Son culture positive for MRSA

L

Liamsmom

New member
A couple of weeks ago Liam had a Dr appointment and did real well. Lung functions great, gaining weight, ex. I asked about the cultures from the last visit (two months previous) and he told me that he tested positive for staph again and it was nothing to worry about.

I am given a piece of paper at every visit to show me what is going on. I can campare lung functions, see wieght he has gained and see what he has cultured. Looking at this paper I saw that he cultured positive for MRSA.

I love his CF Dr and know he would tell me if there was something to worry about but everything I have heard about MRSA in the media I am a little worried.

I would appriciate any advice. FYI- He is on a oral antibiotic M,W,and F.
 
L

Liamsmom

New member
A couple of weeks ago Liam had a Dr appointment and did real well. Lung functions great, gaining weight, ex. I asked about the cultures from the last visit (two months previous) and he told me that he tested positive for staph again and it was nothing to worry about.

I am given a piece of paper at every visit to show me what is going on. I can campare lung functions, see wieght he has gained and see what he has cultured. Looking at this paper I saw that he cultured positive for MRSA.

I love his CF Dr and know he would tell me if there was something to worry about but everything I have heard about MRSA in the media I am a little worried.

I would appriciate any advice. FYI- He is on a oral antibiotic M,W,and F.
 
L

Liamsmom

New member
A couple of weeks ago Liam had a Dr appointment and did real well. Lung functions great, gaining weight, ex. I asked about the cultures from the last visit (two months previous) and he told me that he tested positive for staph again and it was nothing to worry about.

I am given a piece of paper at every visit to show me what is going on. I can campare lung functions, see wieght he has gained and see what he has cultured. Looking at this paper I saw that he cultured positive for MRSA.

I love his CF Dr and know he would tell me if there was something to worry about but everything I have heard about MRSA in the media I am a little worried.

I would appriciate any advice. FYI- He is on a oral antibiotic M,W,and F.
 
L

Liamsmom

New member
A couple of weeks ago Liam had a Dr appointment and did real well. Lung functions great, gaining weight, ex. I asked about the cultures from the last visit (two months previous) and he told me that he tested positive for staph again and it was nothing to worry about.

I am given a piece of paper at every visit to show me what is going on. I can campare lung functions, see wieght he has gained and see what he has cultured. Looking at this paper I saw that he cultured positive for MRSA.

I love his CF Dr and know he would tell me if there was something to worry about but everything I have heard about MRSA in the media I am a little worried.

I would appriciate any advice. FYI- He is on a oral antibiotic M,W,and F.
 
L

Liamsmom

New member
A couple of weeks ago Liam had a Dr appointment and did real well. Lung functions great, gaining weight, ex. I asked about the cultures from the last visit (two months previous) and he told me that he tested positive for staph again and it was nothing to worry about.
<br />
<br />I am given a piece of paper at every visit to show me what is going on. I can campare lung functions, see wieght he has gained and see what he has cultured. Looking at this paper I saw that he cultured positive for MRSA.
<br />
<br />I love his CF Dr and know he would tell me if there was something to worry about but everything I have heard about MRSA in the media I am a little worried.
<br />
<br />I would appriciate any advice. FYI- He is on a oral antibiotic M,W,and F.
 
S

saveferris2009

New member
MRSA is not a good bug to have - studies show it causes a faster decrease in lung function versus those patients who don't have MRSA. So I would advise jumping to treat the bacteria (unless it's already been present for a while - colonized - then it might be impossible to get rid of).

the MWF antibiotic is zithromax, which doesn't treat MRSA. It doesn't treat PA either - it's used as an anti-inflammatory rather than an antibiotic.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.ncbi.nlm.nih.gov/pubmed/18669817?ordinalpos=1&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVAbstract">http://www.ncbi.nlm.nih.gov/pu...anel.Pubmed_RVAbstract</a> is the study that shows what happens with CFer's and MRSA

And if you haven't read too much about being aggressive and very proactive with CF, check out this article. It's a must read for ANYONE associated with CF (it's a big long, but worth it)

<a target=_blank class=ftalternatingbarlinklarge href="http://noexcusesnoexcuses.blogspot.com/search/label/Warwick">http://noexcusesnoexcuses.blog...m/search/label/Warwick</a>
 
S

saveferris2009

New member
MRSA is not a good bug to have - studies show it causes a faster decrease in lung function versus those patients who don't have MRSA. So I would advise jumping to treat the bacteria (unless it's already been present for a while - colonized - then it might be impossible to get rid of).

the MWF antibiotic is zithromax, which doesn't treat MRSA. It doesn't treat PA either - it's used as an anti-inflammatory rather than an antibiotic.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.ncbi.nlm.nih.gov/pubmed/18669817?ordinalpos=1&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVAbstract">http://www.ncbi.nlm.nih.gov/pu...anel.Pubmed_RVAbstract</a> is the study that shows what happens with CFer's and MRSA

And if you haven't read too much about being aggressive and very proactive with CF, check out this article. It's a must read for ANYONE associated with CF (it's a big long, but worth it)

<a target=_blank class=ftalternatingbarlinklarge href="http://noexcusesnoexcuses.blogspot.com/search/label/Warwick">http://noexcusesnoexcuses.blog...m/search/label/Warwick</a>
 
S

saveferris2009

New member
MRSA is not a good bug to have - studies show it causes a faster decrease in lung function versus those patients who don't have MRSA. So I would advise jumping to treat the bacteria (unless it's already been present for a while - colonized - then it might be impossible to get rid of).

the MWF antibiotic is zithromax, which doesn't treat MRSA. It doesn't treat PA either - it's used as an anti-inflammatory rather than an antibiotic.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.ncbi.nlm.nih.gov/pubmed/18669817?ordinalpos=1&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVAbstract">http://www.ncbi.nlm.nih.gov/pu...anel.Pubmed_RVAbstract</a> is the study that shows what happens with CFer's and MRSA

And if you haven't read too much about being aggressive and very proactive with CF, check out this article. It's a must read for ANYONE associated with CF (it's a big long, but worth it)

<a target=_blank class=ftalternatingbarlinklarge href="http://noexcusesnoexcuses.blogspot.com/search/label/Warwick">http://noexcusesnoexcuses.blog...m/search/label/Warwick</a>
 
S

saveferris2009

New member
MRSA is not a good bug to have - studies show it causes a faster decrease in lung function versus those patients who don't have MRSA. So I would advise jumping to treat the bacteria (unless it's already been present for a while - colonized - then it might be impossible to get rid of).

the MWF antibiotic is zithromax, which doesn't treat MRSA. It doesn't treat PA either - it's used as an anti-inflammatory rather than an antibiotic.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.ncbi.nlm.nih.gov/pubmed/18669817?ordinalpos=1&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVAbstract">http://www.ncbi.nlm.nih.gov/pu...anel.Pubmed_RVAbstract</a> is the study that shows what happens with CFer's and MRSA

And if you haven't read too much about being aggressive and very proactive with CF, check out this article. It's a must read for ANYONE associated with CF (it's a big long, but worth it)

<a target=_blank class=ftalternatingbarlinklarge href="http://noexcusesnoexcuses.blogspot.com/search/label/Warwick">http://noexcusesnoexcuses.blog...m/search/label/Warwick</a>
 
S

saveferris2009

New member
MRSA is not a good bug to have - studies show it causes a faster decrease in lung function versus those patients who don't have MRSA. So I would advise jumping to treat the bacteria (unless it's already been present for a while - colonized - then it might be impossible to get rid of).
<br />
<br />the MWF antibiotic is zithromax, which doesn't treat MRSA. It doesn't treat PA either - it's used as an anti-inflammatory rather than an antibiotic.
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.ncbi.nlm.nih.gov/pubmed/18669817?ordinalpos=1&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVAbstract">http://www.ncbi.nlm.nih.gov/pu...anel.Pubmed_RVAbstract</a> is the study that shows what happens with CFer's and MRSA
<br />
<br />And if you haven't read too much about being aggressive and very proactive with CF, check out this article. It's a must read for ANYONE associated with CF (it's a big long, but worth it)
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://noexcusesnoexcuses.blogspot.com/search/label/Warwick">http://noexcusesnoexcuses.blog...m/search/label/Warwick</a>
 
M

MikeG83

New member
First things first, there is a major misconception of MRSA going around, there is MDRPA, MRSA the thing is people with cf in my city think they have MRSA so i ask them where is it, thay look at me like what? they tell me its in there culture, so i ask them what its called, they tell me multi-drug resistence Psudomonus Aeriginossa, that is not MRSA, Mrsa is methicillin resistince staphacoculus aures, a much worse bug to have, its a staph infection that can attack the lungs, but the thing is alot of people with Cf have the MDRPA and i see how they mess it up, Psuedumonus sounds like Sudomonus, so when they are told they have muti resistent P"S"udomonus Areginossa you tell your mind its MRSA, so what I think you should do is ask your doctor specifficly what it is and explain it, ask if its the staph infection one, be sure dont be scared if your not sure, I myself thought i had it for about 3 hours then my doctor explained when I asked, that made me realize how many other Cf buddies of mine think they have MRSA, so I asked they most all thought they did, none of which really had it, silly but serious. Just ask = ) hope i helped. MikeG
 
M

MikeG83

New member
First things first, there is a major misconception of MRSA going around, there is MDRPA, MRSA the thing is people with cf in my city think they have MRSA so i ask them where is it, thay look at me like what? they tell me its in there culture, so i ask them what its called, they tell me multi-drug resistence Psudomonus Aeriginossa, that is not MRSA, Mrsa is methicillin resistince staphacoculus aures, a much worse bug to have, its a staph infection that can attack the lungs, but the thing is alot of people with Cf have the MDRPA and i see how they mess it up, Psuedumonus sounds like Sudomonus, so when they are told they have muti resistent P"S"udomonus Areginossa you tell your mind its MRSA, so what I think you should do is ask your doctor specifficly what it is and explain it, ask if its the staph infection one, be sure dont be scared if your not sure, I myself thought i had it for about 3 hours then my doctor explained when I asked, that made me realize how many other Cf buddies of mine think they have MRSA, so I asked they most all thought they did, none of which really had it, silly but serious. Just ask = ) hope i helped. MikeG
 
M

MikeG83

New member
First things first, there is a major misconception of MRSA going around, there is MDRPA, MRSA the thing is people with cf in my city think they have MRSA so i ask them where is it, thay look at me like what? they tell me its in there culture, so i ask them what its called, they tell me multi-drug resistence Psudomonus Aeriginossa, that is not MRSA, Mrsa is methicillin resistince staphacoculus aures, a much worse bug to have, its a staph infection that can attack the lungs, but the thing is alot of people with Cf have the MDRPA and i see how they mess it up, Psuedumonus sounds like Sudomonus, so when they are told they have muti resistent P"S"udomonus Areginossa you tell your mind its MRSA, so what I think you should do is ask your doctor specifficly what it is and explain it, ask if its the staph infection one, be sure dont be scared if your not sure, I myself thought i had it for about 3 hours then my doctor explained when I asked, that made me realize how many other Cf buddies of mine think they have MRSA, so I asked they most all thought they did, none of which really had it, silly but serious. Just ask = ) hope i helped. MikeG
 
M

MikeG83

New member
First things first, there is a major misconception of MRSA going around, there is MDRPA, MRSA the thing is people with cf in my city think they have MRSA so i ask them where is it, thay look at me like what? they tell me its in there culture, so i ask them what its called, they tell me multi-drug resistence Psudomonus Aeriginossa, that is not MRSA, Mrsa is methicillin resistince staphacoculus aures, a much worse bug to have, its a staph infection that can attack the lungs, but the thing is alot of people with Cf have the MDRPA and i see how they mess it up, Psuedumonus sounds like Sudomonus, so when they are told they have muti resistent P"S"udomonus Areginossa you tell your mind its MRSA, so what I think you should do is ask your doctor specifficly what it is and explain it, ask if its the staph infection one, be sure dont be scared if your not sure, I myself thought i had it for about 3 hours then my doctor explained when I asked, that made me realize how many other Cf buddies of mine think they have MRSA, so I asked they most all thought they did, none of which really had it, silly but serious. Just ask = ) hope i helped. MikeG
 
M

MikeG83

New member
First things first, there is a major misconception of MRSA going around, there is MDRPA, MRSA the thing is people with cf in my city think they have MRSA so i ask them where is it, thay look at me like what? they tell me its in there culture, so i ask them what its called, they tell me multi-drug resistence Psudomonus Aeriginossa, that is not MRSA, Mrsa is methicillin resistince staphacoculus aures, a much worse bug to have, its a staph infection that can attack the lungs, but the thing is alot of people with Cf have the MDRPA and i see how they mess it up, Psuedumonus sounds like Sudomonus, so when they are told they have muti resistent P"S"udomonus Areginossa you tell your mind its MRSA, so what I think you should do is ask your doctor specifficly what it is and explain it, ask if its the staph infection one, be sure dont be scared if your not sure, I myself thought i had it for about 3 hours then my doctor explained when I asked, that made me realize how many other Cf buddies of mine think they have MRSA, so I asked they most all thought they did, none of which really had it, silly but serious. Just ask = ) hope i helped. MikeG
 
M

mneville

Guest
My son Aidan has cultured MRSA from his sinuses and lungs. He has had it for about 7 months. We have done everything trying to get rid of it...Ivs, Bactrim, Rifampin, Bactroban, special soap in the baths...Nothing worked. He still cultures it regularly. I of course freaked when I learned about it. I have been to several doctors about it. Two CF doctors and infectious disease at CHOP.

Is it better he not have it? Yes. But they have told me that there has been no goodstudy showing MRSA with a decline in CF status as opposed to PA which they know shows a decline in CF status. I have read your study though saveferris which is contrary to what I've been told and is scary!

Aidan doesn't seem much affected by it. In fact other than his sinuses, he's doing great! So I have to learn to live with it. Interestingly my younger son (no CF) also cultures MRSA in his sinuses. Many people are carriers with no problems...

Megan
 
M

mneville

Guest
My son Aidan has cultured MRSA from his sinuses and lungs. He has had it for about 7 months. We have done everything trying to get rid of it...Ivs, Bactrim, Rifampin, Bactroban, special soap in the baths...Nothing worked. He still cultures it regularly. I of course freaked when I learned about it. I have been to several doctors about it. Two CF doctors and infectious disease at CHOP.

Is it better he not have it? Yes. But they have told me that there has been no goodstudy showing MRSA with a decline in CF status as opposed to PA which they know shows a decline in CF status. I have read your study though saveferris which is contrary to what I've been told and is scary!

Aidan doesn't seem much affected by it. In fact other than his sinuses, he's doing great! So I have to learn to live with it. Interestingly my younger son (no CF) also cultures MRSA in his sinuses. Many people are carriers with no problems...

Megan
 
M

mneville

Guest
My son Aidan has cultured MRSA from his sinuses and lungs. He has had it for about 7 months. We have done everything trying to get rid of it...Ivs, Bactrim, Rifampin, Bactroban, special soap in the baths...Nothing worked. He still cultures it regularly. I of course freaked when I learned about it. I have been to several doctors about it. Two CF doctors and infectious disease at CHOP.

Is it better he not have it? Yes. But they have told me that there has been no goodstudy showing MRSA with a decline in CF status as opposed to PA which they know shows a decline in CF status. I have read your study though saveferris which is contrary to what I've been told and is scary!

Aidan doesn't seem much affected by it. In fact other than his sinuses, he's doing great! So I have to learn to live with it. Interestingly my younger son (no CF) also cultures MRSA in his sinuses. Many people are carriers with no problems...

Megan
 
M

mneville

Guest
My son Aidan has cultured MRSA from his sinuses and lungs. He has had it for about 7 months. We have done everything trying to get rid of it...Ivs, Bactrim, Rifampin, Bactroban, special soap in the baths...Nothing worked. He still cultures it regularly. I of course freaked when I learned about it. I have been to several doctors about it. Two CF doctors and infectious disease at CHOP.

Is it better he not have it? Yes. But they have told me that there has been no goodstudy showing MRSA with a decline in CF status as opposed to PA which they know shows a decline in CF status. I have read your study though saveferris which is contrary to what I've been told and is scary!

Aidan doesn't seem much affected by it. In fact other than his sinuses, he's doing great! So I have to learn to live with it. Interestingly my younger son (no CF) also cultures MRSA in his sinuses. Many people are carriers with no problems...

Megan
 
M

mneville

Guest
My son Aidan has cultured MRSA from his sinuses and lungs. He has had it for about 7 months. We have done everything trying to get rid of it...Ivs, Bactrim, Rifampin, Bactroban, special soap in the baths...Nothing worked. He still cultures it regularly. I of course freaked when I learned about it. I have been to several doctors about it. Two CF doctors and infectious disease at CHOP.
<br />
<br />Is it better he not have it? Yes. But they have told me that there has been no goodstudy showing MRSA with a decline in CF status as opposed to PA which they know shows a decline in CF status. I have read your study though saveferris which is contrary to what I've been told and is scary!
<br />
<br />Aidan doesn't seem much affected by it. In fact other than his sinuses, he's doing great! So I have to learn to live with it. Interestingly my younger son (no CF) also cultures MRSA in his sinuses. Many people are carriers with no problems...
<br />
<br />Megan
 
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