I would like you to know that they have always done stem cell research. They jsut put alot of resrictions on it and the biggy was not using aborted fetuses. I read a release about it a few months ago I will see if I can find it. But i even heard bush talking a few days ago about stem cell reseach and the promise it holds and needing to reseach it more and learn everything it can do for us. He isn't totaly against it he jsut doesn't like the idea of using aborted fetuses. I am not trying to stir up a political debate jsut putting somethings up I heard. Please don't take anything the wrong way or think I am trying to stir up a debate. Thats way oposite of what i want to do. I jsut want to share
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Stem Cell Research and Lung Tissue Replacement
- Thread starter anonymous
- Start date
<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i><br>Brad - can I ask a personal question.? Did you have your daughter's stem cells (cord blood) preserved? Thanks.<hr></blockquote>
No I didn't. I think the time span for the cord cells is 12 years? There doesn't seem to be a clear medical application for the CF defective genes at this point. At least for us it wasn't enough justification to put down the money to save them.
Brad
No I didn't. I think the time span for the cord cells is 12 years? There doesn't seem to be a clear medical application for the CF defective genes at this point. At least for us it wasn't enough justification to put down the money to save them.
Brad
<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i><br>I would like you to know that they have always done stem cell research. They jsut put alot of resrictions on it and the biggy was not using aborted fetuses. I read a release about it a few months ago I will see if I can find it. But i even heard bush talking a few days ago about stem cell reseach and the promise it holds and needing to reseach it more and learn everything it can do for us. He isn't totaly against it he jsut doesn't like the idea of using aborted fetuses. I am not trying to stir up a political debate jsut putting somethings up I heard. Please don't take anything the wrong way or think I am trying to stir up a debate. Thats way oposite of what i want to do. I jsut want to share<hr></blockquote>
Nope its an open debate/conversation.
I think Bush's statements are campaign swing window dressing for the Republicans like Nancy Reagan. He's for stem cell research like he's for more gays in the military.
Nope its an open debate/conversation.
I think Bush's statements are campaign swing window dressing for the Republicans like Nancy Reagan. He's for stem cell research like he's for more gays in the military.
Hi,
I went to the CFRI conference and heard Dr. Mollard speak, we also got a chance to talk to him at great length that evening. He is an incredibly smart man, and he had a lot of good information for us. Dr. Mollard is from Australia, and he has been working with adult stem cells (the kind we all have in our bone marrow) and mouse stem cells. Their research is very promising, but they are not quite there. This research should absolutely be supported, as it could benefit so many people. The human stem cells that they use come from IVF banks, and they are cells that would otherwise be destroyed because the people who created them already have the number of children they want. I think it is wrong to destroy them without any purpose.
Kelly
Mom of Lucy 5 no CF and Dominic 2 w/CF
I went to the CFRI conference and heard Dr. Mollard speak, we also got a chance to talk to him at great length that evening. He is an incredibly smart man, and he had a lot of good information for us. Dr. Mollard is from Australia, and he has been working with adult stem cells (the kind we all have in our bone marrow) and mouse stem cells. Their research is very promising, but they are not quite there. This research should absolutely be supported, as it could benefit so many people. The human stem cells that they use come from IVF banks, and they are cells that would otherwise be destroyed because the people who created them already have the number of children they want. I think it is wrong to destroy them without any purpose.
Kelly
Mom of Lucy 5 no CF and Dominic 2 w/CF
I'm pro-life and anti-abortion as well and I'm VERY IN FAVOR of stem cell research! Let's try and think about the future of our CHILDREN and the wonderful opportunities stem cell research may provide our CF kids and others with genetic diseases. A ball of 36 cells just isn't a human. It's just not.
A
Ajax
Guest
Hey,
Wouldn't it be great if CF gets cured one day! If stem cell research is the way , then I completely support it. For those who are so religious or something, I think there are already too many sins on earth that it doesnt make a difference if we add another one lol. Also , I dont believe that it is against God's will anyway. So lets just hope and pray that there is a cure in the horizon.
Rami 21 w/cf
Wouldn't it be great if CF gets cured one day! If stem cell research is the way , then I completely support it. For those who are so religious or something, I think there are already too many sins on earth that it doesnt make a difference if we add another one lol. Also , I dont believe that it is against God's will anyway. So lets just hope and pray that there is a cure in the horizon.
Rami 21 w/cf
i think that god is giving us a way out. giving us a idea on a silver platter. i don't want to think of god as a being that wants us to give up the opertunity to cure countles diseases
well that is my thoughts any way <img src="i/expressions/face-icon-small-smile.gif" border="0">
well that is my thoughts any way <img src="i/expressions/face-icon-small-smile.gif" border="0">
STEM CELLS
Stem Cells are produced in the bone marrow and travel throughout the body repairing damaged tissues.
Doctors at the Fisher Institute for Medical Research were perplexed by the numerous reports from around the world of Alzheimer’s, Parkinson’s and stroke suffers making remarkable recoveries. Diabetics were producing insulin again and transplant recipients no longer needed anti-rejection drugs.
All were taking glyconutrients from a Dallas, TX company.
“When they measured the before and after stem cell counts in the blood, virtually none are detected prior to glyconutrients.
Within a week of consuming glyconutrients, trillions of stem cells can be found!”
No other product, natural or artificial has ever been clinically proven to stimulate production of stem cells!
Why wait years for a possible break through in “harvested” stem cells
From embryos when glyconutrients work much better and are availble today?
For medical data go to:
www.glycoscience.org
www.stemcellfunction.org
Need Medical Credits go to
www.proevity.com
Children in need
www.mannarelief.org
Product and contact information.
www.mannapages.com/markL
Stem Cells are produced in the bone marrow and travel throughout the body repairing damaged tissues.
Doctors at the Fisher Institute for Medical Research were perplexed by the numerous reports from around the world of Alzheimer’s, Parkinson’s and stroke suffers making remarkable recoveries. Diabetics were producing insulin again and transplant recipients no longer needed anti-rejection drugs.
All were taking glyconutrients from a Dallas, TX company.
“When they measured the before and after stem cell counts in the blood, virtually none are detected prior to glyconutrients.
Within a week of consuming glyconutrients, trillions of stem cells can be found!”
No other product, natural or artificial has ever been clinically proven to stimulate production of stem cells!
Why wait years for a possible break through in “harvested” stem cells
From embryos when glyconutrients work much better and are availble today?
For medical data go to:
www.glycoscience.org
www.stemcellfunction.org
Need Medical Credits go to
www.proevity.com
Children in need
www.mannarelief.org
Product and contact information.
www.mannapages.com/markL
Umm ok for one i don't belive this last post glyconutrients or whatever. Two if that stuff really helped "boost" stems cells in our own cf bodies wouldn't those stem cells have the cf gene in them too so what good would that do? please correct me if i'm wrong here. Also i am a firm believer that if any of the "stuff" ( i am using nice words) that people come on here to sell us worked we would all know about it by now. I hat eit when people try to take advantage of the sick and make false statements and promises just to get the money we don't even have.
Did any one read on the other thread this one post said they knew someone who "HAD CF" and took this other "stuff and it got rid of the parasites blah blah blah. If anyone read that one you could abviously tell it was someone who of course wanted to sell something and didn't even do research on cf first to make a good sale pitch. From the sounds of it they thought all of us reffering to our bacteria like psuedo as "bugs" was reall life parasites in the lungs causeing cf. LOL oh man. wanting to take poor sick people's money but can't even do it right, i like those though cus its easier to spot a fake and makes for a good laugh. LOL
Anyway if you guys want to try glyconutrients go for it jsut don't expect a mirical cure like they are trying to proceive...or thats what i read when i see the post anyway..like in the old west based movies when traveling sales men would sale rum or something as the."new all natural miracal cure" cures everything from headaches back aches, the sniffles and whooping cough. even gives your afternoon tea a good kick. try it today for only 5 cents a bottle......lol ok sorry couldn't help myself
ok sorry i was ranting. in a bitter mood i guess. i don't want to start a thing
yes i am aware my spelling is horrible i never said i could spell
Did any one read on the other thread this one post said they knew someone who "HAD CF" and took this other "stuff and it got rid of the parasites blah blah blah. If anyone read that one you could abviously tell it was someone who of course wanted to sell something and didn't even do research on cf first to make a good sale pitch. From the sounds of it they thought all of us reffering to our bacteria like psuedo as "bugs" was reall life parasites in the lungs causeing cf. LOL oh man. wanting to take poor sick people's money but can't even do it right, i like those though cus its easier to spot a fake and makes for a good laugh. LOL
Anyway if you guys want to try glyconutrients go for it jsut don't expect a mirical cure like they are trying to proceive...or thats what i read when i see the post anyway..like in the old west based movies when traveling sales men would sale rum or something as the."new all natural miracal cure" cures everything from headaches back aches, the sniffles and whooping cough. even gives your afternoon tea a good kick. try it today for only 5 cents a bottle......lol ok sorry couldn't help myself
ok sorry i was ranting. in a bitter mood i guess. i don't want to start a thing
yes i am aware my spelling is horrible i never said i could spell
Research Mannarelief that is the non-profit organization of the company that produces the glyconutrients. They help kids all over the world and have been extremely successful with CF. I personally know a 25 yr old now traveling the US and UK whom has CF and doing extremely well taking the glyconutrients and phytonutrients. These are foods....in concentrated supplement form.....tools for your body...I pray you have an open mind.....we can't wait around the the medical community to come up with toxic, pharmaceutical based solutions when GOD has provided it in nature.<img src="i/expressions/face-icon-small-smile.gif" border="0"><a target=new class=ftalternatingbarlinklarge href="mailto:nobody@nowhere.com">null</a>
To nobody@nowhere.com who was talking about the glyconutrients:
Would this be the same "god" that 'created' the mutated genes for CF? Would this be the same "god" that placed, in NATURE, pseudomonas and all those other bacteria that breed in the lungs?
If we were to just leave it up to your "god" and use none of those "toxic" pharmaceuticals, would most people live to see grandchildren? Before good medical treatment (again, those 'toxic' pharmaceuticals, like enzymes, insulin, and lung medications), how long were salty-tasting babies expected to live? Plus, I object to pharmaceuticals being labeled as toxic. What, there aren't any natural things that can kill you? Hmm - lead, mercury, chromium, bacteria, viruses, genetic diseases...
My point is not about god, but if you're going to bring it up in a discussion about science, remember the negatives. I'm a scientist (I'm also an atheist, but this bothered me even when I wasn't). It really offends me when people bring religion into science discussions. Not everyone shares in your religious devotion. Not everyone is Christian. Do not try to push your religion on everyone. (Do not pass go, do not collect $200) If you choose to believe in a god, that's all well and good - I have no problems with it. But do not tell me that your god (you know, the one I don't believe exists) is going to make my (also atheist) boyfriend's CF all better.
Plus I looked at your glyconutrients website. I read a few of the studies and clinical trials.
Where are the control patients? Where are the placebo patients? Why are the study sizes less than 20 (and less than TEN even) patients? Where are the nutritional reports of patients before and after supplementation? Where are the reports of exercise levels before and after supplementation? Are these the people who were doing crappy, eating poorly, and not exercising? Did they decide, "I feel like crap, it's time to change my life" and incidentally also added the glyconutrients to their diets?
These studies are FLAWED! They are confounded by multiple variables and unknowns.
People with poor nutrition are not going to be healthy.
Even better is the explanation on the site as to why they don't need a double-blind placebo study. It basically was a run-around saying that since it's a natural product, they can't use FDA baselines. Guess what, you can STILL RUN THAT EXPERIMENT EVEN IF YOU CAN'T follow the FDA new drug regulations from start-to-finish.
I am not against supplements. I am against companies that use flawed studies, and say that they CAN'T perform a better one. I am against those companies pointing to a-z flawed studies and saying, "Look science says we're really good. Science can't be wrong." It's bad science.
Even better was the line about "So animal toxicity testing is meaningless for dietary supplements." Chromium is a natural product (and dietary supplement). It sure as heck should have animal toxicity. Why should this product be any different?
Would this be the same "god" that 'created' the mutated genes for CF? Would this be the same "god" that placed, in NATURE, pseudomonas and all those other bacteria that breed in the lungs?
If we were to just leave it up to your "god" and use none of those "toxic" pharmaceuticals, would most people live to see grandchildren? Before good medical treatment (again, those 'toxic' pharmaceuticals, like enzymes, insulin, and lung medications), how long were salty-tasting babies expected to live? Plus, I object to pharmaceuticals being labeled as toxic. What, there aren't any natural things that can kill you? Hmm - lead, mercury, chromium, bacteria, viruses, genetic diseases...
My point is not about god, but if you're going to bring it up in a discussion about science, remember the negatives. I'm a scientist (I'm also an atheist, but this bothered me even when I wasn't). It really offends me when people bring religion into science discussions. Not everyone shares in your religious devotion. Not everyone is Christian. Do not try to push your religion on everyone. (Do not pass go, do not collect $200) If you choose to believe in a god, that's all well and good - I have no problems with it. But do not tell me that your god (you know, the one I don't believe exists) is going to make my (also atheist) boyfriend's CF all better.
Plus I looked at your glyconutrients website. I read a few of the studies and clinical trials.
Where are the control patients? Where are the placebo patients? Why are the study sizes less than 20 (and less than TEN even) patients? Where are the nutritional reports of patients before and after supplementation? Where are the reports of exercise levels before and after supplementation? Are these the people who were doing crappy, eating poorly, and not exercising? Did they decide, "I feel like crap, it's time to change my life" and incidentally also added the glyconutrients to their diets?
These studies are FLAWED! They are confounded by multiple variables and unknowns.
People with poor nutrition are not going to be healthy.
Even better is the explanation on the site as to why they don't need a double-blind placebo study. It basically was a run-around saying that since it's a natural product, they can't use FDA baselines. Guess what, you can STILL RUN THAT EXPERIMENT EVEN IF YOU CAN'T follow the FDA new drug regulations from start-to-finish.
I am not against supplements. I am against companies that use flawed studies, and say that they CAN'T perform a better one. I am against those companies pointing to a-z flawed studies and saying, "Look science says we're really good. Science can't be wrong." It's bad science.
Even better was the line about "So animal toxicity testing is meaningless for dietary supplements." Chromium is a natural product (and dietary supplement). It sure as heck should have animal toxicity. Why should this product be any different?
I'm not going to argue with you on your atheist views because I am not and I certainly don't want to argue on the boards on such a subject. I certainly don't want to argue anyway, you ahve your views and I have mine and that doesn' mean we can't still be friends or at the very least civil towards one another. I have a few atheist friends and niether one of us are bothered by each others views.
I will agree with you that the glyconutrients website and {others like it who claim a natural miricale(sp?)} is flawed. When you try to look at studies and research on their website all I see is the run around nothing solid execpt "its all natural" non toxic" Well I sit there thinking I know that but what else can you people tell me to get to buy this product that is so expensive. I don't like reading "success stories" because you never know when they are fake, more than half the time bought. I am a person that likes to know proven studies, side affects, will it counter act medications i have to be on...At least with pharmacutical medications you get a list of side affects (keep in mind they have to list all of them even if in trails only one person had the side affect even if it was on the placebo). I trust science and medication because it is researched. Yes I know they dont' always work, have side affects, but so can natural products, and people can be allergic to natural products just like medication.
Now don't get me wrong I am not totally against natural suppliments or such products. If it works for you WONDERFUL. I even take extra vitamins. They help with my immune system and engery....because as a cf person you have to take extra because most of the time your body only absorbs half or a fraction of what you put into it. I just don't like certain companies, and i am not saying glyconutrients or manatech is one of them, that try every angle to get you to buy their stuff. Especially knowing their clientel base is sick and probably can't afford it but they charge high prices anyway.
Also as a side note, like another poster said, there is NO GOOD cf gene, if they claim they take the stem cells already in your body and help boost them and reproduce the good stem cells its more than likely a fraud, those stem cells in your body would have the cf gene in them.
Sorry for my long rant but this is how I feel. I don't want to push my views onto anyone else.
AB
I will agree with you that the glyconutrients website and {others like it who claim a natural miricale(sp?)} is flawed. When you try to look at studies and research on their website all I see is the run around nothing solid execpt "its all natural" non toxic" Well I sit there thinking I know that but what else can you people tell me to get to buy this product that is so expensive. I don't like reading "success stories" because you never know when they are fake, more than half the time bought. I am a person that likes to know proven studies, side affects, will it counter act medications i have to be on...At least with pharmacutical medications you get a list of side affects (keep in mind they have to list all of them even if in trails only one person had the side affect even if it was on the placebo). I trust science and medication because it is researched. Yes I know they dont' always work, have side affects, but so can natural products, and people can be allergic to natural products just like medication.
Now don't get me wrong I am not totally against natural suppliments or such products. If it works for you WONDERFUL. I even take extra vitamins. They help with my immune system and engery....because as a cf person you have to take extra because most of the time your body only absorbs half or a fraction of what you put into it. I just don't like certain companies, and i am not saying glyconutrients or manatech is one of them, that try every angle to get you to buy their stuff. Especially knowing their clientel base is sick and probably can't afford it but they charge high prices anyway.
Also as a side note, like another poster said, there is NO GOOD cf gene, if they claim they take the stem cells already in your body and help boost them and reproduce the good stem cells its more than likely a fraud, those stem cells in your body would have the cf gene in them.
Sorry for my long rant but this is how I feel. I don't want to push my views onto anyone else.
AB
Hi
Im not trying to stir any trouble either. So many say they are against stem cell research. If down the road there is a cure for CF DUE to stem cell research would you seek that cure for your child? I respect everyones opinion and Im sorry if I have offended anyone here. I would move heaven and earth to cure CF and if the means is through stem cell research then so be it.
Im not trying to stir any trouble either. So many say they are against stem cell research. If down the road there is a cure for CF DUE to stem cell research would you seek that cure for your child? I respect everyones opinion and Im sorry if I have offended anyone here. I would move heaven and earth to cure CF and if the means is through stem cell research then so be it.
ok. Everyone is entitled to their own view and opinions. But I don't think this is the place to preach. I mean no disrespect. This board is for disscussion. But I think speaking our religious or non religious views are not needed here.
If we have something to add to the conversation about whether or stem stell research can help CF patients or not than great!
I would love to hear about this topic! Not about whether you are for or not.
Please, if someone really has something to add, please show it.
Jake
If we have something to add to the conversation about whether or stem stell research can help CF patients or not than great!
I would love to hear about this topic! Not about whether you are for or not.
Please, if someone really has something to add, please show it.
Jake
I have been reading the latest updates on stem cell research in CF.
They have now created a line of cells that is a replica of the disease with two delta genes.
This is a major step becuase not only does it look promising for the future with stem cells in tissue repair but also now they will see exactly the effectiveness of drugs in trials and gene therapy trials as well.
Without the doubt of using a animal which does not mirror CF completely.
They are saying that it will speed up the rate of the trials and test new better therapies.
I am all for Stem cell research and like the other father said I to would move heaven and earth to have a cure for CF.
It's up to us to look after the people that are here struggling with this disease.
If anyone is interested in reading about the latest breakthrough go to google and search news and CF there's a heap of info there.
I take these things in my stride but my son is only 16 months old and I am really excited at this technology.
Rebekah
Mother to Matt 16mths/WCF
They have now created a line of cells that is a replica of the disease with two delta genes.
This is a major step becuase not only does it look promising for the future with stem cells in tissue repair but also now they will see exactly the effectiveness of drugs in trials and gene therapy trials as well.
Without the doubt of using a animal which does not mirror CF completely.
They are saying that it will speed up the rate of the trials and test new better therapies.
I am all for Stem cell research and like the other father said I to would move heaven and earth to have a cure for CF.
It's up to us to look after the people that are here struggling with this disease.
If anyone is interested in reading about the latest breakthrough go to google and search news and CF there's a heap of info there.
I take these things in my stride but my son is only 16 months old and I am really excited at this technology.
Rebekah
Mother to Matt 16mths/WCF
To follow up on Rebekah's post, a couple of articles on the new stem cell findings:
http://news.independent.co.uk/uk/health_medical/story.jsp?story=559671
and
http://news.bbc.co.uk/2/hi/science/nature/3639126.stm
The CF stem cell lines come from CF carrier parents who went through IVF -- some of the embryos that were created had CF genes from both parents. These embryos would normally be destroyed, but because it wasn't in the good old USA, the researchers were allowed to use them. Basically, researchers can use these stem cell lines to create lots of cells with the CF mutation, and this can have a huge impact on testing the effects of new drugs, gene therapy, etc.
The only catch? American researchers who rely on federal funding (almost all of them) are forbidden to use these cells. A quote from the lead researcher in one of the articles: "We've had a couple of researchers from the US who have wanted to gain access to these cell lines, but they have been told by their universities: 'under no circumstances'."
Maybe CFF should start sending money to researchers overseas instead.
http://news.independent.co.uk/uk/health_medical/story.jsp?story=559671
and
http://news.bbc.co.uk/2/hi/science/nature/3639126.stm
The CF stem cell lines come from CF carrier parents who went through IVF -- some of the embryos that were created had CF genes from both parents. These embryos would normally be destroyed, but because it wasn't in the good old USA, the researchers were allowed to use them. Basically, researchers can use these stem cell lines to create lots of cells with the CF mutation, and this can have a huge impact on testing the effects of new drugs, gene therapy, etc.
The only catch? American researchers who rely on federal funding (almost all of them) are forbidden to use these cells. A quote from the lead researcher in one of the articles: "We've had a couple of researchers from the US who have wanted to gain access to these cell lines, but they have been told by their universities: 'under no circumstances'."
Maybe CFF should start sending money to researchers overseas instead.