Stem Cell Research and Lung Tissue Replacement

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Emily65Roses

New member
I happen to agree with you, anonymous. Even putting aside myself, my father has Parkinson's and could potentially benefit from stem cells as well. But no matter how you feel about it, you will never get everyone to agree with you. It's too controversial an issue, and everyone that cares enough to pay attention has strong feelings on it, for one side or the other. *shrug*
 
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anonymous

New member
Stem Cell Research does not revolve around abortions. That is one of the biggest problems - biggest stumbling blocks in allowing this research to continue - people are misguided. One of the biggest controversies surrounding stem cell research is the theory that women will have children that could be possible bone marrow donors to retrieve cells for stem cell research. I for one do not see a problem with this. I would have another child (with someone other than my husband - that did not have CF gene) to save my daughter's life. IN A HEARTBEAT
 
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anonymous

New member
I have been reading this debate and i am surprised to hear that your government has banned research on Stem Cells...I am from the UK and have been informed by our doctors that the future looks very promising for CF suffers...although stem cell research is some way off...The UK CF Gene Therapy Consortium are looking at 3 types of research...Somatic, stem and germline cells.
The main gene therapy funded by the Cystic Fibrosis Trust is trying to change the somatic cells in the lungs.... here is a quote from the current summer 2005 CF Trust journal

"Somatic cells die off regularly and are replaced. The UK CF Gene Therapy Consortium is working to correct faulty somatic cells by putting the healthy gene into the lungs using a nebuliser for delivery. The treatment would have to be repeated as somatic cells die off and are replaced to the bodys blueprint, which in people with CF contains the faulty gene. Considerable advances are being made to penetrate the lung's defences to add enough non CF cells to have clinical benefit. It maybe that in the shorter term we can correct the somatic cells and in the longer term stem cells.
Stem cell correction would theorectically be a one time application to correct the Lung abnormality. It is being monitored closely by the UK CF Gene Therapy Consortium as is all research aimed at correcting the basis defect, but we cannot afford to wait for this. The aim of the Consortium has always been to make the best clinically relevant treatment now, which is why we are concentrating on somatic gene therapy which has the best chance of producing direct clinical benefit in the near future"
I have been informed that they can get the healthy gene into the lungs via a nebuliser but it is only lasting 30 days at best...

A large clinical trail is to start sometime this year as information suggests that they can now deliver it into the lungs for longer. Obviously it is about costs, safety issues etc... but things are certainly progressing........

You can go on the website and have a look for yourself at www.cftrust.org.uk. Other sites are the UK CF gene Therapy Consortium and www.Cysticfibrosismedicine.com

I know things are different in each country but things do look promising.... I dont want to get anyones hopes up too much and i hope i have not offended anyone......

Thanks for taking time to read this and Here's for a brighter tomorrow xxx
 
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anonymous

New member
I have been reading this debate and i am surprised to hear that your government has banned research on Stem Cells...I am from the UK and have been informed by our doctors that the future looks very promising for CF suffers...although stem cell research is some way off...The UK CF Gene Therapy Consortium are looking at 3 types of research...Somatic, stem and germline cells.
The main gene therapy funded by the Cystic Fibrosis Trust is trying to change the somatic cells in the lungs.... here is a quote from the current summer 2005 CF Trust journal

"Somatic cells die off regularly and are replaced. The UK CF Gene Therapy Consortium is working to correct faulty somatic cells by putting the healthy gene into the lungs using a nebuliser for delivery. The treatment would have to be repeated as somatic cells die off and are replaced to the bodys blueprint, which in people with CF contains the faulty gene. Considerable advances are being made to penetrate the lung's defences to add enough non CF cells to have clinical benefit. It maybe that in the shorter term we can correct the somatic cells and in the longer term stem cells.
Stem cell correction would theorectically be a one time application to correct the Lung abnormality. It is being monitored closely by the UK CF Gene Therapy Consortium as is all research aimed at correcting the basis defect, but we cannot afford to wait for this. The aim of the Consortium has always been to make the best clinically relevant treatment now, which is why we are concentrating on somatic gene therapy which has the best chance of producing direct clinical benefit in the near future"
I have been informed that they can get the healthy gene into the lungs via a nebuliser but it is only lasting 30 days at best...

A large clinical trail is to start sometime this year as information suggests that they can now deliver it into the lungs for longer. Obviously it is about costs, safety issues etc... but things are certainly progressing........

You can go on the website and have a look for yourself at www.cftrust.org.uk. Other sites are the UK CF gene Therapy Consortium and www.Cysticfibrosismedicine.com

I know things are different in each country but things do look promising.... I dont want to get anyones hopes up too much and i hope i have not offended anyone......

Thanks for taking time to read this and Here's for a brighter tomorrow xxx
 
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anonymous

New member
Sorry i forgot to put my name on the end ...Paula ...Rubys mum..(11 weeks old and currently in hospital recovering from Closure of illestomy....)
 
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anonymous

New member
The UK is so much more advanced in treatment of CF. Fortunately the UK does not have the constraints of the FDA that the US does. My daughter's pulmonologist does alot of research studies and has worked on developing alot of new meds for CF - but, he is doing so in the UK due to all the red tape in the US.
 
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anonymous

New member
I have a brother that has CF. He is only 17 and has had a liver transplant and is in the last stages of lung failure. He has spent the last 2 years of his life in and out of the hospital, on oxygen constantly and sometimes assisted by a bi-pap or a ventilator. I think it is so stupid to ban stem cell research and I am so tired of people saying it is imoral and thats not how god wants things. Have you ever taken medicine, cause if you have you are a hipocrate, why are some treatments and medicines ok but stem cell is not, they all prevent what you say god has intended, you are delaying you time to go. The world is different today, how can you deny the ability to find a cure for millions of people just because you think a book thinks it is not right. I don't care if you don't think it is not right, my brother should not have to suffer because of your single minded beliefs. If you saw someone dying and you had the cure and you chose not to give it to them because you believed it was wrong than you are killing someone.
 
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anonymous

New member
I am very sorry about your brother. We have a son with CF and we feel terrible about Bush and his idealogy that has limited research over the last 6 years. So much misinformation is spread about stem cell research, i even saw someone on this thread say that stem cells were taken from aborted fetuses. That is so incorrect. I can only guess that he/she (anonymous) is referring to stem cells that are sometimes taken from embryos leftover from IFV implantation.

Anyone who wants to become educated on stem cells should read last months national geographic magazine. They showed an electron microscope picture of an embryo cell inside the eye of a needle, it looked like you could fit 1000 of them inside the eye of a needle. They are cells, as are the skin cells that we regrow every year, and religous zealots are prolonging suffering by our friends and family by spreading lies about the research. BECOME EDUCATED, and in turn you will learn not to vote for people like BUSH.
 
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anonymous

New member
Well I have read alot here tonight. I was so unaware of all this stem cell research therefore, I can't really give an opinion but, I can say one thing: If stem cell would save the lives of my twins with cf then I would surley have it done. I also think anyone on this site that had a child with cf would to. We all know what they go through on a daily basis and if we were offered a cure through stem cell and we knew they would never suffer again and could take a normal breath would you not do it? I would rather burn in hell if it is so wrong as long as my kids could just be healthy. I know this is a touchy subject and we all have our own thoughts and beliefs but, I don't want the government to be the one to say we can't do this because it morally wrong if we can save cf lives as well as any other diseases. All I can say is I am gald Bush can't run again. Cf can't wait another four years. That's just my thoughs. I do know that I will be doing alot more research on this. It's amazing what you miss when you don't post for a while.
 
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