confused;
My son Parker is 9yo and has been DXed since he was 6months old. The primary problem throughout his journey has been diet and nutrition. Everyday it is close to hand to hand combat to get him to take in enough calories. He does not need a feeding tube (yet) but we are always hovering around the zero to fifth percentile in BMI for his size and age. I have tried several different ideas, recipies and foods. I have taken suggestions from him about what foods he likes and every morning it is the same battle. The latest round is over scandishakes. I am trying to hold my ground but it is difficult. Does anyone have any ideas or suggestions? Reading some of the blogs reminds me how lucky we are to have this be the primary problem but something has to change. I am going to try several recipies that I have found but I seek any other suggestions as well. Thanks
Jim, father of Parker 9yo w/CF
My son Parker is 9yo and has been DXed since he was 6months old. The primary problem throughout his journey has been diet and nutrition. Everyday it is close to hand to hand combat to get him to take in enough calories. He does not need a feeding tube (yet) but we are always hovering around the zero to fifth percentile in BMI for his size and age. I have tried several different ideas, recipies and foods. I have taken suggestions from him about what foods he likes and every morning it is the same battle. The latest round is over scandishakes. I am trying to hold my ground but it is difficult. Does anyone have any ideas or suggestions? Reading some of the blogs reminds me how lucky we are to have this be the primary problem but something has to change. I am going to try several recipies that I have found but I seek any other suggestions as well. Thanks
Jim, father of Parker 9yo w/CF