Hello!
Almost anything that I would have said, has already been said =) But, I definitely think that it is a very personal decision that you and your husband must make. I'm 19 years old, and I have CF. Luckily, I have been able to live a relatively "normal" life. I go to college full time, I have a job where I work a few hours a week, I have a boyfriend who I've been with for over 2 years and I have met wondeful friends, so I'd like to think that the CF does not stop me much. I have pretty good grades, and luckily all of the teachers and staff have been very understanding about my frequent doctor appointments.
Sure, I have to go to the doctors alot and I have to get IV treatments every now and then, but that has not detered me.
I have extremly supportive parents, and I am blessed with the financial support as well. My parents have very good jobs so I am lucky to not necessarily have to "worry" about getting my meds. So, on top of CF itself, there is a financial component as well.
But, my friends have been very supportive, they come and visit me in the hospital, and we recently had a "65 Roses tattoo fundraiser" (I don't know how you feel about tattoos...) and most of my friends got roses to raise awareness of the disease.
Sure, sometimes things suck. I have to numerous breathing treatments, and IV's are not pleasent. But, I've gotten through them and I, on the whole, truly enjoy life; luckily, CF has not altered the quality of my life. And, although I was diagnosed at birth, and my parents had no idea what CF was when I was diagnosed with it, I am very glad that I am here, and I have not once blamed them. =)
Good luck with your choice! And, If you ever want to talk to someone who has CF feel free to send me a PM or e-mail me at theblackparade888@yahoo.com =)