SSI help

[bittyhorse23]

I agree with Sevenstars. Talk to the social worker and see what they say about going on it. Again shy away from I'm healthy haha!!!

As far as the mental torture for going out on it, I am going through the same thing. I decided that in June of this year I will quit work and apply for SSDI. Although I have made that decision I am still so torn about it. I love working (well the feeling of using my degree and making my own money) and being independent, so stopping work and moving in with my mom makes me cringe. But so does the thought of not seeing my neices and nephews grow up or at least get to an age where they will remember me. You need to think about what is best for you healthwise. I know I can no longer physically work 40+ hours a week and be able to take care of myself and still get to see family and friends. It's too draining and my health is not that great.

I don't know if SSI and SSDI are similar or not so I don't know if I helped you or confused you more haha!

I hoped I helped a little and feel free to PM if ya wanna chat!

<img src="i/expressions/heart.gif" border="0">

 

[bittyhorse23]

I agree with Sevenstars. Talk to the social worker and see what they say about going on it. Again shy away from I'm healthy haha!!!

As far as the mental torture for going out on it, I am going through the same thing. I decided that in June of this year I will quit work and apply for SSDI. Although I have made that decision I am still so torn about it. I love working (well the feeling of using my degree and making my own money) and being independent, so stopping work and moving in with my mom makes me cringe. But so does the thought of not seeing my neices and nephews grow up or at least get to an age where they will remember me. You need to think about what is best for you healthwise. I know I can no longer physically work 40+ hours a week and be able to take care of myself and still get to see family and friends. It's too draining and my health is not that great.

I don't know if SSI and SSDI are similar or not so I don't know if I helped you or confused you more haha!

I hoped I helped a little and feel free to PM if ya wanna chat!

<img src="i/expressions/heart.gif" border="0">

 

[bittyhorse23]

I agree with Sevenstars. Talk to the social worker and see what they say about going on it. Again shy away from I'm healthy haha!!!

As far as the mental torture for going out on it, I am going through the same thing. I decided that in June of this year I will quit work and apply for SSDI. Although I have made that decision I am still so torn about it. I love working (well the feeling of using my degree and making my own money) and being independent, so stopping work and moving in with my mom makes me cringe. But so does the thought of not seeing my neices and nephews grow up or at least get to an age where they will remember me. You need to think about what is best for you healthwise. I know I can no longer physically work 40+ hours a week and be able to take care of myself and still get to see family and friends. It's too draining and my health is not that great.

I don't know if SSI and SSDI are similar or not so I don't know if I helped you or confused you more haha!

I hoped I helped a little and feel free to PM if ya wanna chat!

<img src="i/expressions/heart.gif" border="0">

 

[bittyhorse23]

I agree with Sevenstars. Talk to the social worker and see what they say about going on it. Again shy away from I'm healthy haha!!!

As far as the mental torture for going out on it, I am going through the same thing. I decided that in June of this year I will quit work and apply for SSDI. Although I have made that decision I am still so torn about it. I love working (well the feeling of using my degree and making my own money) and being independent, so stopping work and moving in with my mom makes me cringe. But so does the thought of not seeing my neices and nephews grow up or at least get to an age where they will remember me. You need to think about what is best for you healthwise. I know I can no longer physically work 40+ hours a week and be able to take care of myself and still get to see family and friends. It's too draining and my health is not that great.

I don't know if SSI and SSDI are similar or not so I don't know if I helped you or confused you more haha!

I hoped I helped a little and feel free to PM if ya wanna chat!

<img src="i/expressions/heart.gif" border="0">

 

[bittyhorse23]

I agree with Sevenstars. Talk to the social worker and see what they say about going on it. Again shy away from I'm healthy haha!!!

As far as the mental torture for going out on it, I am going through the same thing. I decided that in June of this year I will quit work and apply for SSDI. Although I have made that decision I am still so torn about it. I love working (well the feeling of using my degree and making my own money) and being independent, so stopping work and moving in with my mom makes me cringe. But so does the thought of not seeing my neices and nephews grow up or at least get to an age where they will remember me. You need to think about what is best for you healthwise. I know I can no longer physically work 40+ hours a week and be able to take care of myself and still get to see family and friends. It's too draining and my health is not that great.

I don't know if SSI and SSDI are similar or not so I don't know if I helped you or confused you more haha!

I hoped I helped a little and feel free to PM if ya wanna chat!

<img src="i/expressions/heart.gif" border="0">

 

[bittyhorse23]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Faust</b></i>

My .2 cents: If you get into the SS system and get out for some reason, you won't be able to get back into the system. So the smart money is on continuing to work until you can't work anymore, then get onto assistance and stop working. I won't share my problems, but basically the system rewards those who won't/can't work. If you are able to work while on assistance, and you come out to do as much, you are screwed. Basically don't do half and half. Either stay disabled and don't work and receive assistance, or stay working and not receive any assistance, and hope the help is there when you finally can barely breath anymore.</end quote></div>

I know people who went out on SSDI and then went back to work, lost the benefits, obviously, and then were able to get back on it again after their health declined again. It may be hard but it isn't impossible!

 

[bittyhorse23]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Faust</b></i>

My .2 cents: If you get into the SS system and get out for some reason, you won't be able to get back into the system. So the smart money is on continuing to work until you can't work anymore, then get onto assistance and stop working. I won't share my problems, but basically the system rewards those who won't/can't work. If you are able to work while on assistance, and you come out to do as much, you are screwed. Basically don't do half and half. Either stay disabled and don't work and receive assistance, or stay working and not receive any assistance, and hope the help is there when you finally can barely breath anymore.</end quote></div>

I know people who went out on SSDI and then went back to work, lost the benefits, obviously, and then were able to get back on it again after their health declined again. It may be hard but it isn't impossible!

 

[bittyhorse23]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Faust</b></i>

My .2 cents: If you get into the SS system and get out for some reason, you won't be able to get back into the system. So the smart money is on continuing to work until you can't work anymore, then get onto assistance and stop working. I won't share my problems, but basically the system rewards those who won't/can't work. If you are able to work while on assistance, and you come out to do as much, you are screwed. Basically don't do half and half. Either stay disabled and don't work and receive assistance, or stay working and not receive any assistance, and hope the help is there when you finally can barely breath anymore.</end quote></div>

I know people who went out on SSDI and then went back to work, lost the benefits, obviously, and then were able to get back on it again after their health declined again. It may be hard but it isn't impossible!

 

[bittyhorse23]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Faust</b></i>

My .2 cents: If you get into the SS system and get out for some reason, you won't be able to get back into the system. So the smart money is on continuing to work until you can't work anymore, then get onto assistance and stop working. I won't share my problems, but basically the system rewards those who won't/can't work. If you are able to work while on assistance, and you come out to do as much, you are screwed. Basically don't do half and half. Either stay disabled and don't work and receive assistance, or stay working and not receive any assistance, and hope the help is there when you finally can barely breath anymore.</end quote>

I know people who went out on SSDI and then went back to work, lost the benefits, obviously, and then were able to get back on it again after their health declined again. It may be hard but it isn't impossible!

 

[bittyhorse23]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Faust</b></i>

My .2 cents: If you get into the SS system and get out for some reason, you won't be able to get back into the system. So the smart money is on continuing to work until you can't work anymore, then get onto assistance and stop working. I won't share my problems, but basically the system rewards those who won't/can't work. If you are able to work while on assistance, and you come out to do as much, you are screwed. Basically don't do half and half. Either stay disabled and don't work and receive assistance, or stay working and not receive any assistance, and hope the help is there when you finally can barely breath anymore.</end quote>

I know people who went out on SSDI and then went back to work, lost the benefits, obviously, and then were able to get back on it again after their health declined again. It may be hard but it isn't impossible!

 

[tara]

Hi Blake,

I'm sorry I don't have much info on the SSI. I quit working in 2004 and applied for SSDI. I finally got approved and started receiving payments in September 2006. Yes, two years later!

About college. What state do you live in? I saw an old post from last year that you were moving to california soon. I live in California and there is a program designed to help disabled students pay for tuition, books and parking permits on campus. First I went to my Disability Resource Campus at the school (I attended UC Davis) They set me up with all sorts of free services, like paid notetakers if I missed class, priority registration to get into the class times to fit my treatment schedule etc. Then I set up a meeting with a social working from the California Department of Rehabilitation. They assessed my medical needs and ended up awarding me a full paid tuition plus books and a parking permit just because I have CF. They also award these types of payments to people with learning disabilities etc. Now, I'm not sure they would pay for education at a private school, but community colleges, state schools and UC's for sure. It's a little known program, that also works for grad school! Take advantage if you can. Good luck.

 

[tara]

Hi Blake,

I'm sorry I don't have much info on the SSI. I quit working in 2004 and applied for SSDI. I finally got approved and started receiving payments in September 2006. Yes, two years later!

About college. What state do you live in? I saw an old post from last year that you were moving to california soon. I live in California and there is a program designed to help disabled students pay for tuition, books and parking permits on campus. First I went to my Disability Resource Campus at the school (I attended UC Davis) They set me up with all sorts of free services, like paid notetakers if I missed class, priority registration to get into the class times to fit my treatment schedule etc. Then I set up a meeting with a social working from the California Department of Rehabilitation. They assessed my medical needs and ended up awarding me a full paid tuition plus books and a parking permit just because I have CF. They also award these types of payments to people with learning disabilities etc. Now, I'm not sure they would pay for education at a private school, but community colleges, state schools and UC's for sure. It's a little known program, that also works for grad school! Take advantage if you can. Good luck.

 

[tara]

Hi Blake,

I'm sorry I don't have much info on the SSI. I quit working in 2004 and applied for SSDI. I finally got approved and started receiving payments in September 2006. Yes, two years later!

About college. What state do you live in? I saw an old post from last year that you were moving to california soon. I live in California and there is a program designed to help disabled students pay for tuition, books and parking permits on campus. First I went to my Disability Resource Campus at the school (I attended UC Davis) They set me up with all sorts of free services, like paid notetakers if I missed class, priority registration to get into the class times to fit my treatment schedule etc. Then I set up a meeting with a social working from the California Department of Rehabilitation. They assessed my medical needs and ended up awarding me a full paid tuition plus books and a parking permit just because I have CF. They also award these types of payments to people with learning disabilities etc. Now, I'm not sure they would pay for education at a private school, but community colleges, state schools and UC's for sure. It's a little known program, that also works for grad school! Take advantage if you can. Good luck.

 

[tara]

Hi Blake,

I'm sorry I don't have much info on the SSI. I quit working in 2004 and applied for SSDI. I finally got approved and started receiving payments in September 2006. Yes, two years later!

About college. What state do you live in? I saw an old post from last year that you were moving to california soon. I live in California and there is a program designed to help disabled students pay for tuition, books and parking permits on campus. First I went to my Disability Resource Campus at the school (I attended UC Davis) They set me up with all sorts of free services, like paid notetakers if I missed class, priority registration to get into the class times to fit my treatment schedule etc. Then I set up a meeting with a social working from the California Department of Rehabilitation. They assessed my medical needs and ended up awarding me a full paid tuition plus books and a parking permit just because I have CF. They also award these types of payments to people with learning disabilities etc. Now, I'm not sure they would pay for education at a private school, but community colleges, state schools and UC's for sure. It's a little known program, that also works for grad school! Take advantage if you can. Good luck.

 

[tara]

Hi Blake,

I'm sorry I don't have much info on the SSI. I quit working in 2004 and applied for SSDI. I finally got approved and started receiving payments in September 2006. Yes, two years later!

About college. What state do you live in? I saw an old post from last year that you were moving to california soon. I live in California and there is a program designed to help disabled students pay for tuition, books and parking permits on campus. First I went to my Disability Resource Campus at the school (I attended UC Davis) They set me up with all sorts of free services, like paid notetakers if I missed class, priority registration to get into the class times to fit my treatment schedule etc. Then I set up a meeting with a social working from the California Department of Rehabilitation. They assessed my medical needs and ended up awarding me a full paid tuition plus books and a parking permit just because I have CF. They also award these types of payments to people with learning disabilities etc. Now, I'm not sure they would pay for education at a private school, but community colleges, state schools and UC's for sure. It's a little known program, that also works for grad school! Take advantage if you can. Good luck.

 

[sparklelilac]

Hi everyone,
Great posting Blake, I really have wanted to vent/chat about this topic. I would like to add my .2 cents and also get some advice from everyone.

I receive SSDI. My understanding at this point of SSDI is, you receive a monthly payment and automatic enrollment to Medicare (state health care). SSI is a supplement to SSDI. You can collect SSI in addition to SSDI if you have less than $2000 in a bank account (my mom is on SSDI and SSI-I am her legal guardian).

I am overall healthy with my CF (I do step aerobics 2 times a week and have a very active social life). But have had some serious ups and downs with different issues over the last few years. I really did not feel the effects of my disease until I was in college. I started college in the fall of 1997 and finished spring of 2001. While I was in college I really believed I was going to graduate and be able to work a 40 hour a week job. My body was not on the same page.

So after coming to terms with the fact that I would not work a 40 h a week job and stay healthy, I took the advice of my CF doctor and applied for SSDI. For the longest time I beat myself up about being on disability, it took its toll on my pride. But anytime I expressed these negative feeling to friends and family they all had a similar response: "SSDI was special designed for people in "your" situation. Do you know how many people take advantage of SSDI and do not deserve it as much "you" do?!?!" So on my "pity potty" days I think of just that, and if there is help out there I need to use it to my best benefit.

So yes I collect SSDI, but I find it VERY VERY limiting. Once I started receiving SSDI I was atomically enrolled in state health care. This from my experience is not very good and would leave me for dead if I did not have my own private plan as a backup. If you ever have questions about SSDI and try call them, IT IS THE BIGGEST NIGHTMARE!!!!!!!! Yes I do feel locked into the system now that I am in it.

So after all of this, my advice is please do not feel bad about wanting to collect SSDI, that should be the least of your worries. If I was to do it all over again I would create a budget for myself and decide if I could make more money working and not being limited on the amount of money I am allowed vs. collecting SSDI(about $530 a month and limited to $1000 a month from a job. I would also factor in all the aggravation I have been through with SSDI. At this point in my life I feel I am stuck and wish I was more financially independent. SSDI does not cover much of my expenses, they do not care about how much you have in bills i.e. college loans, car loans, rent, food, and spending $$$. Luckily I have an amazing dad and boyfriend who help with my finances when my SSDI $$$ is all spent for the month.

But being on SSDI really depends on each individual. I would be happy to get in to more detail, if it would help. So sorry guys for such the long piece.

Thanks,
Patty

 

[sparklelilac]

Hi everyone,
Great posting Blake, I really have wanted to vent/chat about this topic. I would like to add my .2 cents and also get some advice from everyone.

I receive SSDI. My understanding at this point of SSDI is, you receive a monthly payment and automatic enrollment to Medicare (state health care). SSI is a supplement to SSDI. You can collect SSI in addition to SSDI if you have less than $2000 in a bank account (my mom is on SSDI and SSI-I am her legal guardian).

I am overall healthy with my CF (I do step aerobics 2 times a week and have a very active social life). But have had some serious ups and downs with different issues over the last few years. I really did not feel the effects of my disease until I was in college. I started college in the fall of 1997 and finished spring of 2001. While I was in college I really believed I was going to graduate and be able to work a 40 hour a week job. My body was not on the same page.

So after coming to terms with the fact that I would not work a 40 h a week job and stay healthy, I took the advice of my CF doctor and applied for SSDI. For the longest time I beat myself up about being on disability, it took its toll on my pride. But anytime I expressed these negative feeling to friends and family they all had a similar response: "SSDI was special designed for people in "your" situation. Do you know how many people take advantage of SSDI and do not deserve it as much "you" do?!?!" So on my "pity potty" days I think of just that, and if there is help out there I need to use it to my best benefit.

So yes I collect SSDI, but I find it VERY VERY limiting. Once I started receiving SSDI I was atomically enrolled in state health care. This from my experience is not very good and would leave me for dead if I did not have my own private plan as a backup. If you ever have questions about SSDI and try call them, IT IS THE BIGGEST NIGHTMARE!!!!!!!! Yes I do feel locked into the system now that I am in it.

So after all of this, my advice is please do not feel bad about wanting to collect SSDI, that should be the least of your worries. If I was to do it all over again I would create a budget for myself and decide if I could make more money working and not being limited on the amount of money I am allowed vs. collecting SSDI(about $530 a month and limited to $1000 a month from a job. I would also factor in all the aggravation I have been through with SSDI. At this point in my life I feel I am stuck and wish I was more financially independent. SSDI does not cover much of my expenses, they do not care about how much you have in bills i.e. college loans, car loans, rent, food, and spending $$$. Luckily I have an amazing dad and boyfriend who help with my finances when my SSDI $$$ is all spent for the month.

But being on SSDI really depends on each individual. I would be happy to get in to more detail, if it would help. So sorry guys for such the long piece.

Thanks,
Patty

 

[sparklelilac]

Hi everyone,
Great posting Blake, I really have wanted to vent/chat about this topic. I would like to add my .2 cents and also get some advice from everyone.

I receive SSDI. My understanding at this point of SSDI is, you receive a monthly payment and automatic enrollment to Medicare (state health care). SSI is a supplement to SSDI. You can collect SSI in addition to SSDI if you have less than $2000 in a bank account (my mom is on SSDI and SSI-I am her legal guardian).

I am overall healthy with my CF (I do step aerobics 2 times a week and have a very active social life). But have had some serious ups and downs with different issues over the last few years. I really did not feel the effects of my disease until I was in college. I started college in the fall of 1997 and finished spring of 2001. While I was in college I really believed I was going to graduate and be able to work a 40 hour a week job. My body was not on the same page.

So after coming to terms with the fact that I would not work a 40 h a week job and stay healthy, I took the advice of my CF doctor and applied for SSDI. For the longest time I beat myself up about being on disability, it took its toll on my pride. But anytime I expressed these negative feeling to friends and family they all had a similar response: "SSDI was special designed for people in "your" situation. Do you know how many people take advantage of SSDI and do not deserve it as much "you" do?!?!" So on my "pity potty" days I think of just that, and if there is help out there I need to use it to my best benefit.

So yes I collect SSDI, but I find it VERY VERY limiting. Once I started receiving SSDI I was atomically enrolled in state health care. This from my experience is not very good and would leave me for dead if I did not have my own private plan as a backup. If you ever have questions about SSDI and try call them, IT IS THE BIGGEST NIGHTMARE!!!!!!!! Yes I do feel locked into the system now that I am in it.

So after all of this, my advice is please do not feel bad about wanting to collect SSDI, that should be the least of your worries. If I was to do it all over again I would create a budget for myself and decide if I could make more money working and not being limited on the amount of money I am allowed vs. collecting SSDI(about $530 a month and limited to $1000 a month from a job. I would also factor in all the aggravation I have been through with SSDI. At this point in my life I feel I am stuck and wish I was more financially independent. SSDI does not cover much of my expenses, they do not care about how much you have in bills i.e. college loans, car loans, rent, food, and spending $$$. Luckily I have an amazing dad and boyfriend who help with my finances when my SSDI $$$ is all spent for the month.

But being on SSDI really depends on each individual. I would be happy to get in to more detail, if it would help. So sorry guys for such the long piece.

Thanks,
Patty

 

[sparklelilac]

Hi everyone,
Great posting Blake, I really have wanted to vent/chat about this topic. I would like to add my .2 cents and also get some advice from everyone.

I receive SSDI. My understanding at this point of SSDI is, you receive a monthly payment and automatic enrollment to Medicare (state health care). SSI is a supplement to SSDI. You can collect SSI in addition to SSDI if you have less than $2000 in a bank account (my mom is on SSDI and SSI-I am her legal guardian).

I am overall healthy with my CF (I do step aerobics 2 times a week and have a very active social life). But have had some serious ups and downs with different issues over the last few years. I really did not feel the effects of my disease until I was in college. I started college in the fall of 1997 and finished spring of 2001. While I was in college I really believed I was going to graduate and be able to work a 40 hour a week job. My body was not on the same page.

So after coming to terms with the fact that I would not work a 40 h a week job and stay healthy, I took the advice of my CF doctor and applied for SSDI. For the longest time I beat myself up about being on disability, it took its toll on my pride. But anytime I expressed these negative feeling to friends and family they all had a similar response: "SSDI was special designed for people in "your" situation. Do you know how many people take advantage of SSDI and do not deserve it as much "you" do?!?!" So on my "pity potty" days I think of just that, and if there is help out there I need to use it to my best benefit.

So yes I collect SSDI, but I find it VERY VERY limiting. Once I started receiving SSDI I was atomically enrolled in state health care. This from my experience is not very good and would leave me for dead if I did not have my own private plan as a backup. If you ever have questions about SSDI and try call them, IT IS THE BIGGEST NIGHTMARE!!!!!!!! Yes I do feel locked into the system now that I am in it.

So after all of this, my advice is please do not feel bad about wanting to collect SSDI, that should be the least of your worries. If I was to do it all over again I would create a budget for myself and decide if I could make more money working and not being limited on the amount of money I am allowed vs. collecting SSDI(about $530 a month and limited to $1000 a month from a job. I would also factor in all the aggravation I have been through with SSDI. At this point in my life I feel I am stuck and wish I was more financially independent. SSDI does not cover much of my expenses, they do not care about how much you have in bills i.e. college loans, car loans, rent, food, and spending $$$. Luckily I have an amazing dad and boyfriend who help with my finances when my SSDI $$$ is all spent for the month.

But being on SSDI really depends on each individual. I would be happy to get in to more detail, if it would help. So sorry guys for such the long piece.

Thanks,
Patty

 

[sparklelilac]

Hi everyone,
Great posting Blake, I really have wanted to vent/chat about this topic. I would like to add my .2 cents and also get some advice from everyone.

I receive SSDI. My understanding at this point of SSDI is, you receive a monthly payment and automatic enrollment to Medicare (state health care). SSI is a supplement to SSDI. You can collect SSI in addition to SSDI if you have less than $2000 in a bank account (my mom is on SSDI and SSI-I am her legal guardian).

I am overall healthy with my CF (I do step aerobics 2 times a week and have a very active social life). But have had some serious ups and downs with different issues over the last few years. I really did not feel the effects of my disease until I was in college. I started college in the fall of 1997 and finished spring of 2001. While I was in college I really believed I was going to graduate and be able to work a 40 hour a week job. My body was not on the same page.

So after coming to terms with the fact that I would not work a 40 h a week job and stay healthy, I took the advice of my CF doctor and applied for SSDI. For the longest time I beat myself up about being on disability, it took its toll on my pride. But anytime I expressed these negative feeling to friends and family they all had a similar response: "SSDI was special designed for people in "your" situation. Do you know how many people take advantage of SSDI and do not deserve it as much "you" do?!?!" So on my "pity potty" days I think of just that, and if there is help out there I need to use it to my best benefit.

So yes I collect SSDI, but I find it VERY VERY limiting. Once I started receiving SSDI I was atomically enrolled in state health care. This from my experience is not very good and would leave me for dead if I did not have my own private plan as a backup. If you ever have questions about SSDI and try call them, IT IS THE BIGGEST NIGHTMARE!!!!!!!! Yes I do feel locked into the system now that I am in it.

So after all of this, my advice is please do not feel bad about wanting to collect SSDI, that should be the least of your worries. If I was to do it all over again I would create a budget for myself and decide if I could make more money working and not being limited on the amount of money I am allowed vs. collecting SSDI(about $530 a month and limited to $1000 a month from a job. I would also factor in all the aggravation I have been through with SSDI. At this point in my life I feel I am stuck and wish I was more financially independent. SSDI does not cover much of my expenses, they do not care about how much you have in bills i.e. college loans, car loans, rent, food, and spending $$$. Luckily I have an amazing dad and boyfriend who help with my finances when my SSDI $$$ is all spent for the month.

But being on SSDI really depends on each individual. I would be happy to get in to more detail, if it would help. So sorry guys for such the long piece.

Thanks,
Patty