When it's time to do vest therapy, the first thing I hear is will you sit with me? Most of the time that's ok, no problem. It is difficult to sit through every therapy and it makes me feel bad when I can't. Sometimes it even leads to a meltdown because I cannot sit through the full 30 mins. Just wondering if anyone else can relate?
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Sit with me
- Thread starter grsswspr
- Start date
When it's time to do vest therapy, the first thing I hear is will you sit with me? Most of the time that's ok, no problem. It is difficult to sit through every therapy and it makes me feel bad when I can't. Sometimes it even leads to a meltdown because I cannot sit through the full 30 mins. Just wondering if anyone else can relate?
When it's time to do vest therapy, the first thing I hear is will you sit with me? Most of the time that's ok, no problem. It is difficult to sit through every therapy and it makes me feel bad when I can't. Sometimes it even leads to a meltdown because I cannot sit through the full 30 mins. Just wondering if anyone else can relate?
Boy can we ever relate. With the vest, pulmozyme, and TOBI its about an hour and a half every day. I'm not complaining - its just HARD sometimes! Its our poor kids that have to go through this and more, probably, every day, for the rest of their lives. They need our help. Where's the time going to come from? For us, housework and cooking have gone out the window. Yet here I am online - (I've got today off work) - but I rationalize that I'm only human and I need my escapes, too.
Luckily, big sis pitches in and reads to her when she does her vest. We kill two birds this way, as big sis is supposed to read out loud as part of her homework. Me or DH help Katy with her breathing treatments. I have been known to prop the nebulizer against a pillow when she does her morning breathing treatments, because she is asleep for those. But I don't do this very often because it just doesn't seem fair. To me, we're all in this together, as a family.
All I can say is I hear you. It's definitely not easy.
Luckily, big sis pitches in and reads to her when she does her vest. We kill two birds this way, as big sis is supposed to read out loud as part of her homework. Me or DH help Katy with her breathing treatments. I have been known to prop the nebulizer against a pillow when she does her morning breathing treatments, because she is asleep for those. But I don't do this very often because it just doesn't seem fair. To me, we're all in this together, as a family.
All I can say is I hear you. It's definitely not easy.
Boy can we ever relate. With the vest, pulmozyme, and TOBI its about an hour and a half every day. I'm not complaining - its just HARD sometimes! Its our poor kids that have to go through this and more, probably, every day, for the rest of their lives. They need our help. Where's the time going to come from? For us, housework and cooking have gone out the window. Yet here I am online - (I've got today off work) - but I rationalize that I'm only human and I need my escapes, too.
Luckily, big sis pitches in and reads to her when she does her vest. We kill two birds this way, as big sis is supposed to read out loud as part of her homework. Me or DH help Katy with her breathing treatments. I have been known to prop the nebulizer against a pillow when she does her morning breathing treatments, because she is asleep for those. But I don't do this very often because it just doesn't seem fair. To me, we're all in this together, as a family.
All I can say is I hear you. It's definitely not easy.
Luckily, big sis pitches in and reads to her when she does her vest. We kill two birds this way, as big sis is supposed to read out loud as part of her homework. Me or DH help Katy with her breathing treatments. I have been known to prop the nebulizer against a pillow when she does her morning breathing treatments, because she is asleep for those. But I don't do this very often because it just doesn't seem fair. To me, we're all in this together, as a family.
All I can say is I hear you. It's definitely not easy.
Boy can we ever relate. With the vest, pulmozyme, and TOBI its about an hour and a half every day. I'm not complaining - its just HARD sometimes! Its our poor kids that have to go through this and more, probably, every day, for the rest of their lives. They need our help. Where's the time going to come from? For us, housework and cooking have gone out the window. Yet here I am online - (I've got today off work) - but I rationalize that I'm only human and I need my escapes, too.
Luckily, big sis pitches in and reads to her when she does her vest. We kill two birds this way, as big sis is supposed to read out loud as part of her homework. Me or DH help Katy with her breathing treatments. I have been known to prop the nebulizer against a pillow when she does her morning breathing treatments, because she is asleep for those. But I don't do this very often because it just doesn't seem fair. To me, we're all in this together, as a family.
All I can say is I hear you. It's definitely not easy.
Luckily, big sis pitches in and reads to her when she does her vest. We kill two birds this way, as big sis is supposed to read out loud as part of her homework. Me or DH help Katy with her breathing treatments. I have been known to prop the nebulizer against a pillow when she does her morning breathing treatments, because she is asleep for those. But I don't do this very often because it just doesn't seem fair. To me, we're all in this together, as a family.
All I can say is I hear you. It's definitely not easy.
We usually just end up sitting with DS. We watch cartoons, have a snack... Sometimes if we're pressed for time, I'll run in and out of the room, yelling, just a second I'll be right back!. Which is NOW what I hear constantly coming from DS when we want him to do something.
The biggy is the afterschool/afterwork/before dinner treatment. Trying to get dinner ready, go thru the mail, get organized for the next day or for swimming lessons later on in the night.
Basically, we just take the time and hang out. Figure someday he's not going to want his old parents around.
The biggy is the afterschool/afterwork/before dinner treatment. Trying to get dinner ready, go thru the mail, get organized for the next day or for swimming lessons later on in the night.
Basically, we just take the time and hang out. Figure someday he's not going to want his old parents around.
We usually just end up sitting with DS. We watch cartoons, have a snack... Sometimes if we're pressed for time, I'll run in and out of the room, yelling, just a second I'll be right back!. Which is NOW what I hear constantly coming from DS when we want him to do something.
The biggy is the afterschool/afterwork/before dinner treatment. Trying to get dinner ready, go thru the mail, get organized for the next day or for swimming lessons later on in the night.
Basically, we just take the time and hang out. Figure someday he's not going to want his old parents around.
The biggy is the afterschool/afterwork/before dinner treatment. Trying to get dinner ready, go thru the mail, get organized for the next day or for swimming lessons later on in the night.
Basically, we just take the time and hang out. Figure someday he's not going to want his old parents around.
We usually just end up sitting with DS. We watch cartoons, have a snack... Sometimes if we're pressed for time, I'll run in and out of the room, yelling, just a second I'll be right back!. Which is NOW what I hear constantly coming from DS when we want him to do something.
The biggy is the afterschool/afterwork/before dinner treatment. Trying to get dinner ready, go thru the mail, get organized for the next day or for swimming lessons later on in the night.
Basically, we just take the time and hang out. Figure someday he's not going to want his old parents around.
The biggy is the afterschool/afterwork/before dinner treatment. Trying to get dinner ready, go thru the mail, get organized for the next day or for swimming lessons later on in the night.
Basically, we just take the time and hang out. Figure someday he's not going to want his old parents around.
S
sdelorenzo
Guest
My son says it everyday. It breaks my heart when I can't sit. In the mornings when he is doing his treatment, I am feeding his sister and getting her ready for school. I guess I could wake him up earlier so I could sit with him, but I would rather have him get some more sleep.
In evening I try to do their treatments at 5. Then I can also cook at the same time. I spend a lot of time running back and forth between them in different rooms changing masks, resetting the machine, etc. I wish I could sit next to them all the time.
Sharon, mom of Sophia, 5 and Jack, 3 both with cf
In evening I try to do their treatments at 5. Then I can also cook at the same time. I spend a lot of time running back and forth between them in different rooms changing masks, resetting the machine, etc. I wish I could sit next to them all the time.
Sharon, mom of Sophia, 5 and Jack, 3 both with cf
S
sdelorenzo
Guest
My son says it everyday. It breaks my heart when I can't sit. In the mornings when he is doing his treatment, I am feeding his sister and getting her ready for school. I guess I could wake him up earlier so I could sit with him, but I would rather have him get some more sleep.
In evening I try to do their treatments at 5. Then I can also cook at the same time. I spend a lot of time running back and forth between them in different rooms changing masks, resetting the machine, etc. I wish I could sit next to them all the time.
Sharon, mom of Sophia, 5 and Jack, 3 both with cf
In evening I try to do their treatments at 5. Then I can also cook at the same time. I spend a lot of time running back and forth between them in different rooms changing masks, resetting the machine, etc. I wish I could sit next to them all the time.
Sharon, mom of Sophia, 5 and Jack, 3 both with cf
S
sdelorenzo
Guest
My son says it everyday. It breaks my heart when I can't sit. In the mornings when he is doing his treatment, I am feeding his sister and getting her ready for school. I guess I could wake him up earlier so I could sit with him, but I would rather have him get some more sleep.
In evening I try to do their treatments at 5. Then I can also cook at the same time. I spend a lot of time running back and forth between them in different rooms changing masks, resetting the machine, etc. I wish I could sit next to them all the time.
Sharon, mom of Sophia, 5 and Jack, 3 both with cf
In evening I try to do their treatments at 5. Then I can also cook at the same time. I spend a lot of time running back and forth between them in different rooms changing masks, resetting the machine, etc. I wish I could sit next to them all the time.
Sharon, mom of Sophia, 5 and Jack, 3 both with cf
S
sdelorenzo
Guest
My son says it everyday. It breaks my heart when I can't sit. In the mornings when he is doing his treatment, I am feeding his sister and getting her ready for school. I guess I could wake him up earlier so I could sit with him, but I would rather have him get some more sleep.
In evening I try to do their treatments at 5. Then I can also cook at the same time. I spend a lot of time running back and forth between them in different rooms changing masks, resetting the machine, etc. I wish I could sit next to them all the time.
Sharon, mom of Sophia, 5 and Jack, 3 both with cf
In evening I try to do their treatments at 5. Then I can also cook at the same time. I spend a lot of time running back and forth between them in different rooms changing masks, resetting the machine, etc. I wish I could sit next to them all the time.
Sharon, mom of Sophia, 5 and Jack, 3 both with cf
S
sdelorenzo
Guest
My son says it everyday. It breaks my heart when I can't sit. In the mornings when he is doing his treatment, I am feeding his sister and getting her ready for school. I guess I could wake him up earlier so I could sit with him, but I would rather have him get some more sleep.
In evening I try to do their treatments at 5. Then I can also cook at the same time. I spend a lot of time running back and forth between them in different rooms changing masks, resetting the machine, etc. I wish I could sit next to them all the time.
Sharon, mom of Sophia, 5 and Jack, 3 both with cf
In evening I try to do their treatments at 5. Then I can also cook at the same time. I spend a lot of time running back and forth between them in different rooms changing masks, resetting the machine, etc. I wish I could sit next to them all the time.
Sharon, mom of Sophia, 5 and Jack, 3 both with cf
S
sdelorenzo
Guest
My son says it everyday. It breaks my heart when I can't sit. In the mornings when he is doing his treatment, I am feeding his sister and getting her ready for school. I guess I could wake him up earlier so I could sit with him, but I would rather have him get some more sleep.
In evening I try to do their treatments at 5. Then I can also cook at the same time. I spend a lot of time running back and forth between them in different rooms changing masks, resetting the machine, etc. I wish I could sit next to them all the time.
Sharon, mom of Sophia, 5 and Jack, 3 both with cf
In evening I try to do their treatments at 5. Then I can also cook at the same time. I spend a lot of time running back and forth between them in different rooms changing masks, resetting the machine, etc. I wish I could sit next to them all the time.
Sharon, mom of Sophia, 5 and Jack, 3 both with cf
debs2girls
New member
Cheyenne asks me to sit with her also...I feel guilty if I cant, but it is not always possible...I cant sit with her when she is doing albuterol because it makes me sick to smell it..lol.
debs2girls
New member
Cheyenne asks me to sit with her also...I feel guilty if I cant, but it is not always possible...I cant sit with her when she is doing albuterol because it makes me sick to smell it..lol.
debs2girls
New member
Cheyenne asks me to sit with her also...I feel guilty if I cant, but it is not always possible...I cant sit with her when she is doing albuterol because it makes me sick to smell it..lol.
T
tammykrumrey
Guest
I do sit with my girls about 95% of the time. You would think that the two of them could keep each other company, but it just doesn't seem to work that way. We usually either play legos, a game, watch tv and eat a snack. Sometimes they get some reading in when it's on the lower settings (the vest). I still enjoy the time together<img src="i/expressions/face-icon-small-smile.gif" border="0">
T
tammykrumrey
Guest
I do sit with my girls about 95% of the time. You would think that the two of them could keep each other company, but it just doesn't seem to work that way. We usually either play legos, a game, watch tv and eat a snack. Sometimes they get some reading in when it's on the lower settings (the vest). I still enjoy the time together<img src="i/expressions/face-icon-small-smile.gif" border="0">