Munkeesmama
New member
I posted this in newly diagnosed and am cross posting here since it gets more traffic...
Not sure if anybody remembers me but I was here awhile back asking questions about my daughter. She has alot of g.i. issues, failure to thrive, has a g-tube (was a preemie so could be preemie related) she's 2 1/2. Anyways, her sweat test numbers were 19 and 22. I know these are considered normal, but they seem "high" to me from reading here. She also had genetic testing but they tested 100 genes (or right under 100) which i know is barely touching the surface. That test came back negative. With these sweat test numbers and the negative on the intial genetic testing would you feel comfortable calling CF ruled out? Or would you push for more testing. Also, anybody here have numbers in the high teens/low 20's and have CF or even have cf after the intial blood tests?
Not sure if anybody remembers me but I was here awhile back asking questions about my daughter. She has alot of g.i. issues, failure to thrive, has a g-tube (was a preemie so could be preemie related) she's 2 1/2. Anyways, her sweat test numbers were 19 and 22. I know these are considered normal, but they seem "high" to me from reading here. She also had genetic testing but they tested 100 genes (or right under 100) which i know is barely touching the surface. That test came back negative. With these sweat test numbers and the negative on the intial genetic testing would you feel comfortable calling CF ruled out? Or would you push for more testing. Also, anybody here have numbers in the high teens/low 20's and have CF or even have cf after the intial blood tests?