Spray Parks???? Not Waterpark

[philadelphiajerry]

I have to agree with Just1more on this one. These kids have to be allowed to live their lives. We are not all about taking unnecessary risks and I completely agree about hot tubs. But depriving them of everything is going to allow CF to define them.

**Jerry, dad to Ryan, 12 w/cf, Luke, 8, carrier, Sean, 4 w/cf.

 

[philadelphiajerry]

I have to agree with Just1more on this one. These kids have to be allowed to live their lives. We are not all about taking unnecessary risks and I completely agree about hot tubs. But depriving them of everything is going to allow CF to define them.
<br />
<br />**Jerry, dad to Ryan, 12 w/cf, Luke, 8, carrier, Sean, 4 w/cf.

 

[kitomd21]

Our intention is not to deprive DD. I think she can live without a spray park - CF or no CF. I'd be hesitant to take my other children without CF to a spray park or water park because there is an "ew" factor on my part, regardless. I wouldn't go to one myself. DD will undoubtedly culture PA and other "bugs" - I know this. However, if avoiding aerosolized PA and/or other bacteria is an option, isn't it most logical to avoid it? Our children have CF, they do not live lives like those without CF. There are risk factors we must consider - this is a fact.

 

[kitomd21]

Our intention is not to deprive DD. I think she can live without a spray park - CF or no CF. I'd be hesitant to take my other children without CF to a spray park or water park because there is an "ew" factor on my part, regardless. I wouldn't go to one myself. DD will undoubtedly culture PA and other "bugs" - I know this. However, if avoiding aerosolized PA and/or other bacteria is an option, isn't it most logical to avoid it? Our children have CF, they do not live lives like those without CF. There are risk factors we must consider - this is a fact.

 

[kitomd21]

Our intention is not to deprive DD. I think she can live without a spray park - CF or no CF. I'd be hesitant to take my other children without CF to a spray park or water park because there is an "ew" factor on my part, regardless. I wouldn't go to one myself. DD will undoubtedly culture PA and other "bugs" - I know this. However, if avoiding aerosolized PA and/or other bacteria is an option, isn't it most logical to avoid it? Our children have CF, they do not live lives like those without CF. There are risk factors we must consider - this is a fact.

 

[Ratatosk]

We do have a local, privately owned indoor water park that we avoid like the plague. Probably because there very well may BE a plague in that filthy cess pool. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Whenever DS has been invited to go there for a birthday party or event we've declined. A friend of ours does the health inspections and pretty much has warned us about it. They either have too many chemicals or not enough -- the owner can't seem to get it regulated and is always being cited. Most parents in town with healthy children avoid the place.

 

[Ratatosk]

We do have a local, privately owned indoor water park that we avoid like the plague. Probably because there very well may BE a plague in that filthy cess pool. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Whenever DS has been invited to go there for a birthday party or event we've declined. A friend of ours does the health inspections and pretty much has warned us about it. They either have too many chemicals or not enough -- the owner can't seem to get it regulated and is always being cited. Most parents in town with healthy children avoid the place.

 

[Ratatosk]

We do have a local, privately owned indoor water park that we avoid like the plague. Probably because there very well may BE a plague in that filthy cess pool. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Whenever DS has been invited to go there for a birthday party or event we've declined. A friend of ours does the health inspections and pretty much has warned us about it. They either have too many chemicals or not enough -- the owner can't seem to get it regulated and is always being cited. Most parents in town with healthy children avoid the place.

 

[ymikhale]

<P><div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kitomd21</b></i> Our intention is not to deprive DD. I think she can live without a spray park - CF or no CF. I'd be hesitant to take my other children without CF to a spray park or water park because there is an "ew" factor on my part, regardless. I wouldn't go to one myself. DD will undoubtedly culture PA and other "bugs" - I know this. However, if avoiding aerosolized PA and/or other bacteria is an option, isn't it most logical to avoid it? Our children have CF, they do not live lives like those without CF. There are risk factors we must consider - this is a fact.</end quote></div> </P>
<P> </P>
<P>I agree with the above post. We cannot just pretend that our kids are normal, they are not, and some risks are definitely not worth taking in my opinion. Of course it is up to each parent to decide what is reasonable and what would be considered "deprivation". Of course PA is anavoidable, but avoiding places where our kids actually inhale it would make sense to me. And then if she catches a nasty bug at that spray park, just think of consequences: hospitals, missing school, friends, more meds and God knows what. That would seem like a real deprivation to me. </P>

 

[ymikhale]

<P><div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kitomd21</b></i> Our intention is not to deprive DD. I think she can live without a spray park - CF or no CF. I'd be hesitant to take my other children without CF to a spray park or water park because there is an "ew" factor on my part, regardless. I wouldn't go to one myself. DD will undoubtedly culture PA and other "bugs" - I know this. However, if avoiding aerosolized PA and/or other bacteria is an option, isn't it most logical to avoid it? Our children have CF, they do not live lives like those without CF. There are risk factors we must consider - this is a fact.</end quote> </P>
<P></P>
<P>I agree with the above post. We cannot just pretend that our kids are normal, they are not, and some risks are definitely not worth taking in my opinion. Of course it is up to each parent to decide what is reasonable and what would be considered "deprivation". Of course PA is anavoidable, but avoiding places where our kids actually inhale it would make sense to me. And then if she catches a nasty bug at that spray park, just think of consequences: hospitals, missing school, friends, more meds and God knows what. That would seem like a real deprivation to me. </P>

 

[ymikhale]

<P><div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kitomd21</b></i> Our intention is not to deprive DD. I think she can live without a spray park - CF or no CF. I'd be hesitant to take my other children without CF to a spray park or water park because there is an "ew" factor on my part, regardless. I wouldn't go to one myself. DD will undoubtedly culture PA and other "bugs" - I know this. However, if avoiding aerosolized PA and/or other bacteria is an option, isn't it most logical to avoid it? Our children have CF, they do not live lives like those without CF. There are risk factors we must consider - this is a fact.</end quote> </P>
<P></P>
<P>I agree with the above post. We cannot just pretend that our kids are normal, they are not, and some risks are definitely not worth taking in my opinion. Of course it is up to each parent to decide what is reasonable and what would be considered "deprivation". Of course PA is anavoidable, but avoiding places where our kids actually inhale it would make sense to me. And then if she catches a nasty bug at that spray park, just think of consequences: hospitals, missing school, friends, more meds and God knows what. That would seem like a real deprivation to me. </P>

 

[philadelphiajerry]

I completely understand that there are people out there, both with CF and without, who are skeeved by waterparks. That makes sense. Having said that, my children, two of whom have CF, love them. They only get to go a couple of times a year but when they do, it's a big deal. Not allowing them to participate in a party or an outing at a waterpark would fall, for me, under the category of risk/reward and a decision a CF parent needs to make. It seems to me that the CF patients who are successful are living their lives to the fullest. Not recklessly, mind you, but with a gusto.

I cannot agree that our kids are not normal because they have Cystic Fibrosis. Not sure what type of message that sends to our kids. I can only speak for my kids but they are every bit as 'normal' as the kids next door. They do their treatments, and take their meds religiously. They do not miss an appointment and they are not naive. But they do all of these things in between doing everything that their peers do. The meds, etc. provide a temporary distraction. I realize there may be a time when activities are curtailed because of a more serious illness or a downturn in health. To me, that's all the more reason that they should enjoy life now.

--------------------------------------------

**Jerry, dad to Ryan, 12 w/cf, Luke, 8, carrier, Sean, 4 w/cf.

 

[philadelphiajerry]

I completely understand that there are people out there, both with CF and without, who are skeeved by waterparks. That makes sense. Having said that, my children, two of whom have CF, love them. They only get to go a couple of times a year but when they do, it's a big deal. Not allowing them to participate in a party or an outing at a waterpark would fall, for me, under the category of risk/reward and a decision a CF parent needs to make. It seems to me that the CF patients who are successful are living their lives to the fullest. Not recklessly, mind you, but with a gusto.

I cannot agree that our kids are not normal because they have Cystic Fibrosis. Not sure what type of message that sends to our kids. I can only speak for my kids but they are every bit as 'normal' as the kids next door. They do their treatments, and take their meds religiously. They do not miss an appointment and they are not naive. But they do all of these things in between doing everything that their peers do. The meds, etc. provide a temporary distraction. I realize there may be a time when activities are curtailed because of a more serious illness or a downturn in health. To me, that's all the more reason that they should enjoy life now.

--------------------------------------------

**Jerry, dad to Ryan, 12 w/cf, Luke, 8, carrier, Sean, 4 w/cf.

 

[philadelphiajerry]

I completely understand that there are people out there, both with CF and without, who are skeeved by waterparks. That makes sense. Having said that, my children, two of whom have CF, love them. They only get to go a couple of times a year but when they do, it's a big deal. Not allowing them to participate in a party or an outing at a waterpark would fall, for me, under the category of risk/reward and a decision a CF parent needs to make. It seems to me that the CF patients who are successful are living their lives to the fullest. Not recklessly, mind you, but with a gusto.
<br />
<br />I cannot agree that our kids are not normal because they have Cystic Fibrosis. Not sure what type of message that sends to our kids. I can only speak for my kids but they are every bit as 'normal' as the kids next door. They do their treatments, and take their meds religiously. They do not miss an appointment and they are not naive. But they do all of these things in between doing everything that their peers do. The meds, etc. provide a temporary distraction. I realize there may be a time when activities are curtailed because of a more serious illness or a downturn in health. To me, that's all the more reason that they should enjoy life now.
<br />
<br />--------------------------------------------
<br />
<br />**Jerry, dad to Ryan, 12 w/cf, Luke, 8, carrier, Sean, 4 w/cf.