Should he be tested again?

[JORDYSMOM]

Insurance companies make me so mad! You are probably right about them not wanting to cover the genetic test. Jordan had 2 positive sweat tests, and my crappy ins co still wouldn't cover the genetic test.

I ended up paying Ambry myself, and they were very helpful, but it is still a huge expense. You might contact Steven at Ambry. There is a thread "pinned" at the top of this (families) forum. He's very helpful.

Stacey

 

[JORDYSMOM]

Insurance companies make me so mad! You are probably right about them not wanting to cover the genetic test. Jordan had 2 positive sweat tests, and my crappy ins co still wouldn't cover the genetic test.

I ended up paying Ambry myself, and they were very helpful, but it is still a huge expense. You might contact Steven at Ambry. There is a thread "pinned" at the top of this (families) forum. He's very helpful.

Stacey

 

[JORDYSMOM]

Insurance companies make me so mad! You are probably right about them not wanting to cover the genetic test. Jordan had 2 positive sweat tests, and my crappy ins co still wouldn't cover the genetic test.

I ended up paying Ambry myself, and they were very helpful, but it is still a huge expense. You might contact Steven at Ambry. There is a thread "pinned" at the top of this (families) forum. He's very helpful.

Stacey

 

[JORDYSMOM]

Insurance companies make me so mad! You are probably right about them not wanting to cover the genetic test. Jordan had 2 positive sweat tests, and my crappy ins co still wouldn't cover the genetic test.

I ended up paying Ambry myself, and they were very helpful, but it is still a huge expense. You might contact Steven at Ambry. There is a thread "pinned" at the top of this (families) forum. He's very helpful.

Stacey

 

[JORDYSMOM]

Insurance companies make me so mad! You are probably right about them not wanting to cover the genetic test. Jordan had 2 positive sweat tests, and my crappy ins co still wouldn't cover the genetic test.
<br />
<br />I ended up paying Ambry myself, and they were very helpful, but it is still a huge expense. You might contact Steven at Ambry. There is a thread "pinned" at the top of this (families) forum. He's very helpful.
<br />
<br />Stacey
<br />
<br />

 

[pepperderr]

Thanks for the info. I will definitely look into it if the insurance won't pay. I would hate to put all the money into it myself and have it come back negative but at the same time I wouldn't because I want to REALLY be able to rule it out. I just read a post from MilesMom saying her son's test was boarderline but then someone posted to her and said up to 6 months old anything above 30 is considered positive. That makes me really want to know the numbers now..for both my son's. He sweat test was done at about 6 months old and they had to do it twice because they didn't have enough sweat the first time I guess.

I have Antiphospholipid antibody syndrome. I was diagnosed after having a stllborn son and like 6 positive DRVVT test according to the doctor who diagnosed me. I then went on to have a stroke (TIA) at 37 yo so that really confirmed it yet I was sent to a hematologist and he told me that since only one baby was stillborn (I have the 2 sons), he wouldn't say I had it and said my tests were normal. I told the people at the APS boards the test results and they said it was double what was normal which meant it was a positive test yet again when I was told it wasn't. I guess he read it wrong because he didn't understand APS.

The doctors and insurance companies sure don't make it easy!

PEPPERDERR

 

[pepperderr]

Thanks for the info. I will definitely look into it if the insurance won't pay. I would hate to put all the money into it myself and have it come back negative but at the same time I wouldn't because I want to REALLY be able to rule it out. I just read a post from MilesMom saying her son's test was boarderline but then someone posted to her and said up to 6 months old anything above 30 is considered positive. That makes me really want to know the numbers now..for both my son's. He sweat test was done at about 6 months old and they had to do it twice because they didn't have enough sweat the first time I guess.

I have Antiphospholipid antibody syndrome. I was diagnosed after having a stllborn son and like 6 positive DRVVT test according to the doctor who diagnosed me. I then went on to have a stroke (TIA) at 37 yo so that really confirmed it yet I was sent to a hematologist and he told me that since only one baby was stillborn (I have the 2 sons), he wouldn't say I had it and said my tests were normal. I told the people at the APS boards the test results and they said it was double what was normal which meant it was a positive test yet again when I was told it wasn't. I guess he read it wrong because he didn't understand APS.

The doctors and insurance companies sure don't make it easy!

PEPPERDERR

 

[pepperderr]

Thanks for the info. I will definitely look into it if the insurance won't pay. I would hate to put all the money into it myself and have it come back negative but at the same time I wouldn't because I want to REALLY be able to rule it out. I just read a post from MilesMom saying her son's test was boarderline but then someone posted to her and said up to 6 months old anything above 30 is considered positive. That makes me really want to know the numbers now..for both my son's. He sweat test was done at about 6 months old and they had to do it twice because they didn't have enough sweat the first time I guess.

I have Antiphospholipid antibody syndrome. I was diagnosed after having a stllborn son and like 6 positive DRVVT test according to the doctor who diagnosed me. I then went on to have a stroke (TIA) at 37 yo so that really confirmed it yet I was sent to a hematologist and he told me that since only one baby was stillborn (I have the 2 sons), he wouldn't say I had it and said my tests were normal. I told the people at the APS boards the test results and they said it was double what was normal which meant it was a positive test yet again when I was told it wasn't. I guess he read it wrong because he didn't understand APS.

The doctors and insurance companies sure don't make it easy!

PEPPERDERR

 

[pepperderr]

Thanks for the info. I will definitely look into it if the insurance won't pay. I would hate to put all the money into it myself and have it come back negative but at the same time I wouldn't because I want to REALLY be able to rule it out. I just read a post from MilesMom saying her son's test was boarderline but then someone posted to her and said up to 6 months old anything above 30 is considered positive. That makes me really want to know the numbers now..for both my son's. He sweat test was done at about 6 months old and they had to do it twice because they didn't have enough sweat the first time I guess.

I have Antiphospholipid antibody syndrome. I was diagnosed after having a stllborn son and like 6 positive DRVVT test according to the doctor who diagnosed me. I then went on to have a stroke (TIA) at 37 yo so that really confirmed it yet I was sent to a hematologist and he told me that since only one baby was stillborn (I have the 2 sons), he wouldn't say I had it and said my tests were normal. I told the people at the APS boards the test results and they said it was double what was normal which meant it was a positive test yet again when I was told it wasn't. I guess he read it wrong because he didn't understand APS.

The doctors and insurance companies sure don't make it easy!

PEPPERDERR

 

[pepperderr]

Thanks for the info. I will definitely look into it if the insurance won't pay. I would hate to put all the money into it myself and have it come back negative but at the same time I wouldn't because I want to REALLY be able to rule it out. I just read a post from MilesMom saying her son's test was boarderline but then someone posted to her and said up to 6 months old anything above 30 is considered positive. That makes me really want to know the numbers now..for both my son's. He sweat test was done at about 6 months old and they had to do it twice because they didn't have enough sweat the first time I guess.
<br />
<br />I have Antiphospholipid antibody syndrome. I was diagnosed after having a stllborn son and like 6 positive DRVVT test according to the doctor who diagnosed me. I then went on to have a stroke (TIA) at 37 yo so that really confirmed it yet I was sent to a hematologist and he told me that since only one baby was stillborn (I have the 2 sons), he wouldn't say I had it and said my tests were normal. I told the people at the APS boards the test results and they said it was double what was normal which meant it was a positive test yet again when I was told it wasn't. I guess he read it wrong because he didn't understand APS.
<br />
<br />The doctors and insurance companies sure don't make it easy!
<br />
<br />PEPPERDERR

 

[Ratatosk]

If you're curious about the sweat test numbers, try to figure out when the test(s) were conducted and fill out a request with your clinic for that report or call your clinic and ask the nurse to look it up for you and send you the results.

I always want to have lab reports, so I always fill out a form indicating the dates DS was seen and get a written copy of labs, doctor notes, etc.

 

[Ratatosk]

If you're curious about the sweat test numbers, try to figure out when the test(s) were conducted and fill out a request with your clinic for that report or call your clinic and ask the nurse to look it up for you and send you the results.

I always want to have lab reports, so I always fill out a form indicating the dates DS was seen and get a written copy of labs, doctor notes, etc.

 

[Ratatosk]

If you're curious about the sweat test numbers, try to figure out when the test(s) were conducted and fill out a request with your clinic for that report or call your clinic and ask the nurse to look it up for you and send you the results.

I always want to have lab reports, so I always fill out a form indicating the dates DS was seen and get a written copy of labs, doctor notes, etc.

 

[Ratatosk]

If you're curious about the sweat test numbers, try to figure out when the test(s) were conducted and fill out a request with your clinic for that report or call your clinic and ask the nurse to look it up for you and send you the results.

I always want to have lab reports, so I always fill out a form indicating the dates DS was seen and get a written copy of labs, doctor notes, etc.

 

[Ratatosk]

If you're curious about the sweat test numbers, try to figure out when the test(s) were conducted and fill out a request with your clinic for that report or call your clinic and ask the nurse to look it up for you and send you the results.
<br />
<br />I always want to have lab reports, so I always fill out a form indicating the dates DS was seen and get a written copy of labs, doctor notes, etc.