the vest

A

anonymous

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>tammykrumrey</b></i>


they answer themselves. It has really helped them become more responsible in their care, even at such a young age. They may seem too young, but they have not had any problems with it. The only time they have a problem answering a question is when they know they aren't doing it as they are told to. For example, my older one stopped taking her enzymes. We tried everything under the sun! But at her appt last week, Dr. Ferkol, in a very gentle-but stern-way, explained to her what she was doing to her body and that it was so very important for her to take them. Guess what---no problems taking them this week, and she even gained a pound in this one weeks time!



Now their relationship has grown with their CF doctor and they trust him and the nurses and understand that there are certain things mom has control of and certain things they need to take control of. I am there to make sure it ultimately gets done, but it has truely helped them out. I simply explained to our CF team at one of our appts last year that the girls were going to start answering more of the questions, and it has worked great!</end quote></div>

what a great mom you are! having kids be accountable to someone other than their parents is fantastic!
 
M

mum2kj

New member
Bibery worked well when kj was little, she loved lollies soooooooo much that I used to have a huge jar of them and if she did her physio properly she could get a couple <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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mum2kj

New member
Bibery worked well when kj was little, she loved lollies soooooooo much that I used to have a huge jar of them and if she did her physio properly she could get a couple <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
M

mum2kj

New member
Bibery worked well when kj was little, she loved lollies soooooooo much that I used to have a huge jar of them and if she did her physio properly she could get a couple <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
R

Ratatosk

Administrator
Staff member
DS has issues with the vest when we first put it on him. He fusses a little bit until we find something on tv that he really wants to watch. Or if he gets scrunched down and can't quite see the tv. I end up propping him back up a few times during treatments 'cuz he hasn't figured out how to get himself upright again -- like a turtle stuck on it's back <img src="i/expressions/face-icon-small-smile.gif" border="0"> Most recently he's been watching Sponge Bob Scaredy Pants and Best Day Ever over and over and over. But it keeps him happy! He also likes to snack -- pickle slices and dry roasted peanuts.

I still do CPT for the early 6 a.m. treatment, so as not to wake him up, so he gets to sleep in an extra hour and half. We have a schedule and we stick to it -- it's a routine and he pretty much knows we mean business 6 a.m., 5:30 p.m. and 10 p.m. Early on with the vest he tried to get out of it, but when we offered CPT instead, he opted for the vest instead.
 
R

Ratatosk

Administrator
Staff member
DS has issues with the vest when we first put it on him. He fusses a little bit until we find something on tv that he really wants to watch. Or if he gets scrunched down and can't quite see the tv. I end up propping him back up a few times during treatments 'cuz he hasn't figured out how to get himself upright again -- like a turtle stuck on it's back <img src="i/expressions/face-icon-small-smile.gif" border="0"> Most recently he's been watching Sponge Bob Scaredy Pants and Best Day Ever over and over and over. But it keeps him happy! He also likes to snack -- pickle slices and dry roasted peanuts.

I still do CPT for the early 6 a.m. treatment, so as not to wake him up, so he gets to sleep in an extra hour and half. We have a schedule and we stick to it -- it's a routine and he pretty much knows we mean business 6 a.m., 5:30 p.m. and 10 p.m. Early on with the vest he tried to get out of it, but when we offered CPT instead, he opted for the vest instead.
 
R

Ratatosk

Administrator
Staff member
DS has issues with the vest when we first put it on him. He fusses a little bit until we find something on tv that he really wants to watch. Or if he gets scrunched down and can't quite see the tv. I end up propping him back up a few times during treatments 'cuz he hasn't figured out how to get himself upright again -- like a turtle stuck on it's back <img src="i/expressions/face-icon-small-smile.gif" border="0"> Most recently he's been watching Sponge Bob Scaredy Pants and Best Day Ever over and over and over. But it keeps him happy! He also likes to snack -- pickle slices and dry roasted peanuts.

I still do CPT for the early 6 a.m. treatment, so as not to wake him up, so he gets to sleep in an extra hour and half. We have a schedule and we stick to it -- it's a routine and he pretty much knows we mean business 6 a.m., 5:30 p.m. and 10 p.m. Early on with the vest he tried to get out of it, but when we offered CPT instead, he opted for the vest instead.
 
S

sweetwhite30

New member
Isaiah has always loved cpt , he feel in love with it i will say. We have to do it for him to fall asleep but i talked to the c.f. doctor yesterday and told me not to worry over it right now as long as we do cpt 2 times a day. So i feel a little bit better about it. But he asked that we try to get him to do it a little at a time but if not ,not to worry that chest therapy is just as good but i think the vest is way better then cpt. I feel it works that mucus out better. But i will offer it and see how many years it will take to get him on it successfully.he just loves that cpt time . I have never seen a c.f. kid love chest physio therapy as much as him.
mary mom to isaiah 4 yr old with c.f. born sept 27 of 2002
 
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sweetwhite30

New member
Isaiah has always loved cpt , he feel in love with it i will say. We have to do it for him to fall asleep but i talked to the c.f. doctor yesterday and told me not to worry over it right now as long as we do cpt 2 times a day. So i feel a little bit better about it. But he asked that we try to get him to do it a little at a time but if not ,not to worry that chest therapy is just as good but i think the vest is way better then cpt. I feel it works that mucus out better. But i will offer it and see how many years it will take to get him on it successfully.he just loves that cpt time . I have never seen a c.f. kid love chest physio therapy as much as him.
mary mom to isaiah 4 yr old with c.f. born sept 27 of 2002
 
S

sweetwhite30

New member
Isaiah has always loved cpt , he feel in love with it i will say. We have to do it for him to fall asleep but i talked to the c.f. doctor yesterday and told me not to worry over it right now as long as we do cpt 2 times a day. So i feel a little bit better about it. But he asked that we try to get him to do it a little at a time but if not ,not to worry that chest therapy is just as good but i think the vest is way better then cpt. I feel it works that mucus out better. But i will offer it and see how many years it will take to get him on it successfully.he just loves that cpt time . I have never seen a c.f. kid love chest physio therapy as much as him.
mary mom to isaiah 4 yr old with c.f. born sept 27 of 2002
 
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Mommafirst

Guest
I don't have any advice, we don't have the vest yet -- my daughter is too young. I am curious though, when most of the kids were diagnosed. Do you think that being diagnosed very early and doing CPT from the get go will minimize the rebelling? Or do you think its just par for the course, they all rebel at some point?

Since my daughter has no lung involvement (or pancreatic involvement) yet, our docs left it up to us whether we wanted to start CPT when we were diagnosed. We decided (with the help of some very smart people on this board) that its better to get her used to it now. She hates the front and sides, but doesn't mind the back being done. I've been longing for the day when we get to get the vest, so that she will get a more consistent therapy every time. But now I am worried about the rebelling and fighting you all mention.

Why is everything about CF do gosh darn difficult???????
 
M

Mommafirst

Guest
I don't have any advice, we don't have the vest yet -- my daughter is too young. I am curious though, when most of the kids were diagnosed. Do you think that being diagnosed very early and doing CPT from the get go will minimize the rebelling? Or do you think its just par for the course, they all rebel at some point?

Since my daughter has no lung involvement (or pancreatic involvement) yet, our docs left it up to us whether we wanted to start CPT when we were diagnosed. We decided (with the help of some very smart people on this board) that its better to get her used to it now. She hates the front and sides, but doesn't mind the back being done. I've been longing for the day when we get to get the vest, so that she will get a more consistent therapy every time. But now I am worried about the rebelling and fighting you all mention.

Why is everything about CF do gosh darn difficult???????
 
M

Mommafirst

Guest
I don't have any advice, we don't have the vest yet -- my daughter is too young. I am curious though, when most of the kids were diagnosed. Do you think that being diagnosed very early and doing CPT from the get go will minimize the rebelling? Or do you think its just par for the course, they all rebel at some point?

Since my daughter has no lung involvement (or pancreatic involvement) yet, our docs left it up to us whether we wanted to start CPT when we were diagnosed. We decided (with the help of some very smart people on this board) that its better to get her used to it now. She hates the front and sides, but doesn't mind the back being done. I've been longing for the day when we get to get the vest, so that she will get a more consistent therapy every time. But now I am worried about the rebelling and fighting you all mention.

Why is everything about CF do gosh darn difficult???????
 
R

Ratatosk

Administrator
Staff member
We've done CPT, now the vest since DS was about a week old. It actually calms him, lulls him to sleep. Friend of mine's granddaughter wasn't diagnosed until she was 18 months old and they struggled for a long time, until they got the vest beatments took 1 1/2 hours. She'd cry for help, kick scream the entire time.

Our doctor mentioned that sometimes he'll do CPT on the older kids when they come in for appointments and some of the moms will say jokingly say no. They like CPT much better than the vest and will start expecting it again.
 
R

Ratatosk

Administrator
Staff member
We've done CPT, now the vest since DS was about a week old. It actually calms him, lulls him to sleep. Friend of mine's granddaughter wasn't diagnosed until she was 18 months old and they struggled for a long time, until they got the vest beatments took 1 1/2 hours. She'd cry for help, kick scream the entire time.

Our doctor mentioned that sometimes he'll do CPT on the older kids when they come in for appointments and some of the moms will say jokingly say no. They like CPT much better than the vest and will start expecting it again.
 
R

Ratatosk

Administrator
Staff member
We've done CPT, now the vest since DS was about a week old. It actually calms him, lulls him to sleep. Friend of mine's granddaughter wasn't diagnosed until she was 18 months old and they struggled for a long time, until they got the vest beatments took 1 1/2 hours. She'd cry for help, kick scream the entire time.

Our doctor mentioned that sometimes he'll do CPT on the older kids when they come in for appointments and some of the moms will say jokingly say no. They like CPT much better than the vest and will start expecting it again.
 
S

sweetwhite30

New member
I do not know but it is.Isaiah was dxed at 2 months old basically and loves cpt but wont do the vest so we do all cpt 3 times a day.he has loved it since was a baby and nothing else to him will do. I guess it it all up to what the child feels as comfort. mAYBE its the closeness of him and me time and the singing i do when i am doing pitty pat as we call it . We started lately talking about what a good cough is and a bad cough is . Kids will let you what they want and are ready to know i am learning.I am stubburn and want him doing the vest because it will do better then cpt i feel but i will not stress over it and continue cpt until he allows me to use the vest for part of his therapy... the docotr says i am lucky to have a child so in love with cpt because most hate it or are difficult during it , he on the other hand wants more and more of it... makes me smile just thinking of how he asks me for it ... kids are amazing!
 
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