Something Important to Say

amber682

New member
Thank you!!! Since I stumbled upon this site less than 6 months ago I have learned so much, and am able to talk with people who truly understand what I'm going through. I have laughed til my stomach hurt, cried til my head hurt, anxiously worried about people I've never met, and praised the Lord for helping people I barely know. Now that I've found you guys, I don't know what I'd do without you all. So thank you again for making this all possible!
 

Jem

New member
<img src="i/expressions/heart.gif" border="0"><img src="i/expressions/heart.gif" border="0"><img src="i/expressions/heart.gif" border="0"><img src="i/expressions/heart.gif" border="0"><img src="i/expressions/heart.gif" border="0"><img src="i/expressions/heart.gif" border="0"><img src="i/expressions/heart.gif" border="0"><img src="i/expressions/heart.gif" border="0"><img src="i/expressions/heart.gif" border="0"><img src="i/expressions/heart.gif" border="0"><img src="i/expressions/heart.gif" border="0"><img src="i/expressions/heart.gif" border="0">

Thank you Jeanne for your generous heart!!!!!!


We all are happier and healthier for it!<img src="i/expressions/face-icon-small-happy.gif" border="0">
 

Jem

New member
<img src="i/expressions/heart.gif" border="0"><img src="i/expressions/heart.gif" border="0"><img src="i/expressions/heart.gif" border="0"><img src="i/expressions/heart.gif" border="0"><img src="i/expressions/heart.gif" border="0"><img src="i/expressions/heart.gif" border="0"><img src="i/expressions/heart.gif" border="0"><img src="i/expressions/heart.gif" border="0"><img src="i/expressions/heart.gif" border="0"><img src="i/expressions/heart.gif" border="0"><img src="i/expressions/heart.gif" border="0"><img src="i/expressions/heart.gif" border="0">

Thank you Jeanne for your generous heart!!!!!!


We all are happier and healthier for it!<img src="i/expressions/face-icon-small-happy.gif" border="0">
 

Jem

New member
<img src="i/expressions/heart.gif" border="0"><img src="i/expressions/heart.gif" border="0"><img src="i/expressions/heart.gif" border="0"><img src="i/expressions/heart.gif" border="0"><img src="i/expressions/heart.gif" border="0"><img src="i/expressions/heart.gif" border="0"><img src="i/expressions/heart.gif" border="0"><img src="i/expressions/heart.gif" border="0"><img src="i/expressions/heart.gif" border="0"><img src="i/expressions/heart.gif" border="0"><img src="i/expressions/heart.gif" border="0"><img src="i/expressions/heart.gif" border="0">

Thank you Jeanne for your generous heart!!!!!!


We all are happier and healthier for it!<img src="i/expressions/face-icon-small-happy.gif" border="0">
 

Diane

New member
I had no idea how this all came to be either, but now that i do.... Thank you Jeanne very much , this site is very important to me and sooooo many others.<img src="i/expressions/heart.gif" border="0"><img src="i/expressions/rose.gif" border="0">
 

Diane

New member
I had no idea how this all came to be either, but now that i do.... Thank you Jeanne very much , this site is very important to me and sooooo many others.<img src="i/expressions/heart.gif" border="0"><img src="i/expressions/rose.gif" border="0">
 

Diane

New member
I had no idea how this all came to be either, but now that i do.... Thank you Jeanne very much , this site is very important to me and sooooo many others.<img src="i/expressions/heart.gif" border="0"><img src="i/expressions/rose.gif" border="0">
 

SarahK

New member
Mamma Jeanne -
She IS amazing. I can attest to that! I want to let you all in on a little "secret". My mother, Jeanne, is brilliant - she is a mathematician. (Unfortunately, I didn't inherit those genes). She studies this site - all the time - she has no time, but she has all the time in the world to study THIS site. It is intriguing, which is why I became so interested in it. Jeanne literally studies the forums and blogs. She knows all of YOU. Every single person on this site - for 10 years.

Jeanne studies this site, and interprets it. She then figures out what you need. We have meetings, and discuss which "sponsors" we should seek out, for what and how we are going to do it. We are going after the sponsors. You guys would not belive all that goes on behind the scenes. There are only a few of us - but we are growing. Did you know that Jeanne and Peter own Medrise.com - which is a health library of 50 other health sites???!! Cysticfibrosis.com, however, is her baby. It's truly remarkable. This site is watched over 24/7.

Personally, I am excited to generate "buzz" and get the pharmas talking here at cysticfibrosis.com. The relevant sponsors should be participating here. I was in sales for 8 years, I worked on Wall Street for Bank of America (Nationsbank at the start) and I sold Fixed Income Securities to Institutional Accounts. That was hard. Selling the concepts of participating interactively at www.cysticfibrosis.com is harder. We are working endlessly to see it through.

Jeanne and I attended the DTC (Direct to Consumer) Conference here in NJ 2 weeks ago. You know what we learned? Pharmas don't know how to use the Internet for emarketing, they still don't "get it". We've been waiting for them to get here for nearly 10 years. They are just beginning to understand how powerful the Internet actually is. We are hoping to bring information about the Air-CF Trials here REAL soon! Jeanne also attended the CF Conference in Denver last week and is working tirelessly with us to bring more sponsors, more education and more interaction to this site. Jeanne is so passionate about you all and I know that together with cysticfibrosis.com we are going to bring some serious "hope" to the entire CF community. Our plans are big - so hang on to us - you're going to new places. Stay tuned...
 

SarahK

New member
Mamma Jeanne -
She IS amazing. I can attest to that! I want to let you all in on a little "secret". My mother, Jeanne, is brilliant - she is a mathematician. (Unfortunately, I didn't inherit those genes). She studies this site - all the time - she has no time, but she has all the time in the world to study THIS site. It is intriguing, which is why I became so interested in it. Jeanne literally studies the forums and blogs. She knows all of YOU. Every single person on this site - for 10 years.

Jeanne studies this site, and interprets it. She then figures out what you need. We have meetings, and discuss which "sponsors" we should seek out, for what and how we are going to do it. We are going after the sponsors. You guys would not belive all that goes on behind the scenes. There are only a few of us - but we are growing. Did you know that Jeanne and Peter own Medrise.com - which is a health library of 50 other health sites???!! Cysticfibrosis.com, however, is her baby. It's truly remarkable. This site is watched over 24/7.

Personally, I am excited to generate "buzz" and get the pharmas talking here at cysticfibrosis.com. The relevant sponsors should be participating here. I was in sales for 8 years, I worked on Wall Street for Bank of America (Nationsbank at the start) and I sold Fixed Income Securities to Institutional Accounts. That was hard. Selling the concepts of participating interactively at www.cysticfibrosis.com is harder. We are working endlessly to see it through.

Jeanne and I attended the DTC (Direct to Consumer) Conference here in NJ 2 weeks ago. You know what we learned? Pharmas don't know how to use the Internet for emarketing, they still don't "get it". We've been waiting for them to get here for nearly 10 years. They are just beginning to understand how powerful the Internet actually is. We are hoping to bring information about the Air-CF Trials here REAL soon! Jeanne also attended the CF Conference in Denver last week and is working tirelessly with us to bring more sponsors, more education and more interaction to this site. Jeanne is so passionate about you all and I know that together with cysticfibrosis.com we are going to bring some serious "hope" to the entire CF community. Our plans are big - so hang on to us - you're going to new places. Stay tuned...
 

SarahK

New member
Mamma Jeanne -
She IS amazing. I can attest to that! I want to let you all in on a little "secret". My mother, Jeanne, is brilliant - she is a mathematician. (Unfortunately, I didn't inherit those genes). She studies this site - all the time - she has no time, but she has all the time in the world to study THIS site. It is intriguing, which is why I became so interested in it. Jeanne literally studies the forums and blogs. She knows all of YOU. Every single person on this site - for 10 years.

Jeanne studies this site, and interprets it. She then figures out what you need. We have meetings, and discuss which "sponsors" we should seek out, for what and how we are going to do it. We are going after the sponsors. You guys would not belive all that goes on behind the scenes. There are only a few of us - but we are growing. Did you know that Jeanne and Peter own Medrise.com - which is a health library of 50 other health sites???!! Cysticfibrosis.com, however, is her baby. It's truly remarkable. This site is watched over 24/7.

Personally, I am excited to generate "buzz" and get the pharmas talking here at cysticfibrosis.com. The relevant sponsors should be participating here. I was in sales for 8 years, I worked on Wall Street for Bank of America (Nationsbank at the start) and I sold Fixed Income Securities to Institutional Accounts. That was hard. Selling the concepts of participating interactively at www.cysticfibrosis.com is harder. We are working endlessly to see it through.

Jeanne and I attended the DTC (Direct to Consumer) Conference here in NJ 2 weeks ago. You know what we learned? Pharmas don't know how to use the Internet for emarketing, they still don't "get it". We've been waiting for them to get here for nearly 10 years. They are just beginning to understand how powerful the Internet actually is. We are hoping to bring information about the Air-CF Trials here REAL soon! Jeanne also attended the CF Conference in Denver last week and is working tirelessly with us to bring more sponsors, more education and more interaction to this site. Jeanne is so passionate about you all and I know that together with cysticfibrosis.com we are going to bring some serious "hope" to the entire CF community. Our plans are big - so hang on to us - you're going to new places. Stay tuned...
 

Brad

New member
Wow,,, I did not know any of this.

I have been popping into this site for about 5 years now.
I joined this year because it was set up so nice and neat

Thank You <img src="i/expressions/rose.gif" border="0">Jeanne and Thank You <img src="i/expressions/rose.gif" border="0">Sarah
 

Brad

New member
Wow,,, I did not know any of this.

I have been popping into this site for about 5 years now.
I joined this year because it was set up so nice and neat

Thank You <img src="i/expressions/rose.gif" border="0">Jeanne and Thank You <img src="i/expressions/rose.gif" border="0">Sarah
 

Brad

New member
Wow,,, I did not know any of this.

I have been popping into this site for about 5 years now.
I joined this year because it was set up so nice and neat

Thank You <img src="i/expressions/rose.gif" border="0">Jeanne and Thank You <img src="i/expressions/rose.gif" border="0">Sarah
 

CFHockeyMom

New member
Thank you, thank you, thank you!

This site is amazing and I'm so glad to have it. I've met people that will be my friends for life, I've learned so much about CF, and I've gotten support when I've really needed it.

I've said it before, we are truly all a family here. We laugh, we love, and we fight. Finding this site was a blessing.

Thank you!<img src="i/expressions/rose.gif" border="0">
 

CFHockeyMom

New member
Thank you, thank you, thank you!

This site is amazing and I'm so glad to have it. I've met people that will be my friends for life, I've learned so much about CF, and I've gotten support when I've really needed it.

I've said it before, we are truly all a family here. We laugh, we love, and we fight. Finding this site was a blessing.

Thank you!<img src="i/expressions/rose.gif" border="0">
 

CFHockeyMom

New member
Thank you, thank you, thank you!

This site is amazing and I'm so glad to have it. I've met people that will be my friends for life, I've learned so much about CF, and I've gotten support when I've really needed it.

I've said it before, we are truly all a family here. We laugh, we love, and we fight. Finding this site was a blessing.

Thank you!<img src="i/expressions/rose.gif" border="0">
 

thelizardqueen

New member
I don't know what I'd do without this site. I come here everyday either looking for info, wanting to see what's goin on in the daily lives of others, or even to post something and help out myself. Thank you Jeanne for all your hard work and dedication! This site is amazing. I've gotten so much help from it.
 
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