I have also been on TOBI IV for a week and my FEV1 went lower. I am also on Vancomycin and Ceftazidyme for MRSA. Anyway, my doc switched me to Colistin, since the TOBI didn't work. However, since I am pregnant, and due to the peak and trough levels, he didn't want to up my dose of TOBI. Maybe switching your meds would be the cure. Did they do a culture?
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Still no better
- Thread starter ladybug
- Start date
I have also been on TOBI IV for a week and my FEV1 went lower. I am also on Vancomycin and Ceftazidyme for MRSA. Anyway, my doc switched me to Colistin, since the TOBI didn't work. However, since I am pregnant, and due to the peak and trough levels, he didn't want to up my dose of TOBI. Maybe switching your meds would be the cure. Did they do a culture?
I have also been on TOBI IV for a week and my FEV1 went lower. I am also on Vancomycin and Ceftazidyme for MRSA. Anyway, my doc switched me to Colistin, since the TOBI didn't work. However, since I am pregnant, and due to the peak and trough levels, he didn't want to up my dose of TOBI. Maybe switching your meds would be the cure. Did they do a culture?
I have also been on TOBI IV for a week and my FEV1 went lower. I am also on Vancomycin and Ceftazidyme for MRSA. Anyway, my doc switched me to Colistin, since the TOBI didn't work. However, since I am pregnant, and due to the peak and trough levels, he didn't want to up my dose of TOBI. Maybe switching your meds would be the cure. Did they do a culture?
I have also been on TOBI IV for a week and my FEV1 went lower. I am also on Vancomycin and Ceftazidyme for MRSA. Anyway, my doc switched me to Colistin, since the TOBI didn't work. However, since I am pregnant, and due to the peak and trough levels, he didn't want to up my dose of TOBI. Maybe switching your meds would be the cure. Did they do a culture?
no culture. they went off a culture in sept. they said i'd do one when i was inpatient (when i asked whether i should do one), but it wasn't ordered and i never did it. sigh....
bummer your results got worse! how frustrating! i've never been on IV coli. i've never even had sensitivity testing for that (that i know of). do they usually test for that or only when you're resistant to lots of other things?
bummer your results got worse! how frustrating! i've never been on IV coli. i've never even had sensitivity testing for that (that i know of). do they usually test for that or only when you're resistant to lots of other things?
no culture. they went off a culture in sept. they said i'd do one when i was inpatient (when i asked whether i should do one), but it wasn't ordered and i never did it. sigh....
bummer your results got worse! how frustrating! i've never been on IV coli. i've never even had sensitivity testing for that (that i know of). do they usually test for that or only when you're resistant to lots of other things?
bummer your results got worse! how frustrating! i've never been on IV coli. i've never even had sensitivity testing for that (that i know of). do they usually test for that or only when you're resistant to lots of other things?
no culture. they went off a culture in sept. they said i'd do one when i was inpatient (when i asked whether i should do one), but it wasn't ordered and i never did it. sigh....
bummer your results got worse! how frustrating! i've never been on IV coli. i've never even had sensitivity testing for that (that i know of). do they usually test for that or only when you're resistant to lots of other things?
bummer your results got worse! how frustrating! i've never been on IV coli. i've never even had sensitivity testing for that (that i know of). do they usually test for that or only when you're resistant to lots of other things?
no culture. they went off a culture in sept. they said i'd do one when i was inpatient (when i asked whether i should do one), but it wasn't ordered and i never did it. sigh....
bummer your results got worse! how frustrating! i've never been on IV coli. i've never even had sensitivity testing for that (that i know of). do they usually test for that or only when you're resistant to lots of other things?
bummer your results got worse! how frustrating! i've never been on IV coli. i've never even had sensitivity testing for that (that i know of). do they usually test for that or only when you're resistant to lots of other things?
no culture. they went off a culture in sept. they said i'd do one when i was inpatient (when i asked whether i should do one), but it wasn't ordered and i never did it. sigh....
<br />
<br />bummer your results got worse! how frustrating! i've never been on IV coli. i've never even had sensitivity testing for that (that i know of). do they usually test for that or only when you're resistant to lots of other things?
<br />
<br />bummer your results got worse! how frustrating! i've never been on IV coli. i've never even had sensitivity testing for that (that i know of). do they usually test for that or only when you're resistant to lots of other things?
NYCLawGirl
New member
Sonia, for what it's worth I am on those drugs frequently for PA and those are the doses I typically do. IV tobra more than every 24 hours is really hard on the system, and every 8 is about the max for merrem too I think. Mel has a point with the suggestion of a 3rd drug. If you feel you can handle that much (esp at home), it might be the answer.
I too have noticed a marked decrease in the effectiveness of IV abx against my PA. I used to get back to baseline in a week, the additional week was more or less just to be safe. Now I stay on for 3, or even 4 weeks just to get back to baseline. It's frustrating for sure. Hope you feel better soon!!
I too have noticed a marked decrease in the effectiveness of IV abx against my PA. I used to get back to baseline in a week, the additional week was more or less just to be safe. Now I stay on for 3, or even 4 weeks just to get back to baseline. It's frustrating for sure. Hope you feel better soon!!
NYCLawGirl
New member
Sonia, for what it's worth I am on those drugs frequently for PA and those are the doses I typically do. IV tobra more than every 24 hours is really hard on the system, and every 8 is about the max for merrem too I think. Mel has a point with the suggestion of a 3rd drug. If you feel you can handle that much (esp at home), it might be the answer.
I too have noticed a marked decrease in the effectiveness of IV abx against my PA. I used to get back to baseline in a week, the additional week was more or less just to be safe. Now I stay on for 3, or even 4 weeks just to get back to baseline. It's frustrating for sure. Hope you feel better soon!!
I too have noticed a marked decrease in the effectiveness of IV abx against my PA. I used to get back to baseline in a week, the additional week was more or less just to be safe. Now I stay on for 3, or even 4 weeks just to get back to baseline. It's frustrating for sure. Hope you feel better soon!!
NYCLawGirl
New member
Sonia, for what it's worth I am on those drugs frequently for PA and those are the doses I typically do. IV tobra more than every 24 hours is really hard on the system, and every 8 is about the max for merrem too I think. Mel has a point with the suggestion of a 3rd drug. If you feel you can handle that much (esp at home), it might be the answer.
I too have noticed a marked decrease in the effectiveness of IV abx against my PA. I used to get back to baseline in a week, the additional week was more or less just to be safe. Now I stay on for 3, or even 4 weeks just to get back to baseline. It's frustrating for sure. Hope you feel better soon!!
I too have noticed a marked decrease in the effectiveness of IV abx against my PA. I used to get back to baseline in a week, the additional week was more or less just to be safe. Now I stay on for 3, or even 4 weeks just to get back to baseline. It's frustrating for sure. Hope you feel better soon!!
NYCLawGirl
New member
Sonia, for what it's worth I am on those drugs frequently for PA and those are the doses I typically do. IV tobra more than every 24 hours is really hard on the system, and every 8 is about the max for merrem too I think. Mel has a point with the suggestion of a 3rd drug. If you feel you can handle that much (esp at home), it might be the answer.
I too have noticed a marked decrease in the effectiveness of IV abx against my PA. I used to get back to baseline in a week, the additional week was more or less just to be safe. Now I stay on for 3, or even 4 weeks just to get back to baseline. It's frustrating for sure. Hope you feel better soon!!
I too have noticed a marked decrease in the effectiveness of IV abx against my PA. I used to get back to baseline in a week, the additional week was more or less just to be safe. Now I stay on for 3, or even 4 weeks just to get back to baseline. It's frustrating for sure. Hope you feel better soon!!
NYCLawGirl
New member
Sonia, for what it's worth I am on those drugs frequently for PA and those are the doses I typically do. IV tobra more than every 24 hours is really hard on the system, and every 8 is about the max for merrem too I think. Mel has a point with the suggestion of a 3rd drug. If you feel you can handle that much (esp at home), it might be the answer.
<br />
<br />I too have noticed a marked decrease in the effectiveness of IV abx against my PA. I used to get back to baseline in a week, the additional week was more or less just to be safe. Now I stay on for 3, or even 4 weeks just to get back to baseline. It's frustrating for sure. Hope you feel better soon!!
<br />
<br />I too have noticed a marked decrease in the effectiveness of IV abx against my PA. I used to get back to baseline in a week, the additional week was more or less just to be safe. Now I stay on for 3, or even 4 weeks just to get back to baseline. It's frustrating for sure. Hope you feel better soon!!
Ladybug,
I'm in the same boat.
Well actually they pushed my Tobra back to every 36 hrs, I hate that, so hard to remember.
I'm on the same drugs and like Piper, it takes me 3-4 weeks to get 'better'.
Usually the last week they give me a taper of prednisone to make my #'s go up. Which I don't think is a true reflection of what the IV's are doing/not doing. I get so frustrated.
I felt like I didn't even need any iv's this time but my dr disagreed. My pft was down 20% and she wanted it treated right then. Well I had a trip planned so I said I would do iv's when I got back (like 16 days later). She was not happy but my pft even went UP two points. So ha. They don't know everything.
Good luck to you, sometimes it just takes longer to get results. Totally annoying and quite a bit of work.
Hang in there.
Kelli
31 f CF
I'm in the same boat.
Well actually they pushed my Tobra back to every 36 hrs, I hate that, so hard to remember.
I'm on the same drugs and like Piper, it takes me 3-4 weeks to get 'better'.
Usually the last week they give me a taper of prednisone to make my #'s go up. Which I don't think is a true reflection of what the IV's are doing/not doing. I get so frustrated.
I felt like I didn't even need any iv's this time but my dr disagreed. My pft was down 20% and she wanted it treated right then. Well I had a trip planned so I said I would do iv's when I got back (like 16 days later). She was not happy but my pft even went UP two points. So ha. They don't know everything.
Good luck to you, sometimes it just takes longer to get results. Totally annoying and quite a bit of work.
Hang in there.
Kelli
31 f CF
Ladybug,
I'm in the same boat.
Well actually they pushed my Tobra back to every 36 hrs, I hate that, so hard to remember.
I'm on the same drugs and like Piper, it takes me 3-4 weeks to get 'better'.
Usually the last week they give me a taper of prednisone to make my #'s go up. Which I don't think is a true reflection of what the IV's are doing/not doing. I get so frustrated.
I felt like I didn't even need any iv's this time but my dr disagreed. My pft was down 20% and she wanted it treated right then. Well I had a trip planned so I said I would do iv's when I got back (like 16 days later). She was not happy but my pft even went UP two points. So ha. They don't know everything.
Good luck to you, sometimes it just takes longer to get results. Totally annoying and quite a bit of work.
Hang in there.
Kelli
31 f CF
I'm in the same boat.
Well actually they pushed my Tobra back to every 36 hrs, I hate that, so hard to remember.
I'm on the same drugs and like Piper, it takes me 3-4 weeks to get 'better'.
Usually the last week they give me a taper of prednisone to make my #'s go up. Which I don't think is a true reflection of what the IV's are doing/not doing. I get so frustrated.
I felt like I didn't even need any iv's this time but my dr disagreed. My pft was down 20% and she wanted it treated right then. Well I had a trip planned so I said I would do iv's when I got back (like 16 days later). She was not happy but my pft even went UP two points. So ha. They don't know everything.
Good luck to you, sometimes it just takes longer to get results. Totally annoying and quite a bit of work.
Hang in there.
Kelli
31 f CF
Ladybug,
I'm in the same boat.
Well actually they pushed my Tobra back to every 36 hrs, I hate that, so hard to remember.
I'm on the same drugs and like Piper, it takes me 3-4 weeks to get 'better'.
Usually the last week they give me a taper of prednisone to make my #'s go up. Which I don't think is a true reflection of what the IV's are doing/not doing. I get so frustrated.
I felt like I didn't even need any iv's this time but my dr disagreed. My pft was down 20% and she wanted it treated right then. Well I had a trip planned so I said I would do iv's when I got back (like 16 days later). She was not happy but my pft even went UP two points. So ha. They don't know everything.
Good luck to you, sometimes it just takes longer to get results. Totally annoying and quite a bit of work.
Hang in there.
Kelli
31 f CF
I'm in the same boat.
Well actually they pushed my Tobra back to every 36 hrs, I hate that, so hard to remember.
I'm on the same drugs and like Piper, it takes me 3-4 weeks to get 'better'.
Usually the last week they give me a taper of prednisone to make my #'s go up. Which I don't think is a true reflection of what the IV's are doing/not doing. I get so frustrated.
I felt like I didn't even need any iv's this time but my dr disagreed. My pft was down 20% and she wanted it treated right then. Well I had a trip planned so I said I would do iv's when I got back (like 16 days later). She was not happy but my pft even went UP two points. So ha. They don't know everything.
Good luck to you, sometimes it just takes longer to get results. Totally annoying and quite a bit of work.
Hang in there.
Kelli
31 f CF
Ladybug,
I'm in the same boat.
Well actually they pushed my Tobra back to every 36 hrs, I hate that, so hard to remember.
I'm on the same drugs and like Piper, it takes me 3-4 weeks to get 'better'.
Usually the last week they give me a taper of prednisone to make my #'s go up. Which I don't think is a true reflection of what the IV's are doing/not doing. I get so frustrated.
I felt like I didn't even need any iv's this time but my dr disagreed. My pft was down 20% and she wanted it treated right then. Well I had a trip planned so I said I would do iv's when I got back (like 16 days later). She was not happy but my pft even went UP two points. So ha. They don't know everything.
Good luck to you, sometimes it just takes longer to get results. Totally annoying and quite a bit of work.
Hang in there.
Kelli
31 f CF
I'm in the same boat.
Well actually they pushed my Tobra back to every 36 hrs, I hate that, so hard to remember.
I'm on the same drugs and like Piper, it takes me 3-4 weeks to get 'better'.
Usually the last week they give me a taper of prednisone to make my #'s go up. Which I don't think is a true reflection of what the IV's are doing/not doing. I get so frustrated.
I felt like I didn't even need any iv's this time but my dr disagreed. My pft was down 20% and she wanted it treated right then. Well I had a trip planned so I said I would do iv's when I got back (like 16 days later). She was not happy but my pft even went UP two points. So ha. They don't know everything.
Good luck to you, sometimes it just takes longer to get results. Totally annoying and quite a bit of work.
Hang in there.
Kelli
31 f CF
Ladybug,
<br />I'm in the same boat.
<br />
<br />Well actually they pushed my Tobra back to every 36 hrs, I hate that, so hard to remember.
<br />
<br />I'm on the same drugs and like Piper, it takes me 3-4 weeks to get 'better'.
<br />
<br />Usually the last week they give me a taper of prednisone to make my #'s go up. Which I don't think is a true reflection of what the IV's are doing/not doing. I get so frustrated.
<br />
<br />I felt like I didn't even need any iv's this time but my dr disagreed. My pft was down 20% and she wanted it treated right then. Well I had a trip planned so I said I would do iv's when I got back (like 16 days later). She was not happy but my pft even went UP two points. So ha. They don't know everything.
<br />
<br />Good luck to you, sometimes it just takes longer to get results. Totally annoying and quite a bit of work.
<br />
<br />Hang in there.
<br />Kelli
<br />31 f CF
<br />I'm in the same boat.
<br />
<br />Well actually they pushed my Tobra back to every 36 hrs, I hate that, so hard to remember.
<br />
<br />I'm on the same drugs and like Piper, it takes me 3-4 weeks to get 'better'.
<br />
<br />Usually the last week they give me a taper of prednisone to make my #'s go up. Which I don't think is a true reflection of what the IV's are doing/not doing. I get so frustrated.
<br />
<br />I felt like I didn't even need any iv's this time but my dr disagreed. My pft was down 20% and she wanted it treated right then. Well I had a trip planned so I said I would do iv's when I got back (like 16 days later). She was not happy but my pft even went UP two points. So ha. They don't know everything.
<br />
<br />Good luck to you, sometimes it just takes longer to get results. Totally annoying and quite a bit of work.
<br />
<br />Hang in there.
<br />Kelli
<br />31 f CF