We are in the same place, as far as making plans to have more children. Our son was born with CF, and it was a complete shock to everyone. He is our 1st also, so now it's going to be much harder to decide what to do. My husband is ready now to try for another baby, and I'm scared as hell! I read more, and more everyday, and it's so complex. I wish it wasn't so hard. We looked into PGD, and it will cost us a little under 30,000. in our area. It is in an option, and a good one. However, I'm still not sure if it's right for us. I can't imagine not having more children though. I don't want my son to grow up with out sibilings, because of this disease...I don't want CF to win! I want him to have the support, like my husband and I do from his own brothers or sisters. I have wanted to post a topic like this for months...Thanks for asking others, because it's very much on my mind.
Thanks,
Sarah
Mommy to Johnny 11 months today w/cf