Stubborn child and nutrition

A

amber682

New member
I agree on the control issue. Especially for toddlers. The only 2 things they can control in life is eating and pooping. I can't make my son do either if he doesn't want to. (We have a little poop phobia going on). As for enzymes with snacks, I usually just give them to him after he has a snack so I can change it for how much he ate. We also do a big high cal shake right before bed. Also, like Folione said, those snacks are hours before a meal or he doesn't eat. Same with milk or shakes. A lot of times I can get him to eat a "few more bites" of lunch/dinner in order to get a snack (usually chips, he loves that salt!)

A doctor told me once that all CFers are stubborn...
 
A

amber682

New member
I agree on the control issue. Especially for toddlers. The only 2 things they can control in life is eating and pooping. I can't make my son do either if he doesn't want to. (We have a little poop phobia going on). As for enzymes with snacks, I usually just give them to him after he has a snack so I can change it for how much he ate. We also do a big high cal shake right before bed. Also, like Folione said, those snacks are hours before a meal or he doesn't eat. Same with milk or shakes. A lot of times I can get him to eat a "few more bites" of lunch/dinner in order to get a snack (usually chips, he loves that salt!)

A doctor told me once that all CFers are stubborn...
 
A

amber682

New member
I agree on the control issue. Especially for toddlers. The only 2 things they can control in life is eating and pooping. I can't make my son do either if he doesn't want to. (We have a little poop phobia going on). As for enzymes with snacks, I usually just give them to him after he has a snack so I can change it for how much he ate. We also do a big high cal shake right before bed. Also, like Folione said, those snacks are hours before a meal or he doesn't eat. Same with milk or shakes. A lot of times I can get him to eat a "few more bites" of lunch/dinner in order to get a snack (usually chips, he loves that salt!)

A doctor told me once that all CFers are stubborn...
 
A

amber682

New member
I agree on the control issue. Especially for toddlers. The only 2 things they can control in life is eating and pooping. I can't make my son do either if he doesn't want to. (We have a little poop phobia going on). As for enzymes with snacks, I usually just give them to him after he has a snack so I can change it for how much he ate. We also do a big high cal shake right before bed. Also, like Folione said, those snacks are hours before a meal or he doesn't eat. Same with milk or shakes. A lot of times I can get him to eat a "few more bites" of lunch/dinner in order to get a snack (usually chips, he loves that salt!)

A doctor told me once that all CFers are stubborn...
 
A

amber682

New member
I agree on the control issue. Especially for toddlers. The only 2 things they can control in life is eating and pooping. I can't make my son do either if he doesn't want to. (We have a little poop phobia going on). As for enzymes with snacks, I usually just give them to him after he has a snack so I can change it for how much he ate. We also do a big high cal shake right before bed. Also, like Folione said, those snacks are hours before a meal or he doesn't eat. Same with milk or shakes. A lot of times I can get him to eat a "few more bites" of lunch/dinner in order to get a snack (usually chips, he loves that salt!)

A doctor told me once that all CFers are stubborn...
 
R

Ratatosk

Administrator
Staff member
So yesterday we were starting a week of encouraging DS to eat well at lunch and at the end of the week would get to go out to a space themed game/pizza place. Apparently they served sloppy joes, which he refused to eat -- told me he was "afraid of them". Argh! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I explained we LOVE sloppy joes and think they're yummy. Sigh.

Got him home and there was a package waiting for him from my folks. A chocolate advent calendar. So while I was getting his meds ready for the next day he was snacking on chocolate. Did his vest and DH wasn't home from a work meeting, so I had to take him to a public hearing at work. Packed up a backpack to entertain him while he packed himself a snack. I told him the meeting was like church -- he had to be quiet. And he was very good except his choice of snack -- cheese puff -- crunch, crunch, crunch -- semi-mortified Mom and then the grand finale a HUGE burp. Snickers from one of my coworkers, commissioners and several members of the audience across the room. Ugh!

His dad showed up a little while later and took him home. I'd forgotten to mention that in our rush, I hadn't fed DS a real meal. Called on my way home to see if he needed me to stop off -- DS was mowing down a chicken nugget meal and vanilla shake from mcDs. Then a couple hours later after his bath and vest -- he once again asked for his ice cold water, but ate a HUGE bowl of salted peanuts before bed.

I tell you, they're messing with us. It's a plot to drive us INSANE.
 
R

Ratatosk

Administrator
Staff member
So yesterday we were starting a week of encouraging DS to eat well at lunch and at the end of the week would get to go out to a space themed game/pizza place. Apparently they served sloppy joes, which he refused to eat -- told me he was "afraid of them". Argh! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I explained we LOVE sloppy joes and think they're yummy. Sigh.

Got him home and there was a package waiting for him from my folks. A chocolate advent calendar. So while I was getting his meds ready for the next day he was snacking on chocolate. Did his vest and DH wasn't home from a work meeting, so I had to take him to a public hearing at work. Packed up a backpack to entertain him while he packed himself a snack. I told him the meeting was like church -- he had to be quiet. And he was very good except his choice of snack -- cheese puff -- crunch, crunch, crunch -- semi-mortified Mom and then the grand finale a HUGE burp. Snickers from one of my coworkers, commissioners and several members of the audience across the room. Ugh!

His dad showed up a little while later and took him home. I'd forgotten to mention that in our rush, I hadn't fed DS a real meal. Called on my way home to see if he needed me to stop off -- DS was mowing down a chicken nugget meal and vanilla shake from mcDs. Then a couple hours later after his bath and vest -- he once again asked for his ice cold water, but ate a HUGE bowl of salted peanuts before bed.

I tell you, they're messing with us. It's a plot to drive us INSANE.
 
R

Ratatosk

Administrator
Staff member
So yesterday we were starting a week of encouraging DS to eat well at lunch and at the end of the week would get to go out to a space themed game/pizza place. Apparently they served sloppy joes, which he refused to eat -- told me he was "afraid of them". Argh! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I explained we LOVE sloppy joes and think they're yummy. Sigh.

Got him home and there was a package waiting for him from my folks. A chocolate advent calendar. So while I was getting his meds ready for the next day he was snacking on chocolate. Did his vest and DH wasn't home from a work meeting, so I had to take him to a public hearing at work. Packed up a backpack to entertain him while he packed himself a snack. I told him the meeting was like church -- he had to be quiet. And he was very good except his choice of snack -- cheese puff -- crunch, crunch, crunch -- semi-mortified Mom and then the grand finale a HUGE burp. Snickers from one of my coworkers, commissioners and several members of the audience across the room. Ugh!

His dad showed up a little while later and took him home. I'd forgotten to mention that in our rush, I hadn't fed DS a real meal. Called on my way home to see if he needed me to stop off -- DS was mowing down a chicken nugget meal and vanilla shake from mcDs. Then a couple hours later after his bath and vest -- he once again asked for his ice cold water, but ate a HUGE bowl of salted peanuts before bed.

I tell you, they're messing with us. It's a plot to drive us INSANE.
 
R

Ratatosk

Administrator
Staff member
So yesterday we were starting a week of encouraging DS to eat well at lunch and at the end of the week would get to go out to a space themed game/pizza place. Apparently they served sloppy joes, which he refused to eat -- told me he was "afraid of them". Argh! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I explained we LOVE sloppy joes and think they're yummy. Sigh.

Got him home and there was a package waiting for him from my folks. A chocolate advent calendar. So while I was getting his meds ready for the next day he was snacking on chocolate. Did his vest and DH wasn't home from a work meeting, so I had to take him to a public hearing at work. Packed up a backpack to entertain him while he packed himself a snack. I told him the meeting was like church -- he had to be quiet. And he was very good except his choice of snack -- cheese puff -- crunch, crunch, crunch -- semi-mortified Mom and then the grand finale a HUGE burp. Snickers from one of my coworkers, commissioners and several members of the audience across the room. Ugh!

His dad showed up a little while later and took him home. I'd forgotten to mention that in our rush, I hadn't fed DS a real meal. Called on my way home to see if he needed me to stop off -- DS was mowing down a chicken nugget meal and vanilla shake from mcDs. Then a couple hours later after his bath and vest -- he once again asked for his ice cold water, but ate a HUGE bowl of salted peanuts before bed.

I tell you, they're messing with us. It's a plot to drive us INSANE.
 
R

Ratatosk

Administrator
Staff member
So yesterday we were starting a week of encouraging DS to eat well at lunch and at the end of the week would get to go out to a space themed game/pizza place. Apparently they served sloppy joes, which he refused to eat -- told me he was "afraid of them". Argh! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I explained we LOVE sloppy joes and think they're yummy. Sigh.

Got him home and there was a package waiting for him from my folks. A chocolate advent calendar. So while I was getting his meds ready for the next day he was snacking on chocolate. Did his vest and DH wasn't home from a work meeting, so I had to take him to a public hearing at work. Packed up a backpack to entertain him while he packed himself a snack. I told him the meeting was like church -- he had to be quiet. And he was very good except his choice of snack -- cheese puff -- crunch, crunch, crunch -- semi-mortified Mom and then the grand finale a HUGE burp. Snickers from one of my coworkers, commissioners and several members of the audience across the room. Ugh!

His dad showed up a little while later and took him home. I'd forgotten to mention that in our rush, I hadn't fed DS a real meal. Called on my way home to see if he needed me to stop off -- DS was mowing down a chicken nugget meal and vanilla shake from mcDs. Then a couple hours later after his bath and vest -- he once again asked for his ice cold water, but ate a HUGE bowl of salted peanuts before bed.

I tell you, they're messing with us. It's a plot to drive us INSANE.
 
J

jimiv

New member
I see all the control issues. This morning I tried to get away from the scandishakes and fix some things he likes. We were not able to finish before going to catch the bus for school. We are in the middle of a little bet about weight. For every pound he gains from November until my birthday (1/6/08) he gets $10 in his savings account. However, for every pound I lose, I take out $1. That really spells out the problem with nutrition as well. His step-mom and I are both working on losing weight and he isn't. If only we could switch eating habits. Anyhow more will come. With school and scouting and sports there is a lot going on in his life. I just get frustrated that his CF influences so much. He does not want other kids to know what is going on so we try to keep the healthcare steps quiet. For scouting he is supposed to plan out meals for a week using recommendations for a healthy diet for kids. His real meal plan doesn't come close and I tell him that it doesn't matter. It remains an interesting challenge.
 
J

jimiv

New member
I see all the control issues. This morning I tried to get away from the scandishakes and fix some things he likes. We were not able to finish before going to catch the bus for school. We are in the middle of a little bet about weight. For every pound he gains from November until my birthday (1/6/08) he gets $10 in his savings account. However, for every pound I lose, I take out $1. That really spells out the problem with nutrition as well. His step-mom and I are both working on losing weight and he isn't. If only we could switch eating habits. Anyhow more will come. With school and scouting and sports there is a lot going on in his life. I just get frustrated that his CF influences so much. He does not want other kids to know what is going on so we try to keep the healthcare steps quiet. For scouting he is supposed to plan out meals for a week using recommendations for a healthy diet for kids. His real meal plan doesn't come close and I tell him that it doesn't matter. It remains an interesting challenge.
 
J

jimiv

New member
I see all the control issues. This morning I tried to get away from the scandishakes and fix some things he likes. We were not able to finish before going to catch the bus for school. We are in the middle of a little bet about weight. For every pound he gains from November until my birthday (1/6/08) he gets $10 in his savings account. However, for every pound I lose, I take out $1. That really spells out the problem with nutrition as well. His step-mom and I are both working on losing weight and he isn't. If only we could switch eating habits. Anyhow more will come. With school and scouting and sports there is a lot going on in his life. I just get frustrated that his CF influences so much. He does not want other kids to know what is going on so we try to keep the healthcare steps quiet. For scouting he is supposed to plan out meals for a week using recommendations for a healthy diet for kids. His real meal plan doesn't come close and I tell him that it doesn't matter. It remains an interesting challenge.
 
J

jimiv

New member
I see all the control issues. This morning I tried to get away from the scandishakes and fix some things he likes. We were not able to finish before going to catch the bus for school. We are in the middle of a little bet about weight. For every pound he gains from November until my birthday (1/6/08) he gets $10 in his savings account. However, for every pound I lose, I take out $1. That really spells out the problem with nutrition as well. His step-mom and I are both working on losing weight and he isn't. If only we could switch eating habits. Anyhow more will come. With school and scouting and sports there is a lot going on in his life. I just get frustrated that his CF influences so much. He does not want other kids to know what is going on so we try to keep the healthcare steps quiet. For scouting he is supposed to plan out meals for a week using recommendations for a healthy diet for kids. His real meal plan doesn't come close and I tell him that it doesn't matter. It remains an interesting challenge.
 
J

jimiv

New member
I see all the control issues. This morning I tried to get away from the scandishakes and fix some things he likes. We were not able to finish before going to catch the bus for school. We are in the middle of a little bet about weight. For every pound he gains from November until my birthday (1/6/08) he gets $10 in his savings account. However, for every pound I lose, I take out $1. That really spells out the problem with nutrition as well. His step-mom and I are both working on losing weight and he isn't. If only we could switch eating habits. Anyhow more will come. With school and scouting and sports there is a lot going on in his life. I just get frustrated that his CF influences so much. He does not want other kids to know what is going on so we try to keep the healthcare steps quiet. For scouting he is supposed to plan out meals for a week using recommendations for a healthy diet for kids. His real meal plan doesn't come close and I tell him that it doesn't matter. It remains an interesting challenge.
 
S

sdelorenzo

Guest
For my daughter, I don't think it is about control, she just isn't hungry and doesn't enjoy eating. Even when she ate the recommended calorie intake she still could not gain the weight.

I am just curious as to why you said your son doesn't need a feeding tube yet, but he hovers around 0-5% bmi. It is widely thought that cf kids should have at least 50% bmi in order to keep their lung function as good as possible. At five years old my daughter's bmi was 17% when I told her cf dr last year that I am done with the food battles, she isn't gaining like she needs to and she needs a feeding tube. She had had an ng feeding tube as a infant for 3 months so I knew the benefits and was not afraid of them. During those 6 months before she got the feeding tube she continued not to gain and went down to -5% bmi and her lung function was fell to 60%. Since her feeding tube has been placed she has gained 12 pounds (from 36 to 48 pounds) during the past 8 months and her lung function is now around 115%. Her bmi is now 63%. I can't tell you what a blessing the feeding tube (night feedings only) has been for her. We now do not stress over every bite or lack there of during the day. What a wonderful sight is it to see her with weight on her body!!!!
Sharon, mom of Sophia, 6 and Jack, 4 both with cf
 
S

sdelorenzo

Guest
For my daughter, I don't think it is about control, she just isn't hungry and doesn't enjoy eating. Even when she ate the recommended calorie intake she still could not gain the weight.

I am just curious as to why you said your son doesn't need a feeding tube yet, but he hovers around 0-5% bmi. It is widely thought that cf kids should have at least 50% bmi in order to keep their lung function as good as possible. At five years old my daughter's bmi was 17% when I told her cf dr last year that I am done with the food battles, she isn't gaining like she needs to and she needs a feeding tube. She had had an ng feeding tube as a infant for 3 months so I knew the benefits and was not afraid of them. During those 6 months before she got the feeding tube she continued not to gain and went down to -5% bmi and her lung function was fell to 60%. Since her feeding tube has been placed she has gained 12 pounds (from 36 to 48 pounds) during the past 8 months and her lung function is now around 115%. Her bmi is now 63%. I can't tell you what a blessing the feeding tube (night feedings only) has been for her. We now do not stress over every bite or lack there of during the day. What a wonderful sight is it to see her with weight on her body!!!!
Sharon, mom of Sophia, 6 and Jack, 4 both with cf
 
S

sdelorenzo

Guest
For my daughter, I don't think it is about control, she just isn't hungry and doesn't enjoy eating. Even when she ate the recommended calorie intake she still could not gain the weight.

I am just curious as to why you said your son doesn't need a feeding tube yet, but he hovers around 0-5% bmi. It is widely thought that cf kids should have at least 50% bmi in order to keep their lung function as good as possible. At five years old my daughter's bmi was 17% when I told her cf dr last year that I am done with the food battles, she isn't gaining like she needs to and she needs a feeding tube. She had had an ng feeding tube as a infant for 3 months so I knew the benefits and was not afraid of them. During those 6 months before she got the feeding tube she continued not to gain and went down to -5% bmi and her lung function was fell to 60%. Since her feeding tube has been placed she has gained 12 pounds (from 36 to 48 pounds) during the past 8 months and her lung function is now around 115%. Her bmi is now 63%. I can't tell you what a blessing the feeding tube (night feedings only) has been for her. We now do not stress over every bite or lack there of during the day. What a wonderful sight is it to see her with weight on her body!!!!
Sharon, mom of Sophia, 6 and Jack, 4 both with cf
 
S

sdelorenzo

Guest
For my daughter, I don't think it is about control, she just isn't hungry and doesn't enjoy eating. Even when she ate the recommended calorie intake she still could not gain the weight.

I am just curious as to why you said your son doesn't need a feeding tube yet, but he hovers around 0-5% bmi. It is widely thought that cf kids should have at least 50% bmi in order to keep their lung function as good as possible. At five years old my daughter's bmi was 17% when I told her cf dr last year that I am done with the food battles, she isn't gaining like she needs to and she needs a feeding tube. She had had an ng feeding tube as a infant for 3 months so I knew the benefits and was not afraid of them. During those 6 months before she got the feeding tube she continued not to gain and went down to -5% bmi and her lung function was fell to 60%. Since her feeding tube has been placed she has gained 12 pounds (from 36 to 48 pounds) during the past 8 months and her lung function is now around 115%. Her bmi is now 63%. I can't tell you what a blessing the feeding tube (night feedings only) has been for her. We now do not stress over every bite or lack there of during the day. What a wonderful sight is it to see her with weight on her body!!!!
Sharon, mom of Sophia, 6 and Jack, 4 both with cf
 
S

sdelorenzo

Guest
For my daughter, I don't think it is about control, she just isn't hungry and doesn't enjoy eating. Even when she ate the recommended calorie intake she still could not gain the weight.

I am just curious as to why you said your son doesn't need a feeding tube yet, but he hovers around 0-5% bmi. It is widely thought that cf kids should have at least 50% bmi in order to keep their lung function as good as possible. At five years old my daughter's bmi was 17% when I told her cf dr last year that I am done with the food battles, she isn't gaining like she needs to and she needs a feeding tube. She had had an ng feeding tube as a infant for 3 months so I knew the benefits and was not afraid of them. During those 6 months before she got the feeding tube she continued not to gain and went down to -5% bmi and her lung function was fell to 60%. Since her feeding tube has been placed she has gained 12 pounds (from 36 to 48 pounds) during the past 8 months and her lung function is now around 115%. Her bmi is now 63%. I can't tell you what a blessing the feeding tube (night feedings only) has been for her. We now do not stress over every bite or lack there of during the day. What a wonderful sight is it to see her with weight on her body!!!!
Sharon, mom of Sophia, 6 and Jack, 4 both with cf
 
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