Some children who do have CF are not "salty tasting". Each personw with CF is different, so although a salty tasting child is traditionally a classic sign of CF; the absence of it should not lead you to believe that your child does not have it.
No harm can come by testing for CF, so If it is a concern of yours (and if I were in your shoes I would have the testing done-if for nothing else, to rule out CF) I would encourage a sweat test (although if your child doesn't taste salty this might not be the best option) and/or an extended panel CF mutation test (quest diagnostics is the leader in the industry for the Expanded test. They are able to detect over 1000 known CF mutations currently).
It's amazing how many doctors/pediatricians "aren't concerned it's CF". I'd say 9/10 doctors think that way. And it's tragic because they are usually wrong about it. There is still so little education about CF out there, even for medical staff. It is frustrating and sad, but it requires that a parent step up and sometimes demand certain testing and studies. Many parents on this site can share their stories of how their pedi.'s clearly dobuted that the child had CF, and guess what, they are here now because low and behold the child was diagnosed with CF after much pushing by the parent(s). A delay in the proper diagnosis ovbiously means a delay in appropriate treatment for the child/person and that can sometimes have life altering consequences.
I wish you the best of luck and please let us know if you get the testing done and what you find out! We're here to help.
No harm can come by testing for CF, so If it is a concern of yours (and if I were in your shoes I would have the testing done-if for nothing else, to rule out CF) I would encourage a sweat test (although if your child doesn't taste salty this might not be the best option) and/or an extended panel CF mutation test (quest diagnostics is the leader in the industry for the Expanded test. They are able to detect over 1000 known CF mutations currently).
It's amazing how many doctors/pediatricians "aren't concerned it's CF". I'd say 9/10 doctors think that way. And it's tragic because they are usually wrong about it. There is still so little education about CF out there, even for medical staff. It is frustrating and sad, but it requires that a parent step up and sometimes demand certain testing and studies. Many parents on this site can share their stories of how their pedi.'s clearly dobuted that the child had CF, and guess what, they are here now because low and behold the child was diagnosed with CF after much pushing by the parent(s). A delay in the proper diagnosis ovbiously means a delay in appropriate treatment for the child/person and that can sometimes have life altering consequences.
I wish you the best of luck and please let us know if you get the testing done and what you find out! We're here to help.