They just don't get it...

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chrissyd

New member
I think you should reply to her email and bluntly tell her what you are going through. How else are people going to know your struggle?

Let her know that you have every intention of seeing your Grandma...but CF has reared its ugly head and made the everyday activities that many take for granted all but impossible for you. Or send her a link to this thread! You can let the posts from other parents and people with CF do the talking.



<img src="i/expressions/rose.gif" border="0">
 
C

chrissyd

New member
I think you should reply to her email and bluntly tell her what you are going through. How else are people going to know your struggle?

Let her know that you have every intention of seeing your Grandma...but CF has reared its ugly head and made the everyday activities that many take for granted all but impossible for you. Or send her a link to this thread! You can let the posts from other parents and people with CF do the talking.



<img src="i/expressions/rose.gif" border="0">
 
C

chrissyd

New member
I think you should reply to her email and bluntly tell her what you are going through. How else are people going to know your struggle?

Let her know that you have every intention of seeing your Grandma...but CF has reared its ugly head and made the everyday activities that many take for granted all but impossible for you. Or send her a link to this thread! You can let the posts from other parents and people with CF do the talking.



<img src="i/expressions/rose.gif" border="0">
 
C

chrissyd

New member
I think you should reply to her email and bluntly tell her what you are going through. How else are people going to know your struggle?

Let her know that you have every intention of seeing your Grandma...but CF has reared its ugly head and made the everyday activities that many take for granted all but impossible for you. Or send her a link to this thread! You can let the posts from other parents and people with CF do the talking.



<img src="i/expressions/rose.gif" border="0">
 
C

chrissyd

New member
I think you should reply to her email and bluntly tell her what you are going through. How else are people going to know your struggle?
<br />
<br />Let her know that you have every intention of seeing your Grandma...but CF has reared its ugly head and made the everyday activities that many take for granted all but impossible for you. Or send her a link to this thread! You can let the posts from other parents and people with CF do the talking.
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<br />
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<br /><img src="i/expressions/rose.gif" border="0">
 
R

Ratatosk

Administrator
Staff member
Oooh, I'd be tempted to tell her to take a flying leap, and not in a very polite way. I've had similar issues, my aunt plans family events -- last minute and leaves messages on our machine -- once she thought she'd hung up and made a snide comment about how we're never home.

It's almost as if my aunt senses that DS is on Tobi and plans a last minute party for my grandmother. It's tough for me at the last minute to hop in the car for a 2 1/2 hour drive, then to try and figure out when and where to do his treatment. Or I'll do his first vest/nebs/tobi in the morning, feed him and hop in the car and get about 3 messages during the drive about "where are we"? Sigh!
 
R

Ratatosk

Administrator
Staff member
Oooh, I'd be tempted to tell her to take a flying leap, and not in a very polite way. I've had similar issues, my aunt plans family events -- last minute and leaves messages on our machine -- once she thought she'd hung up and made a snide comment about how we're never home.

It's almost as if my aunt senses that DS is on Tobi and plans a last minute party for my grandmother. It's tough for me at the last minute to hop in the car for a 2 1/2 hour drive, then to try and figure out when and where to do his treatment. Or I'll do his first vest/nebs/tobi in the morning, feed him and hop in the car and get about 3 messages during the drive about "where are we"? Sigh!
 
R

Ratatosk

Administrator
Staff member
Oooh, I'd be tempted to tell her to take a flying leap, and not in a very polite way. I've had similar issues, my aunt plans family events -- last minute and leaves messages on our machine -- once she thought she'd hung up and made a snide comment about how we're never home.

It's almost as if my aunt senses that DS is on Tobi and plans a last minute party for my grandmother. It's tough for me at the last minute to hop in the car for a 2 1/2 hour drive, then to try and figure out when and where to do his treatment. Or I'll do his first vest/nebs/tobi in the morning, feed him and hop in the car and get about 3 messages during the drive about "where are we"? Sigh!
 
R

Ratatosk

Administrator
Staff member
Oooh, I'd be tempted to tell her to take a flying leap, and not in a very polite way. I've had similar issues, my aunt plans family events -- last minute and leaves messages on our machine -- once she thought she'd hung up and made a snide comment about how we're never home.

It's almost as if my aunt senses that DS is on Tobi and plans a last minute party for my grandmother. It's tough for me at the last minute to hop in the car for a 2 1/2 hour drive, then to try and figure out when and where to do his treatment. Or I'll do his first vest/nebs/tobi in the morning, feed him and hop in the car and get about 3 messages during the drive about "where are we"? Sigh!
 
R

Ratatosk

Administrator
Staff member
Oooh, I'd be tempted to tell her to take a flying leap, and not in a very polite way. I've had similar issues, my aunt plans family events -- last minute and leaves messages on our machine -- once she thought she'd hung up and made a snide comment about how we're never home.
<br />
<br />It's almost as if my aunt senses that DS is on Tobi and plans a last minute party for my grandmother. It's tough for me at the last minute to hop in the car for a 2 1/2 hour drive, then to try and figure out when and where to do his treatment. Or I'll do his first vest/nebs/tobi in the morning, feed him and hop in the car and get about 3 messages during the drive about "where are we"? Sigh!
 
M

MargaritaChic

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>chrissyd</b></i>

I think you should reply to her email and bluntly tell her what you are going through. How else are people going to know your struggle?</end quote></div>

I sent her an email back explaining thigs and got one back from her today. She said "We are all busy. I am busy and I still find the time to go".
 
M

MargaritaChic

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>chrissyd</b></i>

I think you should reply to her email and bluntly tell her what you are going through. How else are people going to know your struggle?</end quote></div>

I sent her an email back explaining thigs and got one back from her today. She said "We are all busy. I am busy and I still find the time to go".
 
M

MargaritaChic

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>chrissyd</b></i>

I think you should reply to her email and bluntly tell her what you are going through. How else are people going to know your struggle?</end quote></div>

I sent her an email back explaining thigs and got one back from her today. She said "We are all busy. I am busy and I still find the time to go".
 
M

MargaritaChic

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>chrissyd</b></i>

I think you should reply to her email and bluntly tell her what you are going through. How else are people going to know your struggle?</end quote>

I sent her an email back explaining thigs and got one back from her today. She said "We are all busy. I am busy and I still find the time to go".
 
M

MargaritaChic

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>chrissyd</b></i>
<br />
<br />I think you should reply to her email and bluntly tell her what you are going through. How else are people going to know your struggle?</end quote>
<br />
<br />I sent her an email back explaining thigs and got one back from her today. She said "We are all busy. I am busy and I still find the time to go".
<br />
<br />
 
R

Ratatosk

Administrator
Staff member
I guess I'd be saying "walk in my shoes lady! I have a child with a genetic LIFE SHORTENING disease!"

Actually, I think you tried. Probably not going to convince her otherwise. Maybe just drop great-grandma a note with some recent pictures and indicate it's been a tough winter/spring and you hope to see her soon when your daughter is feeling better. Maybe throw in that you were concerned that your daughter might get great-grandma sick. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
R

Ratatosk

Administrator
Staff member
I guess I'd be saying "walk in my shoes lady! I have a child with a genetic LIFE SHORTENING disease!"

Actually, I think you tried. Probably not going to convince her otherwise. Maybe just drop great-grandma a note with some recent pictures and indicate it's been a tough winter/spring and you hope to see her soon when your daughter is feeling better. Maybe throw in that you were concerned that your daughter might get great-grandma sick. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
R

Ratatosk

Administrator
Staff member
I guess I'd be saying "walk in my shoes lady! I have a child with a genetic LIFE SHORTENING disease!"

Actually, I think you tried. Probably not going to convince her otherwise. Maybe just drop great-grandma a note with some recent pictures and indicate it's been a tough winter/spring and you hope to see her soon when your daughter is feeling better. Maybe throw in that you were concerned that your daughter might get great-grandma sick. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
R

Ratatosk

Administrator
Staff member
I guess I'd be saying "walk in my shoes lady! I have a child with a genetic LIFE SHORTENING disease!"

Actually, I think you tried. Probably not going to convince her otherwise. Maybe just drop great-grandma a note with some recent pictures and indicate it's been a tough winter/spring and you hope to see her soon when your daughter is feeling better. Maybe throw in that you were concerned that your daughter might get great-grandma sick. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
R

Ratatosk

Administrator
Staff member
I guess I'd be saying "walk in my shoes lady! I have a child with a genetic LIFE SHORTENING disease!"
<br />
<br />Actually, I think you tried. Probably not going to convince her otherwise. Maybe just drop great-grandma a note with some recent pictures and indicate it's been a tough winter/spring and you hope to see her soon when your daughter is feeling better. Maybe throw in that you were concerned that your daughter might get great-grandma sick. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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