A
Aspiemom
Guest
Debbie, I'm glad that you found this site and have had many responses to your inquiry. It sounds like you may have made the decision to keep your baby and I am so happy about that.
I think that when you hear any diagnosis it is quite scary and you don't quite know what to expect and what is ahead. If you stick around this site and read many of the threads and entries you will find out what typical CF life is like, what it's like to parent a CFer. It's some of the best info on the Internet on CF, since so much else isn't up-to-date and this place is.
There are so many advances now in CF, it is amazing. Look at how old I am and how much I've lived and experienced! Some CFers are more mild, some more severe. some of it is from the particular genes and some the pro-active treatment to maintain that health. Your baby has so much to live for and experience with you and your husband. So many wonderful times ahead. Sure, there are times of illness, pain & treatments, etc., but I don't think they are much in comparison to all else there is in life.
Remember in raising this child, coming to this site will lend you much support through parenting a child with CF. You won't be going through it alone.
Best wishes and please keep in touch with us on how things are going -- I really mean that!
I think that when you hear any diagnosis it is quite scary and you don't quite know what to expect and what is ahead. If you stick around this site and read many of the threads and entries you will find out what typical CF life is like, what it's like to parent a CFer. It's some of the best info on the Internet on CF, since so much else isn't up-to-date and this place is.
There are so many advances now in CF, it is amazing. Look at how old I am and how much I've lived and experienced! Some CFers are more mild, some more severe. some of it is from the particular genes and some the pro-active treatment to maintain that health. Your baby has so much to live for and experience with you and your husband. So many wonderful times ahead. Sure, there are times of illness, pain & treatments, etc., but I don't think they are much in comparison to all else there is in life.
Remember in raising this child, coming to this site will lend you much support through parenting a child with CF. You won't be going through it alone.
Best wishes and please keep in touch with us on how things are going -- I really mean that!