So here goes. I'll try and relate the info and make this short.
History: I finished my degree back in late 05/early 06. I didn't have much work history to show for my life before then due to my disease/dependency upon my mothers insurance. So the 2 jobs I had of any substantive time were both under the table kitchen jobs. After graduating with my degree with honors, I went and tried out for a correctional officers job with our local county PD. Even though I tore all the tests up (both written and physical), and they were hurting real bad for officers, my spotty work history with large gaps screwed me, and the didn't hire me.
I said to myself "Ok, well if it's experience they want, it's experience i'll get". And I went out and got all my security licenses, and went to work for the best agency that paid the best etc. Now remember, before all this I got violently sick, lost a large amount of lung capacity, and only felt good enough to try full time working when I did my supplements like oregano oil, etc.
Current Dilema: I worked at the same place/same company (as decribed above) starting 04/06. I called SS as soon as I started to work. I told them my hours, how much I made, etc. She said ok thank you, and we would be in touch. I figured (judging from the info from here) I had 9 months or so before things were cut off.
I waited 9 months, didn't hear anything, and then I called them back to check on the status of things. I asked the lady several times what was up, are my benefits ok, Are they ok for the new year, etc. She said yes, everything is fine for the year etc etc.
I said ok. Maybe i'm not on SSDI due to the SS that I do get is based on my fathers LIFELONG (55+ years) of putting into SS with hard work, with later on in life putting A TON of money into it because he made a ton of money. He died without retiring and touching his SS. Because I am disabled, I was able to claim his SS.
All of 07 (remember, I called them a couple times at the begining of 07 to check on my status, which was right at or slightly past the 9 month cut off time for SSDI, and they said all was fine).
Well the begining of 08 I get paperwork asking to know more about my work history. The paperwork had the information that I gave them in 04/06 regarding my job, my hours, my pay, and my employers information. This information HAD to have come from me, because it was an odd start date due to work training.
So I call up the SS and inform them of my situation, and ask if I can have an appointment at my local office with a rep and explain everything. I also called my original law firm that fought for my SS in the beginning. They told me I will probably get screwed, even though it sounds like it was their screw up.
I go to the meeting today with the paperwork, and tell her what is up, how much I make, my condition, how it has been hard at times to continue working, how I have been contemplating going part time, etc. While she was very nice, all she cared about was how much I made for how long. Needless to say, they don't consider anything regarding CF and the costly requirements.
If I make X amount of money per month, a TON of that money goes to care of the disease. Copays (a ton), supplements, dietary needs, gym dues...And that's all before you get into the realm of normal person financial responsibilities like house, car, general bills etc.
Basically because I made more than 900 per month at my job, I will have my benefits (remember, I'm not leeching off a system, my father put into the system for 55+ years, some of which was a very large amount, and I am his terminally ill, disabled child) cut off. And on top of that, I will probably have to pay back all of what they paid me in 07 (could possibly be 13,000 dollars). I could keep my emergency fall back medicare benefits, but that would be an additional 100 bucks per month premium.
The sad thing is...I did the math on what I earn now net, and what if I went very part time and kept it under 900 per month and retained my SS benefits (will be hard to pull off), I will overall be better off in many ways to just work part time and keep my benefits, than to work full time and lose my SS benefits.
If I take the latter it will still be a rather large monthly pay cut, but in the end will still be better than either not working at all or working full time. With my SS benefits and what I get at work, it helps me out with all the financial drains I have on my life due to my condition and situation in life. Without them, i will have to extremely change my life, and not for the better.
What pisses me off the most, is this is something that is paid for. My fathers 55+ years of paying into it. The only thing he has ever done for me besides impregnating me into my mother was this social aid, and now it's going to be gone and go to someone else who could very well be a leech.
I have no idea how they can feel -900 bucks a month is a living income. That is so far below the poverty line it's not even funny. With what I earn now at work, I'm not too far from the poverty line.
Anyways, just a vent. Looks like i'm screwed. In our system you get punished for trying to contribute via working. I've also heard it's nearly impossible to get back on it after you work and get off it (from here). So who knows how bad my life will suck when I literally can't work anymore due to my disease.
The one bright side to all this fecal buffet? I should hear by next tuesday if I get the ultra sweet dream job I have been trying to get for nearly a year. But 176 other people have applied for it, and if they have veteran status, I get screwed on that too.
Question: If someone works until retirement, they get their SS payments and medicare, and they can still keep working correct? Regardless of what they earn (atleast from what I understand)? So why should it be different if you are the offspring of someone who had put into the system their entire life, and you have a terminal degenerative disease? The rules should be the same in my opinion.
History: I finished my degree back in late 05/early 06. I didn't have much work history to show for my life before then due to my disease/dependency upon my mothers insurance. So the 2 jobs I had of any substantive time were both under the table kitchen jobs. After graduating with my degree with honors, I went and tried out for a correctional officers job with our local county PD. Even though I tore all the tests up (both written and physical), and they were hurting real bad for officers, my spotty work history with large gaps screwed me, and the didn't hire me.
I said to myself "Ok, well if it's experience they want, it's experience i'll get". And I went out and got all my security licenses, and went to work for the best agency that paid the best etc. Now remember, before all this I got violently sick, lost a large amount of lung capacity, and only felt good enough to try full time working when I did my supplements like oregano oil, etc.
Current Dilema: I worked at the same place/same company (as decribed above) starting 04/06. I called SS as soon as I started to work. I told them my hours, how much I made, etc. She said ok thank you, and we would be in touch. I figured (judging from the info from here) I had 9 months or so before things were cut off.
I waited 9 months, didn't hear anything, and then I called them back to check on the status of things. I asked the lady several times what was up, are my benefits ok, Are they ok for the new year, etc. She said yes, everything is fine for the year etc etc.
I said ok. Maybe i'm not on SSDI due to the SS that I do get is based on my fathers LIFELONG (55+ years) of putting into SS with hard work, with later on in life putting A TON of money into it because he made a ton of money. He died without retiring and touching his SS. Because I am disabled, I was able to claim his SS.
All of 07 (remember, I called them a couple times at the begining of 07 to check on my status, which was right at or slightly past the 9 month cut off time for SSDI, and they said all was fine).
Well the begining of 08 I get paperwork asking to know more about my work history. The paperwork had the information that I gave them in 04/06 regarding my job, my hours, my pay, and my employers information. This information HAD to have come from me, because it was an odd start date due to work training.
So I call up the SS and inform them of my situation, and ask if I can have an appointment at my local office with a rep and explain everything. I also called my original law firm that fought for my SS in the beginning. They told me I will probably get screwed, even though it sounds like it was their screw up.
I go to the meeting today with the paperwork, and tell her what is up, how much I make, my condition, how it has been hard at times to continue working, how I have been contemplating going part time, etc. While she was very nice, all she cared about was how much I made for how long. Needless to say, they don't consider anything regarding CF and the costly requirements.
If I make X amount of money per month, a TON of that money goes to care of the disease. Copays (a ton), supplements, dietary needs, gym dues...And that's all before you get into the realm of normal person financial responsibilities like house, car, general bills etc.
Basically because I made more than 900 per month at my job, I will have my benefits (remember, I'm not leeching off a system, my father put into the system for 55+ years, some of which was a very large amount, and I am his terminally ill, disabled child) cut off. And on top of that, I will probably have to pay back all of what they paid me in 07 (could possibly be 13,000 dollars). I could keep my emergency fall back medicare benefits, but that would be an additional 100 bucks per month premium.
The sad thing is...I did the math on what I earn now net, and what if I went very part time and kept it under 900 per month and retained my SS benefits (will be hard to pull off), I will overall be better off in many ways to just work part time and keep my benefits, than to work full time and lose my SS benefits.
If I take the latter it will still be a rather large monthly pay cut, but in the end will still be better than either not working at all or working full time. With my SS benefits and what I get at work, it helps me out with all the financial drains I have on my life due to my condition and situation in life. Without them, i will have to extremely change my life, and not for the better.
What pisses me off the most, is this is something that is paid for. My fathers 55+ years of paying into it. The only thing he has ever done for me besides impregnating me into my mother was this social aid, and now it's going to be gone and go to someone else who could very well be a leech.
I have no idea how they can feel -900 bucks a month is a living income. That is so far below the poverty line it's not even funny. With what I earn now at work, I'm not too far from the poverty line.
Anyways, just a vent. Looks like i'm screwed. In our system you get punished for trying to contribute via working. I've also heard it's nearly impossible to get back on it after you work and get off it (from here). So who knows how bad my life will suck when I literally can't work anymore due to my disease.
The one bright side to all this fecal buffet? I should hear by next tuesday if I get the ultra sweet dream job I have been trying to get for nearly a year. But 176 other people have applied for it, and if they have veteran status, I get screwed on that too.
Question: If someone works until retirement, they get their SS payments and medicare, and they can still keep working correct? Regardless of what they earn (atleast from what I understand)? So why should it be different if you are the offspring of someone who had put into the system their entire life, and you have a terminal degenerative disease? The rules should be the same in my opinion.