Sweat test tomorrow and pancreatic insuffiency questions

[oneloopy1]

I'm getting nervous for our first official sweat test tomorrow. I already feel I've learned so much from reading a lot here.

I do have questions about pancreatic insuffiency. How is it determined? My DD has very frequent, bulky, foul smelling stools that are a tad shiny. They do not float. She did have the fecal fat and fecal trypsin analysis done around 8 months ago and everything was within normal range at the time. She is 17 months and failure to thrive for a long time which is how we landed in the CF testing. I should add that she eats like a horse too. I know that a lot of people are diagnosed with symptoms only in the digestive area. I guess I'm looking for the pancreas info and what to look for so I can arm myself with a ton of knowledge if I need it. Thanks,

Jen

 

[oneloopy1]

I'm getting nervous for our first official sweat test tomorrow. I already feel I've learned so much from reading a lot here.

I do have questions about pancreatic insuffiency. How is it determined? My DD has very frequent, bulky, foul smelling stools that are a tad shiny. They do not float. She did have the fecal fat and fecal trypsin analysis done around 8 months ago and everything was within normal range at the time. She is 17 months and failure to thrive for a long time which is how we landed in the CF testing. I should add that she eats like a horse too. I know that a lot of people are diagnosed with symptoms only in the digestive area. I guess I'm looking for the pancreas info and what to look for so I can arm myself with a ton of knowledge if I need it. Thanks,

Jen

 

[oneloopy1]

I'm getting nervous for our first official sweat test tomorrow. I already feel I've learned so much from reading a lot here.

I do have questions about pancreatic insuffiency. How is it determined? My DD has very frequent, bulky, foul smelling stools that are a tad shiny. They do not float. She did have the fecal fat and fecal trypsin analysis done around 8 months ago and everything was within normal range at the time. She is 17 months and failure to thrive for a long time which is how we landed in the CF testing. I should add that she eats like a horse too. I know that a lot of people are diagnosed with symptoms only in the digestive area. I guess I'm looking for the pancreas info and what to look for so I can arm myself with a ton of knowledge if I need it. Thanks,

Jen

 

[oneloopy1]

I'm getting nervous for our first official sweat test tomorrow. I already feel I've learned so much from reading a lot here.

I do have questions about pancreatic insuffiency. How is it determined? My DD has very frequent, bulky, foul smelling stools that are a tad shiny. They do not float. She did have the fecal fat and fecal trypsin analysis done around 8 months ago and everything was within normal range at the time. She is 17 months and failure to thrive for a long time which is how we landed in the CF testing. I should add that she eats like a horse too. I know that a lot of people are diagnosed with symptoms only in the digestive area. I guess I'm looking for the pancreas info and what to look for so I can arm myself with a ton of knowledge if I need it. Thanks,

Jen

 

[oneloopy1]

I'm getting nervous for our first official sweat test tomorrow. I already feel I've learned so much from reading a lot here.

I do have questions about pancreatic insuffiency. How is it determined? My DD has very frequent, bulky, foul smelling stools that are a tad shiny. They do not float. She did have the fecal fat and fecal trypsin analysis done around 8 months ago and everything was within normal range at the time. She is 17 months and failure to thrive for a long time which is how we landed in the CF testing. I should add that she eats like a horse too. I know that a lot of people are diagnosed with symptoms only in the digestive area. I guess I'm looking for the pancreas info and what to look for so I can arm myself with a ton of knowledge if I need it. Thanks,

Jen

 

[purplemartin]

I just finished reading the chapter in a CF book last night about the gastrointestinal system and the pancreas. Here is what I gathered.....

Pancreatic Function testing can be done many different ways, some more invasive than others. The most common ways for testing pancreatic function is by random stool samples, which are tested for the presence of gat globules or trypsin, chymotrypsin, or pancreatic elastase-1 concentrations. Still though, a 72 hour fecal fat test seems to be the most commonly used test for pancreatic function in patients with CF.

Or like my son's CF clinic, they could always just go straight for the enzymes. Briceton never had any pancriatic fuction testing, he too was FTT at birth but gained weight with enzyme therapy. Also, his mutation is DDF508, which 98% of CFers with this mutation are pancriatic inssuficiant, so there was really no reason to test his pancriatic function.

Well I hope this helps a bit, you might have to Google some of the terminology as I have to read with a medical terminology book close by for reference. I do hope everything goes well for your little ones upcoming sweat test and please keep us updated on the results.

Best wishes,

 

[purplemartin]

I just finished reading the chapter in a CF book last night about the gastrointestinal system and the pancreas. Here is what I gathered.....

Pancreatic Function testing can be done many different ways, some more invasive than others. The most common ways for testing pancreatic function is by random stool samples, which are tested for the presence of gat globules or trypsin, chymotrypsin, or pancreatic elastase-1 concentrations. Still though, a 72 hour fecal fat test seems to be the most commonly used test for pancreatic function in patients with CF.

Or like my son's CF clinic, they could always just go straight for the enzymes. Briceton never had any pancriatic fuction testing, he too was FTT at birth but gained weight with enzyme therapy. Also, his mutation is DDF508, which 98% of CFers with this mutation are pancriatic inssuficiant, so there was really no reason to test his pancriatic function.

Well I hope this helps a bit, you might have to Google some of the terminology as I have to read with a medical terminology book close by for reference. I do hope everything goes well for your little ones upcoming sweat test and please keep us updated on the results.

Best wishes,

 

[purplemartin]

I just finished reading the chapter in a CF book last night about the gastrointestinal system and the pancreas. Here is what I gathered.....

Pancreatic Function testing can be done many different ways, some more invasive than others. The most common ways for testing pancreatic function is by random stool samples, which are tested for the presence of gat globules or trypsin, chymotrypsin, or pancreatic elastase-1 concentrations. Still though, a 72 hour fecal fat test seems to be the most commonly used test for pancreatic function in patients with CF.

Or like my son's CF clinic, they could always just go straight for the enzymes. Briceton never had any pancriatic fuction testing, he too was FTT at birth but gained weight with enzyme therapy. Also, his mutation is DDF508, which 98% of CFers with this mutation are pancriatic inssuficiant, so there was really no reason to test his pancriatic function.

Well I hope this helps a bit, you might have to Google some of the terminology as I have to read with a medical terminology book close by for reference. I do hope everything goes well for your little ones upcoming sweat test and please keep us updated on the results.

Best wishes,

 

[purplemartin]

I just finished reading the chapter in a CF book last night about the gastrointestinal system and the pancreas. Here is what I gathered.....

Pancreatic Function testing can be done many different ways, some more invasive than others. The most common ways for testing pancreatic function is by random stool samples, which are tested for the presence of gat globules or trypsin, chymotrypsin, or pancreatic elastase-1 concentrations. Still though, a 72 hour fecal fat test seems to be the most commonly used test for pancreatic function in patients with CF.

Or like my son's CF clinic, they could always just go straight for the enzymes. Briceton never had any pancriatic fuction testing, he too was FTT at birth but gained weight with enzyme therapy. Also, his mutation is DDF508, which 98% of CFers with this mutation are pancriatic inssuficiant, so there was really no reason to test his pancriatic function.

Well I hope this helps a bit, you might have to Google some of the terminology as I have to read with a medical terminology book close by for reference. I do hope everything goes well for your little ones upcoming sweat test and please keep us updated on the results.

Best wishes,

 

[purplemartin]

I just finished reading the chapter in a CF book last night about the gastrointestinal system and the pancreas. Here is what I gathered.....

Pancreatic Function testing can be done many different ways, some more invasive than others. The most common ways for testing pancreatic function is by random stool samples, which are tested for the presence of gat globules or trypsin, chymotrypsin, or pancreatic elastase-1 concentrations. Still though, a 72 hour fecal fat test seems to be the most commonly used test for pancreatic function in patients with CF.

Or like my son's CF clinic, they could always just go straight for the enzymes. Briceton never had any pancriatic fuction testing, he too was FTT at birth but gained weight with enzyme therapy. Also, his mutation is DDF508, which 98% of CFers with this mutation are pancriatic inssuficiant, so there was really no reason to test his pancriatic function.

Well I hope this helps a bit, you might have to Google some of the terminology as I have to read with a medical terminology book close by for reference. I do hope everything goes well for your little ones upcoming sweat test and please keep us updated on the results.

Best wishes,

 

[dyza]

Ther is a need to test each can be different levels. My son has DF508, which generally means insufficency, but his other is RH117, which is sufficent and seems to overide the DF508, as he is pancreatic sufficent.
His heel prick test when he was born showed up a proteine that shows insufficiency of the pancreas, thats when they then test for mutations, but a blood test now wont work it has to be bt stool samples ( hope I'm right on the blood).


craig

 

[dyza]

Ther is a need to test each can be different levels. My son has DF508, which generally means insufficency, but his other is RH117, which is sufficent and seems to overide the DF508, as he is pancreatic sufficent.
His heel prick test when he was born showed up a proteine that shows insufficiency of the pancreas, thats when they then test for mutations, but a blood test now wont work it has to be bt stool samples ( hope I'm right on the blood).


craig

 

[dyza]

Ther is a need to test each can be different levels. My son has DF508, which generally means insufficency, but his other is RH117, which is sufficent and seems to overide the DF508, as he is pancreatic sufficent.
His heel prick test when he was born showed up a proteine that shows insufficiency of the pancreas, thats when they then test for mutations, but a blood test now wont work it has to be bt stool samples ( hope I'm right on the blood).


craig

 

[dyza]

Ther is a need to test each can be different levels. My son has DF508, which generally means insufficency, but his other is RH117, which is sufficent and seems to overide the DF508, as he is pancreatic sufficent.
His heel prick test when he was born showed up a proteine that shows insufficiency of the pancreas, thats when they then test for mutations, but a blood test now wont work it has to be bt stool samples ( hope I'm right on the blood).


craig

 

[dyza]

Ther is a need to test each can be different levels. My son has DF508, which generally means insufficency, but his other is RH117, which is sufficent and seems to overide the DF508, as he is pancreatic sufficent.
His heel prick test when he was born showed up a proteine that shows insufficiency of the pancreas, thats when they then test for mutations, but a blood test now wont work it has to be bt stool samples ( hope I'm right on the blood).


craig

 

[MargaritaChic]

The CF Clinic had us bring in one of my daughter's dirty diapers and they tested the stool from it.

 

[MargaritaChic]

The CF Clinic had us bring in one of my daughter's dirty diapers and they tested the stool from it.

 

[MargaritaChic]

The CF Clinic had us bring in one of my daughter's dirty diapers and they tested the stool from it.

 

[MargaritaChic]

The CF Clinic had us bring in one of my daughter's dirty diapers and they tested the stool from it.

 

[MargaritaChic]

The CF Clinic had us bring in one of my daughter's dirty diapers and they tested the stool from it.