Terminating pregnancy?

JW212 · Feb 25, 2008

JazzysMom has great points! I am a Mom of an 18 yr. old beautiful girl. She has double D508's (used to be considered the worst from what I can recall from docs). She was only hospitalized at age 2 at diagnosis and last year at age 17 for lung infections. Her junior year..getting ready for SATs and college stuff..was a little overwhelming! She just was accepted to a high ranking college with an academic scholarship. She has been a cheerleder and a cross country runner in high school. She went from a 13 minute to a 7 minute mile in her first 6 months of making the XCountry team. She is the oldest of my 4 children (only one with CF) and the most enlightening and wonderful person I have ever known (I know I am her Mom...but really she is so great!) I am new to this website. After last year, I had hard time dealing with her CF...she was never sick and we never really did any treatments..didnt need to! So my point is I am always on top of her now with her treatments and yes it is stressful at times but she still runs, goes to school and has a part time job. Her life is very full and happy. More than many people I know that have no diseases to deal with. She does take enzymes with her meals but that was the extent of our 'therapy' before. You are faced with a really tough decision..I am actually glad I didnt know she had it until she was 2...I cannot imagine life without her. I also feel (being an RN also and taken care of many people!) that life can bring anyone an illness at any time. Someone can lose a child to an illness or accident etc at any time.....Life is very unpredictable.
Wish I could give you a great decision but this website is really great...the most positve I have found. It is a great resource for you right now.
Good Luck with your decision

JW212 · Feb 25, 2008

JazzysMom has great points! I am a Mom of an 18 yr. old beautiful girl. She has double D508's (used to be considered the worst from what I can recall from docs). She was only hospitalized at age 2 at diagnosis and last year at age 17 for lung infections. Her junior year..getting ready for SATs and college stuff..was a little overwhelming! She just was accepted to a high ranking college with an academic scholarship. She has been a cheerleder and a cross country runner in high school. She went from a 13 minute to a 7 minute mile in her first 6 months of making the XCountry team. She is the oldest of my 4 children (only one with CF) and the most enlightening and wonderful person I have ever known (I know I am her Mom...but really she is so great!) I am new to this website. After last year, I had hard time dealing with her CF...she was never sick and we never really did any treatments..didnt need to! So my point is I am always on top of her now with her treatments and yes it is stressful at times but she still runs, goes to school and has a part time job. Her life is very full and happy. More than many people I know that have no diseases to deal with. She does take enzymes with her meals but that was the extent of our 'therapy' before. You are faced with a really tough decision..I am actually glad I didnt know she had it until she was 2...I cannot imagine life without her. I also feel (being an RN also and taken care of many people!) that life can bring anyone an illness at any time. Someone can lose a child to an illness or accident etc at any time.....Life is very unpredictable.
Wish I could give you a great decision but this website is really great...the most positve I have found. It is a great resource for you right now.
Good Luck with your decision

JW212 · Feb 25, 2008

JazzysMom has great points! I am a Mom of an 18 yr. old beautiful girl. She has double D508's (used to be considered the worst from what I can recall from docs). She was only hospitalized at age 2 at diagnosis and last year at age 17 for lung infections. Her junior year..getting ready for SATs and college stuff..was a little overwhelming! She just was accepted to a high ranking college with an academic scholarship. She has been a cheerleder and a cross country runner in high school. She went from a 13 minute to a 7 minute mile in her first 6 months of making the XCountry team. She is the oldest of my 4 children (only one with CF) and the most enlightening and wonderful person I have ever known (I know I am her Mom...but really she is so great!) I am new to this website. After last year, I had hard time dealing with her CF...she was never sick and we never really did any treatments..didnt need to! So my point is I am always on top of her now with her treatments and yes it is stressful at times but she still runs, goes to school and has a part time job. Her life is very full and happy. More than many people I know that have no diseases to deal with. She does take enzymes with her meals but that was the extent of our 'therapy' before. You are faced with a really tough decision..I am actually glad I didnt know she had it until she was 2...I cannot imagine life without her. I also feel (being an RN also and taken care of many people!) that life can bring anyone an illness at any time. Someone can lose a child to an illness or accident etc at any time.....Life is very unpredictable.
Wish I could give you a great decision but this website is really great...the most positve I have found. It is a great resource for you right now.
Good Luck with your decision

JW212 · Feb 25, 2008

JazzysMom has great points! I am a Mom of an 18 yr. old beautiful girl. She has double D508's (used to be considered the worst from what I can recall from docs). She was only hospitalized at age 2 at diagnosis and last year at age 17 for lung infections. Her junior year..getting ready for SATs and college stuff..was a little overwhelming! She just was accepted to a high ranking college with an academic scholarship. She has been a cheerleder and a cross country runner in high school. She went from a 13 minute to a 7 minute mile in her first 6 months of making the XCountry team. She is the oldest of my 4 children (only one with CF) and the most enlightening and wonderful person I have ever known (I know I am her Mom...but really she is so great!) I am new to this website. After last year, I had hard time dealing with her CF...she was never sick and we never really did any treatments..didnt need to! So my point is I am always on top of her now with her treatments and yes it is stressful at times but she still runs, goes to school and has a part time job. Her life is very full and happy. More than many people I know that have no diseases to deal with. She does take enzymes with her meals but that was the extent of our 'therapy' before. You are faced with a really tough decision..I am actually glad I didnt know she had it until she was 2...I cannot imagine life without her. I also feel (being an RN also and taken care of many people!) that life can bring anyone an illness at any time. Someone can lose a child to an illness or accident etc at any time.....Life is very unpredictable.
Wish I could give you a great decision but this website is really great...the most positve I have found. It is a great resource for you right now.
Good Luck with your decision

JW212 · Feb 25, 2008

JazzysMom has great points! I am a Mom of an 18 yr. old beautiful girl. She has double D508's (used to be considered the worst from what I can recall from docs). She was only hospitalized at age 2 at diagnosis and last year at age 17 for lung infections. Her junior year..getting ready for SATs and college stuff..was a little overwhelming! She just was accepted to a high ranking college with an academic scholarship. She has been a cheerleder and a cross country runner in high school. She went from a 13 minute to a 7 minute mile in her first 6 months of making the XCountry team. She is the oldest of my 4 children (only one with CF) and the most enlightening and wonderful person I have ever known (I know I am her Mom...but really she is so great!) I am new to this website. After last year, I had hard time dealing with her CF...she was never sick and we never really did any treatments..didnt need to! So my point is I am always on top of her now with her treatments and yes it is stressful at times but she still runs, goes to school and has a part time job. Her life is very full and happy. More than many people I know that have no diseases to deal with. She does take enzymes with her meals but that was the extent of our 'therapy' before. You are faced with a really tough decision..I am actually glad I didnt know she had it until she was 2...I cannot imagine life without her. I also feel (being an RN also and taken care of many people!) that life can bring anyone an illness at any time. Someone can lose a child to an illness or accident etc at any time.....Life is very unpredictable.
 Wish I could give you a great decision but this website is really great...the most positve I have found. It is a great resource for you right now.
 Good Luck with your decision

newmom36 · Feb 25, 2008

I too am a mom who was diagnosed via amino when I still had the opportunity to abort. I have felt those emotions and cried those tears and I will tell you, the tears won't end, but they will become less and less as you learn more and more. We decided to keep the baby because we had spent 3 years and many thousands getting our child. What I know is that what I did go through was grieving for my child. The child you "planned" to have, the child you wouldn't have, the child that would be free of birth defects. Take your time and grieve, it is a loss for what you thought you had. After you grieve and get info, you will be strong! Moms are strong and we can handle it

After many months (baby isn't born yet) what I do know deep down is we made the right choice for the baby. I will have to live with the guilt, which everyone will work out in their own way, but the baby won't know life any differently and it will make them strong and seeing you strong will also help make them strong. The hard part is that we know that we are bringing a child into the world with CF and they didn't ask for it, but I didn't ask to be 6' tall with red hair either and I have lived through all that picking on!
Your thoughts will eventually change to love and excitement for the baby and CF and doctors are just something you have to add into your already crazy baby life!
I am pro-choice so don't think I am pushing you into keeping a child that is your personal choice and it sounds like you are exploring your options and getting info to make the right decision for you and your hubby. Take care of yourself!

newmom36 · Feb 25, 2008

I too am a mom who was diagnosed via amino when I still had the opportunity to abort. I have felt those emotions and cried those tears and I will tell you, the tears won't end, but they will become less and less as you learn more and more. We decided to keep the baby because we had spent 3 years and many thousands getting our child. What I know is that what I did go through was grieving for my child. The child you "planned" to have, the child you wouldn't have, the child that would be free of birth defects. Take your time and grieve, it is a loss for what you thought you had. After you grieve and get info, you will be strong! Moms are strong and we can handle it

After many months (baby isn't born yet) what I do know deep down is we made the right choice for the baby. I will have to live with the guilt, which everyone will work out in their own way, but the baby won't know life any differently and it will make them strong and seeing you strong will also help make them strong. The hard part is that we know that we are bringing a child into the world with CF and they didn't ask for it, but I didn't ask to be 6' tall with red hair either and I have lived through all that picking on!
Your thoughts will eventually change to love and excitement for the baby and CF and doctors are just something you have to add into your already crazy baby life!
I am pro-choice so don't think I am pushing you into keeping a child that is your personal choice and it sounds like you are exploring your options and getting info to make the right decision for you and your hubby. Take care of yourself!

newmom36 · Feb 25, 2008

I too am a mom who was diagnosed via amino when I still had the opportunity to abort. I have felt those emotions and cried those tears and I will tell you, the tears won't end, but they will become less and less as you learn more and more. We decided to keep the baby because we had spent 3 years and many thousands getting our child. What I know is that what I did go through was grieving for my child. The child you "planned" to have, the child you wouldn't have, the child that would be free of birth defects. Take your time and grieve, it is a loss for what you thought you had. After you grieve and get info, you will be strong! Moms are strong and we can handle it

After many months (baby isn't born yet) what I do know deep down is we made the right choice for the baby. I will have to live with the guilt, which everyone will work out in their own way, but the baby won't know life any differently and it will make them strong and seeing you strong will also help make them strong. The hard part is that we know that we are bringing a child into the world with CF and they didn't ask for it, but I didn't ask to be 6' tall with red hair either and I have lived through all that picking on!
Your thoughts will eventually change to love and excitement for the baby and CF and doctors are just something you have to add into your already crazy baby life!
I am pro-choice so don't think I am pushing you into keeping a child that is your personal choice and it sounds like you are exploring your options and getting info to make the right decision for you and your hubby. Take care of yourself!

newmom36 · Feb 25, 2008

I too am a mom who was diagnosed via amino when I still had the opportunity to abort. I have felt those emotions and cried those tears and I will tell you, the tears won't end, but they will become less and less as you learn more and more. We decided to keep the baby because we had spent 3 years and many thousands getting our child. What I know is that what I did go through was grieving for my child. The child you "planned" to have, the child you wouldn't have, the child that would be free of birth defects. Take your time and grieve, it is a loss for what you thought you had. After you grieve and get info, you will be strong! Moms are strong and we can handle it

After many months (baby isn't born yet) what I do know deep down is we made the right choice for the baby. I will have to live with the guilt, which everyone will work out in their own way, but the baby won't know life any differently and it will make them strong and seeing you strong will also help make them strong. The hard part is that we know that we are bringing a child into the world with CF and they didn't ask for it, but I didn't ask to be 6' tall with red hair either and I have lived through all that picking on!
Your thoughts will eventually change to love and excitement for the baby and CF and doctors are just something you have to add into your already crazy baby life!
I am pro-choice so don't think I am pushing you into keeping a child that is your personal choice and it sounds like you are exploring your options and getting info to make the right decision for you and your hubby. Take care of yourself!

newmom36 · Feb 25, 2008

I too am a mom who was diagnosed via amino when I still had the opportunity to abort. I have felt those emotions and cried those tears and I will tell you, the tears won't end, but they will become less and less as you learn more and more. We decided to keep the baby because we had spent 3 years and many thousands getting our child. What I know is that what I did go through was grieving for my child. The child you "planned" to have, the child you wouldn't have, the child that would be free of birth defects. Take your time and grieve, it is a loss for what you thought you had. After you grieve and get info, you will be strong! Moms are strong and we can handle it

After many months (baby isn't born yet) what I do know deep down is we made the right choice for the baby. I will have to live with the guilt, which everyone will work out in their own way, but the baby won't know life any differently and it will make them strong and seeing you strong will also help make them strong. The hard part is that we know that we are bringing a child into the world with CF and they didn't ask for it, but I didn't ask to be 6' tall with red hair either and I have lived through all that picking on!
 Your thoughts will eventually change to love and excitement for the baby and CF and doctors are just something you have to add into your already crazy baby life!
 I am pro-choice so don't think I am pushing you into keeping a child that is your personal choice and it sounds like you are exploring your options and getting info to make the right decision for you and your hubby. Take care of yourself!

christyisnutz · Feb 25, 2008