My 16 (almost 17) month old has steadily dropped in percentiles on the growth chart over the course of his new life..he suffered from reflux and an inability to stool in his first year of life. These issues did resolve by about his first birthday, however his growth is still poor. His stature is perfect (50%), however, after being born slightly over 10lbs. he has fallen to just under the 3% on the growth chart at a mere 20lbs 2ozs. I have begun adding as many calories as I can to his milk (cream, Boost, or Pediasure) and every bite he takes. He's not a tremendous eater but he does seem to take a fair amount of liquid and he loves peanut butter and cheese which I give him all the time. In addition he eats some meats, yogurt, breads, eggs, pasta, fruit, (not big on veggies). It seems when he gets more fat calories that his stool is more like clay and really foul. Any thoughts?
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symptoms of cf in toddler........
- Thread starter rosie
- Start date
My 16 (almost 17) month old has steadily dropped in percentiles on the growth chart over the course of his new life..he suffered from reflux and an inability to stool in his first year of life. These issues did resolve by about his first birthday, however his growth is still poor. His stature is perfect (50%), however, after being born slightly over 10lbs. he has fallen to just under the 3% on the growth chart at a mere 20lbs 2ozs. I have begun adding as many calories as I can to his milk (cream, Boost, or Pediasure) and every bite he takes. He's not a tremendous eater but he does seem to take a fair amount of liquid and he loves peanut butter and cheese which I give him all the time. In addition he eats some meats, yogurt, breads, eggs, pasta, fruit, (not big on veggies). It seems when he gets more fat calories that his stool is more like clay and really foul. Any thoughts?
Does he taste salty? Odd question for someone who doesn't know about CF, but that is how my child was diagnosed....her skin was salty (along with other symptoms)....if it is, have him tested with a sweat test...that will give you your answer, just make sure you go to a CF accredited center for the test. Please let us know what happens! We are a very close "family" here!!!!! <img src="i/expressions/angel_ani.gif" border="0"><img src="i/expressions/rose.gif" border="0">
Does he taste salty? Odd question for someone who doesn't know about CF, but that is how my child was diagnosed....her skin was salty (along with other symptoms)....if it is, have him tested with a sweat test...that will give you your answer, just make sure you go to a CF accredited center for the test. Please let us know what happens! We are a very close "family" here!!!!! <img src="i/expressions/angel_ani.gif" border="0"><img src="i/expressions/rose.gif" border="0">
Thanks for your reply. Sometimes I think he tastes salty and other times I think I'm crazy! As a former scientist (biochemist) I actually understand quite a bit about what I've read about CF...I understand that it's a chloride transporter protein that's doesn't funtion correctly in the CF patient hence the salty brow. My son has been followed by a Ped. GI since birth..we're currently on a wait and see path...the thought being that if his growth doesn't improve we'll do a bone age x-ray and determine whether he might need to see an Endo for Growth hormone. He looks very normal and very well nourished..he's just really little and his growth has been slowand now the change in stool. However I still worry..neither my husband or I are small people, although my husband claims he was a small kid...(unfortunately there is no one to attest to his gorwth pattern as a baby/toddler and no pics either). So far I think my son's stools have been rather normal, but as I tried to boost his calories even more I noticed the change...I'm not sure if this is a normal change or not. I guess I need to take this up with the GI. So far none of the docs seem to be worried about CF, which I am thankful for, however I hate to be missing something. I appreciate any input I can get from this community and I wish you all well.
Thanks for your reply. Sometimes I think he tastes salty and other times I think I'm crazy! As a former scientist (biochemist) I actually understand quite a bit about what I've read about CF...I understand that it's a chloride transporter protein that's doesn't funtion correctly in the CF patient hence the salty brow. My son has been followed by a Ped. GI since birth..we're currently on a wait and see path...the thought being that if his growth doesn't improve we'll do a bone age x-ray and determine whether he might need to see an Endo for Growth hormone. He looks very normal and very well nourished..he's just really little and his growth has been slowand now the change in stool. However I still worry..neither my husband or I are small people, although my husband claims he was a small kid...(unfortunately there is no one to attest to his gorwth pattern as a baby/toddler and no pics either). So far I think my son's stools have been rather normal, but as I tried to boost his calories even more I noticed the change...I'm not sure if this is a normal change or not. I guess I need to take this up with the GI. So far none of the docs seem to be worried about CF, which I am thankful for, however I hate to be missing something. I appreciate any input I can get from this community and I wish you all well.
I was just told that my 1 month baby girl has CF. She does have the salty skin some times but. not all the time. when she was born she was 8lbs 9 oz and she want down to to 7lbs 8oz so we had a tests done on her. It was for sure CF. So know we are going to the doctors and having her checked all the time. They have on here meds. that i have to give before every feeding and we go back down on wensday and they are going to put her on more meds. The only time I can Tell you is to go have him tested because the longer it goes the hard it is going to be on you and him. If he does have CF he need to get help for it right away. Hope this helps you and let me know if you find anything out.<img src="i/expressions/heart.gif" border="0">
I was just told that my 1 month baby girl has CF. She does have the salty skin some times but. not all the time. when she was born she was 8lbs 9 oz and she want down to to 7lbs 8oz so we had a tests done on her. It was for sure CF. So know we are going to the doctors and having her checked all the time. They have on here meds. that i have to give before every feeding and we go back down on wensday and they are going to put her on more meds. The only time I can Tell you is to go have him tested because the longer it goes the hard it is going to be on you and him. If he does have CF he need to get help for it right away. Hope this helps you and let me know if you find anything out.<img src="i/expressions/heart.gif" border="0">
My daughter was diagnosed at 3 1/2 in Nov 2005. The first inkling was a persistent cough for about 10 months which the family doctor said not to worry about. Someone mentioned CF in a friend of theirs so I looked it up for THEIR sake and noted some symptoms in my daughter. The giveaway was the salty skin. I mentioned this to the family docter who blew me off (just like he had done the whole time I repprted her cough and small size). About a week later she was in the hospital with pneumonia at which time they tested her for CF and...TADA!
I don't know your whole situation, but the CF test is painless and only takes about an hour to perform. I would do it even though it is stressful to think about just to rule it out. If it is CF, well...at least you can start doing something about it.
I don't know your whole situation, but the CF test is painless and only takes about an hour to perform. I would do it even though it is stressful to think about just to rule it out. If it is CF, well...at least you can start doing something about it.
My daughter was diagnosed at 3 1/2 in Nov 2005. The first inkling was a persistent cough for about 10 months which the family doctor said not to worry about. Someone mentioned CF in a friend of theirs so I looked it up for THEIR sake and noted some symptoms in my daughter. The giveaway was the salty skin. I mentioned this to the family docter who blew me off (just like he had done the whole time I repprted her cough and small size). About a week later she was in the hospital with pneumonia at which time they tested her for CF and...TADA!
I don't know your whole situation, but the CF test is painless and only takes about an hour to perform. I would do it even though it is stressful to think about just to rule it out. If it is CF, well...at least you can start doing something about it.
I don't know your whole situation, but the CF test is painless and only takes about an hour to perform. I would do it even though it is stressful to think about just to rule it out. If it is CF, well...at least you can start doing something about it.