Tell me about PICCs

bittyhorse23 · Jan 8, 2008

Hey

I didn't read the other posts so sorry if I duplicate <img src="i/expressions/face-icon-small-smile.gif" border="0">

I have always gotten mine at the bedside. The nurse comes in and uses an ultrasound to make sure she gets it in the vein and it is like an operation. They use all that paper to cover you and you have to wear a mask and she does too and a shower cap <img src="i/expressions/face-icon-small-smile.gif" border="0"> I like precautions though!

I went out with my IVs when I had the Eclipse balls. They are portable. I just make sure that I bring them with me if I am going to be at a friends house or something. And I make sure I have all my flushes and stuff too and extra flushes and alcohol pads! Working around the schedule will be based upon the times you have to do the infusions and if they are the eclipse balls, the bag or the IV push (which only takes a few minutes).

Taking care of it is easy. Just don't lift anything heavy! You will be sore! I get an extension on mine so I can do the meds myself and then I just tuck it all into this mesh sock thing. To shower I have these plastic bags that are elastic at the ends and they are super tight so no water gets in. They work great! I have always had mine above my elbows so my mobility was never limited...of course except for getting groceries up the stairs...but that's what roommates are for haha!

I have PA and I usually take Tobra, Merepenum and Ceptamine (sp?). But it will be based on what your Dr wants to give you.

Getting a PICC is not fun but it is a heck of a lot better than an IV poke every 2 days! <img src="i/expressions/face-icon-small-smile.gif" border="0">

Anyway good luck with the PICC and don't be scared....and welcome to the club <img src="i/expressions/face-icon-small-smile.gif" border="0">

bittyhorse23 · Jan 8, 2008

Hey

I didn't read the other posts so sorry if I duplicate <img src="i/expressions/face-icon-small-smile.gif" border="0">

I have always gotten mine at the bedside. The nurse comes in and uses an ultrasound to make sure she gets it in the vein and it is like an operation. They use all that paper to cover you and you have to wear a mask and she does too and a shower cap <img src="i/expressions/face-icon-small-smile.gif" border="0"> I like precautions though!

I went out with my IVs when I had the Eclipse balls. They are portable. I just make sure that I bring them with me if I am going to be at a friends house or something. And I make sure I have all my flushes and stuff too and extra flushes and alcohol pads! Working around the schedule will be based upon the times you have to do the infusions and if they are the eclipse balls, the bag or the IV push (which only takes a few minutes).

Taking care of it is easy. Just don't lift anything heavy! You will be sore! I get an extension on mine so I can do the meds myself and then I just tuck it all into this mesh sock thing. To shower I have these plastic bags that are elastic at the ends and they are super tight so no water gets in. They work great! I have always had mine above my elbows so my mobility was never limited...of course except for getting groceries up the stairs...but that's what roommates are for haha!

I have PA and I usually take Tobra, Merepenum and Ceptamine (sp?). But it will be based on what your Dr wants to give you.

Getting a PICC is not fun but it is a heck of a lot better than an IV poke every 2 days! <img src="i/expressions/face-icon-small-smile.gif" border="0">

Anyway good luck with the PICC and don't be scared....and welcome to the club <img src="i/expressions/face-icon-small-smile.gif" border="0">

bittyhorse23 · Jan 8, 2008

Hey

I didn't read the other posts so sorry if I duplicate <img src="i/expressions/face-icon-small-smile.gif" border="0">

I have always gotten mine at the bedside. The nurse comes in and uses an ultrasound to make sure she gets it in the vein and it is like an operation. They use all that paper to cover you and you have to wear a mask and she does too and a shower cap <img src="i/expressions/face-icon-small-smile.gif" border="0"> I like precautions though!

I went out with my IVs when I had the Eclipse balls. They are portable. I just make sure that I bring them with me if I am going to be at a friends house or something. And I make sure I have all my flushes and stuff too and extra flushes and alcohol pads! Working around the schedule will be based upon the times you have to do the infusions and if they are the eclipse balls, the bag or the IV push (which only takes a few minutes).

Taking care of it is easy. Just don't lift anything heavy! You will be sore! I get an extension on mine so I can do the meds myself and then I just tuck it all into this mesh sock thing. To shower I have these plastic bags that are elastic at the ends and they are super tight so no water gets in. They work great! I have always had mine above my elbows so my mobility was never limited...of course except for getting groceries up the stairs...but that's what roommates are for haha!

I have PA and I usually take Tobra, Merepenum and Ceptamine (sp?). But it will be based on what your Dr wants to give you.

Getting a PICC is not fun but it is a heck of a lot better than an IV poke every 2 days! <img src="i/expressions/face-icon-small-smile.gif" border="0">

Anyway good luck with the PICC and don't be scared....and welcome to the club <img src="i/expressions/face-icon-small-smile.gif" border="0">

bittyhorse23 · Jan 8, 2008

Hey

I didn't read the other posts so sorry if I duplicate <img src="i/expressions/face-icon-small-smile.gif" border="0">

I have always gotten mine at the bedside. The nurse comes in and uses an ultrasound to make sure she gets it in the vein and it is like an operation. They use all that paper to cover you and you have to wear a mask and she does too and a shower cap <img src="i/expressions/face-icon-small-smile.gif" border="0"> I like precautions though!

I went out with my IVs when I had the Eclipse balls. They are portable. I just make sure that I bring them with me if I am going to be at a friends house or something. And I make sure I have all my flushes and stuff too and extra flushes and alcohol pads! Working around the schedule will be based upon the times you have to do the infusions and if they are the eclipse balls, the bag or the IV push (which only takes a few minutes).

Taking care of it is easy. Just don't lift anything heavy! You will be sore! I get an extension on mine so I can do the meds myself and then I just tuck it all into this mesh sock thing. To shower I have these plastic bags that are elastic at the ends and they are super tight so no water gets in. They work great! I have always had mine above my elbows so my mobility was never limited...of course except for getting groceries up the stairs...but that's what roommates are for haha!

I have PA and I usually take Tobra, Merepenum and Ceptamine (sp?). But it will be based on what your Dr wants to give you.

Getting a PICC is not fun but it is a heck of a lot better than an IV poke every 2 days! <img src="i/expressions/face-icon-small-smile.gif" border="0">

Anyway good luck with the PICC and don't be scared....and welcome to the club <img src="i/expressions/face-icon-small-smile.gif" border="0">

bittyhorse23 · Jan 8, 2008

Hey

I didn't read the other posts so sorry if I duplicate <img src="i/expressions/face-icon-small-smile.gif" border="0">

I have always gotten mine at the bedside. The nurse comes in and uses an ultrasound to make sure she gets it in the vein and it is like an operation. They use all that paper to cover you and you have to wear a mask and she does too and a shower cap <img src="i/expressions/face-icon-small-smile.gif" border="0"> I like precautions though!

I went out with my IVs when I had the Eclipse balls. They are portable. I just make sure that I bring them with me if I am going to be at a friends house or something. And I make sure I have all my flushes and stuff too and extra flushes and alcohol pads! Working around the schedule will be based upon the times you have to do the infusions and if they are the eclipse balls, the bag or the IV push (which only takes a few minutes).

Taking care of it is easy. Just don't lift anything heavy! You will be sore! I get an extension on mine so I can do the meds myself and then I just tuck it all into this mesh sock thing. To shower I have these plastic bags that are elastic at the ends and they are super tight so no water gets in. They work great! I have always had mine above my elbows so my mobility was never limited...of course except for getting groceries up the stairs...but that's what roommates are for haha!

I have PA and I usually take Tobra, Merepenum and Ceptamine (sp?). But it will be based on what your Dr wants to give you.

Getting a PICC is not fun but it is a heck of a lot better than an IV poke every 2 days! <img src="i/expressions/face-icon-small-smile.gif" border="0">

Anyway good luck with the PICC and don't be scared....and welcome to the club <img src="i/expressions/face-icon-small-smile.gif" border="0">

semperfiohana · Jan 8, 2008

i just had a picc placed on saturday. this is my 4th picc and this one seemed to go in easier. they numb the spot where they are going to insert the picc with lidacaine and then it's a larger needle that they insert in your arm and then thread the actual picc line through (at least this is what i've been told, i don't ask the picc team cause i really don't want to know...i get queasy easy). like other people said you can't feel it until they are threading the actual line through your vein and then you can feel it, it grosses me out so i really have to think about something else. i think you can feel it more too because there is a wire in the picc to help guide it through to get it to where it needs to be. your arm is normally sore for the first day, well mine is always sore the first day. they tell you not to pick anything up over 10 lbs with it cause it can mess with the placement i do believe. the last two piccs i've had have been placed in my upper arm (above the elbow). if you want to see a picture of mine just let me know and i'll take one. i keep mine covered with what kinda looks like an ace bandage, but this bandage sticks to itself so it works perfect. i just cut the desired length i want and then wrap it around. and i make sure i have just enough left over at the end so that i can take my extension and kind of curl it up and get it under the bandage so that it's not hanging and dangling in the way of anything. right now i culture puesdo a. and have for a while. they have me on iv tobra and fortaz (which is also called ceftazidime). i can't tolerate tobi inhaled. and my fortaz is in a push syringe, so it only takes about 10 min tops. i push infuse it over 5 min and make sure i flush with saline after wards and the heprin of course. ummm...i can't think of anything else. if you have anything you want to ask just message me! good luck!

semperfiohana · Jan 8, 2008

i just had a picc placed on saturday. this is my 4th picc and this one seemed to go in easier. they numb the spot where they are going to insert the picc with lidacaine and then it's a larger needle that they insert in your arm and then thread the actual picc line through (at least this is what i've been told, i don't ask the picc team cause i really don't want to know...i get queasy easy). like other people said you can't feel it until they are threading the actual line through your vein and then you can feel it, it grosses me out so i really have to think about something else. i think you can feel it more too because there is a wire in the picc to help guide it through to get it to where it needs to be. your arm is normally sore for the first day, well mine is always sore the first day. they tell you not to pick anything up over 10 lbs with it cause it can mess with the placement i do believe. the last two piccs i've had have been placed in my upper arm (above the elbow). if you want to see a picture of mine just let me know and i'll take one. i keep mine covered with what kinda looks like an ace bandage, but this bandage sticks to itself so it works perfect. i just cut the desired length i want and then wrap it around. and i make sure i have just enough left over at the end so that i can take my extension and kind of curl it up and get it under the bandage so that it's not hanging and dangling in the way of anything. right now i culture puesdo a. and have for a while. they have me on iv tobra and fortaz (which is also called ceftazidime). i can't tolerate tobi inhaled. and my fortaz is in a push syringe, so it only takes about 10 min tops. i push infuse it over 5 min and make sure i flush with saline after wards and the heprin of course. ummm...i can't think of anything else. if you have anything you want to ask just message me! good luck!

semperfiohana · Jan 8, 2008

i just had a picc placed on saturday. this is my 4th picc and this one seemed to go in easier. they numb the spot where they are going to insert the picc with lidacaine and then it's a larger needle that they insert in your arm and then thread the actual picc line through (at least this is what i've been told, i don't ask the picc team cause i really don't want to know...i get queasy easy). like other people said you can't feel it until they are threading the actual line through your vein and then you can feel it, it grosses me out so i really have to think about something else. i think you can feel it more too because there is a wire in the picc to help guide it through to get it to where it needs to be. your arm is normally sore for the first day, well mine is always sore the first day. they tell you not to pick anything up over 10 lbs with it cause it can mess with the placement i do believe. the last two piccs i've had have been placed in my upper arm (above the elbow). if you want to see a picture of mine just let me know and i'll take one. i keep mine covered with what kinda looks like an ace bandage, but this bandage sticks to itself so it works perfect. i just cut the desired length i want and then wrap it around. and i make sure i have just enough left over at the end so that i can take my extension and kind of curl it up and get it under the bandage so that it's not hanging and dangling in the way of anything. right now i culture puesdo a. and have for a while. they have me on iv tobra and fortaz (which is also called ceftazidime). i can't tolerate tobi inhaled. and my fortaz is in a push syringe, so it only takes about 10 min tops. i push infuse it over 5 min and make sure i flush with saline after wards and the heprin of course. ummm...i can't think of anything else. if you have anything you want to ask just message me! good luck!

semperfiohana · Jan 8, 2008

i just had a picc placed on saturday. this is my 4th picc and this one seemed to go in easier. they numb the spot where they are going to insert the picc with lidacaine and then it's a larger needle that they insert in your arm and then thread the actual picc line through (at least this is what i've been told, i don't ask the picc team cause i really don't want to know...i get queasy easy). like other people said you can't feel it until they are threading the actual line through your vein and then you can feel it, it grosses me out so i really have to think about something else. i think you can feel it more too because there is a wire in the picc to help guide it through to get it to where it needs to be. your arm is normally sore for the first day, well mine is always sore the first day. they tell you not to pick anything up over 10 lbs with it cause it can mess with the placement i do believe. the last two piccs i've had have been placed in my upper arm (above the elbow). if you want to see a picture of mine just let me know and i'll take one. i keep mine covered with what kinda looks like an ace bandage, but this bandage sticks to itself so it works perfect. i just cut the desired length i want and then wrap it around. and i make sure i have just enough left over at the end so that i can take my extension and kind of curl it up and get it under the bandage so that it's not hanging and dangling in the way of anything. right now i culture puesdo a. and have for a while. they have me on iv tobra and fortaz (which is also called ceftazidime). i can't tolerate tobi inhaled. and my fortaz is in a push syringe, so it only takes about 10 min tops. i push infuse it over 5 min and make sure i flush with saline after wards and the heprin of course. ummm...i can't think of anything else. if you have anything you want to ask just message me! good luck!

semperfiohana · Jan 8, 2008

i just had a picc placed on saturday. this is my 4th picc and this one seemed to go in easier. they numb the spot where they are going to insert the picc with lidacaine and then it's a larger needle that they insert in your arm and then thread the actual picc line through (at least this is what i've been told, i don't ask the picc team cause i really don't want to know...i get queasy easy). like other people said you can't feel it until they are threading the actual line through your vein and then you can feel it, it grosses me out so i really have to think about something else. i think you can feel it more too because there is a wire in the picc to help guide it through to get it to where it needs to be. your arm is normally sore for the first day, well mine is always sore the first day. they tell you not to pick anything up over 10 lbs with it cause it can mess with the placement i do believe. the last two piccs i've had have been placed in my upper arm (above the elbow). if you want to see a picture of mine just let me know and i'll take one. i keep mine covered with what kinda looks like an ace bandage, but this bandage sticks to itself so it works perfect. i just cut the desired length i want and then wrap it around. and i make sure i have just enough left over at the end so that i can take my extension and kind of curl it up and get it under the bandage so that it's not hanging and dangling in the way of anything. right now i culture puesdo a. and have for a while. they have me on iv tobra and fortaz (which is also called ceftazidime). i can't tolerate tobi inhaled. and my fortaz is in a push syringe, so it only takes about 10 min tops. i push infuse it over 5 min and make sure i flush with saline after wards and the heprin of course. ummm...i can't think of anything else. if you have anything you want to ask just message me! good luck!

thefrogprincess · Jan 8, 2008

I was a PICC virgin until a week and a half ago! I put it off too long, I know this, so I HIGHLY encourage you do it. If you think you need it you probably do.

I didn't read all of the responses so I might repeat some stuff here, but I will just tell you about my experience so far.

My work schedule is irratic so I specifically asked for eclipse balls. They are a little ball with a balloon inside that deflates to infuse your medications. They are so nice! I can do infusions at work, go out, whatever. I stick the ball in my pocket and go about my business. This is definately the way to go.

My PICC was placed on the 28th of December. I went in at 3 pm and was out by 6:30. They will ultrasound your upper arm to find a vein. Then to get the line in they will clean your skin and use sterile equipment. Its not surgery but they need to keep things very clean to prevent infection. Some people will have a mild sedative, I would recommend that if you are phobic about needles, but I didn't have anything. They numb your skin and use a big needle to get the line into the vein. Don't look at it! LOL. You may feel the line going in. I felt it in my shoulder.

Depending on your meds you may need to have blood work to check the levels and kidney or liver function. The home infusion nurses should be able to work around your schedule to do this, as well as dressing changes. I had one blood draw at work!

The down sides that I've experienced: plebitis, irritation from the line. A week after the PICC was placed I had suck severe pain in my shoulder I couldn't move my arm. I went to the ER where they checked the placement with a chest xray and looked for infection or clotts. They determined that it was none of the above. I was given vicodin and have been taking antiinflamatories and using a heating pad. I am also having a reaction to my dressing. I called last night and I will have it changed today.

Any other questions for me just shoot me a PM. Good luck! Don't put it off!!!!!!! I feel amazing!!!

thefrogprincess · Jan 8, 2008

I was a PICC virgin until a week and a half ago! I put it off too long, I know this, so I HIGHLY encourage you do it. If you think you need it you probably do.

I didn't read all of the responses so I might repeat some stuff here, but I will just tell you about my experience so far.

My work schedule is irratic so I specifically asked for eclipse balls. They are a little ball with a balloon inside that deflates to infuse your medications. They are so nice! I can do infusions at work, go out, whatever. I stick the ball in my pocket and go about my business. This is definately the way to go.

My PICC was placed on the 28th of December. I went in at 3 pm and was out by 6:30. They will ultrasound your upper arm to find a vein. Then to get the line in they will clean your skin and use sterile equipment. Its not surgery but they need to keep things very clean to prevent infection. Some people will have a mild sedative, I would recommend that if you are phobic about needles, but I didn't have anything. They numb your skin and use a big needle to get the line into the vein. Don't look at it! LOL. You may feel the line going in. I felt it in my shoulder.

Depending on your meds you may need to have blood work to check the levels and kidney or liver function. The home infusion nurses should be able to work around your schedule to do this, as well as dressing changes. I had one blood draw at work!

The down sides that I've experienced: plebitis, irritation from the line. A week after the PICC was placed I had suck severe pain in my shoulder I couldn't move my arm. I went to the ER where they checked the placement with a chest xray and looked for infection or clotts. They determined that it was none of the above. I was given vicodin and have been taking antiinflamatories and using a heating pad. I am also having a reaction to my dressing. I called last night and I will have it changed today.

Any other questions for me just shoot me a PM. Good luck! Don't put it off!!!!!!! I feel amazing!!!

thefrogprincess · Jan 8, 2008

I was a PICC virgin until a week and a half ago! I put it off too long, I know this, so I HIGHLY encourage you do it. If you think you need it you probably do.

I didn't read all of the responses so I might repeat some stuff here, but I will just tell you about my experience so far.

My work schedule is irratic so I specifically asked for eclipse balls. They are a little ball with a balloon inside that deflates to infuse your medications. They are so nice! I can do infusions at work, go out, whatever. I stick the ball in my pocket and go about my business. This is definately the way to go.

My PICC was placed on the 28th of December. I went in at 3 pm and was out by 6:30. They will ultrasound your upper arm to find a vein. Then to get the line in they will clean your skin and use sterile equipment. Its not surgery but they need to keep things very clean to prevent infection. Some people will have a mild sedative, I would recommend that if you are phobic about needles, but I didn't have anything. They numb your skin and use a big needle to get the line into the vein. Don't look at it! LOL. You may feel the line going in. I felt it in my shoulder.

Depending on your meds you may need to have blood work to check the levels and kidney or liver function. The home infusion nurses should be able to work around your schedule to do this, as well as dressing changes. I had one blood draw at work!

The down sides that I've experienced: plebitis, irritation from the line. A week after the PICC was placed I had suck severe pain in my shoulder I couldn't move my arm. I went to the ER where they checked the placement with a chest xray and looked for infection or clotts. They determined that it was none of the above. I was given vicodin and have been taking antiinflamatories and using a heating pad. I am also having a reaction to my dressing. I called last night and I will have it changed today.

Any other questions for me just shoot me a PM. Good luck! Don't put it off!!!!!!! I feel amazing!!!

thefrogprincess · Jan 8, 2008

I was a PICC virgin until a week and a half ago! I put it off too long, I know this, so I HIGHLY encourage you do it. If you think you need it you probably do.

I didn't read all of the responses so I might repeat some stuff here, but I will just tell you about my experience so far.

My work schedule is irratic so I specifically asked for eclipse balls. They are a little ball with a balloon inside that deflates to infuse your medications. They are so nice! I can do infusions at work, go out, whatever. I stick the ball in my pocket and go about my business. This is definately the way to go.

My PICC was placed on the 28th of December. I went in at 3 pm and was out by 6:30. They will ultrasound your upper arm to find a vein. Then to get the line in they will clean your skin and use sterile equipment. Its not surgery but they need to keep things very clean to prevent infection. Some people will have a mild sedative, I would recommend that if you are phobic about needles, but I didn't have anything. They numb your skin and use a big needle to get the line into the vein. Don't look at it! LOL. You may feel the line going in. I felt it in my shoulder.

Depending on your meds you may need to have blood work to check the levels and kidney or liver function. The home infusion nurses should be able to work around your schedule to do this, as well as dressing changes. I had one blood draw at work!

The down sides that I've experienced: plebitis, irritation from the line. A week after the PICC was placed I had suck severe pain in my shoulder I couldn't move my arm. I went to the ER where they checked the placement with a chest xray and looked for infection or clotts. They determined that it was none of the above. I was given vicodin and have been taking antiinflamatories and using a heating pad. I am also having a reaction to my dressing. I called last night and I will have it changed today.

Any other questions for me just shoot me a PM. Good luck! Don't put it off!!!!!!! I feel amazing!!!

thefrogprincess · Jan 8, 2008

I was a PICC virgin until a week and a half ago! I put it off too long, I know this, so I HIGHLY encourage you do it. If you think you need it you probably do.

I didn't read all of the responses so I might repeat some stuff here, but I will just tell you about my experience so far.

My work schedule is irratic so I specifically asked for eclipse balls. They are a little ball with a balloon inside that deflates to infuse your medications. They are so nice! I can do infusions at work, go out, whatever. I stick the ball in my pocket and go about my business. This is definately the way to go.

My PICC was placed on the 28th of December. I went in at 3 pm and was out by 6:30. They will ultrasound your upper arm to find a vein. Then to get the line in they will clean your skin and use sterile equipment. Its not surgery but they need to keep things very clean to prevent infection. Some people will have a mild sedative, I would recommend that if you are phobic about needles, but I didn't have anything. They numb your skin and use a big needle to get the line into the vein. Don't look at it! LOL. You may feel the line going in. I felt it in my shoulder.

Depending on your meds you may need to have blood work to check the levels and kidney or liver function. The home infusion nurses should be able to work around your schedule to do this, as well as dressing changes. I had one blood draw at work!

The down sides that I've experienced: plebitis, irritation from the line. A week after the PICC was placed I had suck severe pain in my shoulder I couldn't move my arm. I went to the ER where they checked the placement with a chest xray and looked for infection or clotts. They determined that it was none of the above. I was given vicodin and have been taking antiinflamatories and using a heating pad. I am also having a reaction to my dressing. I called last night and I will have it changed today.

Any other questions for me just shoot me a PM. Good luck! Don't put it off!!!!!!! I feel amazing!!!

mom2lillian · Jan 8, 2008

I have to agree iwth Jodi and Scarlett that they do wipe me out big time once I was pregnant and now with a little one. I noticed in my reply that I said up until last year I xyz but neglected to mention that the reason that was up until then was because I feel that it is best to rest and do as much phsyiotherapy etc as possible. My docs at first tried to get me to take time off of work and I refused, now they always assume I will go back to work and both when I was pregnant adn in July when I had pneumonia I asked to be taken off of work. I was very wiped, the first week wasnt bad for me since I wasnt *that sick* the second week is hard because I am wore down but as I mentioned the week after although I still feel sick/tired starts getting a whole lot better.

I personally have decided that I will no longer work full time hwne on IV's because I will do PT and such 4x a day and continue to excercise, kiddo will go to daycare as normal not stay with me because I am home and I may at most do some work from my house part time for work or I may go in 1/2days the first week or soemthing like that, I am working with HR right now to see if I can get a laptop and home access for the future need so that will dictate what route I take.

Knowing yoru situation and that you and hubby are not used to the idea I would recommend that from my experience it would be best to sit down with hubby now and tell him how this will go, what might happen, explain you need reduced responsibilities etc since you work full time at home. Even if you dont think you need it if there is someone available I would see if you can take the kiddo somewhere part of the time during the day or have someone come to your hosue sometimes. I started taking all my treatments seriously and taking time off wrok etc this year and it took hubby a while to catch up to my way of thinking since I was never that way before and it caused tension until I realized he was only expecting what I had always done before so we sat down and had a chat. Just my experience but you are not the only one 'coming to terms' with your disease as you put it in an earlier blog so hubby is probably going to have to do it his own way.

Take care and my best to you

mom2lillian · Jan 8, 2008

I have to agree iwth Jodi and Scarlett that they do wipe me out big time once I was pregnant and now with a little one. I noticed in my reply that I said up until last year I xyz but neglected to mention that the reason that was up until then was because I feel that it is best to rest and do as much phsyiotherapy etc as possible. My docs at first tried to get me to take time off of work and I refused, now they always assume I will go back to work and both when I was pregnant adn in July when I had pneumonia I asked to be taken off of work. I was very wiped, the first week wasnt bad for me since I wasnt *that sick* the second week is hard because I am wore down but as I mentioned the week after although I still feel sick/tired starts getting a whole lot better.

I personally have decided that I will no longer work full time hwne on IV's because I will do PT and such 4x a day and continue to excercise, kiddo will go to daycare as normal not stay with me because I am home and I may at most do some work from my house part time for work or I may go in 1/2days the first week or soemthing like that, I am working with HR right now to see if I can get a laptop and home access for the future need so that will dictate what route I take.

Knowing yoru situation and that you and hubby are not used to the idea I would recommend that from my experience it would be best to sit down with hubby now and tell him how this will go, what might happen, explain you need reduced responsibilities etc since you work full time at home. Even if you dont think you need it if there is someone available I would see if you can take the kiddo somewhere part of the time during the day or have someone come to your hosue sometimes. I started taking all my treatments seriously and taking time off wrok etc this year and it took hubby a while to catch up to my way of thinking since I was never that way before and it caused tension until I realized he was only expecting what I had always done before so we sat down and had a chat. Just my experience but you are not the only one 'coming to terms' with your disease as you put it in an earlier blog so hubby is probably going to have to do it his own way.

Take care and my best to you

mom2lillian · Jan 8, 2008

I have to agree iwth Jodi and Scarlett that they do wipe me out big time once I was pregnant and now with a little one. I noticed in my reply that I said up until last year I xyz but neglected to mention that the reason that was up until then was because I feel that it is best to rest and do as much phsyiotherapy etc as possible. My docs at first tried to get me to take time off of work and I refused, now they always assume I will go back to work and both when I was pregnant adn in July when I had pneumonia I asked to be taken off of work. I was very wiped, the first week wasnt bad for me since I wasnt *that sick* the second week is hard because I am wore down but as I mentioned the week after although I still feel sick/tired starts getting a whole lot better.

I personally have decided that I will no longer work full time hwne on IV's because I will do PT and such 4x a day and continue to excercise, kiddo will go to daycare as normal not stay with me because I am home and I may at most do some work from my house part time for work or I may go in 1/2days the first week or soemthing like that, I am working with HR right now to see if I can get a laptop and home access for the future need so that will dictate what route I take.

Knowing yoru situation and that you and hubby are not used to the idea I would recommend that from my experience it would be best to sit down with hubby now and tell him how this will go, what might happen, explain you need reduced responsibilities etc since you work full time at home. Even if you dont think you need it if there is someone available I would see if you can take the kiddo somewhere part of the time during the day or have someone come to your hosue sometimes. I started taking all my treatments seriously and taking time off wrok etc this year and it took hubby a while to catch up to my way of thinking since I was never that way before and it caused tension until I realized he was only expecting what I had always done before so we sat down and had a chat. Just my experience but you are not the only one 'coming to terms' with your disease as you put it in an earlier blog so hubby is probably going to have to do it his own way.

Take care and my best to you

mom2lillian · Jan 8, 2008

I have to agree iwth Jodi and Scarlett that they do wipe me out big time once I was pregnant and now with a little one. I noticed in my reply that I said up until last year I xyz but neglected to mention that the reason that was up until then was because I feel that it is best to rest and do as much phsyiotherapy etc as possible. My docs at first tried to get me to take time off of work and I refused, now they always assume I will go back to work and both when I was pregnant adn in July when I had pneumonia I asked to be taken off of work. I was very wiped, the first week wasnt bad for me since I wasnt *that sick* the second week is hard because I am wore down but as I mentioned the week after although I still feel sick/tired starts getting a whole lot better.

I personally have decided that I will no longer work full time hwne on IV's because I will do PT and such 4x a day and continue to excercise, kiddo will go to daycare as normal not stay with me because I am home and I may at most do some work from my house part time for work or I may go in 1/2days the first week or soemthing like that, I am working with HR right now to see if I can get a laptop and home access for the future need so that will dictate what route I take.

Knowing yoru situation and that you and hubby are not used to the idea I would recommend that from my experience it would be best to sit down with hubby now and tell him how this will go, what might happen, explain you need reduced responsibilities etc since you work full time at home. Even if you dont think you need it if there is someone available I would see if you can take the kiddo somewhere part of the time during the day or have someone come to your hosue sometimes. I started taking all my treatments seriously and taking time off wrok etc this year and it took hubby a while to catch up to my way of thinking since I was never that way before and it caused tension until I realized he was only expecting what I had always done before so we sat down and had a chat. Just my experience but you are not the only one 'coming to terms' with your disease as you put it in an earlier blog so hubby is probably going to have to do it his own way.

Take care and my best to you

mom2lillian · Jan 8, 2008

I have to agree iwth Jodi and Scarlett that they do wipe me out big time once I was pregnant and now with a little one. I noticed in my reply that I said up until last year I xyz but neglected to mention that the reason that was up until then was because I feel that it is best to rest and do as much phsyiotherapy etc as possible. My docs at first tried to get me to take time off of work and I refused, now they always assume I will go back to work and both when I was pregnant adn in July when I had pneumonia I asked to be taken off of work. I was very wiped, the first week wasnt bad for me since I wasnt *that sick* the second week is hard because I am wore down but as I mentioned the week after although I still feel sick/tired starts getting a whole lot better.

I personally have decided that I will no longer work full time hwne on IV's because I will do PT and such 4x a day and continue to excercise, kiddo will go to daycare as normal not stay with me because I am home and I may at most do some work from my house part time for work or I may go in 1/2days the first week or soemthing like that, I am working with HR right now to see if I can get a laptop and home access for the future need so that will dictate what route I take.

Knowing yoru situation and that you and hubby are not used to the idea I would recommend that from my experience it would be best to sit down with hubby now and tell him how this will go, what might happen, explain you need reduced responsibilities etc since you work full time at home. Even if you dont think you need it if there is someone available I would see if you can take the kiddo somewhere part of the time during the day or have someone come to your hosue sometimes. I started taking all my treatments seriously and taking time off wrok etc this year and it took hubby a while to catch up to my way of thinking since I was never that way before and it caused tension until I realized he was only expecting what I had always done before so we sat down and had a chat. Just my experience but you are not the only one 'coming to terms' with your disease as you put it in an earlier blog so hubby is probably going to have to do it his own way.

Take care and my best to you

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