Daddy2Noah
New member
Hi everyone.
There is so much that I want to say, so much that I want to learn and so much that I want to share! Well, I hope to be around here for a long time, interacting with you all, brainstorming, sharing prayers and love, support and healing.
First of all, Happy Holidays to each and every one of you and your families and friends!
My name is Jay Buchanan and my son, Noah, is almost 5 months old. Born July 27, 2006 and diagnosed at day 8 with CF. we knew there was a chance, my wife was alerted to the fact that she is a carrier at around 15 weeks pregnant, and I soon followed with the carrier "label". Well, after 15 years of trying, unsuccessful, to have children, we knew instantly that we'd skip the amnio and with it the risk.
My wife and I have went through some normal challanges in the past, bankruptcy from trying our own business, etc...
Through that we began a lot of soul searching, a lot of "self-help" and a lot of discovery. I can not explain how much those years of soul searching are helping me now.
I am at work now, so I can not write much but I truly want to share as much as I can... I'll definitely be back soon after this post.
For now let me just say that I have reached an incredible inner peace with this all. I know there are challenges to come, and I know that I can't possibly be prepared for them. So I will take them a day at a time, an hour at a time, heck I'll take them a second at a time. I refuse to make this a focus of our lives, I strongly believe that which you set your mind on will manifest. I mean, we do everything that the hospital says we should do and I research a ton of info on this disease, but in the end, I put just as much effort and energy on the butterflies in the garden last Tuesday, the doves that have been greeting us at our front door since the day we discovered Noah was coming into the world, the tree frog that greeted Noah on the door screen when he came home from the hospital after being diagnosed, the fact that light bulbs are brighter when he is near them, the fact that he smiles at me and I am brought to a soul level of total peace and harmony in that very second, lost in his eyes, completely and totally in love with this child, this gift and the fact that I've had even just this past 4 months with him is a true miracle in and of itself!
So much to say...
I just want to say to anyone that has a little one that has been recently diagnosed, let's help each other not to feel sorry for ourselves and especially for our children! Let's help each other to see that we are as much a blessing to them as they are to us! The perfect pair! Parent(s) and child! A bond held together on a level that we as humans can never truly undertsand. Here? Gone? One in the same... just on a different level. Enjoy every second, blame nobody, live and love!
I have ideas! Maybe good, maybe not so good, I'll share them as time goes on.
I suffered from severe chronic bronchitis for years! Now they think maybe it's a polymorphism of CF (a carrier who suffers from some of the symptoms). Not sure, doesn;t really matter though, what matters is that I learned a deep breathing exercise years ago that restored the elasticity of my lungs and I have never felt better! Maybe that will help out some of our children and loved ones who have this disease.
You know, I hate to even give it a title! "Disease" "CF", BAH! I shall not empower it any further. It is what it is... but we don't have to be held down by it... you know, a chain or rope can be used to restrain someone. That same exact chain or rope can be used to pull a child from a well they had fallen into... saving them.
I am not sure what I meant by that! it sounded good in my head so I typed it
I love you all. Every single one of you!
I have been studying and performing magic and illusion my whole life and I think it's time that I devote this gift to helping those with CF and CF research.
I don't have any idea where this will carry me, but I've been set on this course and you can bet that I am going to man this ship, to the best of my ability, learning more and more each day and finding the joy of life in every breath from this point forward.
For all of you, for your loved ones, for Noah, let's do this!
Let's shift our consciousness to that of living instead of waiting for death.
Our loved ones are not statistics! Did you know that 87% of all statistics are made up on the spot? (ok... that was a statistics joke)
Seriously... I have to go but I can't wait to post again!
See you all REAL soon!
There is so much that I want to say, so much that I want to learn and so much that I want to share! Well, I hope to be around here for a long time, interacting with you all, brainstorming, sharing prayers and love, support and healing.
First of all, Happy Holidays to each and every one of you and your families and friends!
My name is Jay Buchanan and my son, Noah, is almost 5 months old. Born July 27, 2006 and diagnosed at day 8 with CF. we knew there was a chance, my wife was alerted to the fact that she is a carrier at around 15 weeks pregnant, and I soon followed with the carrier "label". Well, after 15 years of trying, unsuccessful, to have children, we knew instantly that we'd skip the amnio and with it the risk.
My wife and I have went through some normal challanges in the past, bankruptcy from trying our own business, etc...
Through that we began a lot of soul searching, a lot of "self-help" and a lot of discovery. I can not explain how much those years of soul searching are helping me now.
I am at work now, so I can not write much but I truly want to share as much as I can... I'll definitely be back soon after this post.
For now let me just say that I have reached an incredible inner peace with this all. I know there are challenges to come, and I know that I can't possibly be prepared for them. So I will take them a day at a time, an hour at a time, heck I'll take them a second at a time. I refuse to make this a focus of our lives, I strongly believe that which you set your mind on will manifest. I mean, we do everything that the hospital says we should do and I research a ton of info on this disease, but in the end, I put just as much effort and energy on the butterflies in the garden last Tuesday, the doves that have been greeting us at our front door since the day we discovered Noah was coming into the world, the tree frog that greeted Noah on the door screen when he came home from the hospital after being diagnosed, the fact that light bulbs are brighter when he is near them, the fact that he smiles at me and I am brought to a soul level of total peace and harmony in that very second, lost in his eyes, completely and totally in love with this child, this gift and the fact that I've had even just this past 4 months with him is a true miracle in and of itself!
So much to say...
I just want to say to anyone that has a little one that has been recently diagnosed, let's help each other not to feel sorry for ourselves and especially for our children! Let's help each other to see that we are as much a blessing to them as they are to us! The perfect pair! Parent(s) and child! A bond held together on a level that we as humans can never truly undertsand. Here? Gone? One in the same... just on a different level. Enjoy every second, blame nobody, live and love!
I have ideas! Maybe good, maybe not so good, I'll share them as time goes on.
I suffered from severe chronic bronchitis for years! Now they think maybe it's a polymorphism of CF (a carrier who suffers from some of the symptoms). Not sure, doesn;t really matter though, what matters is that I learned a deep breathing exercise years ago that restored the elasticity of my lungs and I have never felt better! Maybe that will help out some of our children and loved ones who have this disease.
You know, I hate to even give it a title! "Disease" "CF", BAH! I shall not empower it any further. It is what it is... but we don't have to be held down by it... you know, a chain or rope can be used to restrain someone. That same exact chain or rope can be used to pull a child from a well they had fallen into... saving them.
I am not sure what I meant by that! it sounded good in my head so I typed it
I love you all. Every single one of you!
I have been studying and performing magic and illusion my whole life and I think it's time that I devote this gift to helping those with CF and CF research.
I don't have any idea where this will carry me, but I've been set on this course and you can bet that I am going to man this ship, to the best of my ability, learning more and more each day and finding the joy of life in every breath from this point forward.
For all of you, for your loved ones, for Noah, let's do this!
Let's shift our consciousness to that of living instead of waiting for death.
Our loved ones are not statistics! Did you know that 87% of all statistics are made up on the spot? (ok... that was a statistics joke)
Seriously... I have to go but I can't wait to post again!
See you all REAL soon!