sweat teat results

CJsmom

New member
CJ's sweat test results came back borderline so I spoke to the doc and they ok'd the genetic testing. We have to wait for insurance approval but that should only take a few days.
They did a full exam on him at the CF center today, throat cultures PFT test and the works. They had him do the PFT 3 times, his lowest coming in at 69%, highest at 87%.
I'm a bit disappointed. I was really hoping we would come home today with answers but it looks like we will have to wait again now, for insurance approval, then the blood draw and then the results to come back.
Thanks everyone for their good thoughts.
 

CJsmom

New member
CJ's sweat test results came back borderline so I spoke to the doc and they ok'd the genetic testing. We have to wait for insurance approval but that should only take a few days.
They did a full exam on him at the CF center today, throat cultures PFT test and the works. They had him do the PFT 3 times, his lowest coming in at 69%, highest at 87%.
I'm a bit disappointed. I was really hoping we would come home today with answers but it looks like we will have to wait again now, for insurance approval, then the blood draw and then the results to come back.
Thanks everyone for their good thoughts.
 

CJsmom

New member
CJ's sweat test results came back borderline so I spoke to the doc and they ok'd the genetic testing. We have to wait for insurance approval but that should only take a few days.
They did a full exam on him at the CF center today, throat cultures PFT test and the works. They had him do the PFT 3 times, his lowest coming in at 69%, highest at 87%.
I'm a bit disappointed. I was really hoping we would come home today with answers but it looks like we will have to wait again now, for insurance approval, then the blood draw and then the results to come back.
Thanks everyone for their good thoughts.
 

CJsmom

New member
CJ's sweat test results came back borderline so I spoke to the doc and they ok'd the genetic testing. We have to wait for insurance approval but that should only take a few days.
They did a full exam on him at the CF center today, throat cultures PFT test and the works. They had him do the PFT 3 times, his lowest coming in at 69%, highest at 87%.
I'm a bit disappointed. I was really hoping we would come home today with answers but it looks like we will have to wait again now, for insurance approval, then the blood draw and then the results to come back.
Thanks everyone for their good thoughts.
 

CJsmom

New member
CJ's sweat test results came back borderline so I spoke to the doc and they ok'd the genetic testing. We have to wait for insurance approval but that should only take a few days.
<br />They did a full exam on him at the CF center today, throat cultures PFT test and the works. They had him do the PFT 3 times, his lowest coming in at 69%, highest at 87%.
<br />I'm a bit disappointed. I was really hoping we would come home today with answers but it looks like we will have to wait again now, for insurance approval, then the blood draw and then the results to come back.
<br />Thanks everyone for their good thoughts.
 

JORDYSMOM

New member
I'm sorry you are still in limbo. I hope this next step goes more smoothly for you. Thanks for keeping us posted.

Stacey
 

JORDYSMOM

New member
I'm sorry you are still in limbo. I hope this next step goes more smoothly for you. Thanks for keeping us posted.

Stacey
 

JORDYSMOM

New member
I'm sorry you are still in limbo. I hope this next step goes more smoothly for you. Thanks for keeping us posted.

Stacey
 

JORDYSMOM

New member
I'm sorry you are still in limbo. I hope this next step goes more smoothly for you. Thanks for keeping us posted.

Stacey
 

JORDYSMOM

New member
I'm sorry you are still in limbo. I hope this next step goes more smoothly for you. Thanks for keeping us posted.
<br />
<br />Stacey
 

pjspiegle

New member
Ditto, hugs to you, I am very sorry. I too was hoping you would have an answer one way or another.

I suppose that which does not kill us makes us stronger. I can tell you that in our world of CF there is a lot of hurry up and wait for answers that take an aweful long time sometimes. It took us over 2 years to figure out what Nathan was growing because the treatments we were doing were just strong enough to cover things up but not irradicate them. I truly hope that your waiting will come to an end soon and that you will get a definitvie answer real soon.

Thanks for the update,
Patty
 

pjspiegle

New member
Ditto, hugs to you, I am very sorry. I too was hoping you would have an answer one way or another.

I suppose that which does not kill us makes us stronger. I can tell you that in our world of CF there is a lot of hurry up and wait for answers that take an aweful long time sometimes. It took us over 2 years to figure out what Nathan was growing because the treatments we were doing were just strong enough to cover things up but not irradicate them. I truly hope that your waiting will come to an end soon and that you will get a definitvie answer real soon.

Thanks for the update,
Patty
 

pjspiegle

New member
Ditto, hugs to you, I am very sorry. I too was hoping you would have an answer one way or another.

I suppose that which does not kill us makes us stronger. I can tell you that in our world of CF there is a lot of hurry up and wait for answers that take an aweful long time sometimes. It took us over 2 years to figure out what Nathan was growing because the treatments we were doing were just strong enough to cover things up but not irradicate them. I truly hope that your waiting will come to an end soon and that you will get a definitvie answer real soon.

Thanks for the update,
Patty
 

pjspiegle

New member
Ditto, hugs to you, I am very sorry. I too was hoping you would have an answer one way or another.

I suppose that which does not kill us makes us stronger. I can tell you that in our world of CF there is a lot of hurry up and wait for answers that take an aweful long time sometimes. It took us over 2 years to figure out what Nathan was growing because the treatments we were doing were just strong enough to cover things up but not irradicate them. I truly hope that your waiting will come to an end soon and that you will get a definitvie answer real soon.

Thanks for the update,
Patty
 

pjspiegle

New member
Ditto, hugs to you, I am very sorry. I too was hoping you would have an answer one way or another.
<br />
<br />I suppose that which does not kill us makes us stronger. I can tell you that in our world of CF there is a lot of hurry up and wait for answers that take an aweful long time sometimes. It took us over 2 years to figure out what Nathan was growing because the treatments we were doing were just strong enough to cover things up but not irradicate them. I truly hope that your waiting will come to an end soon and that you will get a definitvie answer real soon.
<br />
<br />Thanks for the update,
<br />Patty
 
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