Time Management

Skye

New member
I am coming over from the adult section. I am writing an article for my center on time management with CF. I want to be sure and write tips from a caregiver's point of view. Would you parents mind sharing your best time management tips in the CF care routine. I know what I do as an adult; but, it is a whole different ballgame in your world I am sure<img src="i/expressions/face-icon-small-smile.gif" border="0"> Thanks for any help!
 

Skye

New member
I am coming over from the adult section. I am writing an article for my center on time management with CF. I want to be sure and write tips from a caregiver's point of view. Would you parents mind sharing your best time management tips in the CF care routine. I know what I do as an adult; but, it is a whole different ballgame in your world I am sure<img src="i/expressions/face-icon-small-smile.gif" border="0"> Thanks for any help!
 

Skye

New member
I am coming over from the adult section. I am writing an article for my center on time management with CF. I want to be sure and write tips from a caregiver's point of view. Would you parents mind sharing your best time management tips in the CF care routine. I know what I do as an adult; but, it is a whole different ballgame in your world I am sure<img src="i/expressions/face-icon-small-smile.gif" border="0"> Thanks for any help!
 

Skye

New member
I am coming over from the adult section. I am writing an article for my center on time management with CF. I want to be sure and write tips from a caregiver's point of view. Would you parents mind sharing your best time management tips in the CF care routine. I know what I do as an adult; but, it is a whole different ballgame in your world I am sure<img src="i/expressions/face-icon-small-smile.gif" border="0"> Thanks for any help!
 

Skye

New member
I am coming over from the adult section. I am writing an article for my center on time management with CF. I want to be sure and write tips from a caregiver's point of view. Would you parents mind sharing your best time management tips in the CF care routine. I know what I do as an adult; but, it is a whole different ballgame in your world I am sure<img src="i/expressions/face-icon-small-smile.gif" border="0"> Thanks for any help!
 

Ratatosk

Administrator
Staff member
DS does his duoneb (albuterol/atrovent) while vesting, when that neb finishes, I hook up the pulmozyme.

Because isn't restful -- won't fall asleep or sleep thru his vest, I still do CPT in the morning. If he's doing tobi, then he just sleeps thru that neb while I get ready for the day. That way he can get extra sleep time in. If he falls asleep before his third and last vest/neb treatment of the day, I'll also do cpt on him.

Oh, we DON'T vest during the tobi. Wish we could to save some time.

When DS was younger, I would prepare all his oral meds the night before in different oral syringes. Kept them in a baggy in the fridge. That way I wasn't having to go thru several bottles of meds each time -- adeks, keflex, actigall, zithromax, etc. Now that he's mostly on pills, I set up all the meds for a week in a pillbox.

Also when he was a baby and we still had to break open the enzyme capsules, I measured out an amount for one feeding/meal in a section of a M-S pill box, so I could just dump them onto the spoon of bananas instead of messing around with teeny tiny enzyme capsules during late night, early morning, anytime feedings.
 

Ratatosk

Administrator
Staff member
DS does his duoneb (albuterol/atrovent) while vesting, when that neb finishes, I hook up the pulmozyme.

Because isn't restful -- won't fall asleep or sleep thru his vest, I still do CPT in the morning. If he's doing tobi, then he just sleeps thru that neb while I get ready for the day. That way he can get extra sleep time in. If he falls asleep before his third and last vest/neb treatment of the day, I'll also do cpt on him.

Oh, we DON'T vest during the tobi. Wish we could to save some time.

When DS was younger, I would prepare all his oral meds the night before in different oral syringes. Kept them in a baggy in the fridge. That way I wasn't having to go thru several bottles of meds each time -- adeks, keflex, actigall, zithromax, etc. Now that he's mostly on pills, I set up all the meds for a week in a pillbox.

Also when he was a baby and we still had to break open the enzyme capsules, I measured out an amount for one feeding/meal in a section of a M-S pill box, so I could just dump them onto the spoon of bananas instead of messing around with teeny tiny enzyme capsules during late night, early morning, anytime feedings.
 

Ratatosk

Administrator
Staff member
DS does his duoneb (albuterol/atrovent) while vesting, when that neb finishes, I hook up the pulmozyme.

Because isn't restful -- won't fall asleep or sleep thru his vest, I still do CPT in the morning. If he's doing tobi, then he just sleeps thru that neb while I get ready for the day. That way he can get extra sleep time in. If he falls asleep before his third and last vest/neb treatment of the day, I'll also do cpt on him.

Oh, we DON'T vest during the tobi. Wish we could to save some time.

When DS was younger, I would prepare all his oral meds the night before in different oral syringes. Kept them in a baggy in the fridge. That way I wasn't having to go thru several bottles of meds each time -- adeks, keflex, actigall, zithromax, etc. Now that he's mostly on pills, I set up all the meds for a week in a pillbox.

Also when he was a baby and we still had to break open the enzyme capsules, I measured out an amount for one feeding/meal in a section of a M-S pill box, so I could just dump them onto the spoon of bananas instead of messing around with teeny tiny enzyme capsules during late night, early morning, anytime feedings.
 

Ratatosk

Administrator
Staff member
DS does his duoneb (albuterol/atrovent) while vesting, when that neb finishes, I hook up the pulmozyme.

Because isn't restful -- won't fall asleep or sleep thru his vest, I still do CPT in the morning. If he's doing tobi, then he just sleeps thru that neb while I get ready for the day. That way he can get extra sleep time in. If he falls asleep before his third and last vest/neb treatment of the day, I'll also do cpt on him.

Oh, we DON'T vest during the tobi. Wish we could to save some time.

When DS was younger, I would prepare all his oral meds the night before in different oral syringes. Kept them in a baggy in the fridge. That way I wasn't having to go thru several bottles of meds each time -- adeks, keflex, actigall, zithromax, etc. Now that he's mostly on pills, I set up all the meds for a week in a pillbox.

Also when he was a baby and we still had to break open the enzyme capsules, I measured out an amount for one feeding/meal in a section of a M-S pill box, so I could just dump them onto the spoon of bananas instead of messing around with teeny tiny enzyme capsules during late night, early morning, anytime feedings.
 

Ratatosk

Administrator
Staff member
DS does his duoneb (albuterol/atrovent) while vesting, when that neb finishes, I hook up the pulmozyme.
<br />
<br />Because isn't restful -- won't fall asleep or sleep thru his vest, I still do CPT in the morning. If he's doing tobi, then he just sleeps thru that neb while I get ready for the day. That way he can get extra sleep time in. If he falls asleep before his third and last vest/neb treatment of the day, I'll also do cpt on him.
<br />
<br />Oh, we DON'T vest during the tobi. Wish we could to save some time.
<br />
<br />When DS was younger, I would prepare all his oral meds the night before in different oral syringes. Kept them in a baggy in the fridge. That way I wasn't having to go thru several bottles of meds each time -- adeks, keflex, actigall, zithromax, etc. Now that he's mostly on pills, I set up all the meds for a week in a pillbox.
<br />
<br />Also when he was a baby and we still had to break open the enzyme capsules, I measured out an amount for one feeding/meal in a section of a M-S pill box, so I could just dump them onto the spoon of bananas instead of messing around with teeny tiny enzyme capsules during late night, early morning, anytime feedings.
 
T

tammykrumrey

Guest
Getting a second Vest so that both of my girls could do treatments at the same time was a HUGE time saver for us!
Now instead of sitting in front of the television for an hour or so, it's only about a half hour. I normally sit with them during their vest and treatments, even now that they are 9 and 10, just b/c I feel like I should, not that I have to.

And now that they are a little older, they choose to do the Acapella's in the morning on the ride to school (they go to a private school and I drive them there each morning-not like I send them on the school bus with it or anything<img src="i/expressions/face-icon-small-smile.gif" border="0">) That frees up time in the morning and the Acapella really gets them coughing stuff up much better than the Vest does anyways.

My girls tend to be pretty healthy and Kayla is the only one who does Pulmozyme daily. It doesn't take too long to do each night. Sometimes we have to throw Tobi and oral antibiotics into the mix, and it takes more time to argue with my girls to get the meds done than it actually does to take them for pete's sake<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
T

tammykrumrey

Guest
Getting a second Vest so that both of my girls could do treatments at the same time was a HUGE time saver for us!
Now instead of sitting in front of the television for an hour or so, it's only about a half hour. I normally sit with them during their vest and treatments, even now that they are 9 and 10, just b/c I feel like I should, not that I have to.

And now that they are a little older, they choose to do the Acapella's in the morning on the ride to school (they go to a private school and I drive them there each morning-not like I send them on the school bus with it or anything<img src="i/expressions/face-icon-small-smile.gif" border="0">) That frees up time in the morning and the Acapella really gets them coughing stuff up much better than the Vest does anyways.

My girls tend to be pretty healthy and Kayla is the only one who does Pulmozyme daily. It doesn't take too long to do each night. Sometimes we have to throw Tobi and oral antibiotics into the mix, and it takes more time to argue with my girls to get the meds done than it actually does to take them for pete's sake<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
T

tammykrumrey

Guest
Getting a second Vest so that both of my girls could do treatments at the same time was a HUGE time saver for us!
Now instead of sitting in front of the television for an hour or so, it's only about a half hour. I normally sit with them during their vest and treatments, even now that they are 9 and 10, just b/c I feel like I should, not that I have to.

And now that they are a little older, they choose to do the Acapella's in the morning on the ride to school (they go to a private school and I drive them there each morning-not like I send them on the school bus with it or anything<img src="i/expressions/face-icon-small-smile.gif" border="0">) That frees up time in the morning and the Acapella really gets them coughing stuff up much better than the Vest does anyways.

My girls tend to be pretty healthy and Kayla is the only one who does Pulmozyme daily. It doesn't take too long to do each night. Sometimes we have to throw Tobi and oral antibiotics into the mix, and it takes more time to argue with my girls to get the meds done than it actually does to take them for pete's sake<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
T

tammykrumrey

Guest
Getting a second Vest so that both of my girls could do treatments at the same time was a HUGE time saver for us!
Now instead of sitting in front of the television for an hour or so, it's only about a half hour. I normally sit with them during their vest and treatments, even now that they are 9 and 10, just b/c I feel like I should, not that I have to.

And now that they are a little older, they choose to do the Acapella's in the morning on the ride to school (they go to a private school and I drive them there each morning-not like I send them on the school bus with it or anything<img src="i/expressions/face-icon-small-smile.gif" border="0">) That frees up time in the morning and the Acapella really gets them coughing stuff up much better than the Vest does anyways.

My girls tend to be pretty healthy and Kayla is the only one who does Pulmozyme daily. It doesn't take too long to do each night. Sometimes we have to throw Tobi and oral antibiotics into the mix, and it takes more time to argue with my girls to get the meds done than it actually does to take them for pete's sake<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
T

tammykrumrey

Guest
Getting a second Vest so that both of my girls could do treatments at the same time was a HUGE time saver for us!
<br />Now instead of sitting in front of the television for an hour or so, it's only about a half hour. I normally sit with them during their vest and treatments, even now that they are 9 and 10, just b/c I feel like I should, not that I have to.
<br />
<br />And now that they are a little older, they choose to do the Acapella's in the morning on the ride to school (they go to a private school and I drive them there each morning-not like I send them on the school bus with it or anything<img src="i/expressions/face-icon-small-smile.gif" border="0">) That frees up time in the morning and the Acapella really gets them coughing stuff up much better than the Vest does anyways.
<br />
<br />My girls tend to be pretty healthy and Kayla is the only one who does Pulmozyme daily. It doesn't take too long to do each night. Sometimes we have to throw Tobi and oral antibiotics into the mix, and it takes more time to argue with my girls to get the meds done than it actually does to take them for pete's sake<img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />
<br />
<br />
 

Sakem

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i>

If he's doing tobi, then he just sleeps thru that neb while I get ready for the day. That way he can get extra sleep time in.
q]


You may want to talk to your clinic about this. Using a mask to do Tobi does not deliever enough of the drug to the lungs. They only recommend the mask for infants. The best way to make sure the needed levels of Tobi is distributed to the lungs is doing it with the mouthpiece and even better with a nose clip if the child is not old enough to control not breathing in with the nose
 

Sakem

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i>

If he's doing tobi, then he just sleeps thru that neb while I get ready for the day. That way he can get extra sleep time in.
q]


You may want to talk to your clinic about this. Using a mask to do Tobi does not deliever enough of the drug to the lungs. They only recommend the mask for infants. The best way to make sure the needed levels of Tobi is distributed to the lungs is doing it with the mouthpiece and even better with a nose clip if the child is not old enough to control not breathing in with the nose
 

Sakem

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i>

If he's doing tobi, then he just sleeps thru that neb while I get ready for the day. That way he can get extra sleep time in.
q]


You may want to talk to your clinic about this. Using a mask to do Tobi does not deliever enough of the drug to the lungs. They only recommend the mask for infants. The best way to make sure the needed levels of Tobi is distributed to the lungs is doing it with the mouthpiece and even better with a nose clip if the child is not old enough to control not breathing in with the nose
 

Sakem

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i>

If he's doing tobi, then he just sleeps thru that neb while I get ready for the day. That way he can get extra sleep time in.
q]


You may want to talk to your clinic about this. Using a mask to do Tobi does not deliever enough of the drug to the lungs. They only recommend the mask for infants. The best way to make sure the needed levels of Tobi is distributed to the lungs is doing it with the mouthpiece and even better with a nose clip if the child is not old enough to control not breathing in with the nose
 

Sakem

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i>
<br />
<br /> If he's doing tobi, then he just sleeps thru that neb while I get ready for the day. That way he can get extra sleep time in.
<br />q]
<br />
<br />
<br />You may want to talk to your clinic about this. Using a mask to do Tobi does not deliever enough of the drug to the lungs. They only recommend the mask for infants. The best way to make sure the needed levels of Tobi is distributed to the lungs is doing it with the mouthpiece and even better with a nose clip if the child is not old enough to control not breathing in with the nose
<br />
 
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