"SIKO"

Bumblebee · Jul 8, 2007

"SIKO

hello

 
i live in the UK so get care under the NHS. I can't fault it for my CF care. I have an excellent team who have a massive budget. I have no problems going into hospital and never have to worry about money (the most i've ever had to wait for a bed is 1 day because our 12 bed specialised ward - funded by the NHS - was full, incidently they're currently in plans to build a brand new larger ward with state of the art air systems etc) The team is always excellently staffed with consultants, doctors, dieticians, physiotheapists, social workers, psycologists, you know...everything you need. I can get any drug i want really, i take: creon 10 000 (brand name), TOBI (brand name), pulmozyme (brand name) and many other expensive drugs. I don't think anything is ever held back. the only problems i've ever had is with stupid pharmacists but not actual prescription of the drugs. I LOVE the fact i don't have to worry about money in terms of health care. I can't imagine worrying about that when sick...."can i afford the right drugs, will my insurance cover it, my copay is increasing" etc. I hear a lot of people on these boards working till they're rather unwell because they HAVE to, ultimately making them sicker. Not so here, as long as the DOC can sign the form and agrees you can't work you can get all manner of benefits. OH i've also had my eflow since dec 2005, when it just came out, i don't think anyone in america could say the same thing.

 
 

yes standards of care can vary depending what clinic/center you go to, but as as i see it that happens in the states too, at least we don't have to pay for it. and it's easy to move centres/clinics should you want to.

 

i would NEVER want to be under a private health care system like in America. Far too many posts on here i see about money issues and getting appropriate drugs. we just don't have that here. Okay, yes, we can't get the Vest very easily, unless willing to pay for it. But i doubt many would be as i don't think any studies have shown it to be more effective than other forms of physio (don't quote me on that though) It is being trialed here though so perhaps they're thinking about it. But i do my accapella and that works excellently for me.

 
 

all that said i'm probably lucky in a sense to have CF, i get excellent care because of it, if you have to depend on GP's (general practicioners, non specislist, clincis in the community etc, prob like your primary care physicians), you can wait a while for an appointment (up to a week), unless your so urgent you need the ER etc. most pracitces do have emergency appointment slots though, so your not screwed.
oh and if your not happy with the NHS there are private hospitals run by insurance companies such as BUPA, that you can go to if you want to skip waiting lists.

 
 

the pros, if you have CF of the NHS far out weigh any cons.

 
 

xxxx
xxxx

Bumblebee · Jul 8, 2007

"SIKO

hello

 
i live in the UK so get care under the NHS. I can't fault it for my CF care. I have an excellent team who have a massive budget. I have no problems going into hospital and never have to worry about money (the most i've ever had to wait for a bed is 1 day because our 12 bed specialised ward - funded by the NHS - was full, incidently they're currently in plans to build a brand new larger ward with state of the art air systems etc) The team is always excellently staffed with consultants, doctors, dieticians, physiotheapists, social workers, psycologists, you know...everything you need. I can get any drug i want really, i take: creon 10 000 (brand name), TOBI (brand name), pulmozyme (brand name) and many other expensive drugs. I don't think anything is ever held back. the only problems i've ever had is with stupid pharmacists but not actual prescription of the drugs. I LOVE the fact i don't have to worry about money in terms of health care. I can't imagine worrying about that when sick...."can i afford the right drugs, will my insurance cover it, my copay is increasing" etc. I hear a lot of people on these boards working till they're rather unwell because they HAVE to, ultimately making them sicker. Not so here, as long as the DOC can sign the form and agrees you can't work you can get all manner of benefits. OH i've also had my eflow since dec 2005, when it just came out, i don't think anyone in america could say the same thing.

 
 

yes standards of care can vary depending what clinic/center you go to, but as as i see it that happens in the states too, at least we don't have to pay for it. and it's easy to move centres/clinics should you want to.

 

i would NEVER want to be under a private health care system like in America. Far too many posts on here i see about money issues and getting appropriate drugs. we just don't have that here. Okay, yes, we can't get the Vest very easily, unless willing to pay for it. But i doubt many would be as i don't think any studies have shown it to be more effective than other forms of physio (don't quote me on that though) It is being trialed here though so perhaps they're thinking about it. But i do my accapella and that works excellently for me.

 
 

all that said i'm probably lucky in a sense to have CF, i get excellent care because of it, if you have to depend on GP's (general practicioners, non specislist, clincis in the community etc, prob like your primary care physicians), you can wait a while for an appointment (up to a week), unless your so urgent you need the ER etc. most pracitces do have emergency appointment slots though, so your not screwed.
oh and if your not happy with the NHS there are private hospitals run by insurance companies such as BUPA, that you can go to if you want to skip waiting lists.

 
 

the pros, if you have CF of the NHS far out weigh any cons.

 
 

xxxx
xxxx

Bumblebee · Jul 8, 2007

"SIKO

hello

 
i live in the UK so get care under the NHS. I can't fault it for my CF care. I have an excellent team who have a massive budget. I have no problems going into hospital and never have to worry about money (the most i've ever had to wait for a bed is 1 day because our 12 bed specialised ward - funded by the NHS - was full, incidently they're currently in plans to build a brand new larger ward with state of the art air systems etc) The team is always excellently staffed with consultants, doctors, dieticians, physiotheapists, social workers, psycologists, you know...everything you need. I can get any drug i want really, i take: creon 10 000 (brand name), TOBI (brand name), pulmozyme (brand name) and many other expensive drugs. I don't think anything is ever held back. the only problems i've ever had is with stupid pharmacists but not actual prescription of the drugs. I LOVE the fact i don't have to worry about money in terms of health care. I can't imagine worrying about that when sick...."can i afford the right drugs, will my insurance cover it, my copay is increasing" etc. I hear a lot of people on these boards working till they're rather unwell because they HAVE to, ultimately making them sicker. Not so here, as long as the DOC can sign the form and agrees you can't work you can get all manner of benefits. OH i've also had my eflow since dec 2005, when it just came out, i don't think anyone in america could say the same thing.

 
 

yes standards of care can vary depending what clinic/center you go to, but as as i see it that happens in the states too, at least we don't have to pay for it. and it's easy to move centres/clinics should you want to.

 

i would NEVER want to be under a private health care system like in America. Far too many posts on here i see about money issues and getting appropriate drugs. we just don't have that here. Okay, yes, we can't get the Vest very easily, unless willing to pay for it. But i doubt many would be as i don't think any studies have shown it to be more effective than other forms of physio (don't quote me on that though) It is being trialed here though so perhaps they're thinking about it. But i do my accapella and that works excellently for me.

 
 

all that said i'm probably lucky in a sense to have CF, i get excellent care because of it, if you have to depend on GP's (general practicioners, non specislist, clincis in the community etc, prob like your primary care physicians), you can wait a while for an appointment (up to a week), unless your so urgent you need the ER etc. most pracitces do have emergency appointment slots though, so your not screwed.
oh and if your not happy with the NHS there are private hospitals run by insurance companies such as BUPA, that you can go to if you want to skip waiting lists.

 
 

the pros, if you have CF of the NHS far out weigh any cons.

 
 

xxxx
xxxx

Bumblebee · Jul 8, 2007

"SIKO

hello

 
i live in the UK so get care under the NHS. I can't fault it for my CF care. I have an excellent team who have a massive budget. I have no problems going into hospital and never have to worry about money (the most i've ever had to wait for a bed is 1 day because our 12 bed specialised ward - funded by the NHS - was full, incidently they're currently in plans to build a brand new larger ward with state of the art air systems etc) The team is always excellently staffed with consultants, doctors, dieticians, physiotheapists, social workers, psycologists, you know...everything you need. I can get any drug i want really, i take: creon 10 000 (brand name), TOBI (brand name), pulmozyme (brand name) and many other expensive drugs. I don't think anything is ever held back. the only problems i've ever had is with stupid pharmacists but not actual prescription of the drugs. I LOVE the fact i don't have to worry about money in terms of health care. I can't imagine worrying about that when sick...."can i afford the right drugs, will my insurance cover it, my copay is increasing" etc. I hear a lot of people on these boards working till they're rather unwell because they HAVE to, ultimately making them sicker. Not so here, as long as the DOC can sign the form and agrees you can't work you can get all manner of benefits. OH i've also had my eflow since dec 2005, when it just came out, i don't think anyone in america could say the same thing.

 
 

yes standards of care can vary depending what clinic/center you go to, but as as i see it that happens in the states too, at least we don't have to pay for it. and it's easy to move centres/clinics should you want to.

 

i would NEVER want to be under a private health care system like in America. Far too many posts on here i see about money issues and getting appropriate drugs. we just don't have that here. Okay, yes, we can't get the Vest very easily, unless willing to pay for it. But i doubt many would be as i don't think any studies have shown it to be more effective than other forms of physio (don't quote me on that though) It is being trialed here though so perhaps they're thinking about it. But i do my accapella and that works excellently for me.

 
 

all that said i'm probably lucky in a sense to have CF, i get excellent care because of it, if you have to depend on GP's (general practicioners, non specislist, clincis in the community etc, prob like your primary care physicians), you can wait a while for an appointment (up to a week), unless your so urgent you need the ER etc. most pracitces do have emergency appointment slots though, so your not screwed.
oh and if your not happy with the NHS there are private hospitals run by insurance companies such as BUPA, that you can go to if you want to skip waiting lists.

 
 

the pros, if you have CF of the NHS far out weigh any cons.

 
 

xxxx
xxxx

65rosessamurai · Jul 8, 2007

"SIKO

This was several weeks ago, but a television "variety" program had indicated that Japan was better than the U.S. as far as co-pay and such. And, although there is the National Insurance, and the National Social Insurance, it's only a difference between being sponsored by a company or paying yourself out of pocket (usually if you are self-employed, part-time employed, or unemployed). However, certain things, like my neb compressor, will not be covered, but just about any medication that the doctor prescribes will be covered.

Edited to add: I heard elswhere on this site that there were a few innacurate issues brought up by Michael Moore's movie....and, I've heard some of his other "documentaries" were not accurate in his facts, so do some research of your own.

65rosessamurai · Jul 8, 2007

"SIKO

This was several weeks ago, but a television "variety" program had indicated that Japan was better than the U.S. as far as co-pay and such. And, although there is the National Insurance, and the National Social Insurance, it's only a difference between being sponsored by a company or paying yourself out of pocket (usually if you are self-employed, part-time employed, or unemployed). However, certain things, like my neb compressor, will not be covered, but just about any medication that the doctor prescribes will be covered.

Edited to add: I heard elswhere on this site that there were a few innacurate issues brought up by Michael Moore's movie....and, I've heard some of his other "documentaries" were not accurate in his facts, so do some research of your own.

65rosessamurai · Jul 8, 2007

"SIKO

This was several weeks ago, but a television "variety" program had indicated that Japan was better than the U.S. as far as co-pay and such. And, although there is the National Insurance, and the National Social Insurance, it's only a difference between being sponsored by a company or paying yourself out of pocket (usually if you are self-employed, part-time employed, or unemployed). However, certain things, like my neb compressor, will not be covered, but just about any medication that the doctor prescribes will be covered.

Edited to add: I heard elswhere on this site that there were a few innacurate issues brought up by Michael Moore's movie....and, I've heard some of his other "documentaries" were not accurate in his facts, so do some research of your own.

65rosessamurai · Jul 8, 2007

"SIKO

This was several weeks ago, but a television "variety" program had indicated that Japan was better than the U.S. as far as co-pay and such. And, although there is the National Insurance, and the National Social Insurance, it's only a difference between being sponsored by a company or paying yourself out of pocket (usually if you are self-employed, part-time employed, or unemployed). However, certain things, like my neb compressor, will not be covered, but just about any medication that the doctor prescribes will be covered.

Edited to add: I heard elswhere on this site that there were a few innacurate issues brought up by Michael Moore's movie....and, I've heard some of his other "documentaries" were not accurate in his facts, so do some research of your own.

65rosessamurai · Jul 8, 2007

"SIKO

This was several weeks ago, but a television "variety" program had indicated that Japan was better than the U.S. as far as co-pay and such. And, although there is the National Insurance, and the National Social Insurance, it's only a difference between being sponsored by a company or paying yourself out of pocket (usually if you are self-employed, part-time employed, or unemployed). However, certain things, like my neb compressor, will not be covered, but just about any medication that the doctor prescribes will be covered.

Edited to add: I heard elswhere on this site that there were a few innacurate issues brought up by Michael Moore's movie....and, I've heard some of his other "documentaries" were not accurate in his facts, so do some research of your own.

65rosessamurai · Jul 8, 2007

"SIKO

This was several weeks ago, but a television "variety" program had indicated that Japan was better than the U.S. as far as co-pay and such. And, although there is the National Insurance, and the National Social Insurance, it's only a difference between being sponsored by a company or paying yourself out of pocket (usually if you are self-employed, part-time employed, or unemployed). However, certain things, like my neb compressor, will not be covered, but just about any medication that the doctor prescribes will be covered.

Edited to add: I heard elswhere on this site that there were a few innacurate issues brought up by Michael Moore's movie....and, I've heard some of his other "documentaries" were not accurate in his facts, so do some research of your own.

JazzysMom · Jul 8, 2007

"SIKO

I have another ?? on top of whether you have it or not. IF I remember right the different providences (is that the right term?) of Canada offers/restricts different things in healthcare even tho its socialized. I think of this similiar to Medicaid here in the USA. Even tho some is federally funded the states still have a say as to eligibility etc.

Is this true in other countries (presuming I am correct with Canada) and does that make a difference your you?

JazzysMom · Jul 8, 2007

"SIKO

I have another ?? on top of whether you have it or not. IF I remember right the different providences (is that the right term?) of Canada offers/restricts different things in healthcare even tho its socialized. I think of this similiar to Medicaid here in the USA. Even tho some is federally funded the states still have a say as to eligibility etc.

Is this true in other countries (presuming I am correct with Canada) and does that make a difference your you?

JazzysMom · Jul 8, 2007

"SIKO

I have another ?? on top of whether you have it or not. IF I remember right the different providences (is that the right term?) of Canada offers/restricts different things in healthcare even tho its socialized. I think of this similiar to Medicaid here in the USA. Even tho some is federally funded the states still have a say as to eligibility etc.

Is this true in other countries (presuming I am correct with Canada) and does that make a difference your you?

JazzysMom · Jul 8, 2007

"SIKO

I have another ?? on top of whether you have it or not. IF I remember right the different providences (is that the right term?) of Canada offers/restricts different things in healthcare even tho its socialized. I think of this similiar to Medicaid here in the USA. Even tho some is federally funded the states still have a say as to eligibility etc.

Is this true in other countries (presuming I am correct with Canada) and does that make a difference your you?

JazzysMom · Jul 8, 2007

"SIKO

I have another ?? on top of whether you have it or not. IF I remember right the different providences (is that the right term?) of Canada offers/restricts different things in healthcare even tho its socialized. I think of this similiar to Medicaid here in the USA. Even tho some is federally funded the states still have a say as to eligibility etc.

Is this true in other countries (presuming I am correct with Canada) and does that make a difference your you?

JazzysMom · Jul 8, 2007

"SIKO

I have another ?? on top of whether you have it or not. IF I remember right the different providences (is that the right term?) of Canada offers/restricts different things in healthcare even tho its socialized. I think of this similiar to Medicaid here in the USA. Even tho some is federally funded the states still have a say as to eligibility etc.

Is this true in other countries (presuming I am correct with Canada) and does that make a difference your you?

mum2kj · Jul 8, 2007

"SIKO

In Australia you don't have to pay for transplants, the govt pays it. I pay only $5.00 approx for prescription meds. Doctors are covered by medicare. I have no hospital bills.

Drawbacks is we can't afford the vest (no insurance)
No eflow either for same reason.
there is more drawbacks just can't think of them at the moment.

mum2kj · Jul 8, 2007

"SIKO

In Australia you don't have to pay for transplants, the govt pays it. I pay only $5.00 approx for prescription meds. Doctors are covered by medicare. I have no hospital bills.

Drawbacks is we can't afford the vest (no insurance)
No eflow either for same reason.
there is more drawbacks just can't think of them at the moment.

mum2kj · Jul 8, 2007

"SIKO

In Australia you don't have to pay for transplants, the govt pays it. I pay only $5.00 approx for prescription meds. Doctors are covered by medicare. I have no hospital bills.

Drawbacks is we can't afford the vest (no insurance)
No eflow either for same reason.
there is more drawbacks just can't think of them at the moment.

mum2kj · Jul 8, 2007

"SIKO

In Australia you don't have to pay for transplants, the govt pays it. I pay only $5.00 approx for prescription meds. Doctors are covered by medicare. I have no hospital bills.

Drawbacks is we can't afford the vest (no insurance)
No eflow either for same reason.
there is more drawbacks just can't think of them at the moment.

"SIKO"

New member

New member

New member

New member

65rosessamurai

Guest

65rosessamurai

Guest

65rosessamurai

Guest

65rosessamurai

Guest

65rosessamurai

Guest

65rosessamurai

Guest

New member

New member

New member

New member

New member

New member

New member

New member

New member

New member