Something to get off my chest...

Emily65Roses

New member
It's not as much about judging for the sake of it, at least with me. Whenever I say anything like the OP (by the way, I agree almost 100%), it's because I care. We may not be parents, but if you're asking how to raise a CFer, we do have advice there. Perhaps more than some CF parents would want to admit. It's easier to brush it off and say "Well they have no idea, they're not parents!" Especially because a lot of the time when we get reactions like that, it's because it's to advice parents don't like.

I have lived with CF for 23 years. I have plenty of advice and tips on what are good things to do and what are bad things to do regarding the differences in raising a CFer. Most of you have heard many of them. Each child is different, each family is different, but if I hear of a case where I don't agree, I will say so. Adamantly, and I'll explain why. My opinions on these things do not come from thin air. Chances are, I'm never going to have kids. But it doesn't mean I'm a bonehead and I can't offer anything useful. In short, if someone asks advice on how to do X with a CFer, and I feel I have a worthwhile two cents, I'm going to offer it.

I think parents could learn a lot from adult CFers here, if they choose to open their minds wide enough to let in some advice they may not like at first glance. Yes, you'll get good advice from other parents. And no, some of us don't know what it's like to be a parent. But we know what it's like to be in your child's shoes, and if you're trying to do the best for <i>them</i>, you may want to listen when we pipe up. Our situations may not always collide with yours, but chances are, at some point, they will. And then you'll want to hear what we have to say.

We don't have the authority (if you want to be real elitist about it) to give parenting advice. But this forum is not for general parenting advice. It's for CF advice (which often goes hand in hand with parenting advice). And when it comes to CF advice, we have all the authority necessary to give it.
 

Emily65Roses

New member
It's not as much about judging for the sake of it, at least with me. Whenever I say anything like the OP (by the way, I agree almost 100%), it's because I care. We may not be parents, but if you're asking how to raise a CFer, we do have advice there. Perhaps more than some CF parents would want to admit. It's easier to brush it off and say "Well they have no idea, they're not parents!" Especially because a lot of the time when we get reactions like that, it's because it's to advice parents don't like.

I have lived with CF for 23 years. I have plenty of advice and tips on what are good things to do and what are bad things to do regarding the differences in raising a CFer. Most of you have heard many of them. Each child is different, each family is different, but if I hear of a case where I don't agree, I will say so. Adamantly, and I'll explain why. My opinions on these things do not come from thin air. Chances are, I'm never going to have kids. But it doesn't mean I'm a bonehead and I can't offer anything useful. In short, if someone asks advice on how to do X with a CFer, and I feel I have a worthwhile two cents, I'm going to offer it.

I think parents could learn a lot from adult CFers here, if they choose to open their minds wide enough to let in some advice they may not like at first glance. Yes, you'll get good advice from other parents. And no, some of us don't know what it's like to be a parent. But we know what it's like to be in your child's shoes, and if you're trying to do the best for <i>them</i>, you may want to listen when we pipe up. Our situations may not always collide with yours, but chances are, at some point, they will. And then you'll want to hear what we have to say.

We don't have the authority (if you want to be real elitist about it) to give parenting advice. But this forum is not for general parenting advice. It's for CF advice (which often goes hand in hand with parenting advice). And when it comes to CF advice, we have all the authority necessary to give it.
 

Emily65Roses

New member
It's not as much about judging for the sake of it, at least with me. Whenever I say anything like the OP (by the way, I agree almost 100%), it's because I care. We may not be parents, but if you're asking how to raise a CFer, we do have advice there. Perhaps more than some CF parents would want to admit. It's easier to brush it off and say "Well they have no idea, they're not parents!" Especially because a lot of the time when we get reactions like that, it's because it's to advice parents don't like.

I have lived with CF for 23 years. I have plenty of advice and tips on what are good things to do and what are bad things to do regarding the differences in raising a CFer. Most of you have heard many of them. Each child is different, each family is different, but if I hear of a case where I don't agree, I will say so. Adamantly, and I'll explain why. My opinions on these things do not come from thin air. Chances are, I'm never going to have kids. But it doesn't mean I'm a bonehead and I can't offer anything useful. In short, if someone asks advice on how to do X with a CFer, and I feel I have a worthwhile two cents, I'm going to offer it.

I think parents could learn a lot from adult CFers here, if they choose to open their minds wide enough to let in some advice they may not like at first glance. Yes, you'll get good advice from other parents. And no, some of us don't know what it's like to be a parent. But we know what it's like to be in your child's shoes, and if you're trying to do the best for <i>them</i>, you may want to listen when we pipe up. Our situations may not always collide with yours, but chances are, at some point, they will. And then you'll want to hear what we have to say.

We don't have the authority (if you want to be real elitist about it) to give parenting advice. But this forum is not for general parenting advice. It's for CF advice (which often goes hand in hand with parenting advice). And when it comes to CF advice, we have all the authority necessary to give it.
 

Emily65Roses

New member
It's not as much about judging for the sake of it, at least with me. Whenever I say anything like the OP (by the way, I agree almost 100%), it's because I care. We may not be parents, but if you're asking how to raise a CFer, we do have advice there. Perhaps more than some CF parents would want to admit. It's easier to brush it off and say "Well they have no idea, they're not parents!" Especially because a lot of the time when we get reactions like that, it's because it's to advice parents don't like.

I have lived with CF for 23 years. I have plenty of advice and tips on what are good things to do and what are bad things to do regarding the differences in raising a CFer. Most of you have heard many of them. Each child is different, each family is different, but if I hear of a case where I don't agree, I will say so. Adamantly, and I'll explain why. My opinions on these things do not come from thin air. Chances are, I'm never going to have kids. But it doesn't mean I'm a bonehead and I can't offer anything useful. In short, if someone asks advice on how to do X with a CFer, and I feel I have a worthwhile two cents, I'm going to offer it.

I think parents could learn a lot from adult CFers here, if they choose to open their minds wide enough to let in some advice they may not like at first glance. Yes, you'll get good advice from other parents. And no, some of us don't know what it's like to be a parent. But we know what it's like to be in your child's shoes, and if you're trying to do the best for <i>them</i>, you may want to listen when we pipe up. Our situations may not always collide with yours, but chances are, at some point, they will. And then you'll want to hear what we have to say.

We don't have the authority (if you want to be real elitist about it) to give parenting advice. But this forum is not for general parenting advice. It's for CF advice (which often goes hand in hand with parenting advice). And when it comes to CF advice, we have all the authority necessary to give it.
 

Emily65Roses

New member
It's not as much about judging for the sake of it, at least with me. Whenever I say anything like the OP (by the way, I agree almost 100%), it's because I care. We may not be parents, but if you're asking how to raise a CFer, we do have advice there. Perhaps more than some CF parents would want to admit. It's easier to brush it off and say "Well they have no idea, they're not parents!" Especially because a lot of the time when we get reactions like that, it's because it's to advice parents don't like.

I have lived with CF for 23 years. I have plenty of advice and tips on what are good things to do and what are bad things to do regarding the differences in raising a CFer. Most of you have heard many of them. Each child is different, each family is different, but if I hear of a case where I don't agree, I will say so. Adamantly, and I'll explain why. My opinions on these things do not come from thin air. Chances are, I'm never going to have kids. But it doesn't mean I'm a bonehead and I can't offer anything useful. In short, if someone asks advice on how to do X with a CFer, and I feel I have a worthwhile two cents, I'm going to offer it.

I think parents could learn a lot from adult CFers here, if they choose to open their minds wide enough to let in some advice they may not like at first glance. Yes, you'll get good advice from other parents. And no, some of us don't know what it's like to be a parent. But we know what it's like to be in your child's shoes, and if you're trying to do the best for <i>them</i>, you may want to listen when we pipe up. Our situations may not always collide with yours, but chances are, at some point, they will. And then you'll want to hear what we have to say.

We don't have the authority (if you want to be real elitist about it) to give parenting advice. But this forum is not for general parenting advice. It's for CF advice (which often goes hand in hand with parenting advice). And when it comes to CF advice, we have all the authority necessary to give it.
 

Jane

Digital opinion leader
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>

In short, if someone asks advice on how to do X with a CFer, and I feel I have a worthwhile two cents, I'm going to offer it.

I think parents could learn a lot from adult CFers here, Our situations may not always collide with yours, but chances are, at some point, they will. And then you'll want to hear what we have to say.
.</end quote></div>

Thanks Em, that's why we're here.<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Jane

Digital opinion leader
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>

In short, if someone asks advice on how to do X with a CFer, and I feel I have a worthwhile two cents, I'm going to offer it.

I think parents could learn a lot from adult CFers here, Our situations may not always collide with yours, but chances are, at some point, they will. And then you'll want to hear what we have to say.
.</end quote></div>

Thanks Em, that's why we're here.<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Jane

Digital opinion leader
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>

In short, if someone asks advice on how to do X with a CFer, and I feel I have a worthwhile two cents, I'm going to offer it.

I think parents could learn a lot from adult CFers here, Our situations may not always collide with yours, but chances are, at some point, they will. And then you'll want to hear what we have to say.
.</end quote></div>

Thanks Em, that's why we're here.<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Jane

Digital opinion leader
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>

In short, if someone asks advice on how to do X with a CFer, and I feel I have a worthwhile two cents, I'm going to offer it.

I think parents could learn a lot from adult CFers here, Our situations may not always collide with yours, but chances are, at some point, they will. And then you'll want to hear what we have to say.
.</end quote>

Thanks Em, that's why we're here.<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Jane

Digital opinion leader
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>

In short, if someone asks advice on how to do X with a CFer, and I feel I have a worthwhile two cents, I'm going to offer it.

I think parents could learn a lot from adult CFers here, Our situations may not always collide with yours, but chances are, at some point, they will. And then you'll want to hear what we have to say.
.</end quote>

Thanks Em, that's why we're here.<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
T

tammykrumrey

Guest
Emily's post made me think of the reason why I even bother visiting the adult section. It's because you adults with CF have been there and done that!

I don't always agree with the suggestions, but that's life! I respect what those adults with CF have been through, and you have walked in my childs shoes, to some extent. Most of the time I take a little info from one person, and more from another and put them all together to form my own opinion. Even if you don't have your own children, sometimes you may think of something that I just didn't think about. That's the beauty of a forum like this.

And you all had parents, too<img src="i/expressions/face-icon-small-smile.gif" border="0"> who were in my shoes!
 
T

tammykrumrey

Guest
Emily's post made me think of the reason why I even bother visiting the adult section. It's because you adults with CF have been there and done that!

I don't always agree with the suggestions, but that's life! I respect what those adults with CF have been through, and you have walked in my childs shoes, to some extent. Most of the time I take a little info from one person, and more from another and put them all together to form my own opinion. Even if you don't have your own children, sometimes you may think of something that I just didn't think about. That's the beauty of a forum like this.

And you all had parents, too<img src="i/expressions/face-icon-small-smile.gif" border="0"> who were in my shoes!
 
T

tammykrumrey

Guest
Emily's post made me think of the reason why I even bother visiting the adult section. It's because you adults with CF have been there and done that!

I don't always agree with the suggestions, but that's life! I respect what those adults with CF have been through, and you have walked in my childs shoes, to some extent. Most of the time I take a little info from one person, and more from another and put them all together to form my own opinion. Even if you don't have your own children, sometimes you may think of something that I just didn't think about. That's the beauty of a forum like this.

And you all had parents, too<img src="i/expressions/face-icon-small-smile.gif" border="0"> who were in my shoes!
 
T

tammykrumrey

Guest
Emily's post made me think of the reason why I even bother visiting the adult section. It's because you adults with CF have been there and done that!

I don't always agree with the suggestions, but that's life! I respect what those adults with CF have been through, and you have walked in my childs shoes, to some extent. Most of the time I take a little info from one person, and more from another and put them all together to form my own opinion. Even if you don't have your own children, sometimes you may think of something that I just didn't think about. That's the beauty of a forum like this.

And you all had parents, too<img src="i/expressions/face-icon-small-smile.gif" border="0"> who were in my shoes!
 
T

tammykrumrey

Guest
Emily's post made me think of the reason why I even bother visiting the adult section. It's because you adults with CF have been there and done that!

I don't always agree with the suggestions, but that's life! I respect what those adults with CF have been through, and you have walked in my childs shoes, to some extent. Most of the time I take a little info from one person, and more from another and put them all together to form my own opinion. Even if you don't have your own children, sometimes you may think of something that I just didn't think about. That's the beauty of a forum like this.

And you all had parents, too<img src="i/expressions/face-icon-small-smile.gif" border="0"> who were in my shoes!
 

Emily65Roses

New member
Obviously, there are some (many, really) parents that do listen and do appreciate what we have to say. I didn't mean you all need to "shape up or ship out!" Was just speaking to the ones that don't pay attention, so much.

I know there are plenty of parents that already care deeply about what we have to say. I've spoken with many. And I'm happy for any instance where I can help by sharing my experiences.

I think it helps me almost as much as it helps anyone who's asking. I like floating around here being able to throw out any knowledge where I might have it. Makes me feel useful.

I'm done rambling now.
 

Emily65Roses

New member
Obviously, there are some (many, really) parents that do listen and do appreciate what we have to say. I didn't mean you all need to "shape up or ship out!" Was just speaking to the ones that don't pay attention, so much.

I know there are plenty of parents that already care deeply about what we have to say. I've spoken with many. And I'm happy for any instance where I can help by sharing my experiences.

I think it helps me almost as much as it helps anyone who's asking. I like floating around here being able to throw out any knowledge where I might have it. Makes me feel useful.

I'm done rambling now.
 

Emily65Roses

New member
Obviously, there are some (many, really) parents that do listen and do appreciate what we have to say. I didn't mean you all need to "shape up or ship out!" Was just speaking to the ones that don't pay attention, so much.

I know there are plenty of parents that already care deeply about what we have to say. I've spoken with many. And I'm happy for any instance where I can help by sharing my experiences.

I think it helps me almost as much as it helps anyone who's asking. I like floating around here being able to throw out any knowledge where I might have it. Makes me feel useful.

I'm done rambling now.
 

Emily65Roses

New member
Obviously, there are some (many, really) parents that do listen and do appreciate what we have to say. I didn't mean you all need to "shape up or ship out!" Was just speaking to the ones that don't pay attention, so much.

I know there are plenty of parents that already care deeply about what we have to say. I've spoken with many. And I'm happy for any instance where I can help by sharing my experiences.

I think it helps me almost as much as it helps anyone who's asking. I like floating around here being able to throw out any knowledge where I might have it. Makes me feel useful.

I'm done rambling now.
 

Emily65Roses

New member
Obviously, there are some (many, really) parents that do listen and do appreciate what we have to say. I didn't mean you all need to "shape up or ship out!" Was just speaking to the ones that don't pay attention, so much.

I know there are plenty of parents that already care deeply about what we have to say. I've spoken with many. And I'm happy for any instance where I can help by sharing my experiences.

I think it helps me almost as much as it helps anyone who's asking. I like floating around here being able to throw out any knowledge where I might have it. Makes me feel useful.

I'm done rambling now.
 
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