Surgery gone wroooong!

AnD · Feb 14, 2008

I'm so sorry! <img src="i/expressions/brokenheart.gif" border="0">

The only advice I can give you that isn't prayer related (and I will pray for you anyways <img src="i/expressions/face-icon-small-wink.gif" border="0"> ), is that when I have had my 2 abdominal surgeries as an adult (both incisions were about a foot long each, top to bottom- hate that pain!!!!) is to get a pillow, either a standard or travel pillow and hold it tight across your incision when you cough- it helps more than I thought it would.

Can you do home IVs? Have they done a sputum culture to make sure they are giving you the right antibiotics?

I had something very similar (for about 15 or more years), and turned out that I had a few things- I would get your doctor to check you for them, if he hasn't already (I had my gallbladder removed before all of this, fyi)-

~Undiagnosed pancreatisis

~H. Pyloria bacteria- causes ulcers, but can cause other problems and pain- I had no ulcers, but the chronic pain ceased after I was treated for it.

~A gallstone/bilestone in my common bile duct

~A year later, I had an infection in my common bile duct, due to sludge and "backwashing" from my small intestine into my bile duct/liver. Backwashing occured because of the the way they did my previous bile stone removal (scope)- they cut the spincter between the duct and the small intestine.

You may also be having a problem with adhesions- I've had 3 adhesion cleanouts- sucks, but...and, I have one that, when I get a stomach bug, closes shut, right below my stomach.

I'm dealing with this again this week, so you have my empathy on the tummy issues...

I hope you get some answers soon, and again, I am so sorry.

AnD · Feb 14, 2008

I'm so sorry! <img src="i/expressions/brokenheart.gif" border="0">

The only advice I can give you that isn't prayer related (and I will pray for you anyways <img src="i/expressions/face-icon-small-wink.gif" border="0"> ), is that when I have had my 2 abdominal surgeries as an adult (both incisions were about a foot long each, top to bottom- hate that pain!!!!) is to get a pillow, either a standard or travel pillow and hold it tight across your incision when you cough- it helps more than I thought it would.

Can you do home IVs? Have they done a sputum culture to make sure they are giving you the right antibiotics?

I had something very similar (for about 15 or more years), and turned out that I had a few things- I would get your doctor to check you for them, if he hasn't already (I had my gallbladder removed before all of this, fyi)-

~Undiagnosed pancreatisis

~H. Pyloria bacteria- causes ulcers, but can cause other problems and pain- I had no ulcers, but the chronic pain ceased after I was treated for it.

~A gallstone/bilestone in my common bile duct

~A year later, I had an infection in my common bile duct, due to sludge and "backwashing" from my small intestine into my bile duct/liver. Backwashing occured because of the the way they did my previous bile stone removal (scope)- they cut the spincter between the duct and the small intestine.

You may also be having a problem with adhesions- I've had 3 adhesion cleanouts- sucks, but...and, I have one that, when I get a stomach bug, closes shut, right below my stomach.

I'm dealing with this again this week, so you have my empathy on the tummy issues...

I hope you get some answers soon, and again, I am so sorry.

AnD · Feb 14, 2008

I'm so sorry! <img src="i/expressions/brokenheart.gif" border="0">

The only advice I can give you that isn't prayer related (and I will pray for you anyways <img src="i/expressions/face-icon-small-wink.gif" border="0"> ), is that when I have had my 2 abdominal surgeries as an adult (both incisions were about a foot long each, top to bottom- hate that pain!!!!) is to get a pillow, either a standard or travel pillow and hold it tight across your incision when you cough- it helps more than I thought it would.

Can you do home IVs? Have they done a sputum culture to make sure they are giving you the right antibiotics?

I had something very similar (for about 15 or more years), and turned out that I had a few things- I would get your doctor to check you for them, if he hasn't already (I had my gallbladder removed before all of this, fyi)-

~Undiagnosed pancreatisis

~H. Pyloria bacteria- causes ulcers, but can cause other problems and pain- I had no ulcers, but the chronic pain ceased after I was treated for it.

~A gallstone/bilestone in my common bile duct

~A year later, I had an infection in my common bile duct, due to sludge and "backwashing" from my small intestine into my bile duct/liver. Backwashing occured because of the the way they did my previous bile stone removal (scope)- they cut the spincter between the duct and the small intestine.

You may also be having a problem with adhesions- I've had 3 adhesion cleanouts- sucks, but...and, I have one that, when I get a stomach bug, closes shut, right below my stomach.

I'm dealing with this again this week, so you have my empathy on the tummy issues...

I hope you get some answers soon, and again, I am so sorry.

AnD · Feb 14, 2008

I'm so sorry! <img src="i/expressions/brokenheart.gif" border="0">

The only advice I can give you that isn't prayer related (and I will pray for you anyways <img src="i/expressions/face-icon-small-wink.gif" border="0"> ), is that when I have had my 2 abdominal surgeries as an adult (both incisions were about a foot long each, top to bottom- hate that pain!!!!) is to get a pillow, either a standard or travel pillow and hold it tight across your incision when you cough- it helps more than I thought it would.

Can you do home IVs? Have they done a sputum culture to make sure they are giving you the right antibiotics?

I had something very similar (for about 15 or more years), and turned out that I had a few things- I would get your doctor to check you for them, if he hasn't already (I had my gallbladder removed before all of this, fyi)-

~Undiagnosed pancreatisis

~H. Pyloria bacteria- causes ulcers, but can cause other problems and pain- I had no ulcers, but the chronic pain ceased after I was treated for it.

~A gallstone/bilestone in my common bile duct

~A year later, I had an infection in my common bile duct, due to sludge and "backwashing" from my small intestine into my bile duct/liver. Backwashing occured because of the the way they did my previous bile stone removal (scope)- they cut the spincter between the duct and the small intestine.

You may also be having a problem with adhesions- I've had 3 adhesion cleanouts- sucks, but...and, I have one that, when I get a stomach bug, closes shut, right below my stomach.

I'm dealing with this again this week, so you have my empathy on the tummy issues...

I hope you get some answers soon, and again, I am so sorry.

AnD · Feb 14, 2008

I'm so sorry! <img src="i/expressions/brokenheart.gif" border="0">

The only advice I can give you that isn't prayer related (and I will pray for you anyways <img src="i/expressions/face-icon-small-wink.gif" border="0"> ), is that when I have had my 2 abdominal surgeries as an adult (both incisions were about a foot long each, top to bottom- hate that pain!!!!) is to get a pillow, either a standard or travel pillow and hold it tight across your incision when you cough- it helps more than I thought it would.

Can you do home IVs? Have they done a sputum culture to make sure they are giving you the right antibiotics?

I had something very similar (for about 15 or more years), and turned out that I had a few things- I would get your doctor to check you for them, if he hasn't already (I had my gallbladder removed before all of this, fyi)-

~Undiagnosed pancreatisis

~H. Pyloria bacteria- causes ulcers, but can cause other problems and pain- I had no ulcers, but the chronic pain ceased after I was treated for it.

~A gallstone/bilestone in my common bile duct

~A year later, I had an infection in my common bile duct, due to sludge and "backwashing" from my small intestine into my bile duct/liver. Backwashing occured because of the the way they did my previous bile stone removal (scope)- they cut the spincter between the duct and the small intestine.

You may also be having a problem with adhesions- I've had 3 adhesion cleanouts- sucks, but...and, I have one that, when I get a stomach bug, closes shut, right below my stomach.

I'm dealing with this again this week, so you have my empathy on the tummy issues...

I hope you get some answers soon, and again, I am so sorry.

CowTown · Feb 14, 2008

Wow, I'm so sorry for all that you've gone through and are going through! You're in a tough place. I'm sorry.

I assume you're seeing a CF doctor? You've probably already done this, but have you looked online for similar symptoms and possibly other specialists in the country that you could go see? It would be hard to imagine that you're the only undiagnosed person with these issues. Maybe there are other doctors with the answers and will run every test under the sun to figure this out for you. I hope you find some answers to your abdomen symptoms.

CowTown · Feb 14, 2008

Wow, I'm so sorry for all that you've gone through and are going through! You're in a tough place. I'm sorry.

I assume you're seeing a CF doctor? You've probably already done this, but have you looked online for similar symptoms and possibly other specialists in the country that you could go see? It would be hard to imagine that you're the only undiagnosed person with these issues. Maybe there are other doctors with the answers and will run every test under the sun to figure this out for you. I hope you find some answers to your abdomen symptoms.

CowTown · Feb 14, 2008

Wow, I'm so sorry for all that you've gone through and are going through! You're in a tough place. I'm sorry.

I assume you're seeing a CF doctor? You've probably already done this, but have you looked online for similar symptoms and possibly other specialists in the country that you could go see? It would be hard to imagine that you're the only undiagnosed person with these issues. Maybe there are other doctors with the answers and will run every test under the sun to figure this out for you. I hope you find some answers to your abdomen symptoms.

CowTown · Feb 14, 2008

Wow, I'm so sorry for all that you've gone through and are going through! You're in a tough place. I'm sorry.

I assume you're seeing a CF doctor? You've probably already done this, but have you looked online for similar symptoms and possibly other specialists in the country that you could go see? It would be hard to imagine that you're the only undiagnosed person with these issues. Maybe there are other doctors with the answers and will run every test under the sun to figure this out for you. I hope you find some answers to your abdomen symptoms.

CowTown · Feb 14, 2008

Wow, I'm so sorry for all that you've gone through and are going through! You're in a tough place. I'm sorry.

I assume you're seeing a CF doctor? You've probably already done this, but have you looked online for similar symptoms and possibly other specialists in the country that you could go see? It would be hard to imagine that you're the only undiagnosed person with these issues. Maybe there are other doctors with the answers and will run every test under the sun to figure this out for you. I hope you find some answers to your abdomen symptoms.

jamie6girl · Feb 14, 2008