Social Security

Angel2393

New member
Hey guys. I am currently on my parents insurance as all my medications are very costly. My mom just lost her job and my job does not supply me with many hours, I also attend school. I never explored the idea of social security benefits for my CF...but is this possible? would I be able to recieve any such help? I am not in bad condition, i have recieved a lung transplant 5 years ago and am doing wonderful. What type of financial help can I recieve
 

Angel2393

New member
Hey guys. I am currently on my parents insurance as all my medications are very costly. My mom just lost her job and my job does not supply me with many hours, I also attend school. I never explored the idea of social security benefits for my CF...but is this possible? would I be able to recieve any such help? I am not in bad condition, i have recieved a lung transplant 5 years ago and am doing wonderful. What type of financial help can I recieve
 

Angel2393

New member
Ive tried, and been on the phone with them all day.. althoughh I am not really sure how it works.. are prescriptions expensive?? also, they said I would have to first be approved by social security??
 

Angel2393

New member
Ive tried, and been on the phone with them all day.. althoughh I am not really sure how it works.. are prescriptions expensive?? also, they said I would have to first be approved by social security??
 

Incomudrox

New member
If you get medicaid generics are $1 copay and brand name are $3... that's it. (may vary by state). I don't know anything about being approved by SS. Maybe you should give Beth Sufian a call...
 

Incomudrox

New member
If you get medicaid generics are $1 copay and brand name are $3... that's it. (may vary by state). I don't know anything about being approved by SS. Maybe you should give Beth Sufian a call...
 

Anomie

New member
My daughter didn't have insurance when she was first diagnosed due to a misplaced form so we had to apply for medicaid both retro-actively and until she could get back on her mom's insurance and we haven't been responsible to cover even a single dollar of her hospital stay or any of the medications she gets. It was almost like a blessing even though we were seriously freaked out while it was getting approved!
 

Anomie

New member
My daughter didn't have insurance when she was first diagnosed due to a misplaced form so we had to apply for medicaid both retro-actively and until she could get back on her mom's insurance and we haven't been responsible to cover even a single dollar of her hospital stay or any of the medications she gets. It was almost like a blessing even though we were seriously freaked out while it was getting approved!
 

Anomie

New member
We just called her and she doesn't have funding to take on anymore cases for 2012. She will provide you with some info to get started but maybe talk to a social worker at your next clinical visit. Thats what we're thinking about doing.
 

Anomie

New member
We just called her and she doesn't have funding to take on anymore cases for 2012. She will provide you with some info to get started but maybe talk to a social worker at your next clinical visit. Thats what we're thinking about doing.
 

Incomudrox

New member
CF Legal Information Hotline



Attorney Beth Sufian
manages the CF Legal Information Hotline.

CF Legal
Information Hotline
(800) 622-0385
CFLegal@cff.org

Have you had difficulties obtaining coverage for CF medications? Has your insurance company rejected your specialized CF care bills? Have you had trouble getting your child's CF needs met at school? Do you need information about applying for government benefits? Contact the CF Legal Information Hotline for help with your questions.
The CF Legal Information Hotline provides free information about the laws that protect the rights of individuals with cystic fibrosis (CF). It serves as a resource for CF Care Centers, individuals with CF, and their families. Information is available regarding:

Obtaining health insurance

Access to health insurance under the Health Insurance Portability and Accountability Act (HIPAA)

Extending health insurance coverage under COBRA

Insurance coverage issues

Social Security Disability Insurance benefits

Supplemental Security Income (SSI) benefits

Medicare and Medicaid coverage

Employment issues for people with CF, including protections under the Americans with Disabilities Act (ADA)

School laws to assist children with CF in public elementary and secondary schools through the Individuals with Disabilities Education Act (IDEA)

Protections for students in elementary school through college and beyond under the Rehabilitation Act of 1973, Section 504

Unpaid time off from work under the Family Medical Leave Act (FMLA)

Download a CF Legal Information Hotline Flier The CF Legal Information Hotline is an information resource only. The Hotline does not provide legal representation for callers. All calls are confidential.
The CF Legal Information Hotline is administered by Beth Sufian. An attorney and adult with CF, Ms. Sufian has been an advocate for individuals with CF for more than 15 years. Her professional and personal experiences have instilled in her a unique understanding of the law and the importance of being able to advocate for one's self or family member.

The Cystic Fibrosis Foundation is proud to sponsor the CF Legal Information Hotline through a grant from Novartis Pharmaceuticals Corporation.

To contact the hotline, call (800) 622-0385 or send an e-mail to CFLegal@cff.org.
 

Incomudrox

New member
CF Legal Information Hotline



Attorney Beth Sufian
manages the CF Legal Information Hotline.

CF Legal
Information Hotline
(800) 622-0385
CFLegal@cff.org

Have you had difficulties obtaining coverage for CF medications? Has your insurance company rejected your specialized CF care bills? Have you had trouble getting your child's CF needs met at school? Do you need information about applying for government benefits? Contact the CF Legal Information Hotline for help with your questions.
The CF Legal Information Hotline provides free information about the laws that protect the rights of individuals with cystic fibrosis (CF). It serves as a resource for CF Care Centers, individuals with CF, and their families. Information is available regarding:

Obtaining health insurance

Access to health insurance under the Health Insurance Portability and Accountability Act (HIPAA)

Extending health insurance coverage under COBRA

Insurance coverage issues

Social Security Disability Insurance benefits

Supplemental Security Income (SSI) benefits

Medicare and Medicaid coverage

Employment issues for people with CF, including protections under the Americans with Disabilities Act (ADA)

School laws to assist children with CF in public elementary and secondary schools through the Individuals with Disabilities Education Act (IDEA)

Protections for students in elementary school through college and beyond under the Rehabilitation Act of 1973, Section 504

Unpaid time off from work under the Family Medical Leave Act (FMLA)

Download a CF Legal Information Hotline Flier The CF Legal Information Hotline is an information resource only. The Hotline does not provide legal representation for callers. All calls are confidential.
The CF Legal Information Hotline is administered by Beth Sufian. An attorney and adult with CF, Ms. Sufian has been an advocate for individuals with CF for more than 15 years. Her professional and personal experiences have instilled in her a unique understanding of the law and the importance of being able to advocate for one's self or family member.

The Cystic Fibrosis Foundation is proud to sponsor the CF Legal Information Hotline through a grant from Novartis Pharmaceuticals Corporation.

To contact the hotline, call (800) 622-0385 or send an e-mail to CFLegal@cff.org.
 

Angel2393

New member
I am 19 and I have been working since I was 16. Medicaid will not provide me with insurance due to the fact that my dad makes above average income.. the thing is, I pay for everything on my own.
 

Angel2393

New member
I am 19 and I have been working since I was 16. Medicaid will not provide me with insurance due to the fact that my dad makes above average income.. the thing is, I pay for everything on my own.
 
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