good grief! <img src="i/expressions/face-icon-small-disgusted.gif" border="0">
 
K

kayleesgrandma

New member
I am trying to leave, really I am...but let me say this about this thread--Light was right on when she said we don't "feel" the voice (infection)--or the gestures--I do not feel she was offended that not many responded to the anniversay post. There is evidence to show that a lot of people viewed it--just didn't repond. Big deal, she is not going to kill herself over it, and I am not going to feel bad either. And calling out Emily because she said "fricking" let's stop nit-picking--this is a place to express ourselves, and no one should be "language police"--jeez! Read the post, and move one. Just like the birthday posts--sure we should wish everybody happy birthday--but some of us have been here a while and we know them, as was said, the more you are on here, the sooner we get to know you. I don't have time to wish every one a birthday--the mods do that for all of us...I will take time to wish a friend happy birthday...
This is a discussion thread, so don't sweat the differing opinions--that's all they are--good grief! <img src="i/expressions/face-icon-small-disgusted.gif" border="0">
 
K

kayleesgrandma

New member
I am trying to leave, really I am...but let me say this about this thread--Light was right on when she said we don't "feel" the voice (infection)--or the gestures--I do not feel she was offended that not many responded to the anniversay post. There is evidence to show that a lot of people viewed it--just didn't repond. Big deal, she is not going to kill herself over it, and I am not going to feel bad either. And calling out Emily because she said "fricking" let's stop nit-picking--this is a place to express ourselves, and no one should be "language police"--jeez! Read the post, and move one. Just like the birthday posts--sure we should wish everybody happy birthday--but some of us have been here a while and we know them, as was said, the more you are on here, the sooner we get to know you. I don't have time to wish every one a birthday--the mods do that for all of us...I will take time to wish a friend happy birthday...
This is a discussion thread, so don't sweat the differing opinions--that's all they are--good grief! <img src="i/expressions/face-icon-small-disgusted.gif" border="0">
 
S

Shoshanna

Guest
Hi Guys,

I'm sorry I'm not on here more often to get to know people. I do see how people grow close to one another and maybe I've appeared distant. However, any free time I have I try to spend with my son because I'm pretty ill and most of my day is spent sleeping, attached to a feeding tube, having chest PT and doing nebs.

Yet, I still think people can/should reach out to me or anyone else even if we're not best buddies. I've made an effort to reach out to many people I don't know. I emailed Lindsey about her tx when I barely knew her, same with Mike's Katy and many others. Most of us have never met Lo or shared emails with her yet we all write on Joanne's posts to see how she's doing and to show our support. We do it with a lot of people we don't know and so I just can't buy that argument.

Amy/Sasuka: You are extremely intelligent and you have so much to offer to this site. Your arguments hold A LOT of value, but you lose credibility in your delivery. Instead of walking away thinking, "Wow, Amy said something really intelligent.", people walk away thinking, "Why did she have to be so blunt or insensitive or defensive?"
I'm not trying to attack you, but I'm older than you and have a little more life experience under my belt, both professionally and personally. At the end of the day everyone just wants to be appreciated for who they are and kindness goes a long way. Like Katy13 said, when you reach the point of dealing with severe CF/tx/death you look at life differently. You just want to be positive and kind because the negativity just isn't worth it and the petty arguments are just that, petty. Call me PollyAnna, I don't care. Hoepfully you'll never reach the pt of severe illness w/CF, but it really does make you view things differently. Just think about it, that's all.

Anyway, my son is up and I want to spend some time with him. Thank you all for your PM. I'll check them later.
 
S

Shoshanna

Guest
Hi Guys,

I'm sorry I'm not on here more often to get to know people. I do see how people grow close to one another and maybe I've appeared distant. However, any free time I have I try to spend with my son because I'm pretty ill and most of my day is spent sleeping, attached to a feeding tube, having chest PT and doing nebs.

Yet, I still think people can/should reach out to me or anyone else even if we're not best buddies. I've made an effort to reach out to many people I don't know. I emailed Lindsey about her tx when I barely knew her, same with Mike's Katy and many others. Most of us have never met Lo or shared emails with her yet we all write on Joanne's posts to see how she's doing and to show our support. We do it with a lot of people we don't know and so I just can't buy that argument.

Amy/Sasuka: You are extremely intelligent and you have so much to offer to this site. Your arguments hold A LOT of value, but you lose credibility in your delivery. Instead of walking away thinking, "Wow, Amy said something really intelligent.", people walk away thinking, "Why did she have to be so blunt or insensitive or defensive?"
I'm not trying to attack you, but I'm older than you and have a little more life experience under my belt, both professionally and personally. At the end of the day everyone just wants to be appreciated for who they are and kindness goes a long way. Like Katy13 said, when you reach the point of dealing with severe CF/tx/death you look at life differently. You just want to be positive and kind because the negativity just isn't worth it and the petty arguments are just that, petty. Call me PollyAnna, I don't care. Hoepfully you'll never reach the pt of severe illness w/CF, but it really does make you view things differently. Just think about it, that's all.

Anyway, my son is up and I want to spend some time with him. Thank you all for your PM. I'll check them later.
 
S

Shoshanna

Guest
Hi Guys,

I'm sorry I'm not on here more often to get to know people. I do see how people grow close to one another and maybe I've appeared distant. However, any free time I have I try to spend with my son because I'm pretty ill and most of my day is spent sleeping, attached to a feeding tube, having chest PT and doing nebs.

Yet, I still think people can/should reach out to me or anyone else even if we're not best buddies. I've made an effort to reach out to many people I don't know. I emailed Lindsey about her tx when I barely knew her, same with Mike's Katy and many others. Most of us have never met Lo or shared emails with her yet we all write on Joanne's posts to see how she's doing and to show our support. We do it with a lot of people we don't know and so I just can't buy that argument.

Amy/Sasuka: You are extremely intelligent and you have so much to offer to this site. Your arguments hold A LOT of value, but you lose credibility in your delivery. Instead of walking away thinking, "Wow, Amy said something really intelligent.", people walk away thinking, "Why did she have to be so blunt or insensitive or defensive?"
I'm not trying to attack you, but I'm older than you and have a little more life experience under my belt, both professionally and personally. At the end of the day everyone just wants to be appreciated for who they are and kindness goes a long way. Like Katy13 said, when you reach the point of dealing with severe CF/tx/death you look at life differently. You just want to be positive and kind because the negativity just isn't worth it and the petty arguments are just that, petty. Call me PollyAnna, I don't care. Hoepfully you'll never reach the pt of severe illness w/CF, but it really does make you view things differently. Just think about it, that's all.

Anyway, my son is up and I want to spend some time with him. Thank you all for your PM. I'll check them later.
 
S

Shoshanna

Guest
Hi Guys,

I'm sorry I'm not on here more often to get to know people. I do see how people grow close to one another and maybe I've appeared distant. However, any free time I have I try to spend with my son because I'm pretty ill and most of my day is spent sleeping, attached to a feeding tube, having chest PT and doing nebs.

Yet, I still think people can/should reach out to me or anyone else even if we're not best buddies. I've made an effort to reach out to many people I don't know. I emailed Lindsey about her tx when I barely knew her, same with Mike's Katy and many others. Most of us have never met Lo or shared emails with her yet we all write on Joanne's posts to see how she's doing and to show our support. We do it with a lot of people we don't know and so I just can't buy that argument.

Amy/Sasuka: You are extremely intelligent and you have so much to offer to this site. Your arguments hold A LOT of value, but you lose credibility in your delivery. Instead of walking away thinking, "Wow, Amy said something really intelligent.", people walk away thinking, "Why did she have to be so blunt or insensitive or defensive?"
I'm not trying to attack you, but I'm older than you and have a little more life experience under my belt, both professionally and personally. At the end of the day everyone just wants to be appreciated for who they are and kindness goes a long way. Like Katy13 said, when you reach the point of dealing with severe CF/tx/death you look at life differently. You just want to be positive and kind because the negativity just isn't worth it and the petty arguments are just that, petty. Call me PollyAnna, I don't care. Hoepfully you'll never reach the pt of severe illness w/CF, but it really does make you view things differently. Just think about it, that's all.

Anyway, my son is up and I want to spend some time with him. Thank you all for your PM. I'll check them later.
 
S

Shoshanna

Guest
Hi Guys,

I'm sorry I'm not on here more often to get to know people. I do see how people grow close to one another and maybe I've appeared distant. However, any free time I have I try to spend with my son because I'm pretty ill and most of my day is spent sleeping, attached to a feeding tube, having chest PT and doing nebs.

Yet, I still think people can/should reach out to me or anyone else even if we're not best buddies. I've made an effort to reach out to many people I don't know. I emailed Lindsey about her tx when I barely knew her, same with Mike's Katy and many others. Most of us have never met Lo or shared emails with her yet we all write on Joanne's posts to see how she's doing and to show our support. We do it with a lot of people we don't know and so I just can't buy that argument.

Amy/Sasuka: You are extremely intelligent and you have so much to offer to this site. Your arguments hold A LOT of value, but you lose credibility in your delivery. Instead of walking away thinking, "Wow, Amy said something really intelligent.", people walk away thinking, "Why did she have to be so blunt or insensitive or defensive?"
I'm not trying to attack you, but I'm older than you and have a little more life experience under my belt, both professionally and personally. At the end of the day everyone just wants to be appreciated for who they are and kindness goes a long way. Like Katy13 said, when you reach the point of dealing with severe CF/tx/death you look at life differently. You just want to be positive and kind because the negativity just isn't worth it and the petty arguments are just that, petty. Call me PollyAnna, I don't care. Hoepfully you'll never reach the pt of severe illness w/CF, but it really does make you view things differently. Just think about it, that's all.

Anyway, my son is up and I want to spend some time with him. Thank you all for your PM. I'll check them later.
 
S

Shoshanna

Guest
Hi Guys,

I'm sorry I'm not on here more often to get to know people. I do see how people grow close to one another and maybe I've appeared distant. However, any free time I have I try to spend with my son because I'm pretty ill and most of my day is spent sleeping, attached to a feeding tube, having chest PT and doing nebs.

Yet, I still think people can/should reach out to me or anyone else even if we're not best buddies. I've made an effort to reach out to many people I don't know. I emailed Lindsey about her tx when I barely knew her, same with Mike's Katy and many others. Most of us have never met Lo or shared emails with her yet we all write on Joanne's posts to see how she's doing and to show our support. We do it with a lot of people we don't know and so I just can't buy that argument.

Amy/Sasuka: You are extremely intelligent and you have so much to offer to this site. Your arguments hold A LOT of value, but you lose credibility in your delivery. Instead of walking away thinking, "Wow, Amy said something really intelligent.", people walk away thinking, "Why did she have to be so blunt or insensitive or defensive?"
I'm not trying to attack you, but I'm older than you and have a little more life experience under my belt, both professionally and personally. At the end of the day everyone just wants to be appreciated for who they are and kindness goes a long way. Like Katy13 said, when you reach the point of dealing with severe CF/tx/death you look at life differently. You just want to be positive and kind because the negativity just isn't worth it and the petty arguments are just that, petty. Call me PollyAnna, I don't care. Hoepfully you'll never reach the pt of severe illness w/CF, but it really does make you view things differently. Just think about it, that's all.

Anyway, my son is up and I want to spend some time with him. Thank you all for your PM. I'll check them later.
 
D

Diane

New member
I see your point totally Vicki . I Love this site and i really appreciate everyone on here. Most i consider friends, some i consider acquaintences and a few are simply the entertainment. I feel the way you do, this site would be a more welcoming place if everyone could make their responses the way an adult does, with tact and respect. After all this is an adult site. Arguments will always ensue when you get this many peoples opinions together, but its the ones who can get their message across in an adult manner that will be the most beneficial. I also feel the same as you when it comes to people responding to others...... Yep it definitely does come down to popularity. I've been on this board for about 5 years now and certain people ONLY reply to those who are their friends and thats it. I tend to respond even if i just argued with that person the night before, because this is cf we are all dealing with ,and no amount of trivial arguments are worth ignoring someone in need of support against cf.
I hope your Lungs come soon Vicki, You have been waiting a long time. <img src="i/expressions/heart.gif" border="0">
 
D

Diane

New member
I see your point totally Vicki . I Love this site and i really appreciate everyone on here. Most i consider friends, some i consider acquaintences and a few are simply the entertainment. I feel the way you do, this site would be a more welcoming place if everyone could make their responses the way an adult does, with tact and respect. After all this is an adult site. Arguments will always ensue when you get this many peoples opinions together, but its the ones who can get their message across in an adult manner that will be the most beneficial. I also feel the same as you when it comes to people responding to others...... Yep it definitely does come down to popularity. I've been on this board for about 5 years now and certain people ONLY reply to those who are their friends and thats it. I tend to respond even if i just argued with that person the night before, because this is cf we are all dealing with ,and no amount of trivial arguments are worth ignoring someone in need of support against cf.
I hope your Lungs come soon Vicki, You have been waiting a long time. <img src="i/expressions/heart.gif" border="0">
 
D

Diane

New member
I see your point totally Vicki . I Love this site and i really appreciate everyone on here. Most i consider friends, some i consider acquaintences and a few are simply the entertainment. I feel the way you do, this site would be a more welcoming place if everyone could make their responses the way an adult does, with tact and respect. After all this is an adult site. Arguments will always ensue when you get this many peoples opinions together, but its the ones who can get their message across in an adult manner that will be the most beneficial. I also feel the same as you when it comes to people responding to others...... Yep it definitely does come down to popularity. I've been on this board for about 5 years now and certain people ONLY reply to those who are their friends and thats it. I tend to respond even if i just argued with that person the night before, because this is cf we are all dealing with ,and no amount of trivial arguments are worth ignoring someone in need of support against cf.
I hope your Lungs come soon Vicki, You have been waiting a long time. <img src="i/expressions/heart.gif" border="0">
 
D

Diane

New member
I see your point totally Vicki . I Love this site and i really appreciate everyone on here. Most i consider friends, some i consider acquaintences and a few are simply the entertainment. I feel the way you do, this site would be a more welcoming place if everyone could make their responses the way an adult does, with tact and respect. After all this is an adult site. Arguments will always ensue when you get this many peoples opinions together, but its the ones who can get their message across in an adult manner that will be the most beneficial. I also feel the same as you when it comes to people responding to others...... Yep it definitely does come down to popularity. I've been on this board for about 5 years now and certain people ONLY reply to those who are their friends and thats it. I tend to respond even if i just argued with that person the night before, because this is cf we are all dealing with ,and no amount of trivial arguments are worth ignoring someone in need of support against cf.
I hope your Lungs come soon Vicki, You have been waiting a long time. <img src="i/expressions/heart.gif" border="0">
 
D

Diane

New member
I see your point totally Vicki . I Love this site and i really appreciate everyone on here. Most i consider friends, some i consider acquaintences and a few are simply the entertainment. I feel the way you do, this site would be a more welcoming place if everyone could make their responses the way an adult does, with tact and respect. After all this is an adult site. Arguments will always ensue when you get this many peoples opinions together, but its the ones who can get their message across in an adult manner that will be the most beneficial. I also feel the same as you when it comes to people responding to others...... Yep it definitely does come down to popularity. I've been on this board for about 5 years now and certain people ONLY reply to those who are their friends and thats it. I tend to respond even if i just argued with that person the night before, because this is cf we are all dealing with ,and no amount of trivial arguments are worth ignoring someone in need of support against cf.
I hope your Lungs come soon Vicki, You have been waiting a long time. <img src="i/expressions/heart.gif" border="0">
 
D

Diane

New member
I see your point totally Vicki . I Love this site and i really appreciate everyone on here. Most i consider friends, some i consider acquaintences and a few are simply the entertainment. I feel the way you do, this site would be a more welcoming place if everyone could make their responses the way an adult does, with tact and respect. After all this is an adult site. Arguments will always ensue when you get this many peoples opinions together, but its the ones who can get their message across in an adult manner that will be the most beneficial. I also feel the same as you when it comes to people responding to others...... Yep it definitely does come down to popularity. I've been on this board for about 5 years now and certain people ONLY reply to those who are their friends and thats it. I tend to respond even if i just argued with that person the night before, because this is cf we are all dealing with ,and no amount of trivial arguments are worth ignoring someone in need of support against cf.
I hope your Lungs come soon Vicki, You have been waiting a long time. <img src="i/expressions/heart.gif" border="0">
 
E

Emily65Roses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Shoshanna</b></i>
Hi Guys,
I'm sorry I'm not on here more often to get to know people. I do see how people grow close to one another and maybe I've appeared distant. However, any free time I have I try to spend with my son because I'm pretty ill and most of my day is spent sleeping, attached to a feeding tube, having chest PT and doing nebs.
</end quote></div>

See, now this is nothing to apologize for. I, personally, wasn't saying HOW DARE YOU. People's lives are different. If you've got a son, I think it's far more sensible for you to be with him rather than here. Julie used to be here a lot more often than she does now since she has 3 children. I was just making an observation about how things work. People in general are more likely to respond to the losers (like myself) that are here all the time than people that drop in from time to time.
 
E

Emily65Roses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Shoshanna</b></i>
Hi Guys,
I'm sorry I'm not on here more often to get to know people. I do see how people grow close to one another and maybe I've appeared distant. However, any free time I have I try to spend with my son because I'm pretty ill and most of my day is spent sleeping, attached to a feeding tube, having chest PT and doing nebs.
</end quote></div>

See, now this is nothing to apologize for. I, personally, wasn't saying HOW DARE YOU. People's lives are different. If you've got a son, I think it's far more sensible for you to be with him rather than here. Julie used to be here a lot more often than she does now since she has 3 children. I was just making an observation about how things work. People in general are more likely to respond to the losers (like myself) that are here all the time than people that drop in from time to time.
 
E

Emily65Roses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Shoshanna</b></i>
Hi Guys,
I'm sorry I'm not on here more often to get to know people. I do see how people grow close to one another and maybe I've appeared distant. However, any free time I have I try to spend with my son because I'm pretty ill and most of my day is spent sleeping, attached to a feeding tube, having chest PT and doing nebs.
</end quote></div>

See, now this is nothing to apologize for. I, personally, wasn't saying HOW DARE YOU. People's lives are different. If you've got a son, I think it's far more sensible for you to be with him rather than here. Julie used to be here a lot more often than she does now since she has 3 children. I was just making an observation about how things work. People in general are more likely to respond to the losers (like myself) that are here all the time than people that drop in from time to time.
 
E

Emily65Roses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Shoshanna</b></i>
Hi Guys,
I'm sorry I'm not on here more often to get to know people. I do see how people grow close to one another and maybe I've appeared distant. However, any free time I have I try to spend with my son because I'm pretty ill and most of my day is spent sleeping, attached to a feeding tube, having chest PT and doing nebs.
</end quote></div>

See, now this is nothing to apologize for. I, personally, wasn't saying HOW DARE YOU. People's lives are different. If you've got a son, I think it's far more sensible for you to be with him rather than here. Julie used to be here a lot more often than she does now since she has 3 children. I was just making an observation about how things work. People in general are more likely to respond to the losers (like myself) that are here all the time than people that drop in from time to time.
 
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