Talk to me

PedsNP2007

New member
Hi,

I am not purposefully here to cause drama. I have read this thread, deciding to wait a little bit before posting. I am also in the hospital, so I might not be as diplomatic as I should :)

I find nutrition to be of upmost importance. I am wondering how much energy your breastfeeding is depleting your body of. I am also wondering have you kept a food journal to document your caloric intake?

I got really annoyed reading that you were putting breastfeeding ahead of treating your allergies that could be a major contributer to your health issues.

I could understand if allergies were just annoying you and causing a chronic cough, but with a health decline that you are stating, I would be doing ANYTHING and EVERYTHING to boost my health even if that meant that I had to take medications that would decline breastfeeding.

I understand you wanting to keep breastfeeding to continue to nuture your daughter... but at what cost? It has been shown that a higher BMI is correlated with a higher lung function.

It just gets me when people don't do what they should be doing. I know I am not perfect by any means, but my health is currently stable. If it did decline, I would be the first one to throw EVERYTHING at my disease to improve it.

I am glad you are now being proactive in your health care. It's important to see the bigger picture. If you can't breath properly because your asthma/allergies are acting up, then how is that going to help you be a mom? Sure, you'll have bonding breastfeeding her, but you'll have a hard time with airway inflammation. The flip side, not breastfeeding when you take asthma/allergy meds is that you would most likely be able to run and breath better. I think I'd rather choose the 2nd situation.

I am sorry if I was mean, I didn't mean to be harsh. I'm just really sensitive since a fellow CFer is fighting her battle in my same hospital. It's not fair when I read that someone doesn't want to use allergy meds because of breastfeeding when this other person has done EVERYTHING under the sun and still CF is causing trouble.

My apologies.

Jenn
31 yo cf
 

PedsNP2007

New member
Hi,

I am not purposefully here to cause drama. I have read this thread, deciding to wait a little bit before posting. I am also in the hospital, so I might not be as diplomatic as I should :)

I find nutrition to be of upmost importance. I am wondering how much energy your breastfeeding is depleting your body of. I am also wondering have you kept a food journal to document your caloric intake?

I got really annoyed reading that you were putting breastfeeding ahead of treating your allergies that could be a major contributer to your health issues.

I could understand if allergies were just annoying you and causing a chronic cough, but with a health decline that you are stating, I would be doing ANYTHING and EVERYTHING to boost my health even if that meant that I had to take medications that would decline breastfeeding.

I understand you wanting to keep breastfeeding to continue to nuture your daughter... but at what cost? It has been shown that a higher BMI is correlated with a higher lung function.

It just gets me when people don't do what they should be doing. I know I am not perfect by any means, but my health is currently stable. If it did decline, I would be the first one to throw EVERYTHING at my disease to improve it.

I am glad you are now being proactive in your health care. It's important to see the bigger picture. If you can't breath properly because your asthma/allergies are acting up, then how is that going to help you be a mom? Sure, you'll have bonding breastfeeding her, but you'll have a hard time with airway inflammation. The flip side, not breastfeeding when you take asthma/allergy meds is that you would most likely be able to run and breath better. I think I'd rather choose the 2nd situation.

I am sorry if I was mean, I didn't mean to be harsh. I'm just really sensitive since a fellow CFer is fighting her battle in my same hospital. It's not fair when I read that someone doesn't want to use allergy meds because of breastfeeding when this other person has done EVERYTHING under the sun and still CF is causing trouble.

My apologies.

Jenn
31 yo cf
 

PedsNP2007

New member
Hi,

I am not purposefully here to cause drama. I have read this thread, deciding to wait a little bit before posting. I am also in the hospital, so I might not be as diplomatic as I should :)

I find nutrition to be of upmost importance. I am wondering how much energy your breastfeeding is depleting your body of. I am also wondering have you kept a food journal to document your caloric intake?

I got really annoyed reading that you were putting breastfeeding ahead of treating your allergies that could be a major contributer to your health issues.

I could understand if allergies were just annoying you and causing a chronic cough, but with a health decline that you are stating, I would be doing ANYTHING and EVERYTHING to boost my health even if that meant that I had to take medications that would decline breastfeeding.

I understand you wanting to keep breastfeeding to continue to nuture your daughter... but at what cost? It has been shown that a higher BMI is correlated with a higher lung function.

It just gets me when people don't do what they should be doing. I know I am not perfect by any means, but my health is currently stable. If it did decline, I would be the first one to throw EVERYTHING at my disease to improve it.

I am glad you are now being proactive in your health care. It's important to see the bigger picture. If you can't breath properly because your asthma/allergies are acting up, then how is that going to help you be a mom? Sure, you'll have bonding breastfeeding her, but you'll have a hard time with airway inflammation. The flip side, not breastfeeding when you take asthma/allergy meds is that you would most likely be able to run and breath better. I think I'd rather choose the 2nd situation.

I am sorry if I was mean, I didn't mean to be harsh. I'm just really sensitive since a fellow CFer is fighting her battle in my same hospital. It's not fair when I read that someone doesn't want to use allergy meds because of breastfeeding when this other person has done EVERYTHING under the sun and still CF is causing trouble.

My apologies.

Jenn
31 yo cf
 

PedsNP2007

New member
Hi,

I am not purposefully here to cause drama. I have read this thread, deciding to wait a little bit before posting. I am also in the hospital, so I might not be as diplomatic as I should :)

I find nutrition to be of upmost importance. I am wondering how much energy your breastfeeding is depleting your body of. I am also wondering have you kept a food journal to document your caloric intake?

I got really annoyed reading that you were putting breastfeeding ahead of treating your allergies that could be a major contributer to your health issues.

I could understand if allergies were just annoying you and causing a chronic cough, but with a health decline that you are stating, I would be doing ANYTHING and EVERYTHING to boost my health even if that meant that I had to take medications that would decline breastfeeding.

I understand you wanting to keep breastfeeding to continue to nuture your daughter... but at what cost? It has been shown that a higher BMI is correlated with a higher lung function.

It just gets me when people don't do what they should be doing. I know I am not perfect by any means, but my health is currently stable. If it did decline, I would be the first one to throw EVERYTHING at my disease to improve it.

I am glad you are now being proactive in your health care. It's important to see the bigger picture. If you can't breath properly because your asthma/allergies are acting up, then how is that going to help you be a mom? Sure, you'll have bonding breastfeeding her, but you'll have a hard time with airway inflammation. The flip side, not breastfeeding when you take asthma/allergy meds is that you would most likely be able to run and breath better. I think I'd rather choose the 2nd situation.

I am sorry if I was mean, I didn't mean to be harsh. I'm just really sensitive since a fellow CFer is fighting her battle in my same hospital. It's not fair when I read that someone doesn't want to use allergy meds because of breastfeeding when this other person has done EVERYTHING under the sun and still CF is causing trouble.

My apologies.

Jenn
31 yo cf
 

PedsNP2007

New member
Hi,
<br />
<br />I am not purposefully here to cause drama. I have read this thread, deciding to wait a little bit before posting. I am also in the hospital, so I might not be as diplomatic as I should :)
<br />
<br />I find nutrition to be of upmost importance. I am wondering how much energy your breastfeeding is depleting your body of. I am also wondering have you kept a food journal to document your caloric intake?
<br />
<br />I got really annoyed reading that you were putting breastfeeding ahead of treating your allergies that could be a major contributer to your health issues.
<br />
<br />I could understand if allergies were just annoying you and causing a chronic cough, but with a health decline that you are stating, I would be doing ANYTHING and EVERYTHING to boost my health even if that meant that I had to take medications that would decline breastfeeding.
<br />
<br />I understand you wanting to keep breastfeeding to continue to nuture your daughter... but at what cost? It has been shown that a higher BMI is correlated with a higher lung function.
<br />
<br />It just gets me when people don't do what they should be doing. I know I am not perfect by any means, but my health is currently stable. If it did decline, I would be the first one to throw EVERYTHING at my disease to improve it.
<br />
<br />I am glad you are now being proactive in your health care. It's important to see the bigger picture. If you can't breath properly because your asthma/allergies are acting up, then how is that going to help you be a mom? Sure, you'll have bonding breastfeeding her, but you'll have a hard time with airway inflammation. The flip side, not breastfeeding when you take asthma/allergy meds is that you would most likely be able to run and breath better. I think I'd rather choose the 2nd situation.
<br />
<br />I am sorry if I was mean, I didn't mean to be harsh. I'm just really sensitive since a fellow CFer is fighting her battle in my same hospital. It's not fair when I read that someone doesn't want to use allergy meds because of breastfeeding when this other person has done EVERYTHING under the sun and still CF is causing trouble.
<br />
<br />My apologies.
<br />
<br />Jenn
<br />31 yo cf
 

jbrandonAW

New member
Well I look at BOTH pictures. How can I make myself healthy AND my daughter. I too find nutrition to be of utmost importance -but that means to me and my body. Breastfeeding only requires as much extra cals as being preggo,300-500 (and thats nursing 8-12 times a day). Right now my daughter and I are only nursing 2 times (rarely more) a day. So no its not making that much of a difference to my daughter. Her whole first year when she was nursing 8-12 times a day I was staying at 120lbs. So my breastfeeding has no bearing on my weight. (trust me my doc and I have gone round and round on this issues and we have had several LC's in on it too).

My asthma is crazy, ALWAYS has been. My allergies not so much (my sinuses yes). I have been on allegra, zyrtec, claritin, and the D's with them and none of them have made a big difference. (however 4 years ago neither did pulmozyme and now its working, so things change). But I am always willing to give everything another chance. Hell I tried flovent twice, advair twice (once with the disc and then the puffer), so why not an allergy med -but its by no means something I think I HAVE to have. (since I am also on singular)

My health was stable and then declined. So I am throwing alot into it. I have started several new drugs and I am in processes of getting a mickey button so that I can improve my nutrition. But I also don't think that in order to be totally proactive about your health that it means you have to take every drug under the sun either.

I also know that when I decided to have a baby a certain set of obligations came with that -one of which for me was to give her the best start to life and I believe thta is breastfeeding for atleast 2 years. Not everyone will agree but its how I choose to raise my daughter.

I am sorry your friend is in the hospital having a rough time -so am I. But I have to look at all the options around my table and decide how I can best move those pieces for my family.
 

jbrandonAW

New member
Well I look at BOTH pictures. How can I make myself healthy AND my daughter. I too find nutrition to be of utmost importance -but that means to me and my body. Breastfeeding only requires as much extra cals as being preggo,300-500 (and thats nursing 8-12 times a day). Right now my daughter and I are only nursing 2 times (rarely more) a day. So no its not making that much of a difference to my daughter. Her whole first year when she was nursing 8-12 times a day I was staying at 120lbs. So my breastfeeding has no bearing on my weight. (trust me my doc and I have gone round and round on this issues and we have had several LC's in on it too).

My asthma is crazy, ALWAYS has been. My allergies not so much (my sinuses yes). I have been on allegra, zyrtec, claritin, and the D's with them and none of them have made a big difference. (however 4 years ago neither did pulmozyme and now its working, so things change). But I am always willing to give everything another chance. Hell I tried flovent twice, advair twice (once with the disc and then the puffer), so why not an allergy med -but its by no means something I think I HAVE to have. (since I am also on singular)

My health was stable and then declined. So I am throwing alot into it. I have started several new drugs and I am in processes of getting a mickey button so that I can improve my nutrition. But I also don't think that in order to be totally proactive about your health that it means you have to take every drug under the sun either.

I also know that when I decided to have a baby a certain set of obligations came with that -one of which for me was to give her the best start to life and I believe thta is breastfeeding for atleast 2 years. Not everyone will agree but its how I choose to raise my daughter.

I am sorry your friend is in the hospital having a rough time -so am I. But I have to look at all the options around my table and decide how I can best move those pieces for my family.
 

jbrandonAW

New member
Well I look at BOTH pictures. How can I make myself healthy AND my daughter. I too find nutrition to be of utmost importance -but that means to me and my body. Breastfeeding only requires as much extra cals as being preggo,300-500 (and thats nursing 8-12 times a day). Right now my daughter and I are only nursing 2 times (rarely more) a day. So no its not making that much of a difference to my daughter. Her whole first year when she was nursing 8-12 times a day I was staying at 120lbs. So my breastfeeding has no bearing on my weight. (trust me my doc and I have gone round and round on this issues and we have had several LC's in on it too).

My asthma is crazy, ALWAYS has been. My allergies not so much (my sinuses yes). I have been on allegra, zyrtec, claritin, and the D's with them and none of them have made a big difference. (however 4 years ago neither did pulmozyme and now its working, so things change). But I am always willing to give everything another chance. Hell I tried flovent twice, advair twice (once with the disc and then the puffer), so why not an allergy med -but its by no means something I think I HAVE to have. (since I am also on singular)

My health was stable and then declined. So I am throwing alot into it. I have started several new drugs and I am in processes of getting a mickey button so that I can improve my nutrition. But I also don't think that in order to be totally proactive about your health that it means you have to take every drug under the sun either.

I also know that when I decided to have a baby a certain set of obligations came with that -one of which for me was to give her the best start to life and I believe thta is breastfeeding for atleast 2 years. Not everyone will agree but its how I choose to raise my daughter.

I am sorry your friend is in the hospital having a rough time -so am I. But I have to look at all the options around my table and decide how I can best move those pieces for my family.
 

jbrandonAW

New member
Well I look at BOTH pictures. How can I make myself healthy AND my daughter. I too find nutrition to be of utmost importance -but that means to me and my body. Breastfeeding only requires as much extra cals as being preggo,300-500 (and thats nursing 8-12 times a day). Right now my daughter and I are only nursing 2 times (rarely more) a day. So no its not making that much of a difference to my daughter. Her whole first year when she was nursing 8-12 times a day I was staying at 120lbs. So my breastfeeding has no bearing on my weight. (trust me my doc and I have gone round and round on this issues and we have had several LC's in on it too).

My asthma is crazy, ALWAYS has been. My allergies not so much (my sinuses yes). I have been on allegra, zyrtec, claritin, and the D's with them and none of them have made a big difference. (however 4 years ago neither did pulmozyme and now its working, so things change). But I am always willing to give everything another chance. Hell I tried flovent twice, advair twice (once with the disc and then the puffer), so why not an allergy med -but its by no means something I think I HAVE to have. (since I am also on singular)

My health was stable and then declined. So I am throwing alot into it. I have started several new drugs and I am in processes of getting a mickey button so that I can improve my nutrition. But I also don't think that in order to be totally proactive about your health that it means you have to take every drug under the sun either.

I also know that when I decided to have a baby a certain set of obligations came with that -one of which for me was to give her the best start to life and I believe thta is breastfeeding for atleast 2 years. Not everyone will agree but its how I choose to raise my daughter.

I am sorry your friend is in the hospital having a rough time -so am I. But I have to look at all the options around my table and decide how I can best move those pieces for my family.
 

jbrandonAW

New member
Well I look at BOTH pictures. How can I make myself healthy AND my daughter. I too find nutrition to be of utmost importance -but that means to me and my body. Breastfeeding only requires as much extra cals as being preggo,300-500 (and thats nursing 8-12 times a day). Right now my daughter and I are only nursing 2 times (rarely more) a day. So no its not making that much of a difference to my daughter. Her whole first year when she was nursing 8-12 times a day I was staying at 120lbs. So my breastfeeding has no bearing on my weight. (trust me my doc and I have gone round and round on this issues and we have had several LC's in on it too).
<br />
<br />My asthma is crazy, ALWAYS has been. My allergies not so much (my sinuses yes). I have been on allegra, zyrtec, claritin, and the D's with them and none of them have made a big difference. (however 4 years ago neither did pulmozyme and now its working, so things change). But I am always willing to give everything another chance. Hell I tried flovent twice, advair twice (once with the disc and then the puffer), so why not an allergy med -but its by no means something I think I HAVE to have. (since I am also on singular)
<br />
<br />My health was stable and then declined. So I am throwing alot into it. I have started several new drugs and I am in processes of getting a mickey button so that I can improve my nutrition. But I also don't think that in order to be totally proactive about your health that it means you have to take every drug under the sun either.
<br />
<br />I also know that when I decided to have a baby a certain set of obligations came with that -one of which for me was to give her the best start to life and I believe thta is breastfeeding for atleast 2 years. Not everyone will agree but its how I choose to raise my daughter.
<br />
<br />I am sorry your friend is in the hospital having a rough time -so am I. But I have to look at all the options around my table and decide how I can best move those pieces for my family.
 

saveferris2009

New member
Just a side note for education's sake:


When one has allergies, symptoms and subsequent inflammation are cause 70% by histamines and 30% by leukotrienes.

So when one takes a leukotriene agonist such as Singulair, one is only addressing about 30% of the allergy issue (again I'm not pushing anything... just figure everyone is better off with more information and can make better choices when fully educated).

By the same token, if one takes an anti-histamine, one is only addressing about 70% of the allergic cascade.

This is why you see people on both an anti-histamine and a leukotriene agonst <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

saveferris2009

New member
Just a side note for education's sake:


When one has allergies, symptoms and subsequent inflammation are cause 70% by histamines and 30% by leukotrienes.

So when one takes a leukotriene agonist such as Singulair, one is only addressing about 30% of the allergy issue (again I'm not pushing anything... just figure everyone is better off with more information and can make better choices when fully educated).

By the same token, if one takes an anti-histamine, one is only addressing about 70% of the allergic cascade.

This is why you see people on both an anti-histamine and a leukotriene agonst <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

saveferris2009

New member
Just a side note for education's sake:


When one has allergies, symptoms and subsequent inflammation are cause 70% by histamines and 30% by leukotrienes.

So when one takes a leukotriene agonist such as Singulair, one is only addressing about 30% of the allergy issue (again I'm not pushing anything... just figure everyone is better off with more information and can make better choices when fully educated).

By the same token, if one takes an anti-histamine, one is only addressing about 70% of the allergic cascade.

This is why you see people on both an anti-histamine and a leukotriene agonst <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

saveferris2009

New member
Just a side note for education's sake:


When one has allergies, symptoms and subsequent inflammation are cause 70% by histamines and 30% by leukotrienes.

So when one takes a leukotriene agonist such as Singulair, one is only addressing about 30% of the allergy issue (again I'm not pushing anything... just figure everyone is better off with more information and can make better choices when fully educated).

By the same token, if one takes an anti-histamine, one is only addressing about 70% of the allergic cascade.

This is why you see people on both an anti-histamine and a leukotriene agonst <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

saveferris2009

New member
Just a side note for education's sake:
<br />
<br />
<br />When one has allergies, symptoms and subsequent inflammation are cause 70% by histamines and 30% by leukotrienes.
<br />
<br />So when one takes a leukotriene agonist such as Singulair, one is only addressing about 30% of the allergy issue (again I'm not pushing anything... just figure everyone is better off with more information and can make better choices when fully educated).
<br />
<br />By the same token, if one takes an anti-histamine, one is only addressing about 70% of the allergic cascade.
<br />
<br />This is why you see people on both an anti-histamine and a leukotriene agonst <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

blackchameleon

New member
just thought i would mention lack of uninterupted sleep is a killer for my health. i have so much less energy for everything when i dont slep well. not sure if your bub is a good sleeper? i also need to exercise regularly and i find a mix of long walks combined with power walking up hills opens my lungs up and gives me stamina for greater chest clearance. swimming is great as it offers resistance when breathing out under water. the freshest veggies and fruit with water i need to energise me. i started with fev1 30% and built up slowly to around 50% and have stayed that way for six years now. i'm 38 and have two boys 10 and 12 so understand the inspiration kids can give us when it gets v hard to keep going. my tips are listen to your inner tuition, and believe in yourself no matter what. and maybe controversially look less to western medicine and start searching what easten medicine has to offer and combine both. being aware of my spirit or energy, whatever that 'thing' is that disappears when we die, is so very fundamental to me having having improved physical health. when i am weak in mind i am weak in body, strong mind= strong body. the two really are one to me but western medicine leans incredibly first and foremost toward treating the physical symptoms of a screwed mindset. i take very few medicines now and am feeling better for taking an alternate outlook on CF and going more toward getting my 'psyche' energised!! thats my opinion anyway. you sound like a caring mum with great desire to be well for both of you, so trust your instincts. Wink Blacky
 

blackchameleon

New member
just thought i would mention lack of uninterupted sleep is a killer for my health. i have so much less energy for everything when i dont slep well. not sure if your bub is a good sleeper? i also need to exercise regularly and i find a mix of long walks combined with power walking up hills opens my lungs up and gives me stamina for greater chest clearance. swimming is great as it offers resistance when breathing out under water. the freshest veggies and fruit with water i need to energise me. i started with fev1 30% and built up slowly to around 50% and have stayed that way for six years now. i'm 38 and have two boys 10 and 12 so understand the inspiration kids can give us when it gets v hard to keep going. my tips are listen to your inner tuition, and believe in yourself no matter what. and maybe controversially look less to western medicine and start searching what easten medicine has to offer and combine both. being aware of my spirit or energy, whatever that 'thing' is that disappears when we die, is so very fundamental to me having having improved physical health. when i am weak in mind i am weak in body, strong mind= strong body. the two really are one to me but western medicine leans incredibly first and foremost toward treating the physical symptoms of a screwed mindset. i take very few medicines now and am feeling better for taking an alternate outlook on CF and going more toward getting my 'psyche' energised!! thats my opinion anyway. you sound like a caring mum with great desire to be well for both of you, so trust your instincts. Wink Blacky
 

blackchameleon

New member
just thought i would mention lack of uninterupted sleep is a killer for my health. i have so much less energy for everything when i dont slep well. not sure if your bub is a good sleeper? i also need to exercise regularly and i find a mix of long walks combined with power walking up hills opens my lungs up and gives me stamina for greater chest clearance. swimming is great as it offers resistance when breathing out under water. the freshest veggies and fruit with water i need to energise me. i started with fev1 30% and built up slowly to around 50% and have stayed that way for six years now. i'm 38 and have two boys 10 and 12 so understand the inspiration kids can give us when it gets v hard to keep going. my tips are listen to your inner tuition, and believe in yourself no matter what. and maybe controversially look less to western medicine and start searching what easten medicine has to offer and combine both. being aware of my spirit or energy, whatever that 'thing' is that disappears when we die, is so very fundamental to me having having improved physical health. when i am weak in mind i am weak in body, strong mind= strong body. the two really are one to me but western medicine leans incredibly first and foremost toward treating the physical symptoms of a screwed mindset. i take very few medicines now and am feeling better for taking an alternate outlook on CF and going more toward getting my 'psyche' energised!! thats my opinion anyway. you sound like a caring mum with great desire to be well for both of you, so trust your instincts. Wink Blacky
 

blackchameleon

New member
just thought i would mention lack of uninterupted sleep is a killer for my health. i have so much less energy for everything when i dont slep well. not sure if your bub is a good sleeper? i also need to exercise regularly and i find a mix of long walks combined with power walking up hills opens my lungs up and gives me stamina for greater chest clearance. swimming is great as it offers resistance when breathing out under water. the freshest veggies and fruit with water i need to energise me. i started with fev1 30% and built up slowly to around 50% and have stayed that way for six years now. i'm 38 and have two boys 10 and 12 so understand the inspiration kids can give us when it gets v hard to keep going. my tips are listen to your inner tuition, and believe in yourself no matter what. and maybe controversially look less to western medicine and start searching what easten medicine has to offer and combine both. being aware of my spirit or energy, whatever that 'thing' is that disappears when we die, is so very fundamental to me having having improved physical health. when i am weak in mind i am weak in body, strong mind= strong body. the two really are one to me but western medicine leans incredibly first and foremost toward treating the physical symptoms of a screwed mindset. i take very few medicines now and am feeling better for taking an alternate outlook on CF and going more toward getting my 'psyche' energised!! thats my opinion anyway. you sound like a caring mum with great desire to be well for both of you, so trust your instincts. Wink Blacky
 

blackchameleon

New member
just thought i would mention lack of uninterupted sleep is a killer for my health. i have so much less energy for everything when i dont slep well. not sure if your bub is a good sleeper? i also need to exercise regularly and i find a mix of long walks combined with power walking up hills opens my lungs up and gives me stamina for greater chest clearance. swimming is great as it offers resistance when breathing out under water. the freshest veggies and fruit with water i need to energise me. i started with fev1 30% and built up slowly to around 50% and have stayed that way for six years now. i'm 38 and have two boys 10 and 12 so understand the inspiration kids can give us when it gets v hard to keep going. my tips are listen to your inner tuition, and believe in yourself no matter what. and maybe controversially look less to western medicine and start searching what easten medicine has to offer and combine both. being aware of my spirit or energy, whatever that 'thing' is that disappears when we die, is so very fundamental to me having having improved physical health. when i am weak in mind i am weak in body, strong mind= strong body. the two really are one to me but western medicine leans incredibly first and foremost toward treating the physical symptoms of a screwed mindset. i take very few medicines now and am feeling better for taking an alternate outlook on CF and going more toward getting my 'psyche' energised!! thats my opinion anyway. you sound like a caring mum with great desire to be well for both of you, so trust your instincts. Wink Blacky
 
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