Like the other parents here, I want to say that I appreciated your message, Rosie. But like others, I also want to thank you. One of the most valuable things I have found on this site is the perspectives of adult CFers. You are all an inspiration to us. I mean that. Your posts help us imagine and plan for what our children will face as they grow up, and your stories help us answer some of the difficult questions our children ask us. My oldest is just coming to an understanding of what it means to say she has CF, and I often talk to her about the adults on this site, and how they have found ways to live and work with CF. Learning about issues my girls will face in college and beyond has affected how we talk to our girls about treatments, and about their own role in taking care of themselves. I cannot control how fast the disease will progress in my children, beyond complying with treatments, but since I cannot control that, I choose instead to hope and plan for the best. The adults on this site have helped me reach that decision, and I am more at peace for it. So thanks to you, and to all the adult CFers out there. You are making a difference for the generations of children that follow you.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an alternative browser.
You should upgrade or use an alternative browser.
Like the other parents here, I want to say that I appreciated your message, Rosie. But like others, I also want to thank you. One of the most valuable things I have found on this site is the perspectives of adult CFers. You are all an inspiration to us. I mean that. Your posts help us imagine and plan for what our children will face as they grow up, and your stories help us answer some of the difficult questions our children ask us. My oldest is just coming to an understanding of what it means to say she has CF, and I often talk to her about the adults on this site, and how they have found ways to live and work with CF. Learning about issues my girls will face in college and beyond has affected how we talk to our girls about treatments, and about their own role in taking care of themselves. I cannot control how fast the disease will progress in my children, beyond complying with treatments, but since I cannot control that, I choose instead to hope and plan for the best. The adults on this site have helped me reach that decision, and I am more at peace for it. So thanks to you, and to all the adult CFers out there. You are making a difference for the generations of children that follow you.
Like the other parents here, I want to say that I appreciated your message, Rosie. But like others, I also want to thank you. One of the most valuable things I have found on this site is the perspectives of adult CFers. You are all an inspiration to us. I mean that. Your posts help us imagine and plan for what our children will face as they grow up, and your stories help us answer some of the difficult questions our children ask us. My oldest is just coming to an understanding of what it means to say she has CF, and I often talk to her about the adults on this site, and how they have found ways to live and work with CF. Learning about issues my girls will face in college and beyond has affected how we talk to our girls about treatments, and about their own role in taking care of themselves. I cannot control how fast the disease will progress in my children, beyond complying with treatments, but since I cannot control that, I choose instead to hope and plan for the best. The adults on this site have helped me reach that decision, and I am more at peace for it. So thanks to you, and to all the adult CFers out there. You are making a difference for the generations of children that follow you.
Like the other parents here, I want to say that I appreciated your message, Rosie. But like others, I also want to thank you. One of the most valuable things I have found on this site is the perspectives of adult CFers. You are all an inspiration to us. I mean that. Your posts help us imagine and plan for what our children will face as they grow up, and your stories help us answer some of the difficult questions our children ask us. My oldest is just coming to an understanding of what it means to say she has CF, and I often talk to her about the adults on this site, and how they have found ways to live and work with CF. Learning about issues my girls will face in college and beyond has affected how we talk to our girls about treatments, and about their own role in taking care of themselves. I cannot control how fast the disease will progress in my children, beyond complying with treatments, but since I cannot control that, I choose instead to hope and plan for the best. The adults on this site have helped me reach that decision, and I am more at peace for it. So thanks to you, and to all the adult CFers out there. You are making a difference for the generations of children that follow you.
Like the other parents here, I want to say that I appreciated your message, Rosie. But like others, I also want to thank you. One of the most valuable things I have found on this site is the perspectives of adult CFers. You are all an inspiration to us. I mean that. Your posts help us imagine and plan for what our children will face as they grow up, and your stories help us answer some of the difficult questions our children ask us. My oldest is just coming to an understanding of what it means to say she has CF, and I often talk to her about the adults on this site, and how they have found ways to live and work with CF. Learning about issues my girls will face in college and beyond has affected how we talk to our girls about treatments, and about their own role in taking care of themselves. I cannot control how fast the disease will progress in my children, beyond complying with treatments, but since I cannot control that, I choose instead to hope and plan for the best. The adults on this site have helped me reach that decision, and I am more at peace for it. So thanks to you, and to all the adult CFers out there. You are making a difference for the generations of children that follow you.
Augustmom0003
New member
Thank you, Rosie <img src="i/expressions/face-icon-small-smile.gif" border="0"> That means so much to so many of us.
And, yes, in a milisecond...I would switch places with him. When Ethan was sick last, he was crying in the middle of the night and saying "Mommy, take care of me!!!!!!". All he wanted was for me to make it better, and I couldn't (although I did everything in my power to try). I think that pretty much sums up our (parents') feeling about CF. That's the torture we feel inside. All we want to do is make it better...to take "it" for them...and we can't.
And, yes, in a milisecond...I would switch places with him. When Ethan was sick last, he was crying in the middle of the night and saying "Mommy, take care of me!!!!!!". All he wanted was for me to make it better, and I couldn't (although I did everything in my power to try). I think that pretty much sums up our (parents') feeling about CF. That's the torture we feel inside. All we want to do is make it better...to take "it" for them...and we can't.
Augustmom0003
New member
Thank you, Rosie <img src="i/expressions/face-icon-small-smile.gif" border="0"> That means so much to so many of us.
And, yes, in a milisecond...I would switch places with him. When Ethan was sick last, he was crying in the middle of the night and saying "Mommy, take care of me!!!!!!". All he wanted was for me to make it better, and I couldn't (although I did everything in my power to try). I think that pretty much sums up our (parents') feeling about CF. That's the torture we feel inside. All we want to do is make it better...to take "it" for them...and we can't.
And, yes, in a milisecond...I would switch places with him. When Ethan was sick last, he was crying in the middle of the night and saying "Mommy, take care of me!!!!!!". All he wanted was for me to make it better, and I couldn't (although I did everything in my power to try). I think that pretty much sums up our (parents') feeling about CF. That's the torture we feel inside. All we want to do is make it better...to take "it" for them...and we can't.
Augustmom0003
New member
Thank you, Rosie <img src="i/expressions/face-icon-small-smile.gif" border="0"> That means so much to so many of us.
And, yes, in a milisecond...I would switch places with him. When Ethan was sick last, he was crying in the middle of the night and saying "Mommy, take care of me!!!!!!". All he wanted was for me to make it better, and I couldn't (although I did everything in my power to try). I think that pretty much sums up our (parents') feeling about CF. That's the torture we feel inside. All we want to do is make it better...to take "it" for them...and we can't.
And, yes, in a milisecond...I would switch places with him. When Ethan was sick last, he was crying in the middle of the night and saying "Mommy, take care of me!!!!!!". All he wanted was for me to make it better, and I couldn't (although I did everything in my power to try). I think that pretty much sums up our (parents') feeling about CF. That's the torture we feel inside. All we want to do is make it better...to take "it" for them...and we can't.
Augustmom0003
New member
Thank you, Rosie <img src="i/expressions/face-icon-small-smile.gif" border="0"> That means so much to so many of us.
And, yes, in a milisecond...I would switch places with him. When Ethan was sick last, he was crying in the middle of the night and saying "Mommy, take care of me!!!!!!". All he wanted was for me to make it better, and I couldn't (although I did everything in my power to try). I think that pretty much sums up our (parents') feeling about CF. That's the torture we feel inside. All we want to do is make it better...to take "it" for them...and we can't.
And, yes, in a milisecond...I would switch places with him. When Ethan was sick last, he was crying in the middle of the night and saying "Mommy, take care of me!!!!!!". All he wanted was for me to make it better, and I couldn't (although I did everything in my power to try). I think that pretty much sums up our (parents') feeling about CF. That's the torture we feel inside. All we want to do is make it better...to take "it" for them...and we can't.
Augustmom0003
New member
Thank you, Rosie <img src="i/expressions/face-icon-small-smile.gif" border="0"> That means so much to so many of us.
<br />
<br />And, yes, in a milisecond...I would switch places with him. When Ethan was sick last, he was crying in the middle of the night and saying "Mommy, take care of me!!!!!!". All he wanted was for me to make it better, and I couldn't (although I did everything in my power to try). I think that pretty much sums up our (parents') feeling about CF. That's the torture we feel inside. All we want to do is make it better...to take "it" for them...and we can't.
<br />
<br />And, yes, in a milisecond...I would switch places with him. When Ethan was sick last, he was crying in the middle of the night and saying "Mommy, take care of me!!!!!!". All he wanted was for me to make it better, and I couldn't (although I did everything in my power to try). I think that pretty much sums up our (parents') feeling about CF. That's the torture we feel inside. All we want to do is make it better...to take "it" for them...and we can't.
Mommy2Alysa
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Augustmom0003</b></i>
Thank you, Rosie <img src="i/expressions/face-icon-small-smile.gif" border="0"> That means so much to so many of us.
And, yes, in a milisecond...I would switch places with him. When Ethan was sick last, he was crying in the middle of the night and saying "Mommy, take care of me!!!!!!". All he wanted was for me to make it better, and I couldn't (although I did everything in my power to try). I think that pretty much sums up our (parents') feeling about CF. That's the torture we feel inside. All we want to do is make it better...to take "it" for them...and we can't.</end quote></div>
Fighting back tears becuse it is sooo true. Alysa was coughing and hacking last month (before she was hospitalized) and she asked me when she was going to get better... I didnt know what to tell her. It is torture.. we want to protect our children (must be the mama and papa bear is us) and the fact that I cant take this one thing away from her kills me inside... every day.
Thank you, Rosie <img src="i/expressions/face-icon-small-smile.gif" border="0"> That means so much to so many of us.
And, yes, in a milisecond...I would switch places with him. When Ethan was sick last, he was crying in the middle of the night and saying "Mommy, take care of me!!!!!!". All he wanted was for me to make it better, and I couldn't (although I did everything in my power to try). I think that pretty much sums up our (parents') feeling about CF. That's the torture we feel inside. All we want to do is make it better...to take "it" for them...and we can't.</end quote></div>
Fighting back tears becuse it is sooo true. Alysa was coughing and hacking last month (before she was hospitalized) and she asked me when she was going to get better... I didnt know what to tell her. It is torture.. we want to protect our children (must be the mama and papa bear is us) and the fact that I cant take this one thing away from her kills me inside... every day.
Mommy2Alysa
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Augustmom0003</b></i>
Thank you, Rosie <img src="i/expressions/face-icon-small-smile.gif" border="0"> That means so much to so many of us.
And, yes, in a milisecond...I would switch places with him. When Ethan was sick last, he was crying in the middle of the night and saying "Mommy, take care of me!!!!!!". All he wanted was for me to make it better, and I couldn't (although I did everything in my power to try). I think that pretty much sums up our (parents') feeling about CF. That's the torture we feel inside. All we want to do is make it better...to take "it" for them...and we can't.</end quote></div>
Fighting back tears becuse it is sooo true. Alysa was coughing and hacking last month (before she was hospitalized) and she asked me when she was going to get better... I didnt know what to tell her. It is torture.. we want to protect our children (must be the mama and papa bear is us) and the fact that I cant take this one thing away from her kills me inside... every day.
Thank you, Rosie <img src="i/expressions/face-icon-small-smile.gif" border="0"> That means so much to so many of us.
And, yes, in a milisecond...I would switch places with him. When Ethan was sick last, he was crying in the middle of the night and saying "Mommy, take care of me!!!!!!". All he wanted was for me to make it better, and I couldn't (although I did everything in my power to try). I think that pretty much sums up our (parents') feeling about CF. That's the torture we feel inside. All we want to do is make it better...to take "it" for them...and we can't.</end quote></div>
Fighting back tears becuse it is sooo true. Alysa was coughing and hacking last month (before she was hospitalized) and she asked me when she was going to get better... I didnt know what to tell her. It is torture.. we want to protect our children (must be the mama and papa bear is us) and the fact that I cant take this one thing away from her kills me inside... every day.
Mommy2Alysa
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Augustmom0003</b></i>
Thank you, Rosie <img src="i/expressions/face-icon-small-smile.gif" border="0"> That means so much to so many of us.
And, yes, in a milisecond...I would switch places with him. When Ethan was sick last, he was crying in the middle of the night and saying "Mommy, take care of me!!!!!!". All he wanted was for me to make it better, and I couldn't (although I did everything in my power to try). I think that pretty much sums up our (parents') feeling about CF. That's the torture we feel inside. All we want to do is make it better...to take "it" for them...and we can't.</end quote></div>
Fighting back tears becuse it is sooo true. Alysa was coughing and hacking last month (before she was hospitalized) and she asked me when she was going to get better... I didnt know what to tell her. It is torture.. we want to protect our children (must be the mama and papa bear is us) and the fact that I cant take this one thing away from her kills me inside... every day.
Thank you, Rosie <img src="i/expressions/face-icon-small-smile.gif" border="0"> That means so much to so many of us.
And, yes, in a milisecond...I would switch places with him. When Ethan was sick last, he was crying in the middle of the night and saying "Mommy, take care of me!!!!!!". All he wanted was for me to make it better, and I couldn't (although I did everything in my power to try). I think that pretty much sums up our (parents') feeling about CF. That's the torture we feel inside. All we want to do is make it better...to take "it" for them...and we can't.</end quote></div>
Fighting back tears becuse it is sooo true. Alysa was coughing and hacking last month (before she was hospitalized) and she asked me when she was going to get better... I didnt know what to tell her. It is torture.. we want to protect our children (must be the mama and papa bear is us) and the fact that I cant take this one thing away from her kills me inside... every day.
Mommy2Alysa
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Augustmom0003</b></i>
Thank you, Rosie <img src="i/expressions/face-icon-small-smile.gif" border="0"> That means so much to so many of us.
And, yes, in a milisecond...I would switch places with him. When Ethan was sick last, he was crying in the middle of the night and saying "Mommy, take care of me!!!!!!". All he wanted was for me to make it better, and I couldn't (although I did everything in my power to try). I think that pretty much sums up our (parents') feeling about CF. That's the torture we feel inside. All we want to do is make it better...to take "it" for them...and we can't.</end quote>
Fighting back tears becuse it is sooo true. Alysa was coughing and hacking last month (before she was hospitalized) and she asked me when she was going to get better... I didnt know what to tell her. It is torture.. we want to protect our children (must be the mama and papa bear is us) and the fact that I cant take this one thing away from her kills me inside... every day.
Thank you, Rosie <img src="i/expressions/face-icon-small-smile.gif" border="0"> That means so much to so many of us.
And, yes, in a milisecond...I would switch places with him. When Ethan was sick last, he was crying in the middle of the night and saying "Mommy, take care of me!!!!!!". All he wanted was for me to make it better, and I couldn't (although I did everything in my power to try). I think that pretty much sums up our (parents') feeling about CF. That's the torture we feel inside. All we want to do is make it better...to take "it" for them...and we can't.</end quote>
Fighting back tears becuse it is sooo true. Alysa was coughing and hacking last month (before she was hospitalized) and she asked me when she was going to get better... I didnt know what to tell her. It is torture.. we want to protect our children (must be the mama and papa bear is us) and the fact that I cant take this one thing away from her kills me inside... every day.
Mommy2Alysa
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Augustmom0003</b></i>
<br />
<br />Thank you, Rosie <img src="i/expressions/face-icon-small-smile.gif" border="0"> That means so much to so many of us.
<br />
<br />
<br />
<br />And, yes, in a milisecond...I would switch places with him. When Ethan was sick last, he was crying in the middle of the night and saying "Mommy, take care of me!!!!!!". All he wanted was for me to make it better, and I couldn't (although I did everything in my power to try). I think that pretty much sums up our (parents') feeling about CF. That's the torture we feel inside. All we want to do is make it better...to take "it" for them...and we can't.</end quote>
<br />
<br />Fighting back tears becuse it is sooo true. Alysa was coughing and hacking last month (before she was hospitalized) and she asked me when she was going to get better... I didnt know what to tell her. It is torture.. we want to protect our children (must be the mama and papa bear is us) and the fact that I cant take this one thing away from her kills me inside... every day.
<br />
<br />
<br />
<br />Thank you, Rosie <img src="i/expressions/face-icon-small-smile.gif" border="0"> That means so much to so many of us.
<br />
<br />
<br />
<br />And, yes, in a milisecond...I would switch places with him. When Ethan was sick last, he was crying in the middle of the night and saying "Mommy, take care of me!!!!!!". All he wanted was for me to make it better, and I couldn't (although I did everything in my power to try). I think that pretty much sums up our (parents') feeling about CF. That's the torture we feel inside. All we want to do is make it better...to take "it" for them...and we can't.</end quote>
<br />
<br />Fighting back tears becuse it is sooo true. Alysa was coughing and hacking last month (before she was hospitalized) and she asked me when she was going to get better... I didnt know what to tell her. It is torture.. we want to protect our children (must be the mama and papa bear is us) and the fact that I cant take this one thing away from her kills me inside... every day.
<br />
<br />
fourkidsmom
New member
Thank you Rosie- tha was such a nice post. I appreciate it.
Fourkidsmom
Fourkidsmom
fourkidsmom
New member
Thank you Rosie- tha was such a nice post. I appreciate it.
Fourkidsmom
Fourkidsmom
fourkidsmom
New member
Thank you Rosie- tha was such a nice post. I appreciate it.
Fourkidsmom
Fourkidsmom
fourkidsmom
New member
Thank you Rosie- tha was such a nice post. I appreciate it.
Fourkidsmom
Fourkidsmom
fourkidsmom
New member
Thank you Rosie- tha was such a nice post. I appreciate it.
<br />
<br />Fourkidsmom
<br />
<br />Fourkidsmom