Well, we are in the hospital and not sure our status.
We have been seeing some GI related issues for a couple of weeks, which led to M starting to puke up G-tube feedings yesterday (never has had ANY issues).
His GI sent us to the ER and instructed for them to call her partner who was on-call.
His xray didn't show any clear blockage, but did show quite a bit of retained feces in one area.....
Instead of calling the GI that was already prepared to address his issues, they just talked with the GI Fellow that was at the hospital and we played around until 2:30am before we were put in a room and told to rest so 'his' GI could address in the morning.
Meanwhile, we got stuck in a 'normal' medical ward so they have no CF experience at all and keep asking me why he is in isolation...ANYONE HEARD OF SWINE FLU-DUH!!!
Just found out the GI that was supposed to be called last night is doing rounds and will be by this morning to discuss the x-ray and decide if we need surgery to go take a look in his gut.
I'll post more later,
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Update Tues 1PM
Ok, consensus is likely partial obstruction, but not bad enough to do anything about at the moment.
He has tolerated solid food for breakfast w/o puking and we just had a very small/stinky stool but it was his first in 23hrs so that is a good thing.
Looks like if nothing changes, we will be discharged and just be watching to see if it gets worse.
Not 100% on-board with the wait-n-see with his already crappy gut but I have a call into 'his' GI to confirm if she agrees with the attending before he discharges us.
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Tues 6PM:
Well, I found someone else that didn't agree with the current plan/process: M's CF dr (dir. of CF Center @ Emory).
He apparently was not informed they had admitted one of 'his' kids w/o consulting him and he was HOT!
He immediately began challenging the pace and the limited amount of anything that had been done. We are now getting ready for go-lytely and more radiology studies at his direction.
Maybe we can now get to the bottom of things (pun intended).
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Wed 10AM
Well, we have been putting in golytely since 7PM, finally got our first small-nasty stool at 9:30 this morning after a night of cramping, thrashing and crying <img src="i/expressions/face-icon-small-sad.gif" border="0">
They have increased the rate on the g-tube pump to try and move things along. If we can get him cleaned out then the plan is to repeat the abd. xrays and try to determine what is going on.
THANK YOU for your thoughts & prayers.
We have been seeing some GI related issues for a couple of weeks, which led to M starting to puke up G-tube feedings yesterday (never has had ANY issues).
His GI sent us to the ER and instructed for them to call her partner who was on-call.
His xray didn't show any clear blockage, but did show quite a bit of retained feces in one area.....
Instead of calling the GI that was already prepared to address his issues, they just talked with the GI Fellow that was at the hospital and we played around until 2:30am before we were put in a room and told to rest so 'his' GI could address in the morning.
Meanwhile, we got stuck in a 'normal' medical ward so they have no CF experience at all and keep asking me why he is in isolation...ANYONE HEARD OF SWINE FLU-DUH!!!
Just found out the GI that was supposed to be called last night is doing rounds and will be by this morning to discuss the x-ray and decide if we need surgery to go take a look in his gut.
I'll post more later,
----------------------------------
Update Tues 1PM
Ok, consensus is likely partial obstruction, but not bad enough to do anything about at the moment.
He has tolerated solid food for breakfast w/o puking and we just had a very small/stinky stool but it was his first in 23hrs so that is a good thing.
Looks like if nothing changes, we will be discharged and just be watching to see if it gets worse.
Not 100% on-board with the wait-n-see with his already crappy gut but I have a call into 'his' GI to confirm if she agrees with the attending before he discharges us.
----------------------------------------------------
Tues 6PM:
Well, I found someone else that didn't agree with the current plan/process: M's CF dr (dir. of CF Center @ Emory).
He apparently was not informed they had admitted one of 'his' kids w/o consulting him and he was HOT!
He immediately began challenging the pace and the limited amount of anything that had been done. We are now getting ready for go-lytely and more radiology studies at his direction.
Maybe we can now get to the bottom of things (pun intended).
-------------------------------------------------
Wed 10AM
Well, we have been putting in golytely since 7PM, finally got our first small-nasty stool at 9:30 this morning after a night of cramping, thrashing and crying <img src="i/expressions/face-icon-small-sad.gif" border="0">
They have increased the rate on the g-tube pump to try and move things along. If we can get him cleaned out then the plan is to repeat the abd. xrays and try to determine what is going on.
THANK YOU for your thoughts & prayers.