The daycare debate

anonymous

New member
I think every case is so individual... In our situation, we decided to keep our son out of daycare and wait to try preschool (he started last year). It has been so good for me to see the progress and growth (both physically and intellectually) of my son. Everyone knows I'm a classic germaphob (uh hm), but I've recently learned that I have to "let go" at some point. That doesn't mean I won't protect them from things I know are harmful. It means I'm learning how to slowly let him out of the bubble he's been in (I can really relate to you, Barbara).

You know what? My son has FLOURISHED this year in preschool! He's only gotten sick a couple of times (less than he was last year when he wasn't even IN school) and has made many wonderful friends, etc. He needed this! I knew this as HIS mother! Trust your instincts and listen to your doctors - but ultimately, you usually know what's best for your child. I'm certainly glad I didn't stay the control freak I was and keep my son home from a great experience.

Carey
 

anonymous

New member
Hi Tapestry, I am a SAHM who was considering going back to work once my daughter turned one but just a week after her 1st b-day, she was diagnosed with CF. It was never even a question for us, I was going to be staying home indefinately.

During the late 90's, I worked in daycare while I was in college and to be honest, the germ issue is only part of my reason for keeping my daughter out of daycare now. Nutrition, treatments, enzymes are other factors for me.

Money is sometimes tight with me staying home (especially with medical bills!) but it is well worth it for Syd's health (plus I happen to enjoy being home with her). I think if you can afford it, then go for it! If you aren't sure, then you can try daycare and see how it goes. Fact is, some CF kids do better at fighting off germs than others. Just keep in mind that from birth to age 2 is when the most lung development will happen in one's life, making it a crucial time to keep those lungs healthy.

Hugs to you!
Kelli (mom of Sydney 21 months wcf)
Hi, this is my first year doing Great Strides too (my daughter was diagnosed last June just a week after her first birthday) and I am also doing a letter writting campaign. We are also approaching local businesses and asking for sponsorship (they often give big) and if they won't sponsor with $$ then we ask for a gift certificate or item donation - which we will raffle off. Also, some of our team members are going to work a night or two at East of Chicago (pizza place) where we will keep all the tips and $1 for every buffet ordered. I personally think the easiest way to get money is to send out letters to everyone you know and also approach businesses however, doing public things (carwash, working at restaraunt, auction, raffle, etc) will benefit us in 2 ways: make money and spread awareness.

I am SO glad to know that there are so many people out there working to Cure this disease! Keep up the good work!!

Hugs,
Kelli (mom of Sydney 21 months wcf)
<a target=new class=ftalternatingbarlinklarge href="http://sydneymyers-ivil.tripod.com/">http://sydneymyers-ivil.tripod.com/</a>
 

anonymous

New member
I have to back emily up on the fact that doctors aren't always right. I have been in medicine for a few years, and heard horror stories where parents, loved ones...ect hang onto every word a doctor says in spite of their own beliefs just because the person is a doctor. There are many misdiagnosed cases of CF, doctors who think they have the answers to everything but haven't lived a single day with a CFer in their lives, they just simply treat their symptoms. I urge and beg every parent to keep this in mind! I have seen too many people hurt because they believed everything a doctor told them.

About the daycare thing, still... If you do decide to stay home with your infant and that works out, that is great for you but please keep in mind that at some point preeschool is a good idea. I know what I would do if I had a little CFer, but that is just me and everybody is entitled to their own reasons and justifications. I guess I base my decision on my husbands situation. Shortly after his parents found out he had CF at 18 months-and before the diagnosis he and his brother were in daycare 2-3 days a week so his mom could help out with the family business, then she was home with them the other 3 or 2 days plus weekends. Shortly after the diagnosis his dad left one day and his mom was forced to work full time and put herself through college. Then the kids went to daycare full time because there was no other option. and at first my husband had quite a few colds (for about the first 3 months)-more than normal. But after that, there was nothing real big or tramatic that occured in relation to his health. He was a CF poster child for a few years, met and shook hands with a regan at a CF promotion, participated in numerous CF studies and has NEVER EVER been in the hospital to this date except for his diagnosis as a toddler. He is 24 years old and is active, lifts weights, does cardio and has a better body physique than most men his age, weight and height. he is 6 foot, 185-190lbs, with an 8 pack and nice defined muscles. And I think that daycare ultimately benefited him socially as well, but when he was a bit older (2.5-4 years old).
Just had to throw that in there,


Julie (wife to Mark 24 w/CF)
 

anonymous

New member
Tapestry
My doctors told me the same thing about keeping my daughter as healthy as possible for as long as possible and that is what i try to do. I do not hang on to every word our doc says because we all make mistakes but i trust my doctor very much and i know that he cares for my daughter. He does alot of CF research and he is sometimes aggressive when treating my daughter which is wonderful to me. Kait was never in daycare ( she did have a babysitter that truley cared for her and went to doctors visits to learn to care for Kait even PICC lines and everything that had to do with her care. Our situation has changed because my husband and I work different shifts which can put a huge strain on any relationship but has worked out so far. kait was in preschool for a litle while until i took her out because of all of the sick kids. She is now in the 3rd grade and has missed quite a bit of school this year but i also know that she does need to build her immune system because eventually she is going to be exposed to illnesses. I have a friend whose parents "put him in a bubble" and when he became an adult he really rebelled ( smoked, drank and did everything he could) he did not take care of himself !!!! These decisions seem
little to most people but i know what you are going through. Good Luck with your decision.

Kaitsmom<img src="i/expressions/face-icon-small-sad.gif" border="0"><img src="i/expressions/rose.gif" border="0">
 

EmilysMom

New member
Carey is right....trust your instincts...and I need to reiterate...Julie and Emily are correct also....Doctors are not Gods. They have gone to school for years and most of the time are going to be right, but they are not infallible. Emily and I have learned that over the years. When she was little, I learned to speak up and question things I either didn't understand or didn't agree with. As she got older, I taught her to do the same. (in case you hadn't already figured that one out for yourself from her posts! lol)
When your kids are little, you have to be their advocate and then teach them to be their own. Speak up if you question a doctor...this is your child you are talking about. Don't let them be hurt. I did once and it never happened again !!
 

anonymous

New member
I guess they are a lot of opinions out there so here is mine. Germs are everywhere but there are obviously ones that are more detrimental than others. The most important one that you should be aware of is RSV. This virus affects children from birth to age 2 (approx). It causes significant illness for healthy children, including asthma like illness for years after the initial infection. You can imagine what damage it would do to a child with cystic fibrosis. For this reason we have chosen to keep our child home with a nanny untill after 2 and until after RSV season is over ( nov -april) Another comment - although home daycares have less children they usually are not as regulated so they do not keep everything (such as toys ) as sanitized.

On the whole doctor knows best issue. My husband and I are both physicians. We took are daughter to specialists for almost a year until we asked that a sweat test be done and found she had cystic fibrosis.Then no on knew why she was not responding to the enzymes( at all) It wasn't unitl several tests and meds later that my husband and I figured what meds she needed to be one that she responded. In essence parental instincts are very important in pursuing treatment and care for our children.

anonymous
1childw and 1childw/0
 

kwood

New member
My daughter was diagnosed at 31/2 months she is now 91/2 months. We immediatley took her out of daycare b/c we thought it was the right thing to do. She was in a "in home daycare", where her 3 yr old brother still attends. Now I'm having second thoughts, financially sometimes I think I need to go back. But I feel like I would have to take off more than I would be there. I don't think it would be fair to other employees. It is a very hard decision! I enjoy staying at home with her, and watching her grow. I did not take my son out b/c I did'nt think it was fair to him. Then some days I feel bad for taking him. But he is also bringing home the same germs she would be getting! I don't know! Someone help!
 

kwood

New member
My daughter was diagnosed at 31/2 months she is now 91/2 months. We immediatley took her out of daycare b/c we thought it was the right thing to do. She was in a "in home daycare", where her 3 yr old brother still attends. Now I'm having second thoughts, financially sometimes I think I need to go back. But I feel like I would have to take off more than I would be there. I don't think it would be fair to other employees. It is a very hard decision! I enjoy staying at home with her, and watching her grow. I did not take my son out b/c I did'nt think it was fair to him. Then some days I feel bad for taking him. But he is also bringing home the same germs she would be getting! I don't know! Someone help!
 

midwestmama

New member
Like we all know, every situation and every child is different. In our situation, my husband had a job transfer just weeks after the diagnosis. My son had been in daycare, he was 18 months, with constant colds and illness. Since I had to quit my job for the move, I have been staying home with my kids, now 5 and 21/2 and we had a pretty healthy winter! I know that for my sanity, and his development, he will need to attend pre-school. I am waiting until he's 3 and understands hand washing more and not putting toys in his mouth. Potty training will be another story, but I have since started an at home business and will also be able to incorporate CF Fundraising into it. (Making vinyl graphics, decals and signs) This is fulfilling to me. I did try to work outside the home but the guilt overtook me so I knew I wasn't ready to send him back to the daycare/pre-school environment. And like someone said about the in home babysitters, we looked at some and weren't comfortable with the unregulated germ situations like a damp playroom and dogs in the house. To each their own.
 

tapestry

New member
Thanks for all the different responses and stories. Reading all of your perspectives has definitely helped. We had a second doctor visit and after her doctor gently reminded us how devestating it would be for Cassidy to get something like RSV we decided we will be taking her out of daycare. I'm just afraid to risk her long term health. However, she'll be in daycare until the end of May so we can get the finances squared away and my husband can train a replacement. I really wish I could stay home with Cassie - unfortunately we need my insurance and salary. Cassie will go to preschool when she's 3 or 4, and she'll start kindergarden on time God willing. I don't plan on keeping her in a bubble and my husband and I have talked about playgroups and such. I think this is the right decision for us, though it's not an easy one and I'm sure it will be a tough adjustment at first.

Thanks so much for all your help!
 

anonymous

New member
Sounds like you found something that is right for you and your husband, and I am glad for your family. I am also glad to hear that you are open (past the very vunerable infancy age) to playgroups and preeschool later on-that is a very important part if your child is healthy enough to participate. I wish you the best.

Julie (wife to Mark 24 w/CF)
 

anonymous

New member
Emily, I'm sorry you feel so negatively about home schooling but I think it's terrible how you talk about it on this site as if you understand it at all. It is a great option, CF or not, but particularily for children with CF because you can control what they get exposed to to a certain extent and that is helpful. A child will always catch things and their immune system will build without forcing them to catch every single thing going around a school. I strongly disagree with you that exposing children to everything at daycare and school is good for them and personally feel that you just have such a negative attitude to home schooling because you don't know anything about it so it would be nice to not hear your two cents worth every time the subject is brought up. I'm happy for you that your childhood went so well and you are doing so well now but my daughter's story is very similar to yours and she was homeschooled, so the built up immune sytem due to school can't really explain it. There's my two cents.
 

Emily65Roses

New member
"I think it's terrible how you talk about it on this site as if you understand it at all... you just have such a negative attitude to home schooling because you don't know anything about it "
Don't assume you know me. I know more about home schooling than you may think. I never was, but that doesn't mean I don't have people close to me who were. I don't have negative feelings towards home schooling in general. And home schooling for CFers is fine in a whole bunch of situations. But if your SOLE reason for home schooling a CFer is to keep them away from other germy kids, you're not doing them any favors. Germs aside, unless you enter them in some kind of a kid gym program, or swimming class, or girl/boy scouts, or whatever, they're not getting any kind of social experience, and that's not doing them any favors either.

It's a personal decision for each and every family, and there's nothing I can do about that. I'm just trying to save some kids from possibly being coddled when they needn't be. The more that parents overprotect their children (CF or not), the more rebellious they become in the future. The only reason I keep bringing it up is because others keep saying how excellent of an idea it is to home school CFers based only on the fact that they might get sick from other snot-nosed little children. If new parents come on here and hear from all the other parents that think home schooling is such a good idea, I just want them to also hear my opinion that maybe it's not. Or that maybe it's an excellent idea in some situations, but not in some others. The more opinions you hear, especially all sorts of different ones, the better you are equipped to make a well-rounded decision regarding your child's care.

I just like to make sure parents hear ALL the opinions, instead of only the popular one. And as I am very often the bearer of the unpopular opinions, I figured I'd be the one here to share the less than popular thoughts on this subject. Not to mention, parents of CFers certainly have excellent opinions here. Everyone should hear them. But as a CFer myself, I tend to think it would benefit new parents to hear from someone who actually lives it. I would not personally have liked to be homeschooled. We're already treated so differently, I was happy to go into school with all the "normal" kids. Just because you're a parent of a CFer doesn't mean you know what it's like to be one of us. And I don't mean for that to sound snotty or as if I know everything, or as if I'm better than you. I certainly don't think any of those things. But in all truth, being a CFer is much different (not harder or easier, but different) than being the parent or loved one of a CFer. So I think new parents should hear not only from other CFers' parents, but also CFers themselves.

There are all sorts of occasions where home schooling is an excellent idea. It changes family to family, and a lot of kids everywhere have had benefits from being home schooled. I just don't want parents to think that it's ALWAYS the best idea. As far as your daughter being home-schooled and her story being "similar to mine" as you say, there are exceptions to everything. I never claimed that home schooling <b>always</b> made a child sicker in the future. In general, look at the facts, being exposed to germs when you're young, helps you fight them off better when you're older. Same reason why we get flu shots every year. It's not as if I'm saying these things without any sensible foundation. It's very simple. Home schooling can quite often be an excellent idea. But since nearly every parent on this site is always talking about how great it is, I want to make sure that new parents also see the opinion that it's not such a great idea. Like I said, the more diverse opinions people read about any given subject, the better equipped they are to make a well-rounded decision about whatever that subject may be. So I will continue to voice on this forum that it's not always the best idea, whether or not you like it. I am entitled to my opinion, and I didn't use any profanity, or insult/harass anyone. I am within the boundaries of the forum rules and therefore will continue to allow the expression of my opinions, no matter how unpopular.
 

anonymous

New member
Emily, I apologize for saying it would be nice to not hear your 2 cents worth every time the subject of homeschooling comes up. I got defensive when I read your comments this time. I don't know why and I apologize for that. We all are entitled to our opinion, I know I like to let people know mine! Again, sorry about that.
 

Emily65Roses

New member
No problem. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I'm not one to hold a grudge, and I don't really care. I understand getting very heated about some subjects, this is one of the ones I get worked up about sometimes. It just happens to be the opposite opinion of yours. Heh. <img src="i/expressions/face-icon-small-wink.gif" border="0"> But anyways, no harm done. No one can agree with everything/everyone all the time. We shall agree to disagree. Makes life more interesting anyhow. <img src="i/expressions/rose.gif" border="0">
 

anonymous

New member
I just wanted to say that I think CFers who are growing up now are very knowledgeable about what worked and didn't work for them. And granted, there are individual situations and not everything works for everybody. But I think that parents ought to consider the experiences of those living with CF right now (when they come to this site and ask questions such as this one) evenmoreso than their own doctors and other parents on the site SOMETIMES. Now this isn't true for every situation and every topic, but I think those living with CF have more of a right to say "this is what worked for me and this is why" because first of all it is from a FIRSTHAND experience and second of all, they are around to talk about it.
 

anonymous

New member
I have been hesitant to reply to this topic and have to admit that I have NOT read all the replies, but here are my two cents.....have ANY of you (remind you, I haven't read all the responses) thought about the fact that there may be a father who is working because his wife is no longer alive, OR, and most importantly forgotten about, but a mother who is working because her husband is no longer alive....you cannot judge until you know the situation.....ugh is all I have to say!!!!!!!!!!!!<img src="i/expressions/face-icon-small-disgusted.gif" border="0">
 

anonymous

New member
I completely disagree...so does my doctor. He told me that it was my choice, that it would not cause any problems she would not already have. I would however make sure your daycare provider understands the disease and is willing to make changes and meet your childs needs. My daughter goes to a in home daycare where there are 5 other children besides her. THe other children are great supporters of hers and love to be a part of her care. At mealtime they encourage her to take her enzymes and are always around to hand her a tissue when she needs it (she has a consistent runny nose) You have to do what you think is right...I know my daughter is where she needs to be and it would be a detriment to her to take her out of daycare. Children with CF need to have normal lives and don't need to be treated differently.
Lynsey -daughter 20 mos. w/CF
 

anonymous

New member
very well put lynsey. I have to agree with some of the above posts-that every situation is different. But if a child is thriving in a daycare setting (provided they are able to accomodate the needs of a young CFer) why not keep them there.

Julie
 
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