The Future

19forever93 · Sep 1, 2008

The day I found out that the life expectancy for CF was only in the 30's was the day of the CF walk when I was about 10...it was the first time I had ever really listened to the speech there. The lady speaking was going on and on about how the life expectancy has been climbing, from dying before childhood, to now. I thought that with CF now the life expectancy had to be about normal, but was it ever a shock when she said, "And now the life expectancy is higher than ever: 37 years old!!" and everyone started cheering. Except me. That's when it really hit me that CF is serious...it's always been pretty mild with me, but I know that for most it gets worse as you get older. And it's so scary to think about sometimes...all the time when I was little I used to think, "Wow, I wish I was lucky enough to just sit here and relax instead of doing Vest..." or, "How come it's ME stuck with taking all these pills?" And now all I can seem to think about when I think of CF is my future...I'm smart. I want to go to college, get a good job, get married, have kids...but knowing that that could be ruined by CF makes me really sad sometimes. I constantly worry about my future...I'm trying to do all I can to stay healthy, but what if that isn't enough? I try to distract myself, but everything I do makes me think of something that CF could take away from me in my future. I've always been a huge worrier, but never this worried...it is getting ridiculous. Everytime I think about CF it feels like I just got punched in the stomach and I just want to cry and cry...I could be worrying for no reason: a lot of people with CF live good, long lives. But not everyone does. What if that's me? What if I start going to the hospital all the time, or suddenly just decline, or need a transplant or something? What would happen to my life? Anyway, I am just constantly thinking about this, it is NOT healthy, that's for sure. Could it be the start of depression or something? I certainly don't want to go down that road...If I am how can I stop myself? Does anyone else feel like this or have any advice on how to deal with it? I need to have someone to talk to (and not my parents.) Thanks a lot <img src="i/expressions/face-icon-small-smile.gif" border="0">

-19forever93
14 years old with CF

19forever93 · Sep 1, 2008

The day I found out that the life expectancy for CF was only in the 30's was the day of the CF walk when I was about 10...it was the first time I had ever really listened to the speech there. The lady speaking was going on and on about how the life expectancy has been climbing, from dying before childhood, to now. I thought that with CF now the life expectancy had to be about normal, but was it ever a shock when she said, "And now the life expectancy is higher than ever: 37 years old!!" and everyone started cheering. Except me. That's when it really hit me that CF is serious...it's always been pretty mild with me, but I know that for most it gets worse as you get older. And it's so scary to think about sometimes...all the time when I was little I used to think, "Wow, I wish I was lucky enough to just sit here and relax instead of doing Vest..." or, "How come it's ME stuck with taking all these pills?" And now all I can seem to think about when I think of CF is my future...I'm smart. I want to go to college, get a good job, get married, have kids...but knowing that that could be ruined by CF makes me really sad sometimes. I constantly worry about my future...I'm trying to do all I can to stay healthy, but what if that isn't enough? I try to distract myself, but everything I do makes me think of something that CF could take away from me in my future. I've always been a huge worrier, but never this worried...it is getting ridiculous. Everytime I think about CF it feels like I just got punched in the stomach and I just want to cry and cry...I could be worrying for no reason: a lot of people with CF live good, long lives. But not everyone does. What if that's me? What if I start going to the hospital all the time, or suddenly just decline, or need a transplant or something? What would happen to my life? Anyway, I am just constantly thinking about this, it is NOT healthy, that's for sure. Could it be the start of depression or something? I certainly don't want to go down that road...If I am how can I stop myself? Does anyone else feel like this or have any advice on how to deal with it? I need to have someone to talk to (and not my parents.) Thanks a lot <img src="i/expressions/face-icon-small-smile.gif" border="0">

-19forever93
14 years old with CF

19forever93 · Sep 1, 2008

The day I found out that the life expectancy for CF was only in the 30's was the day of the CF walk when I was about 10...it was the first time I had ever really listened to the speech there. The lady speaking was going on and on about how the life expectancy has been climbing, from dying before childhood, to now. I thought that with CF now the life expectancy had to be about normal, but was it ever a shock when she said, "And now the life expectancy is higher than ever: 37 years old!!" and everyone started cheering. Except me. That's when it really hit me that CF is serious...it's always been pretty mild with me, but I know that for most it gets worse as you get older. And it's so scary to think about sometimes...all the time when I was little I used to think, "Wow, I wish I was lucky enough to just sit here and relax instead of doing Vest..." or, "How come it's ME stuck with taking all these pills?" And now all I can seem to think about when I think of CF is my future...I'm smart. I want to go to college, get a good job, get married, have kids...but knowing that that could be ruined by CF makes me really sad sometimes. I constantly worry about my future...I'm trying to do all I can to stay healthy, but what if that isn't enough? I try to distract myself, but everything I do makes me think of something that CF could take away from me in my future. I've always been a huge worrier, but never this worried...it is getting ridiculous. Everytime I think about CF it feels like I just got punched in the stomach and I just want to cry and cry...I could be worrying for no reason: a lot of people with CF live good, long lives. But not everyone does. What if that's me? What if I start going to the hospital all the time, or suddenly just decline, or need a transplant or something? What would happen to my life? Anyway, I am just constantly thinking about this, it is NOT healthy, that's for sure. Could it be the start of depression or something? I certainly don't want to go down that road...If I am how can I stop myself? Does anyone else feel like this or have any advice on how to deal with it? I need to have someone to talk to (and not my parents.) Thanks a lot <img src="i/expressions/face-icon-small-smile.gif" border="0">

-19forever93
14 years old with CF

19forever93 · Sep 1, 2008

The day I found out that the life expectancy for CF was only in the 30's was the day of the CF walk when I was about 10...it was the first time I had ever really listened to the speech there. The lady speaking was going on and on about how the life expectancy has been climbing, from dying before childhood, to now. I thought that with CF now the life expectancy had to be about normal, but was it ever a shock when she said, "And now the life expectancy is higher than ever: 37 years old!!" and everyone started cheering. Except me. That's when it really hit me that CF is serious...it's always been pretty mild with me, but I know that for most it gets worse as you get older. And it's so scary to think about sometimes...all the time when I was little I used to think, "Wow, I wish I was lucky enough to just sit here and relax instead of doing Vest..." or, "How come it's ME stuck with taking all these pills?" And now all I can seem to think about when I think of CF is my future...I'm smart. I want to go to college, get a good job, get married, have kids...but knowing that that could be ruined by CF makes me really sad sometimes. I constantly worry about my future...I'm trying to do all I can to stay healthy, but what if that isn't enough? I try to distract myself, but everything I do makes me think of something that CF could take away from me in my future. I've always been a huge worrier, but never this worried...it is getting ridiculous. Everytime I think about CF it feels like I just got punched in the stomach and I just want to cry and cry...I could be worrying for no reason: a lot of people with CF live good, long lives. But not everyone does. What if that's me? What if I start going to the hospital all the time, or suddenly just decline, or need a transplant or something? What would happen to my life? Anyway, I am just constantly thinking about this, it is NOT healthy, that's for sure. Could it be the start of depression or something? I certainly don't want to go down that road...If I am how can I stop myself? Does anyone else feel like this or have any advice on how to deal with it? I need to have someone to talk to (and not my parents.) Thanks a lot <img src="i/expressions/face-icon-small-smile.gif" border="0">

-19forever93
14 years old with CF

19forever93 · Sep 1, 2008

The day I found out that the life expectancy for CF was only in the 30's was the day of the CF walk when I was about 10...it was the first time I had ever really listened to the speech there. The lady speaking was going on and on about how the life expectancy has been climbing, from dying before childhood, to now. I thought that with CF now the life expectancy had to be about normal, but was it ever a shock when she said, "And now the life expectancy is higher than ever: 37 years old!!" and everyone started cheering. Except me. That's when it really hit me that CF is serious...it's always been pretty mild with me, but I know that for most it gets worse as you get older. And it's so scary to think about sometimes...all the time when I was little I used to think, "Wow, I wish I was lucky enough to just sit here and relax instead of doing Vest..." or, "How come it's ME stuck with taking all these pills?" And now all I can seem to think about when I think of CF is my future...I'm smart. I want to go to college, get a good job, get married, have kids...but knowing that that could be ruined by CF makes me really sad sometimes. I constantly worry about my future...I'm trying to do all I can to stay healthy, but what if that isn't enough? I try to distract myself, but everything I do makes me think of something that CF could take away from me in my future. I've always been a huge worrier, but never this worried...it is getting ridiculous. Everytime I think about CF it feels like I just got punched in the stomach and I just want to cry and cry...I could be worrying for no reason: a lot of people with CF live good, long lives. But not everyone does. What if that's me? What if I start going to the hospital all the time, or suddenly just decline, or need a transplant or something? What would happen to my life? Anyway, I am just constantly thinking about this, it is NOT healthy, that's for sure. Could it be the start of depression or something? I certainly don't want to go down that road...If I am how can I stop myself? Does anyone else feel like this or have any advice on how to deal with it? I need to have someone to talk to (and not my parents.) Thanks a lot <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
 -19forever93
 14 years old with CF

welshwitch · Sep 2, 2008

i had the exact same revelation as you did...it feels like you have been kicked in the stomach like you described. i really could feel your story about the people cheering and clapping at the 37 year old lifespan thing....it makes you sick to think about it....I mean, dying is "so not my thing."

One thing that really helped me was to go talk to a councilor who specialized in talking to people with chronic illness. She made a really good point: why worry about something that hasn't happened yet? If you do so, you will paralyze yourself with fear and not get a chance to experience life. I thought it was a really good way to look at things: I haven't had anything especially horrible happen to me YET with CF, why should things not continue to go well?

It was good to talk to someone who was NOT my parents (who have a tendancy to either live in denial or tell me to "get over it"). I'd recommend talking to your doctor to get hooked up with someone you could talk to. Maybe only a couple times a month but it can really help with getting a healthy perspective.

welshwitch · Sep 2, 2008

i had the exact same revelation as you did...it feels like you have been kicked in the stomach like you described. i really could feel your story about the people cheering and clapping at the 37 year old lifespan thing....it makes you sick to think about it....I mean, dying is "so not my thing."

One thing that really helped me was to go talk to a councilor who specialized in talking to people with chronic illness. She made a really good point: why worry about something that hasn't happened yet? If you do so, you will paralyze yourself with fear and not get a chance to experience life. I thought it was a really good way to look at things: I haven't had anything especially horrible happen to me YET with CF, why should things not continue to go well?

It was good to talk to someone who was NOT my parents (who have a tendancy to either live in denial or tell me to "get over it"). I'd recommend talking to your doctor to get hooked up with someone you could talk to. Maybe only a couple times a month but it can really help with getting a healthy perspective.

welshwitch · Sep 2, 2008

i had the exact same revelation as you did...it feels like you have been kicked in the stomach like you described. i really could feel your story about the people cheering and clapping at the 37 year old lifespan thing....it makes you sick to think about it....I mean, dying is "so not my thing."

One thing that really helped me was to go talk to a councilor who specialized in talking to people with chronic illness. She made a really good point: why worry about something that hasn't happened yet? If you do so, you will paralyze yourself with fear and not get a chance to experience life. I thought it was a really good way to look at things: I haven't had anything especially horrible happen to me YET with CF, why should things not continue to go well?

It was good to talk to someone who was NOT my parents (who have a tendancy to either live in denial or tell me to "get over it"). I'd recommend talking to your doctor to get hooked up with someone you could talk to. Maybe only a couple times a month but it can really help with getting a healthy perspective.

welshwitch · Sep 2, 2008

i had the exact same revelation as you did...it feels like you have been kicked in the stomach like you described. i really could feel your story about the people cheering and clapping at the 37 year old lifespan thing....it makes you sick to think about it....I mean, dying is "so not my thing."

One thing that really helped me was to go talk to a councilor who specialized in talking to people with chronic illness. She made a really good point: why worry about something that hasn't happened yet? If you do so, you will paralyze yourself with fear and not get a chance to experience life. I thought it was a really good way to look at things: I haven't had anything especially horrible happen to me YET with CF, why should things not continue to go well?

It was good to talk to someone who was NOT my parents (who have a tendancy to either live in denial or tell me to "get over it"). I'd recommend talking to your doctor to get hooked up with someone you could talk to. Maybe only a couple times a month but it can really help with getting a healthy perspective.

welshwitch · Sep 2, 2008

i had the exact same revelation as you did...it feels like you have been kicked in the stomach like you described. i really could feel your story about the people cheering and clapping at the 37 year old lifespan thing....it makes you sick to think about it....I mean, dying is "so not my thing."
 
 One thing that really helped me was to go talk to a councilor who specialized in talking to people with chronic illness. She made a really good point: why worry about something that hasn't happened yet? If you do so, you will paralyze yourself with fear and not get a chance to experience life. I thought it was a really good way to look at things: I haven't had anything especially horrible happen to me YET with CF, why should things not continue to go well?
 
 It was good to talk to someone who was NOT my parents (who have a tendancy to either live in denial or tell me to "get over it"). I'd recommend talking to your doctor to get hooked up with someone you could talk to. Maybe only a couple times a month but it can really help with getting a healthy perspective.

Transplantmommy · Sep 2, 2008

First off...let me say Wow! You are well written for only 14!

I don't think that I have ever really had the relevations that you are talking about because when I was born the average age for someone with CF was 12. For me to be here at the age of 27 is amazing!

As for your future, don't let this thinking get in the way of the plans that you have for yourself. I had so many things going against me....my parents were split, neither of them have graduated high school, I have two older siblings who never graduated, and I moved all over the place. Dealing with all of that and CF was not easy. I moved out of my Mom's house when I was 17 and moved in with a friend and her parents. I graduated high school with Honors in 1999 and a month later got a job and moved into my own apartment. I had SSI, Medicaid, and a job, so I was able to pay for it...plus my boyfriend had moved in with me a month after that.

I started college that fall (a community college) and still kept my job. We bought a trailer that winter and moved out of the apartment. We lived in the trailer close to the college that I was going to and I took a different job that was also in the same town. I soon picked up another job too. I got a lot worse suring college and that is also when I had my first episode of coughing up blood. It was horrible. I made it through though and graduated with a Business Administration degree in May 2002. Nate and I got married in July that year and then made plans to sell the trailer and move 2 hours away. We stayed with his parents while we sold the trailer and as soon as it was sold we bought a house in the same area as his parents and have lived here for almost 6 years.

I got really sick in 2004 and that's when I was told that it was time for double lung and liver transplant evaluations. I still went on a cruise that we had planned in Jan 2005 and then started the evals in June. I then found out I was pregnant in August and that held off the evaluations because I would not terminate the pregnancy like the docs wanted me to. I got through it all!!

My son is now 2.5 (will be 3 in January) and my 2 year double lung and liver transplant anniversary is also in January! Transplants have changed my life. I don't think that I was ever really having to expect to go through that and I would hope that you don't either, but if you do, it is probably one of the best decisions you will ever make. I am doing so much more than I ever have been able to do, with having to avoid a few things, but at least I am still here for my family.

The point of my rambling is, please live your life to the fullest. Don't let the CF get in the way of your future. You're only 14....you have a great future ahead of you. If you're feeling depressed, you may want to see a doc for it. They can give you meds to try to get that straightened out. I was on something for about a year even though I wasn't diagnosed as depressed, my doctors wanted to keep me from getting there. I'm here if you need someone to talk to!

Transplantmommy · Sep 2, 2008

First off...let me say Wow! You are well written for only 14!

I don't think that I have ever really had the relevations that you are talking about because when I was born the average age for someone with CF was 12. For me to be here at the age of 27 is amazing!

As for your future, don't let this thinking get in the way of the plans that you have for yourself. I had so many things going against me....my parents were split, neither of them have graduated high school, I have two older siblings who never graduated, and I moved all over the place. Dealing with all of that and CF was not easy. I moved out of my Mom's house when I was 17 and moved in with a friend and her parents. I graduated high school with Honors in 1999 and a month later got a job and moved into my own apartment. I had SSI, Medicaid, and a job, so I was able to pay for it...plus my boyfriend had moved in with me a month after that.

I started college that fall (a community college) and still kept my job. We bought a trailer that winter and moved out of the apartment. We lived in the trailer close to the college that I was going to and I took a different job that was also in the same town. I soon picked up another job too. I got a lot worse suring college and that is also when I had my first episode of coughing up blood. It was horrible. I made it through though and graduated with a Business Administration degree in May 2002. Nate and I got married in July that year and then made plans to sell the trailer and move 2 hours away. We stayed with his parents while we sold the trailer and as soon as it was sold we bought a house in the same area as his parents and have lived here for almost 6 years.

I got really sick in 2004 and that's when I was told that it was time for double lung and liver transplant evaluations. I still went on a cruise that we had planned in Jan 2005 and then started the evals in June. I then found out I was pregnant in August and that held off the evaluations because I would not terminate the pregnancy like the docs wanted me to. I got through it all!!

My son is now 2.5 (will be 3 in January) and my 2 year double lung and liver transplant anniversary is also in January! Transplants have changed my life. I don't think that I was ever really having to expect to go through that and I would hope that you don't either, but if you do, it is probably one of the best decisions you will ever make. I am doing so much more than I ever have been able to do, with having to avoid a few things, but at least I am still here for my family.

The point of my rambling is, please live your life to the fullest. Don't let the CF get in the way of your future. You're only 14....you have a great future ahead of you. If you're feeling depressed, you may want to see a doc for it. They can give you meds to try to get that straightened out. I was on something for about a year even though I wasn't diagnosed as depressed, my doctors wanted to keep me from getting there. I'm here if you need someone to talk to!

Transplantmommy · Sep 2, 2008

First off...let me say Wow! You are well written for only 14!

I don't think that I have ever really had the relevations that you are talking about because when I was born the average age for someone with CF was 12. For me to be here at the age of 27 is amazing!

As for your future, don't let this thinking get in the way of the plans that you have for yourself. I had so many things going against me....my parents were split, neither of them have graduated high school, I have two older siblings who never graduated, and I moved all over the place. Dealing with all of that and CF was not easy. I moved out of my Mom's house when I was 17 and moved in with a friend and her parents. I graduated high school with Honors in 1999 and a month later got a job and moved into my own apartment. I had SSI, Medicaid, and a job, so I was able to pay for it...plus my boyfriend had moved in with me a month after that.

I started college that fall (a community college) and still kept my job. We bought a trailer that winter and moved out of the apartment. We lived in the trailer close to the college that I was going to and I took a different job that was also in the same town. I soon picked up another job too. I got a lot worse suring college and that is also when I had my first episode of coughing up blood. It was horrible. I made it through though and graduated with a Business Administration degree in May 2002. Nate and I got married in July that year and then made plans to sell the trailer and move 2 hours away. We stayed with his parents while we sold the trailer and as soon as it was sold we bought a house in the same area as his parents and have lived here for almost 6 years.

I got really sick in 2004 and that's when I was told that it was time for double lung and liver transplant evaluations. I still went on a cruise that we had planned in Jan 2005 and then started the evals in June. I then found out I was pregnant in August and that held off the evaluations because I would not terminate the pregnancy like the docs wanted me to. I got through it all!!

My son is now 2.5 (will be 3 in January) and my 2 year double lung and liver transplant anniversary is also in January! Transplants have changed my life. I don't think that I was ever really having to expect to go through that and I would hope that you don't either, but if you do, it is probably one of the best decisions you will ever make. I am doing so much more than I ever have been able to do, with having to avoid a few things, but at least I am still here for my family.

The point of my rambling is, please live your life to the fullest. Don't let the CF get in the way of your future. You're only 14....you have a great future ahead of you. If you're feeling depressed, you may want to see a doc for it. They can give you meds to try to get that straightened out. I was on something for about a year even though I wasn't diagnosed as depressed, my doctors wanted to keep me from getting there. I'm here if you need someone to talk to!

Transplantmommy · Sep 2, 2008

First off...let me say Wow! You are well written for only 14!

I don't think that I have ever really had the relevations that you are talking about because when I was born the average age for someone with CF was 12. For me to be here at the age of 27 is amazing!

As for your future, don't let this thinking get in the way of the plans that you have for yourself. I had so many things going against me....my parents were split, neither of them have graduated high school, I have two older siblings who never graduated, and I moved all over the place. Dealing with all of that and CF was not easy. I moved out of my Mom's house when I was 17 and moved in with a friend and her parents. I graduated high school with Honors in 1999 and a month later got a job and moved into my own apartment. I had SSI, Medicaid, and a job, so I was able to pay for it...plus my boyfriend had moved in with me a month after that.

I started college that fall (a community college) and still kept my job. We bought a trailer that winter and moved out of the apartment. We lived in the trailer close to the college that I was going to and I took a different job that was also in the same town. I soon picked up another job too. I got a lot worse suring college and that is also when I had my first episode of coughing up blood. It was horrible. I made it through though and graduated with a Business Administration degree in May 2002. Nate and I got married in July that year and then made plans to sell the trailer and move 2 hours away. We stayed with his parents while we sold the trailer and as soon as it was sold we bought a house in the same area as his parents and have lived here for almost 6 years.

I got really sick in 2004 and that's when I was told that it was time for double lung and liver transplant evaluations. I still went on a cruise that we had planned in Jan 2005 and then started the evals in June. I then found out I was pregnant in August and that held off the evaluations because I would not terminate the pregnancy like the docs wanted me to. I got through it all!!

My son is now 2.5 (will be 3 in January) and my 2 year double lung and liver transplant anniversary is also in January! Transplants have changed my life. I don't think that I was ever really having to expect to go through that and I would hope that you don't either, but if you do, it is probably one of the best decisions you will ever make. I am doing so much more than I ever have been able to do, with having to avoid a few things, but at least I am still here for my family.

The point of my rambling is, please live your life to the fullest. Don't let the CF get in the way of your future. You're only 14....you have a great future ahead of you. If you're feeling depressed, you may want to see a doc for it. They can give you meds to try to get that straightened out. I was on something for about a year even though I wasn't diagnosed as depressed, my doctors wanted to keep me from getting there. I'm here if you need someone to talk to!

Transplantmommy · Sep 2, 2008

First off...let me say Wow! You are well written for only 14!
 
 I don't think that I have ever really had the relevations that you are talking about because when I was born the average age for someone with CF was 12. For me to be here at the age of 27 is amazing!
 
 As for your future, don't let this thinking get in the way of the plans that you have for yourself. I had so many things going against me....my parents were split, neither of them have graduated high school, I have two older siblings who never graduated, and I moved all over the place. Dealing with all of that and CF was not easy. I moved out of my Mom's house when I was 17 and moved in with a friend and her parents. I graduated high school with Honors in 1999 and a month later got a job and moved into my own apartment. I had SSI, Medicaid, and a job, so I was able to pay for it...plus my boyfriend had moved in with me a month after that.
 
 I started college that fall (a community college) and still kept my job. We bought a trailer that winter and moved out of the apartment. We lived in the trailer close to the college that I was going to and I took a different job that was also in the same town. I soon picked up another job too. I got a lot worse suring college and that is also when I had my first episode of coughing up blood. It was horrible. I made it through though and graduated with a Business Administration degree in May 2002. Nate and I got married in July that year and then made plans to sell the trailer and move 2 hours away. We stayed with his parents while we sold the trailer and as soon as it was sold we bought a house in the same area as his parents and have lived here for almost 6 years.
 
 I got really sick in 2004 and that's when I was told that it was time for double lung and liver transplant evaluations. I still went on a cruise that we had planned in Jan 2005 and then started the evals in June. I then found out I was pregnant in August and that held off the evaluations because I would not terminate the pregnancy like the docs wanted me to. I got through it all!!
 
 My son is now 2.5 (will be 3 in January) and my 2 year double lung and liver transplant anniversary is also in January! Transplants have changed my life. I don't think that I was ever really having to expect to go through that and I would hope that you don't either, but if you do, it is probably one of the best decisions you will ever make. I am doing so much more than I ever have been able to do, with having to avoid a few things, but at least I am still here for my family.
 
 The point of my rambling is, please live your life to the fullest. Don't let the CF get in the way of your future. You're only 14....you have a great future ahead of you. If you're feeling depressed, you may want to see a doc for it. They can give you meds to try to get that straightened out. I was on something for about a year even though I wasn't diagnosed as depressed, my doctors wanted to keep me from getting there. I'm here if you need someone to talk to!

laulau555 · Sep 6, 2008

I too have had that revelation. And at times, yeah, I would get down on myself about it. I would worry about getting worse, and just cry myself to sleep some nights. But then I started getting older, thinking about what to do for a job, where to go to college. And I realized I can still do all that, I may have to work around my CF, but its possible. As for down the road in my 30's I've always been prepared for that, but now I like to think that I can beat the odds. AND 37 is actually the MEDIAN age for survival, meaning 50% of people live LONGER than that. However, I do cringe at the thought of having kids. I worry that I will have to leave them motherless when I'm older, which I don't want to do. But I find that thinking of the future is a big No-No for me, right now I have to live in the present and the best I can do is take care of myself every day and do whatever is necessary for a healthy life.

laulau555 · Sep 6, 2008

I too have had that revelation. And at times, yeah, I would get down on myself about it. I would worry about getting worse, and just cry myself to sleep some nights. But then I started getting older, thinking about what to do for a job, where to go to college. And I realized I can still do all that, I may have to work around my CF, but its possible. As for down the road in my 30's I've always been prepared for that, but now I like to think that I can beat the odds. AND 37 is actually the MEDIAN age for survival, meaning 50% of people live LONGER than that. However, I do cringe at the thought of having kids. I worry that I will have to leave them motherless when I'm older, which I don't want to do. But I find that thinking of the future is a big No-No for me, right now I have to live in the present and the best I can do is take care of myself every day and do whatever is necessary for a healthy life.

laulau555 · Sep 6, 2008

I too have had that revelation. And at times, yeah, I would get down on myself about it. I would worry about getting worse, and just cry myself to sleep some nights. But then I started getting older, thinking about what to do for a job, where to go to college. And I realized I can still do all that, I may have to work around my CF, but its possible. As for down the road in my 30's I've always been prepared for that, but now I like to think that I can beat the odds. AND 37 is actually the MEDIAN age for survival, meaning 50% of people live LONGER than that. However, I do cringe at the thought of having kids. I worry that I will have to leave them motherless when I'm older, which I don't want to do. But I find that thinking of the future is a big No-No for me, right now I have to live in the present and the best I can do is take care of myself every day and do whatever is necessary for a healthy life.

laulau555 · Sep 6, 2008

I too have had that revelation. And at times, yeah, I would get down on myself about it. I would worry about getting worse, and just cry myself to sleep some nights. But then I started getting older, thinking about what to do for a job, where to go to college. And I realized I can still do all that, I may have to work around my CF, but its possible. As for down the road in my 30's I've always been prepared for that, but now I like to think that I can beat the odds. AND 37 is actually the MEDIAN age for survival, meaning 50% of people live LONGER than that. However, I do cringe at the thought of having kids. I worry that I will have to leave them motherless when I'm older, which I don't want to do. But I find that thinking of the future is a big No-No for me, right now I have to live in the present and the best I can do is take care of myself every day and do whatever is necessary for a healthy life.

laulau555 · Sep 6, 2008

I too have had that revelation. And at times, yeah, I would get down on myself about it. I would worry about getting worse, and just cry myself to sleep some nights. But then I started getting older, thinking about what to do for a job, where to go to college. And I realized I can still do all that, I may have to work around my CF, but its possible. As for down the road in my 30's I've always been prepared for that, but now I like to think that I can beat the odds. AND 37 is actually the MEDIAN age for survival, meaning 50% of people live LONGER than that. However, I do cringe at the thought of having kids. I worry that I will have to leave them motherless when I'm older, which I don't want to do. But I find that thinking of the future is a big No-No for me, right now I have to live in the present and the best I can do is take care of myself every day and do whatever is necessary for a healthy life.

The Future

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