The Synagis shot?

[SARAHSARAH253]

Our son was born last Aug @ 34 weeks....Both his CF CLinic and his regular doctor made sure that our son got Synagis shots last fall/winter...I think they helped sooooo much....Our son never ever even caught a cold or runny nose..I'm hoping, and pushing for my son to recieve them again this fall/winter. But, yes they are very painful to get...Every nurse warned us...I have never heard of giving the shot at home.

Sarah
Mommy to Johnny 1 years old w/cf

 

[SARAHSARAH253]

Our son was born last Aug @ 34 weeks....Both his CF CLinic and his regular doctor made sure that our son got Synagis shots last fall/winter...I think they helped sooooo much....Our son never ever even caught a cold or runny nose..I'm hoping, and pushing for my son to recieve them again this fall/winter. But, yes they are very painful to get...Every nurse warned us...I have never heard of giving the shot at home.

Sarah
Mommy to Johnny 1 years old w/cf

 

[SARAHSARAH253]

Our son was born last Aug @ 34 weeks....Both his CF CLinic and his regular doctor made sure that our son got Synagis shots last fall/winter...I think they helped sooooo much....Our son never ever even caught a cold or runny nose..I'm hoping, and pushing for my son to recieve them again this fall/winter. But, yes they are very painful to get...Every nurse warned us...I have never heard of giving the shot at home.

Sarah
Mommy to Johnny 1 years old w/cf

 

[SARAHSARAH253]

Our son was born last Aug @ 34 weeks....Both his CF CLinic and his regular doctor made sure that our son got Synagis shots last fall/winter...I think they helped sooooo much....Our son never ever even caught a cold or runny nose..I'm hoping, and pushing for my son to recieve them again this fall/winter. But, yes they are very painful to get...Every nurse warned us...I have never heard of giving the shot at home.

Sarah
Mommy to Johnny 1 years old w/cf

 

[SARAHSARAH253]

Our son was born last Aug @ 34 weeks....Both his CF CLinic and his regular doctor made sure that our son got Synagis shots last fall/winter...I think they helped sooooo much....Our son never ever even caught a cold or runny nose..I'm hoping, and pushing for my son to recieve them again this fall/winter. But, yes they are very painful to get...Every nurse warned us...I have never heard of giving the shot at home.
<br />
<br />Sarah
<br />Mommy to Johnny 1 years old w/cf

 

[izemmom]

Emily got these the first winter, but not the second. They deemed her "too healthy" to qualify. Hmmmmph. She was sick all that winter, although not with RSV. We had a nurse come to weigh her and give the shot monthly, and it was mostly covered by insurance. I think each shot cost us like $100 out of pocket, and we were eventually billed for part of the nursing services.

She was just a little peanut when she was getting them, but I don't remember that she was in much pain.

If you can get them, get them! Lots of people are denied.

 

[izemmom]

Emily got these the first winter, but not the second. They deemed her "too healthy" to qualify. Hmmmmph. She was sick all that winter, although not with RSV. We had a nurse come to weigh her and give the shot monthly, and it was mostly covered by insurance. I think each shot cost us like $100 out of pocket, and we were eventually billed for part of the nursing services.

She was just a little peanut when she was getting them, but I don't remember that she was in much pain.

If you can get them, get them! Lots of people are denied.

 

[izemmom]

Emily got these the first winter, but not the second. They deemed her "too healthy" to qualify. Hmmmmph. She was sick all that winter, although not with RSV. We had a nurse come to weigh her and give the shot monthly, and it was mostly covered by insurance. I think each shot cost us like $100 out of pocket, and we were eventually billed for part of the nursing services.

She was just a little peanut when she was getting them, but I don't remember that she was in much pain.

If you can get them, get them! Lots of people are denied.

 

[izemmom]

Emily got these the first winter, but not the second. They deemed her "too healthy" to qualify. Hmmmmph. She was sick all that winter, although not with RSV. We had a nurse come to weigh her and give the shot monthly, and it was mostly covered by insurance. I think each shot cost us like $100 out of pocket, and we were eventually billed for part of the nursing services.

She was just a little peanut when she was getting them, but I don't remember that she was in much pain.

If you can get them, get them! Lots of people are denied.

 

[izemmom]

Emily got these the first winter, but not the second. They deemed her "too healthy" to qualify. Hmmmmph. She was sick all that winter, although not with RSV. We had a nurse come to weigh her and give the shot monthly, and it was mostly covered by insurance. I think each shot cost us like $100 out of pocket, and we were eventually billed for part of the nursing services.
<br />
<br />She was just a little peanut when she was getting them, but I don't remember that she was in much pain.
<br />
<br />If you can get them, get them! Lots of people are denied.

 

[kitomd21]

It's been recommended that Ellie receive them. We're fighting with insurance to cover it....they are trying to justify their position by saying she doesn't have chronic respiratory illness. HELLO?! Doesn't CF cause chronic lung issues?! Ridiculous. They claim that when she was hospitalized she didn't receive any inhaled medications, thus she doesn't have lung issues. Yes, she did receive inhaled treatments. This is also an insurance company that tried to deny coverage for her last few days of hospitalization because she didn't need to be hospitalized that long. THEY DEEMED SHE DIDN'T NEED TO BE HOSPITALIZED THE LAST FEW DAYS?!! They were trying to say that she was there those last few days because we elected to keep her there. Absurd. Had to vent. At any rate - we're hoping to get the RSV vaccines!! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[kitomd21]

It's been recommended that Ellie receive them. We're fighting with insurance to cover it....they are trying to justify their position by saying she doesn't have chronic respiratory illness. HELLO?! Doesn't CF cause chronic lung issues?! Ridiculous. They claim that when she was hospitalized she didn't receive any inhaled medications, thus she doesn't have lung issues. Yes, she did receive inhaled treatments. This is also an insurance company that tried to deny coverage for her last few days of hospitalization because she didn't need to be hospitalized that long. THEY DEEMED SHE DIDN'T NEED TO BE HOSPITALIZED THE LAST FEW DAYS?!! They were trying to say that she was there those last few days because we elected to keep her there. Absurd. Had to vent. At any rate - we're hoping to get the RSV vaccines!! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[kitomd21]

It's been recommended that Ellie receive them. We're fighting with insurance to cover it....they are trying to justify their position by saying she doesn't have chronic respiratory illness. HELLO?! Doesn't CF cause chronic lung issues?! Ridiculous. They claim that when she was hospitalized she didn't receive any inhaled medications, thus she doesn't have lung issues. Yes, she did receive inhaled treatments. This is also an insurance company that tried to deny coverage for her last few days of hospitalization because she didn't need to be hospitalized that long. THEY DEEMED SHE DIDN'T NEED TO BE HOSPITALIZED THE LAST FEW DAYS?!! They were trying to say that she was there those last few days because we elected to keep her there. Absurd. Had to vent. At any rate - we're hoping to get the RSV vaccines!! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[kitomd21]

It's been recommended that Ellie receive them. We're fighting with insurance to cover it....they are trying to justify their position by saying she doesn't have chronic respiratory illness. HELLO?! Doesn't CF cause chronic lung issues?! Ridiculous. They claim that when she was hospitalized she didn't receive any inhaled medications, thus she doesn't have lung issues. Yes, she did receive inhaled treatments. This is also an insurance company that tried to deny coverage for her last few days of hospitalization because she didn't need to be hospitalized that long. THEY DEEMED SHE DIDN'T NEED TO BE HOSPITALIZED THE LAST FEW DAYS?!! They were trying to say that she was there those last few days because we elected to keep her there. Absurd. Had to vent. At any rate - we're hoping to get the RSV vaccines!! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[kitomd21]

It's been recommended that Ellie receive them. We're fighting with insurance to cover it....they are trying to justify their position by saying she doesn't have chronic respiratory illness. HELLO?! Doesn't CF cause chronic lung issues?! Ridiculous. They claim that when she was hospitalized she didn't receive any inhaled medications, thus she doesn't have lung issues. Yes, she did receive inhaled treatments. This is also an insurance company that tried to deny coverage for her last few days of hospitalization because she didn't need to be hospitalized that long. THEY DEEMED SHE DIDN'T NEED TO BE HOSPITALIZED THE LAST FEW DAYS?!! They were trying to say that she was there those last few days because we elected to keep her there. Absurd. Had to vent. At any rate - we're hoping to get the RSV vaccines!! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Ratatosk]

When DS was a baby his doctors recommended the synagis shot that first year, especially because he attended daycare. Locally BCBS guidelines didn't consider CF to be on their list. Insurance denied it -- we wrote letters our doctor wrote letters and finally our attorney faxed a letter indicating that the cost of the shots ($3000 a piece) far outweighed the costs of hospitalization, lung damage and stress to parents dealing with a genetic disease. DS was approved within the hour, when we messed around with calls and letters for two weeks -- we used similar wording, but the attorney had a LOT more pull.

We had to go to the clinic once a month during RSV/cold and flu season. They'd weigh DS, mix up the vaccine, and then I believe they had to wait 15-20 minutes for it to settle (bubbles?). Got his shot and off we went.

Marla, it seems strange that the clinic would suggest doing it yourself, because I thought it was more cost effective, efficient to go to a major clinic where there are more patients. We'd asked if our neighborhood clinic could do it and we were told because he was the only infant at the time in our City, they didn't carry the vaccine and we'd have to drive 20 minutes into the downtown to the main peds clinic.

 

[Ratatosk]

When DS was a baby his doctors recommended the synagis shot that first year, especially because he attended daycare. Locally BCBS guidelines didn't consider CF to be on their list. Insurance denied it -- we wrote letters our doctor wrote letters and finally our attorney faxed a letter indicating that the cost of the shots ($3000 a piece) far outweighed the costs of hospitalization, lung damage and stress to parents dealing with a genetic disease. DS was approved within the hour, when we messed around with calls and letters for two weeks -- we used similar wording, but the attorney had a LOT more pull.

We had to go to the clinic once a month during RSV/cold and flu season. They'd weigh DS, mix up the vaccine, and then I believe they had to wait 15-20 minutes for it to settle (bubbles?). Got his shot and off we went.

Marla, it seems strange that the clinic would suggest doing it yourself, because I thought it was more cost effective, efficient to go to a major clinic where there are more patients. We'd asked if our neighborhood clinic could do it and we were told because he was the only infant at the time in our City, they didn't carry the vaccine and we'd have to drive 20 minutes into the downtown to the main peds clinic.

 

[Ratatosk]

When DS was a baby his doctors recommended the synagis shot that first year, especially because he attended daycare. Locally BCBS guidelines didn't consider CF to be on their list. Insurance denied it -- we wrote letters our doctor wrote letters and finally our attorney faxed a letter indicating that the cost of the shots ($3000 a piece) far outweighed the costs of hospitalization, lung damage and stress to parents dealing with a genetic disease. DS was approved within the hour, when we messed around with calls and letters for two weeks -- we used similar wording, but the attorney had a LOT more pull.

We had to go to the clinic once a month during RSV/cold and flu season. They'd weigh DS, mix up the vaccine, and then I believe they had to wait 15-20 minutes for it to settle (bubbles?). Got his shot and off we went.

Marla, it seems strange that the clinic would suggest doing it yourself, because I thought it was more cost effective, efficient to go to a major clinic where there are more patients. We'd asked if our neighborhood clinic could do it and we were told because he was the only infant at the time in our City, they didn't carry the vaccine and we'd have to drive 20 minutes into the downtown to the main peds clinic.

 

[Ratatosk]

When DS was a baby his doctors recommended the synagis shot that first year, especially because he attended daycare. Locally BCBS guidelines didn't consider CF to be on their list. Insurance denied it -- we wrote letters our doctor wrote letters and finally our attorney faxed a letter indicating that the cost of the shots ($3000 a piece) far outweighed the costs of hospitalization, lung damage and stress to parents dealing with a genetic disease. DS was approved within the hour, when we messed around with calls and letters for two weeks -- we used similar wording, but the attorney had a LOT more pull.

We had to go to the clinic once a month during RSV/cold and flu season. They'd weigh DS, mix up the vaccine, and then I believe they had to wait 15-20 minutes for it to settle (bubbles?). Got his shot and off we went.

Marla, it seems strange that the clinic would suggest doing it yourself, because I thought it was more cost effective, efficient to go to a major clinic where there are more patients. We'd asked if our neighborhood clinic could do it and we were told because he was the only infant at the time in our City, they didn't carry the vaccine and we'd have to drive 20 minutes into the downtown to the main peds clinic.

 

[Ratatosk]

When DS was a baby his doctors recommended the synagis shot that first year, especially because he attended daycare. Locally BCBS guidelines didn't consider CF to be on their list. Insurance denied it -- we wrote letters our doctor wrote letters and finally our attorney faxed a letter indicating that the cost of the shots ($3000 a piece) far outweighed the costs of hospitalization, lung damage and stress to parents dealing with a genetic disease. DS was approved within the hour, when we messed around with calls and letters for two weeks -- we used similar wording, but the attorney had a LOT more pull.
<br />
<br />We had to go to the clinic once a month during RSV/cold and flu season. They'd weigh DS, mix up the vaccine, and then I believe they had to wait 15-20 minutes for it to settle (bubbles?). Got his shot and off we went.
<br />
<br />Marla, it seems strange that the clinic would suggest doing it yourself, because I thought it was more cost effective, efficient to go to a major clinic where there are more patients. We'd asked if our neighborhood clinic could do it and we were told because he was the only infant at the time in our City, they didn't carry the vaccine and we'd have to drive 20 minutes into the downtown to the main peds clinic.