Sterilizing PARI cups

hmw

New member
I asked our dr about how to clean them and she kind of laughed and said 'yeah it's one of the most common questions we get here' and went and got a printout that she said was something they gave out at a CFF conference. It called for, to paraphrase, daily cleaning with soapy water and weekly sterilizing. With the weekly sterilizing, if you didn't use the boiling method, you had to finish the process by rinsing with sterile water (water that had been boiled.) I personally do not think weekly sterilizing is enough and like the link that had been posted by grassisgreener much better!!

Re. insurance coverage on the nebs: Emily's insurance will cover replacements every 6 months. I was wondering how long people here keep them, if they seem to still be working OK. Do they still seem to work ok past that point- can you keep them longer to build up a bigger supply? (Since it seems she'll need to use more than one in a session if she needs meds added at some point)? Just curious on that one; we haven't reached that point yet.

We use the steam bottle sterilizer; I like to run it right before we need to use the nebs, when it's easiest to dry them; then I clean my hands with Purell and dry the parts with a roll of paper towels I keep in a protected place just for that purpose. After using the nebs they get quickly washed with warm soapy water and go back in... as long as we add 200ml of water every 24hrs the thing can keep cycling as often as needed.
 

hmw

New member
I asked our dr about how to clean them and she kind of laughed and said 'yeah it's one of the most common questions we get here' and went and got a printout that she said was something they gave out at a CFF conference. It called for, to paraphrase, daily cleaning with soapy water and weekly sterilizing. With the weekly sterilizing, if you didn't use the boiling method, you had to finish the process by rinsing with sterile water (water that had been boiled.) I personally do not think weekly sterilizing is enough and like the link that had been posted by grassisgreener much better!!

Re. insurance coverage on the nebs: Emily's insurance will cover replacements every 6 months. I was wondering how long people here keep them, if they seem to still be working OK. Do they still seem to work ok past that point- can you keep them longer to build up a bigger supply? (Since it seems she'll need to use more than one in a session if she needs meds added at some point)? Just curious on that one; we haven't reached that point yet.

We use the steam bottle sterilizer; I like to run it right before we need to use the nebs, when it's easiest to dry them; then I clean my hands with Purell and dry the parts with a roll of paper towels I keep in a protected place just for that purpose. After using the nebs they get quickly washed with warm soapy water and go back in... as long as we add 200ml of water every 24hrs the thing can keep cycling as often as needed.
 

hmw

New member
I asked our dr about how to clean them and she kind of laughed and said 'yeah it's one of the most common questions we get here' and went and got a printout that she said was something they gave out at a CFF conference. It called for, to paraphrase, daily cleaning with soapy water and weekly sterilizing. With the weekly sterilizing, if you didn't use the boiling method, you had to finish the process by rinsing with sterile water (water that had been boiled.) I personally do not think weekly sterilizing is enough and like the link that had been posted by grassisgreener much better!!

Re. insurance coverage on the nebs: Emily's insurance will cover replacements every 6 months. I was wondering how long people here keep them, if they seem to still be working OK. Do they still seem to work ok past that point- can you keep them longer to build up a bigger supply? (Since it seems she'll need to use more than one in a session if she needs meds added at some point)? Just curious on that one; we haven't reached that point yet.

We use the steam bottle sterilizer; I like to run it right before we need to use the nebs, when it's easiest to dry them; then I clean my hands with Purell and dry the parts with a roll of paper towels I keep in a protected place just for that purpose. After using the nebs they get quickly washed with warm soapy water and go back in... as long as we add 200ml of water every 24hrs the thing can keep cycling as often as needed.
 

hmw

New member
I asked our dr about how to clean them and she kind of laughed and said 'yeah it's one of the most common questions we get here' and went and got a printout that she said was something they gave out at a CFF conference. It called for, to paraphrase, daily cleaning with soapy water and weekly sterilizing. With the weekly sterilizing, if you didn't use the boiling method, you had to finish the process by rinsing with sterile water (water that had been boiled.) I personally do not think weekly sterilizing is enough and like the link that had been posted by grassisgreener much better!!

Re. insurance coverage on the nebs: Emily's insurance will cover replacements every 6 months. I was wondering how long people here keep them, if they seem to still be working OK. Do they still seem to work ok past that point- can you keep them longer to build up a bigger supply? (Since it seems she'll need to use more than one in a session if she needs meds added at some point)? Just curious on that one; we haven't reached that point yet.

We use the steam bottle sterilizer; I like to run it right before we need to use the nebs, when it's easiest to dry them; then I clean my hands with Purell and dry the parts with a roll of paper towels I keep in a protected place just for that purpose. After using the nebs they get quickly washed with warm soapy water and go back in... as long as we add 200ml of water every 24hrs the thing can keep cycling as often as needed.
 

hmw

New member
I asked our dr about how to clean them and she kind of laughed and said 'yeah it's one of the most common questions we get here' and went and got a printout that she said was something they gave out at a CFF conference. It called for, to paraphrase, daily cleaning with soapy water and weekly sterilizing. With the weekly sterilizing, if you didn't use the boiling method, you had to finish the process by rinsing with sterile water (water that had been boiled.) I personally do not think weekly sterilizing is enough and like the link that had been posted by grassisgreener much better!!
<br />
<br />Re. insurance coverage on the nebs: Emily's insurance will cover replacements every 6 months. I was wondering how long people here keep them, if they seem to still be working OK. Do they still seem to work ok past that point- can you keep them longer to build up a bigger supply? (Since it seems she'll need to use more than one in a session if she needs meds added at some point)? Just curious on that one; we haven't reached that point yet.
<br />
<br />We use the steam bottle sterilizer; I like to run it right before we need to use the nebs, when it's easiest to dry them; then I clean my hands with Purell and dry the parts with a roll of paper towels I keep in a protected place just for that purpose. After using the nebs they get quickly washed with warm soapy water and go back in... as long as we add 200ml of water every 24hrs the thing can keep cycling as often as needed.
 

Ratatosk

Administrator
Staff member
Yikes, a cff clinic suggesting weekly sterilization?!! We sterilize nebs after a one time use. IMO, check out the CFF guidelines.

Also, sometimes nebs will last a bit longer than 6 months, but with all the boiling, they tend to wear out a bit faster. Also, drugs like tobi tend to be really sticky and we've had some that plug up. Hard water can also cause issues. Before we replaced our water softener, I was forever presoaking the neb cups in vinegar to get the calcium deposits out of them, then washing in hot soapy water and boiling.
 

Ratatosk

Administrator
Staff member
Yikes, a cff clinic suggesting weekly sterilization?!! We sterilize nebs after a one time use. IMO, check out the CFF guidelines.

Also, sometimes nebs will last a bit longer than 6 months, but with all the boiling, they tend to wear out a bit faster. Also, drugs like tobi tend to be really sticky and we've had some that plug up. Hard water can also cause issues. Before we replaced our water softener, I was forever presoaking the neb cups in vinegar to get the calcium deposits out of them, then washing in hot soapy water and boiling.
 

Ratatosk

Administrator
Staff member
Yikes, a cff clinic suggesting weekly sterilization?!! We sterilize nebs after a one time use. IMO, check out the CFF guidelines.

Also, sometimes nebs will last a bit longer than 6 months, but with all the boiling, they tend to wear out a bit faster. Also, drugs like tobi tend to be really sticky and we've had some that plug up. Hard water can also cause issues. Before we replaced our water softener, I was forever presoaking the neb cups in vinegar to get the calcium deposits out of them, then washing in hot soapy water and boiling.
 

Ratatosk

Administrator
Staff member
Yikes, a cff clinic suggesting weekly sterilization?!! We sterilize nebs after a one time use. IMO, check out the CFF guidelines.

Also, sometimes nebs will last a bit longer than 6 months, but with all the boiling, they tend to wear out a bit faster. Also, drugs like tobi tend to be really sticky and we've had some that plug up. Hard water can also cause issues. Before we replaced our water softener, I was forever presoaking the neb cups in vinegar to get the calcium deposits out of them, then washing in hot soapy water and boiling.
 

Ratatosk

Administrator
Staff member
Yikes, a cff clinic suggesting weekly sterilization?!! We sterilize nebs after a one time use. IMO, check out the CFF guidelines.
<br />
<br />Also, sometimes nebs will last a bit longer than 6 months, but with all the boiling, they tend to wear out a bit faster. Also, drugs like tobi tend to be really sticky and we've had some that plug up. Hard water can also cause issues. Before we replaced our water softener, I was forever presoaking the neb cups in vinegar to get the calcium deposits out of them, then washing in hot soapy water and boiling.
 

Ratatosk

Administrator
Staff member
CFF Infection control info -- <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/UploadedFiles/LivingWithCF/StayingHealthy/Germs/StoppingTheSpread/StoppingSpreadGerms.pdf">http://www.cff.org/UploadedFil...toppingSpreadGerms.pdf</a>
 

Ratatosk

Administrator
Staff member
CFF Infection control info -- <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/UploadedFiles/LivingWithCF/StayingHealthy/Germs/StoppingTheSpread/StoppingSpreadGerms.pdf">http://www.cff.org/UploadedFil...toppingSpreadGerms.pdf</a>
 

Ratatosk

Administrator
Staff member
CFF Infection control info -- <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/UploadedFiles/LivingWithCF/StayingHealthy/Germs/StoppingTheSpread/StoppingSpreadGerms.pdf">http://www.cff.org/UploadedFil...toppingSpreadGerms.pdf</a>
 

Ratatosk

Administrator
Staff member
CFF Infection control info -- <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/UploadedFiles/LivingWithCF/StayingHealthy/Germs/StoppingTheSpread/StoppingSpreadGerms.pdf">http://www.cff.org/UploadedFil...toppingSpreadGerms.pdf</a>
 

Ratatosk

Administrator
Staff member
CFF Infection control info -- <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/UploadedFiles/LivingWithCF/StayingHealthy/Germs/StoppingTheSpread/StoppingSpreadGerms.pdf">http://www.cff.org/UploadedFil...toppingSpreadGerms.pdf</a>
 

beleache

New member
I am currently sitting in a lung health center & they recommend using one sterilized set per day..

You are supposed to wash in warm soapy water the sterilize.. You are supposed to wash in warm soapy water in between use throughout the day..

They also want me to change my tubing (from compressor to neb) every two weeks !!! I have been changing it every six months <img src="i/expressions/face-icon-small-confused.gif" border="0">

Its probably because of the bug i have but in general if you have condensation in the tubing they say to blow it out or change it..

Take care <img src="i/expressions/heart.gif" border="0"> joni
 

beleache

New member
I am currently sitting in a lung health center & they recommend using one sterilized set per day..

You are supposed to wash in warm soapy water the sterilize.. You are supposed to wash in warm soapy water in between use throughout the day..

They also want me to change my tubing (from compressor to neb) every two weeks !!! I have been changing it every six months <img src="i/expressions/face-icon-small-confused.gif" border="0">

Its probably because of the bug i have but in general if you have condensation in the tubing they say to blow it out or change it..

Take care <img src="i/expressions/heart.gif" border="0"> joni
 

beleache

New member
I am currently sitting in a lung health center & they recommend using one sterilized set per day..

You are supposed to wash in warm soapy water the sterilize.. You are supposed to wash in warm soapy water in between use throughout the day..

They also want me to change my tubing (from compressor to neb) every two weeks !!! I have been changing it every six months <img src="i/expressions/face-icon-small-confused.gif" border="0">

Its probably because of the bug i have but in general if you have condensation in the tubing they say to blow it out or change it..

Take care <img src="i/expressions/heart.gif" border="0"> joni
 

beleache

New member
I am currently sitting in a lung health center & they recommend using one sterilized set per day..

You are supposed to wash in warm soapy water the sterilize.. You are supposed to wash in warm soapy water in between use throughout the day..

They also want me to change my tubing (from compressor to neb) every two weeks !!! I have been changing it every six months <img src="i/expressions/face-icon-small-confused.gif" border="0">

Its probably because of the bug i have but in general if you have condensation in the tubing they say to blow it out or change it..

Take care <img src="i/expressions/heart.gif" border="0"> joni
 

beleache

New member
I am currently sitting in a lung health center & they recommend using one sterilized set per day..
<br />
<br /> You are supposed to wash in warm soapy water the sterilize.. You are supposed to wash in warm soapy water in between use throughout the day..
<br />
<br /> They also want me to change my tubing (from compressor to neb) every two weeks !!! I have been changing it every six months <img src="i/expressions/face-icon-small-confused.gif" border="0">
<br />
<br /> Its probably because of the bug i have but in general if you have condensation in the tubing they say to blow it out or change it..
<br />
<br />Take care <img src="i/expressions/heart.gif" border="0"> joni
 
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