To have more children (with possible CF) or not

[Darinsmom]

CFHockeymom, What if our 3rd was healthy and no CF at all? I did tell Darin that if we had another one, that this one could be sicker etc...

 

[Darinsmom]

CFHockeymom, What if our 3rd was healthy and no CF at all? I did tell Darin that if we had another one, that this one could be sicker etc...

 

[Darinsmom]

CFHockeymom, What if our 3rd was healthy and no CF at all? I did tell Darin that if we had another one, that this one could be sicker etc...

 

[Darinsmom]

CFHockeymom, What if our 3rd was healthy and no CF at all? I did tell Darin that if we had another one, that this one could be sicker etc...

 

[Darinsmom]

CFHockeymom, What if our 3rd was healthy and no CF at all? I did tell Darin that if we had another one, that this one could be sicker etc...

 

[NoExcuses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>bonniebaby</b></i>

I think there is a tremendous amount of sensitivity in the CF community about referring to someone with cystic fibrosis as "healthy" even if they are doing well. I've also noticed a lot of sarcasm from those of us adults with what is referred to as "mild" (atypical) CF since many of us are symtomatic and face the same problems as younger typical CFers.



Just stating what I'm observing. Since I'm newly diagnosed I've been surfing the forums a lot.</end quote></div>


I have the lung function of someone without CF. I am rarely in the hospital.

And I still think it sets up unrealistic expectations and it's irresponsible to use the word "atypical" (not to be confused with mild).

I've said it once and I'll say it a million times - no two cases of CF are the same. There are no typical presentations. Some have lung issues, some don't. Some have digestive issues, some don't. Some need a Tx at 17, some at 42.

My CF is mild. I am a healthy 25 year old who works full time and is fully active.

Thanks for your observation. You may want to dig deeper into who is making these assertions.

 

[NoExcuses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>bonniebaby</b></i>

I think there is a tremendous amount of sensitivity in the CF community about referring to someone with cystic fibrosis as "healthy" even if they are doing well. I've also noticed a lot of sarcasm from those of us adults with what is referred to as "mild" (atypical) CF since many of us are symtomatic and face the same problems as younger typical CFers.



Just stating what I'm observing. Since I'm newly diagnosed I've been surfing the forums a lot.</end quote></div>


I have the lung function of someone without CF. I am rarely in the hospital.

And I still think it sets up unrealistic expectations and it's irresponsible to use the word "atypical" (not to be confused with mild).

I've said it once and I'll say it a million times - no two cases of CF are the same. There are no typical presentations. Some have lung issues, some don't. Some have digestive issues, some don't. Some need a Tx at 17, some at 42.

My CF is mild. I am a healthy 25 year old who works full time and is fully active.

Thanks for your observation. You may want to dig deeper into who is making these assertions.

 

[NoExcuses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>bonniebaby</b></i>

I think there is a tremendous amount of sensitivity in the CF community about referring to someone with cystic fibrosis as "healthy" even if they are doing well. I've also noticed a lot of sarcasm from those of us adults with what is referred to as "mild" (atypical) CF since many of us are symtomatic and face the same problems as younger typical CFers.



Just stating what I'm observing. Since I'm newly diagnosed I've been surfing the forums a lot.</end quote></div>


I have the lung function of someone without CF. I am rarely in the hospital.

And I still think it sets up unrealistic expectations and it's irresponsible to use the word "atypical" (not to be confused with mild).

I've said it once and I'll say it a million times - no two cases of CF are the same. There are no typical presentations. Some have lung issues, some don't. Some have digestive issues, some don't. Some need a Tx at 17, some at 42.

My CF is mild. I am a healthy 25 year old who works full time and is fully active.

Thanks for your observation. You may want to dig deeper into who is making these assertions.

 

[NoExcuses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>bonniebaby</b></i>

I think there is a tremendous amount of sensitivity in the CF community about referring to someone with cystic fibrosis as "healthy" even if they are doing well. I've also noticed a lot of sarcasm from those of us adults with what is referred to as "mild" (atypical) CF since many of us are symtomatic and face the same problems as younger typical CFers.



Just stating what I'm observing. Since I'm newly diagnosed I've been surfing the forums a lot.</end quote></div>


I have the lung function of someone without CF. I am rarely in the hospital.

And I still think it sets up unrealistic expectations and it's irresponsible to use the word "atypical" (not to be confused with mild).

I've said it once and I'll say it a million times - no two cases of CF are the same. There are no typical presentations. Some have lung issues, some don't. Some have digestive issues, some don't. Some need a Tx at 17, some at 42.

My CF is mild. I am a healthy 25 year old who works full time and is fully active.

Thanks for your observation. You may want to dig deeper into who is making these assertions.

 

[NoExcuses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>bonniebaby</b></i>

I think there is a tremendous amount of sensitivity in the CF community about referring to someone with cystic fibrosis as "healthy" even if they are doing well. I've also noticed a lot of sarcasm from those of us adults with what is referred to as "mild" (atypical) CF since many of us are symtomatic and face the same problems as younger typical CFers.



Just stating what I'm observing. Since I'm newly diagnosed I've been surfing the forums a lot.</end quote>


I have the lung function of someone without CF. I am rarely in the hospital.

And I still think it sets up unrealistic expectations and it's irresponsible to use the word "atypical" (not to be confused with mild).

I've said it once and I'll say it a million times - no two cases of CF are the same. There are no typical presentations. Some have lung issues, some don't. Some have digestive issues, some don't. Some need a Tx at 17, some at 42.

My CF is mild. I am a healthy 25 year old who works full time and is fully active.

Thanks for your observation. You may want to dig deeper into who is making these assertions.

 

[NoExcuses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>bonniebaby</b></i>

I think there is a tremendous amount of sensitivity in the CF community about referring to someone with cystic fibrosis as "healthy" even if they are doing well. I've also noticed a lot of sarcasm from those of us adults with what is referred to as "mild" (atypical) CF since many of us are symtomatic and face the same problems as younger typical CFers.



Just stating what I'm observing. Since I'm newly diagnosed I've been surfing the forums a lot.</end quote>


I have the lung function of someone without CF. I am rarely in the hospital.

And I still think it sets up unrealistic expectations and it's irresponsible to use the word "atypical" (not to be confused with mild).

I've said it once and I'll say it a million times - no two cases of CF are the same. There are no typical presentations. Some have lung issues, some don't. Some have digestive issues, some don't. Some need a Tx at 17, some at 42.

My CF is mild. I am a healthy 25 year old who works full time and is fully active.

Thanks for your observation. You may want to dig deeper into who is making these assertions.

 

[lightNlife]

There will never be a good answer to the question or a winning side to any debate on the matter. There will never be a right answer.

Whether you believe in God, fate, karma, Scooby Doo or Thurston Howell III, the bottom line is that the longer we spend in the "Land of If" and keep belaboring every aspect of "What If" we're missing out on real life.

<i>Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own. --Matthew 6:34 </i>

"The Land of If"

There is a place not far away
though its name you may not know
where each of us visits most everyday,
(and some are too eager to go!)
In this land we all have seen
the way we wish things were,
sometimes we see what might have been,
and the things that are still unsure.

It is the Land of If--
we've all been once or twice.
Usually it's quite lonely there
(and rarely is the weather nice.)

The Land of If might seem like a way
to deal with busyness and flurry,
but really it's just another way
to invite in fears and worry.
Beware of this land! Stay far away!
(I know it can be tough)
Keep your thoughts in the present day
for it has problems enough.

--
And no, the moral of the story is not "thy will be done." My point is that it's time to put the sticks and blunted objects away and stop beating this dead horse of a thread. People are just picking on each other's POV now, and the whole thing is pitiable.

 

[lightNlife]

There will never be a good answer to the question or a winning side to any debate on the matter. There will never be a right answer.

Whether you believe in God, fate, karma, Scooby Doo or Thurston Howell III, the bottom line is that the longer we spend in the "Land of If" and keep belaboring every aspect of "What If" we're missing out on real life.

<i>Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own. --Matthew 6:34 </i>

"The Land of If"

There is a place not far away
though its name you may not know
where each of us visits most everyday,
(and some are too eager to go!)
In this land we all have seen
the way we wish things were,
sometimes we see what might have been,
and the things that are still unsure.

It is the Land of If--
we've all been once or twice.
Usually it's quite lonely there
(and rarely is the weather nice.)

The Land of If might seem like a way
to deal with busyness and flurry,
but really it's just another way
to invite in fears and worry.
Beware of this land! Stay far away!
(I know it can be tough)
Keep your thoughts in the present day
for it has problems enough.

--
And no, the moral of the story is not "thy will be done." My point is that it's time to put the sticks and blunted objects away and stop beating this dead horse of a thread. People are just picking on each other's POV now, and the whole thing is pitiable.

 

[lightNlife]

There will never be a good answer to the question or a winning side to any debate on the matter. There will never be a right answer.

Whether you believe in God, fate, karma, Scooby Doo or Thurston Howell III, the bottom line is that the longer we spend in the "Land of If" and keep belaboring every aspect of "What If" we're missing out on real life.

<i>Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own. --Matthew 6:34 </i>

"The Land of If"

There is a place not far away
though its name you may not know
where each of us visits most everyday,
(and some are too eager to go!)
In this land we all have seen
the way we wish things were,
sometimes we see what might have been,
and the things that are still unsure.

It is the Land of If--
we've all been once or twice.
Usually it's quite lonely there
(and rarely is the weather nice.)

The Land of If might seem like a way
to deal with busyness and flurry,
but really it's just another way
to invite in fears and worry.
Beware of this land! Stay far away!
(I know it can be tough)
Keep your thoughts in the present day
for it has problems enough.

--
And no, the moral of the story is not "thy will be done." My point is that it's time to put the sticks and blunted objects away and stop beating this dead horse of a thread. People are just picking on each other's POV now, and the whole thing is pitiable.

 

[lightNlife]

There will never be a good answer to the question or a winning side to any debate on the matter. There will never be a right answer.

Whether you believe in God, fate, karma, Scooby Doo or Thurston Howell III, the bottom line is that the longer we spend in the "Land of If" and keep belaboring every aspect of "What If" we're missing out on real life.

<i>Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own. --Matthew 6:34 </i>

"The Land of If"

There is a place not far away
though its name you may not know
where each of us visits most everyday,
(and some are too eager to go!)
In this land we all have seen
the way we wish things were,
sometimes we see what might have been,
and the things that are still unsure.

It is the Land of If--
we've all been once or twice.
Usually it's quite lonely there
(and rarely is the weather nice.)

The Land of If might seem like a way
to deal with busyness and flurry,
but really it's just another way
to invite in fears and worry.
Beware of this land! Stay far away!
(I know it can be tough)
Keep your thoughts in the present day
for it has problems enough.

--
And no, the moral of the story is not "thy will be done." My point is that it's time to put the sticks and blunted objects away and stop beating this dead horse of a thread. People are just picking on each other's POV now, and the whole thing is pitiable.

 

[lightNlife]

There will never be a good answer to the question or a winning side to any debate on the matter. There will never be a right answer.

Whether you believe in God, fate, karma, Scooby Doo or Thurston Howell III, the bottom line is that the longer we spend in the "Land of If" and keep belaboring every aspect of "What If" we're missing out on real life.

<i>Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own. --Matthew 6:34 </i>

"The Land of If"

There is a place not far away
though its name you may not know
where each of us visits most everyday,
(and some are too eager to go!)
In this land we all have seen
the way we wish things were,
sometimes we see what might have been,
and the things that are still unsure.

It is the Land of If--
we've all been once or twice.
Usually it's quite lonely there
(and rarely is the weather nice.)

The Land of If might seem like a way
to deal with busyness and flurry,
but really it's just another way
to invite in fears and worry.
Beware of this land! Stay far away!
(I know it can be tough)
Keep your thoughts in the present day
for it has problems enough.

--
And no, the moral of the story is not "thy will be done." My point is that it's time to put the sticks and blunted objects away and stop beating this dead horse of a thread. People are just picking on each other's POV now, and the whole thing is pitiable.

 

[lightNlife]

There will never be a good answer to the question or a winning side to any debate on the matter. There will never be a right answer.

Whether you believe in God, fate, karma, Scooby Doo or Thurston Howell III, the bottom line is that the longer we spend in the "Land of If" and keep belaboring every aspect of "What If" we're missing out on real life.

<i>Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own. --Matthew 6:34 </i>

"The Land of If"

There is a place not far away
though its name you may not know
where each of us visits most everyday,
(and some are too eager to go!)
In this land we all have seen
the way we wish things were,
sometimes we see what might have been,
and the things that are still unsure.

It is the Land of If--
we've all been once or twice.
Usually it's quite lonely there
(and rarely is the weather nice.)

The Land of If might seem like a way
to deal with busyness and flurry,
but really it's just another way
to invite in fears and worry.
Beware of this land! Stay far away!
(I know it can be tough)
Keep your thoughts in the present day
for it has problems enough.

--
And no, the moral of the story is not "thy will be done." My point is that it's time to put the sticks and blunted objects away and stop beating this dead horse of a thread. People are just picking on each other's POV now, and the whole thing is pitiable.

 

[Darinsmom]

I'm glad your doing so well sakasuka! It's very encouraging to hear. You're right everyone has different issues with their CF. Some have good starts and some don't. Take care!

Laurie

 

[Darinsmom]

I'm glad your doing so well sakasuka! It's very encouraging to hear. You're right everyone has different issues with their CF. Some have good starts and some don't. Take care!

Laurie

 

[Darinsmom]

I'm glad your doing so well sakasuka! It's very encouraging to hear. You're right everyone has different issues with their CF. Some have good starts and some don't. Take care!

Laurie