Syncope?

[jenhum]

Thanks everyone. They have run all kinds of tests on me and of course everything is coming back normal (which is good I guess, just doesn't help me figure out how to prevent this in the future).
<br />
<br />just1more- thank you for that link, that is very interesting. I'm going to look into that a bit more. It just seemed like a little more than a normal fainting episode, so I want to make sure I look into every possibility.

 

[BreatheLife]

Jenny,

If you are still looking for salt tablets, I was able to get my local CVS pharmacy to order me some salt tablets easily. If you don't have a CVS, you can get any pharmacy to order you some, you don't need a script. Insurance didn't cover the cost of them, but for 100 tablets it was under $15 if I remember correctly. I am a runner and take them to replenish salt after I run. Take the tablets with food and don't take more than one at a time, unless its a big meal, or you will get nauseated. Also, you still might want to make sure to talk with your doctor before you buy some salt tablets to make sure he or she is okay with it. I don't know your own unique cf situation.

Best to you and I hope they can figure out what is wrong, if I were in your place I would feel uneasy as well.

Kristi

 

[BreatheLife]

Jenny,

If you are still looking for salt tablets, I was able to get my local CVS pharmacy to order me some salt tablets easily. If you don't have a CVS, you can get any pharmacy to order you some, you don't need a script. Insurance didn't cover the cost of them, but for 100 tablets it was under $15 if I remember correctly. I am a runner and take them to replenish salt after I run. Take the tablets with food and don't take more than one at a time, unless its a big meal, or you will get nauseated. Also, you still might want to make sure to talk with your doctor before you buy some salt tablets to make sure he or she is okay with it. I don't know your own unique cf situation.

Best to you and I hope they can figure out what is wrong, if I were in your place I would feel uneasy as well.

Kristi

 

[BreatheLife]

Jenny,
<br />
<br />If you are still looking for salt tablets, I was able to get my local CVS pharmacy to order me some salt tablets easily. If you don't have a CVS, you can get any pharmacy to order you some, you don't need a script. Insurance didn't cover the cost of them, but for 100 tablets it was under $15 if I remember correctly. I am a runner and take them to replenish salt after I run. Take the tablets with food and don't take more than one at a time, unless its a big meal, or you will get nauseated. Also, you still might want to make sure to talk with your doctor before you buy some salt tablets to make sure he or she is okay with it. I don't know your own unique cf situation.
<br />
<br />Best to you and I hope they can figure out what is wrong, if I were in your place I would feel uneasy as well.
<br />
<br />Kristi

 

[jenhum]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>BreatheLife</b></i>

Jenny,



If you are still looking for salt tablets, I was able to get my local CVS pharmacy to order me some salt tablets easily. If you don't have a CVS, you can get any pharmacy to order you some, you don't need a script. Insurance didn't cover the cost of them, but for 100 tablets it was under $15 if I remember correctly. I am a runner and take them to replenish salt after I run. Take the tablets with food and don't take more than one at a time, unless its a big meal, or you will get nauseated. Also, you still might want to make sure to talk with your doctor before you buy some salt tablets to make sure he or she is okay with it. I don't know your own unique cf situation.



Best to you and I hope they can figure out what is wrong, if I were in your place I would feel uneasy as well.



Kristi</end quote></div>

Thanks Kristi! I talked to my doctor and she said that since I do already salt my food, the main thing I need to focus on is staying hydrated. She said that the main purpose of the salt tablets would be to help me from getting dehydrated, so she just wants me to majorly increase my water intake (I'm not very good about that).

Good to know that you can get them at CVS though, in case I need extra salt during the summer when I'm losing even more salt.

 

[jenhum]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>BreatheLife</b></i>

Jenny,



If you are still looking for salt tablets, I was able to get my local CVS pharmacy to order me some salt tablets easily. If you don't have a CVS, you can get any pharmacy to order you some, you don't need a script. Insurance didn't cover the cost of them, but for 100 tablets it was under $15 if I remember correctly. I am a runner and take them to replenish salt after I run. Take the tablets with food and don't take more than one at a time, unless its a big meal, or you will get nauseated. Also, you still might want to make sure to talk with your doctor before you buy some salt tablets to make sure he or she is okay with it. I don't know your own unique cf situation.



Best to you and I hope they can figure out what is wrong, if I were in your place I would feel uneasy as well.



Kristi</end quote>

Thanks Kristi! I talked to my doctor and she said that since I do already salt my food, the main thing I need to focus on is staying hydrated. She said that the main purpose of the salt tablets would be to help me from getting dehydrated, so she just wants me to majorly increase my water intake (I'm not very good about that).

Good to know that you can get them at CVS though, in case I need extra salt during the summer when I'm losing even more salt.

 

[jenhum]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>BreatheLife</b></i>
<br />
<br />Jenny,
<br />
<br />
<br />
<br />If you are still looking for salt tablets, I was able to get my local CVS pharmacy to order me some salt tablets easily. If you don't have a CVS, you can get any pharmacy to order you some, you don't need a script. Insurance didn't cover the cost of them, but for 100 tablets it was under $15 if I remember correctly. I am a runner and take them to replenish salt after I run. Take the tablets with food and don't take more than one at a time, unless its a big meal, or you will get nauseated. Also, you still might want to make sure to talk with your doctor before you buy some salt tablets to make sure he or she is okay with it. I don't know your own unique cf situation.
<br />
<br />
<br />
<br />Best to you and I hope they can figure out what is wrong, if I were in your place I would feel uneasy as well.
<br />
<br />
<br />
<br />Kristi</end quote>
<br />
<br />Thanks Kristi! I talked to my doctor and she said that since I do already salt my food, the main thing I need to focus on is staying hydrated. She said that the main purpose of the salt tablets would be to help me from getting dehydrated, so she just wants me to majorly increase my water intake (I'm not very good about that).
<br />
<br />Good to know that you can get them at CVS though, in case I need extra salt during the summer when I'm losing even more salt.

 

[minimedic304]

This may not be a BP issue.....as a paramedic I can tell you that this could be a cardiac issue with low heart rate. In patients in SVT or rapid heart rate above 130 we have then bare down like they are taking a poop, this causes the vegal nerve to constrict and usually helps lower a patients heart rate..... I have taken in hundreds of elderly patients that pass out when they are on the toilet because they bare down to hard, because they already have a slow heart rate....I would randomly check you pulse and count your heart rate....count for 15 seconds then multiply by 4...your rate should be 70-100... above is high, and below 70 is low.

 

[minimedic304]

This may not be a BP issue.....as a paramedic I can tell you that this could be a cardiac issue with low heart rate. In patients in SVT or rapid heart rate above 130 we have then bare down like they are taking a poop, this causes the vegal nerve to constrict and usually helps lower a patients heart rate..... I have taken in hundreds of elderly patients that pass out when they are on the toilet because they bare down to hard, because they already have a slow heart rate....I would randomly check you pulse and count your heart rate....count for 15 seconds then multiply by 4...your rate should be 70-100... above is high, and below 70 is low.

 

[minimedic304]

This may not be a BP issue.....as a paramedic I can tell you that this could be a cardiac issue with low heart rate. In patients in SVT or rapid heart rate above 130 we have then bare down like they are taking a poop, this causes the vegal nerve to constrict and usually helps lower a patients heart rate..... I have taken in hundreds of elderly patients that pass out when they are on the toilet because they bare down to hard, because they already have a slow heart rate....I would randomly check you pulse and count your heart rate....count for 15 seconds then multiply by 4...your rate should be 70-100... above is high, and below 70 is low.

 

[rachla]

HI, I have not used this forum before but had to reply to your post. I had several of these episodes 5years ago. 5 in total, the final one requiring my boyfriend to call an ambulance as he thought I'd stopped breathing. It is a very odd sensation indeed, similar to fainting but feels more serious. In my case I felt as though all the blood and stopped pumping my chest felt very heavy as did all my limbs and then I collapsed.

I attend the Brompton hospital in London and they have said they have seen this occurring more and more since the adult population has been increasing at the moment officially calling them "CF funny do's!" All they could say is that they think a hard coughing fit is putting pressure on the heart and blood flow is momentarily stopped causing you to collapse. The other symptom I got was wavvy vision in one eye, it almost felt like a stroke. Anyway it has not happened again and is difficult to quantify as everything returns to normal as soon as you recover conciseness.

I had all sorts of tests 24 hour tape, brain, CT scans etc, everything came back as normal.

Just so you know this appears not to be uncommon now in the CF community. You can find a few posts on the UK forums.

Hope that helps.

I'm 32 and FEV1 45%

 

[rachla]

HI, I have not used this forum before but had to reply to your post. I had several of these episodes 5years ago. 5 in total, the final one requiring my boyfriend to call an ambulance as he thought I'd stopped breathing. It is a very odd sensation indeed, similar to fainting but feels more serious. In my case I felt as though all the blood and stopped pumping my chest felt very heavy as did all my limbs and then I collapsed.

I attend the Brompton hospital in London and they have said they have seen this occurring more and more since the adult population has been increasing at the moment officially calling them "CF funny do's!" All they could say is that they think a hard coughing fit is putting pressure on the heart and blood flow is momentarily stopped causing you to collapse. The other symptom I got was wavvy vision in one eye, it almost felt like a stroke. Anyway it has not happened again and is difficult to quantify as everything returns to normal as soon as you recover conciseness.

I had all sorts of tests 24 hour tape, brain, CT scans etc, everything came back as normal.

Just so you know this appears not to be uncommon now in the CF community. You can find a few posts on the UK forums.

Hope that helps.

I'm 32 and FEV1 45%

 

[rachla]

HI, I have not used this forum before but had to reply to your post. I had several of these episodes 5years ago. 5 in total, the final one requiring my boyfriend to call an ambulance as he thought I'd stopped breathing. It is a very odd sensation indeed, similar to fainting but feels more serious. In my case I felt as though all the blood and stopped pumping my chest felt very heavy as did all my limbs and then I collapsed.
<br />
<br />I attend the Brompton hospital in London and they have said they have seen this occurring more and more since the adult population has been increasing at the moment officially calling them "CF funny do's!" All they could say is that they think a hard coughing fit is putting pressure on the heart and blood flow is momentarily stopped causing you to collapse. The other symptom I got was wavvy vision in one eye, it almost felt like a stroke. Anyway it has not happened again and is difficult to quantify as everything returns to normal as soon as you recover conciseness.
<br />
<br />I had all sorts of tests 24 hour tape, brain, CT scans etc, everything came back as normal.
<br />
<br />Just so you know this appears not to be uncommon now in the CF community. You can find a few posts on the UK forums.
<br />
<br />Hope that helps.
<br />
<br />I'm 32 and FEV1 45%

 

[Twistofchaos]

From time to time (more frequent as i get older) i'll get near blackout/tunnelvision, unfocussed blurry tired vision and terrible headaches instantly when coughing. Not even so much the long coughs but more where i'd kinda get stuck in one keeping my core tense and building up a lot of pressure.
Tunnelvision will usually go away fairly quick again for me as i'd simply sit back and try to breathe deeply. (blaming it on low saturation)

Sorry to hear you actually passed out.

But well, it's interesting to read more people experience something like this and what might be the cause.

 

[Twistofchaos]

From time to time (more frequent as i get older) i'll get near blackout/tunnelvision, unfocussed blurry tired vision and terrible headaches instantly when coughing. Not even so much the long coughs but more where i'd kinda get stuck in one keeping my core tense and building up a lot of pressure.
Tunnelvision will usually go away fairly quick again for me as i'd simply sit back and try to breathe deeply. (blaming it on low saturation)

Sorry to hear you actually passed out.

But well, it's interesting to read more people experience something like this and what might be the cause.

 

[Twistofchaos]

From time to time (more frequent as i get older) i'll get near blackout/tunnelvision, unfocussed blurry tired vision and terrible headaches instantly when coughing. Not even so much the long coughs but more where i'd kinda get stuck in one keeping my core tense and building up a lot of pressure.
<br />Tunnelvision will usually go away fairly quick again for me as i'd simply sit back and try to breathe deeply. (blaming it on low saturation)
<br />
<br />Sorry to hear you actually passed out.
<br />
<br />But well, it's interesting to read more people experience something like this and what might be the cause.