Thyroid problems anyone?

marisalynn

New member
It's so funny that you posted this, because I am in a very similar situation. I have felt really tired lately and also feel like i could sleep forever, which I sometimes seem to. I make the excuse that because I work nights, I just need more sleep to switch back and forth when I have a few days off, but my husband has even mentioned how much I have been sleeping. I just had an appointment at my CF clinic, and my FEV1 was also up 2%! I forgot to mention my lack of energy to my doctor because of some stomach issues I have been having, but in my next appt, I will definitely mention checking my TSH (Thyroid Stimulating Hormone). Please let us know what you find out. Thanks.
<br />
<br />Marisa RN, 22 w/CF
 

chrissyd

New member
*Raises hand*

Add me to the list. I take synthroid everyday because my thyroid doesn't work right...as a matter of fact they just upped my dose last week.

I usually get blood work every 6 months to check it (roughly 6 give or take) and they've upped it 3 times since I started.

<img src="i/expressions/rose.gif" border="0">
 

chrissyd

New member
*Raises hand*

Add me to the list. I take synthroid everyday because my thyroid doesn't work right...as a matter of fact they just upped my dose last week.

I usually get blood work every 6 months to check it (roughly 6 give or take) and they've upped it 3 times since I started.

<img src="i/expressions/rose.gif" border="0">
 

chrissyd

New member
*Raises hand*
<br />
<br />Add me to the list. I take synthroid everyday because my thyroid doesn't work right...as a matter of fact they just upped my dose last week.
<br />
<br />I usually get blood work every 6 months to check it (roughly 6 give or take) and they've upped it 3 times since I started.
<br />
<br /><img src="i/expressions/rose.gif" border="0">
 

Dea

New member
Me too...
I even had most of my thyroid gland removed in 2002 because of all the probs I was having. Started out with thyroid levels being out of control...had a slight goiter as well...began medications and goiter enlarged. An ultrasound was done and a needle guided biopsy...no cancer but many nodules. A partial thyroidectomy was done to remove all of the left side of my gland and 3/4 of the right side of my gland. Even after the partial removal and 8 yrs later...I STILL have problems with my thyroid levels.
Good Luck to you!
 

Dea

New member
Me too...
I even had most of my thyroid gland removed in 2002 because of all the probs I was having. Started out with thyroid levels being out of control...had a slight goiter as well...began medications and goiter enlarged. An ultrasound was done and a needle guided biopsy...no cancer but many nodules. A partial thyroidectomy was done to remove all of the left side of my gland and 3/4 of the right side of my gland. Even after the partial removal and 8 yrs later...I STILL have problems with my thyroid levels.
Good Luck to you!
 

Dea

New member
Me too...
<br />I even had most of my thyroid gland removed in 2002 because of all the probs I was having. Started out with thyroid levels being out of control...had a slight goiter as well...began medications and goiter enlarged. An ultrasound was done and a needle guided biopsy...no cancer but many nodules. A partial thyroidectomy was done to remove all of the left side of my gland and 3/4 of the right side of my gland. Even after the partial removal and 8 yrs later...I STILL have problems with my thyroid levels.
<br />Good Luck to you!
 

sarabeth87

New member
The results came in on my thyroid levels and they were normal, so I guess I'm back to square one. I just don't know why I'm always so sleepy. It's really starting to interfere with my life.
 

sarabeth87

New member
The results came in on my thyroid levels and they were normal, so I guess I'm back to square one. I just don't know why I'm always so sleepy. It's really starting to interfere with my life.
 

sarabeth87

New member
The results came in on my thyroid levels and they were normal, so I guess I'm back to square one. I just don't know why I'm always so sleepy. It's really starting to interfere with my life.
 

coltsfan715

New member
I have hypthyroidism- found out about 8 months after my transplant. I just started feeling "off" mentally. I also had heart palpitations and some other symptoms of hyperthyroidism, but when I had my labwork checked I turned up with hypOthyroidism instead of hyPER.

Just to put it out there for other patients that feel excessively fatigued - that is also a symptom of diabetes - it was actually my main symptom when I was diagnosed with CFRD about a decade ago - so definitely talk to your doc about it.

Lindsey
 

coltsfan715

New member
I have hypthyroidism- found out about 8 months after my transplant. I just started feeling "off" mentally. I also had heart palpitations and some other symptoms of hyperthyroidism, but when I had my labwork checked I turned up with hypOthyroidism instead of hyPER.

Just to put it out there for other patients that feel excessively fatigued - that is also a symptom of diabetes - it was actually my main symptom when I was diagnosed with CFRD about a decade ago - so definitely talk to your doc about it.

Lindsey
 

coltsfan715

New member
I have hypthyroidism- found out about 8 months after my transplant. I just started feeling "off" mentally. I also had heart palpitations and some other symptoms of hyperthyroidism, but when I had my labwork checked I turned up with hypOthyroidism instead of hyPER.
<br />
<br />Just to put it out there for other patients that feel excessively fatigued - that is also a symptom of diabetes - it was actually my main symptom when I was diagnosed with CFRD about a decade ago - so definitely talk to your doc about it.
<br />
<br />Lindsey
 

JustDucky

New member
How normal were your results? I ask because your levels might be within lab accepted range but still hypothyroid for you personally, especially if you are borderline in results. My sister is finally being treated for hypothyroid after years of fatigue, she too had "normal" labs but on closer inspection, they were on the borderline range. The endocrinologist that she sees told her that she should have been treated years ago and that the lab values for thyroid hormone need to be re evaluated.
Maybe you could see an endocrinologist if you aren't seeing one already, there are other hormonal problems that can cause this constellation of symptoms.
Good luck and hugs,
Jenn
 

JustDucky

New member
How normal were your results? I ask because your levels might be within lab accepted range but still hypothyroid for you personally, especially if you are borderline in results. My sister is finally being treated for hypothyroid after years of fatigue, she too had "normal" labs but on closer inspection, they were on the borderline range. The endocrinologist that she sees told her that she should have been treated years ago and that the lab values for thyroid hormone need to be re evaluated.
Maybe you could see an endocrinologist if you aren't seeing one already, there are other hormonal problems that can cause this constellation of symptoms.
Good luck and hugs,
Jenn
 

JustDucky

New member
How normal were your results? I ask because your levels might be within lab accepted range but still hypothyroid for you personally, especially if you are borderline in results. My sister is finally being treated for hypothyroid after years of fatigue, she too had "normal" labs but on closer inspection, they were on the borderline range. The endocrinologist that she sees told her that she should have been treated years ago and that the lab values for thyroid hormone need to be re evaluated.
<br />Maybe you could see an endocrinologist if you aren't seeing one already, there are other hormonal problems that can cause this constellation of symptoms.
<br />Good luck and hugs,
<br />Jenn
 

kristenb

New member
yes, i too, have hypothyroidism. i found out about a year ago and have been taking synthroid ever since. my original lab values (TSH) were considered 'normal' by lab standards and overlooked by the large institution that i attend. i complained again last september about fatigue, mental fogginess, etc and was retested. i was quite out of range for my age and sex. i have much more energy and require much less sleep since taking synthroid. also, to echo what lindsey said about cf-related diabetes. been checked for that? i think it would be wise. my blood sugars were very high upon dx, making fatigue a significant symptom of mine. i hope you are well today. good question, by the way.
 

kristenb

New member
yes, i too, have hypothyroidism. i found out about a year ago and have been taking synthroid ever since. my original lab values (TSH) were considered 'normal' by lab standards and overlooked by the large institution that i attend. i complained again last september about fatigue, mental fogginess, etc and was retested. i was quite out of range for my age and sex. i have much more energy and require much less sleep since taking synthroid. also, to echo what lindsey said about cf-related diabetes. been checked for that? i think it would be wise. my blood sugars were very high upon dx, making fatigue a significant symptom of mine. i hope you are well today. good question, by the way.
 

kristenb

New member
yes, i too, have hypothyroidism. i found out about a year ago and have been taking synthroid ever since. my original lab values (TSH) were considered 'normal' by lab standards and overlooked by the large institution that i attend. i complained again last september about fatigue, mental fogginess, etc and was retested. i was quite out of range for my age and sex. i have much more energy and require much less sleep since taking synthroid. also, to echo what lindsey said about cf-related diabetes. been checked for that? i think it would be wise. my blood sugars were very high upon dx, making fatigue a significant symptom of mine. i hope you are well today. good question, by the way.
 

sarabeth87

New member
I'm not sure what my actual numbers were, but I go back on the 24th so maybe I will find something out then. I just had my annual labs and they did the A1C I think.?.? My brother has CFRD but they've never said anything about my results and they are checked every year. I also don't have too much trouble gaining weight. I'm 5'4" and my weight fluctuates between 130 & 138 most of the time so I don't think I have CFRD.
 
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