Sweat test numbers

2

2005CFmom

Super Moderator
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>bittyhorse23</b></i>

It seems like a lot of you have two numbers. Were the tests done twice or am I missing something in my chart???



<img src="i/expressions/heart.gif" border="0"></end quote></div>

Sarah's was only done once...I believe it was 121. I think some people have them done on both arms at the same time or repeated in order to confirm diagnosis. Sarah had the sweat test, then genetic test to confirm diagnosis.
 
2

2005CFmom

Super Moderator
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>bittyhorse23</b></i>

It seems like a lot of you have two numbers. Were the tests done twice or am I missing something in my chart???



<img src="i/expressions/heart.gif" border="0"></end quote></div>

Sarah's was only done once...I believe it was 121. I think some people have them done on both arms at the same time or repeated in order to confirm diagnosis. Sarah had the sweat test, then genetic test to confirm diagnosis.
 
2

2005CFmom

Super Moderator
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>bittyhorse23</b></i>

It seems like a lot of you have two numbers. Were the tests done twice or am I missing something in my chart???



<img src="i/expressions/heart.gif" border="0"></end quote></div>

Sarah's was only done once...I believe it was 121. I think some people have them done on both arms at the same time or repeated in order to confirm diagnosis. Sarah had the sweat test, then genetic test to confirm diagnosis.
 
2

2005CFmom

Super Moderator
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>bittyhorse23</b></i>

It seems like a lot of you have two numbers. Were the tests done twice or am I missing something in my chart???



<img src="i/expressions/heart.gif" border="0"></end quote>

Sarah's was only done once...I believe it was 121. I think some people have them done on both arms at the same time or repeated in order to confirm diagnosis. Sarah had the sweat test, then genetic test to confirm diagnosis.
 
2

2005CFmom

Super Moderator
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>bittyhorse23</b></i>
<br />
<br />It seems like a lot of you have two numbers. Were the tests done twice or am I missing something in my chart???
<br />
<br />
<br />
<br /><img src="i/expressions/heart.gif" border="0"></end quote>
<br />
<br />Sarah's was only done once...I believe it was 121. I think some people have them done on both arms at the same time or repeated in order to confirm diagnosis. Sarah had the sweat test, then genetic test to confirm diagnosis.
<br />
<br />
 
F

Fancymushroom

New member
Mine was 103, but done in mmol/l not mEg... don't know if that's any different but yeah...103. And I was only diagnosed this year. It's weird because sometimes my sweat seems to taste really salty and make granules on my skin, and other times not. Anyone else?
 
F

Fancymushroom

New member
Mine was 103, but done in mmol/l not mEg... don't know if that's any different but yeah...103. And I was only diagnosed this year. It's weird because sometimes my sweat seems to taste really salty and make granules on my skin, and other times not. Anyone else?
 
F

Fancymushroom

New member
Mine was 103, but done in mmol/l not mEg... don't know if that's any different but yeah...103. And I was only diagnosed this year. It's weird because sometimes my sweat seems to taste really salty and make granules on my skin, and other times not. Anyone else?
 
F

Fancymushroom

New member
Mine was 103, but done in mmol/l not mEg... don't know if that's any different but yeah...103. And I was only diagnosed this year. It's weird because sometimes my sweat seems to taste really salty and make granules on my skin, and other times not. Anyone else?
 
F

Fancymushroom

New member
Mine was 103, but done in mmol/l not mEg... don't know if that's any different but yeah...103. And I was only diagnosed this year. It's weird because sometimes my sweat seems to taste really salty and make granules on my skin, and other times not. Anyone else?
 
K

Kristen

New member
How do all you adults know this? The last time I was tested was like 25 years ago...now I'm curious what my numbers are, but I've switched doctors so many times, I highly doubt my current doc has them.
 
K

Kristen

New member
How do all you adults know this? The last time I was tested was like 25 years ago...now I'm curious what my numbers are, but I've switched doctors so many times, I highly doubt my current doc has them.
 
K

Kristen

New member
How do all you adults know this? The last time I was tested was like 25 years ago...now I'm curious what my numbers are, but I've switched doctors so many times, I highly doubt my current doc has them.
 
K

Kristen

New member
How do all you adults know this? The last time I was tested was like 25 years ago...now I'm curious what my numbers are, but I've switched doctors so many times, I highly doubt my current doc has them.
 
K

Kristen

New member
How do all you adults know this? The last time I was tested was like 25 years ago...now I'm curious what my numbers are, but I've switched doctors so many times, I highly doubt my current doc has them.
 
J

Juliet

New member
In 1983 my sweat test was 54 and was considered 'negative' for CF. In 2006 my tests (both arms) was 40 and 47 and was also considered 'negative' by Children's hospital in DC. Genetic testing in 2008 ultimately proved otherwise and led to my CF dx at 43 years of age. I'm certainly no competition for the highest sweat chloride levels!

Kristen, I have copies of all my medical records since I was about 5 years old. Back right after college I went on an expedition to gather them all up so I wrote to all the docs, including the infirmary at college for records. It was a time in my life when I was trying to take charge of my own health, being finally out from under the wings of my parents. Plus I had a doctor at the time who suggested that I do that. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I don't have the ones from when I was 0-4 because that doc had passed on and I couldn't locate those records. My file is about 8" thick and I have my Xrays from back in the 1980s too. Now I always ask for copies of tests and if for some reason I switch doctors or something I'll request copies of my files. One trick - if a doc requests them they'll be sent for free. If the patient requests them they charge for it - a LOT! So my general doc has let me sign off permission to have them sent to him and then he simply gives me a copy for my records too. Once you have them you can let OCD behavior take over and do things like plot all your PFT results over the past 20 or 30 years, bring them into your CF docs and watch their jaws drop. <img src="i/expressions/face-icon-small-wink.gif" border="0"> ~Juliet

~Juliet
 
J

Juliet

New member
In 1983 my sweat test was 54 and was considered 'negative' for CF. In 2006 my tests (both arms) was 40 and 47 and was also considered 'negative' by Children's hospital in DC. Genetic testing in 2008 ultimately proved otherwise and led to my CF dx at 43 years of age. I'm certainly no competition for the highest sweat chloride levels!

Kristen, I have copies of all my medical records since I was about 5 years old. Back right after college I went on an expedition to gather them all up so I wrote to all the docs, including the infirmary at college for records. It was a time in my life when I was trying to take charge of my own health, being finally out from under the wings of my parents. Plus I had a doctor at the time who suggested that I do that. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I don't have the ones from when I was 0-4 because that doc had passed on and I couldn't locate those records. My file is about 8" thick and I have my Xrays from back in the 1980s too. Now I always ask for copies of tests and if for some reason I switch doctors or something I'll request copies of my files. One trick - if a doc requests them they'll be sent for free. If the patient requests them they charge for it - a LOT! So my general doc has let me sign off permission to have them sent to him and then he simply gives me a copy for my records too. Once you have them you can let OCD behavior take over and do things like plot all your PFT results over the past 20 or 30 years, bring them into your CF docs and watch their jaws drop. <img src="i/expressions/face-icon-small-wink.gif" border="0"> ~Juliet

~Juliet
 
J

Juliet

New member
In 1983 my sweat test was 54 and was considered 'negative' for CF. In 2006 my tests (both arms) was 40 and 47 and was also considered 'negative' by Children's hospital in DC. Genetic testing in 2008 ultimately proved otherwise and led to my CF dx at 43 years of age. I'm certainly no competition for the highest sweat chloride levels!

Kristen, I have copies of all my medical records since I was about 5 years old. Back right after college I went on an expedition to gather them all up so I wrote to all the docs, including the infirmary at college for records. It was a time in my life when I was trying to take charge of my own health, being finally out from under the wings of my parents. Plus I had a doctor at the time who suggested that I do that. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I don't have the ones from when I was 0-4 because that doc had passed on and I couldn't locate those records. My file is about 8" thick and I have my Xrays from back in the 1980s too. Now I always ask for copies of tests and if for some reason I switch doctors or something I'll request copies of my files. One trick - if a doc requests them they'll be sent for free. If the patient requests them they charge for it - a LOT! So my general doc has let me sign off permission to have them sent to him and then he simply gives me a copy for my records too. Once you have them you can let OCD behavior take over and do things like plot all your PFT results over the past 20 or 30 years, bring them into your CF docs and watch their jaws drop. <img src="i/expressions/face-icon-small-wink.gif" border="0"> ~Juliet

~Juliet
 
J

Juliet

New member
In 1983 my sweat test was 54 and was considered 'negative' for CF. In 2006 my tests (both arms) was 40 and 47 and was also considered 'negative' by Children's hospital in DC. Genetic testing in 2008 ultimately proved otherwise and led to my CF dx at 43 years of age. I'm certainly no competition for the highest sweat chloride levels!

Kristen, I have copies of all my medical records since I was about 5 years old. Back right after college I went on an expedition to gather them all up so I wrote to all the docs, including the infirmary at college for records. It was a time in my life when I was trying to take charge of my own health, being finally out from under the wings of my parents. Plus I had a doctor at the time who suggested that I do that. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I don't have the ones from when I was 0-4 because that doc had passed on and I couldn't locate those records. My file is about 8" thick and I have my Xrays from back in the 1980s too. Now I always ask for copies of tests and if for some reason I switch doctors or something I'll request copies of my files. One trick - if a doc requests them they'll be sent for free. If the patient requests them they charge for it - a LOT! So my general doc has let me sign off permission to have them sent to him and then he simply gives me a copy for my records too. Once you have them you can let OCD behavior take over and do things like plot all your PFT results over the past 20 or 30 years, bring them into your CF docs and watch their jaws drop. <img src="i/expressions/face-icon-small-wink.gif" border="0"> ~Juliet

~Juliet
 
J

Juliet

New member
In 1983 my sweat test was 54 and was considered 'negative' for CF. In 2006 my tests (both arms) was 40 and 47 and was also considered 'negative' by Children's hospital in DC. Genetic testing in 2008 ultimately proved otherwise and led to my CF dx at 43 years of age. I'm certainly no competition for the highest sweat chloride levels!
<br />
<br />Kristen, I have copies of all my medical records since I was about 5 years old. Back right after college I went on an expedition to gather them all up so I wrote to all the docs, including the infirmary at college for records. It was a time in my life when I was trying to take charge of my own health, being finally out from under the wings of my parents. Plus I had a doctor at the time who suggested that I do that. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I don't have the ones from when I was 0-4 because that doc had passed on and I couldn't locate those records. My file is about 8" thick and I have my Xrays from back in the 1980s too. Now I always ask for copies of tests and if for some reason I switch doctors or something I'll request copies of my files. One trick - if a doc requests them they'll be sent for free. If the patient requests them they charge for it - a LOT! So my general doc has let me sign off permission to have them sent to him and then he simply gives me a copy for my records too. Once you have them you can let OCD behavior take over and do things like plot all your PFT results over the past 20 or 30 years, bring them into your CF docs and watch their jaws drop. <img src="i/expressions/face-icon-small-wink.gif" border="0"> ~Juliet
<br />
<br />~Juliet
 
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