TO THE CFERS

K

kybert

New member
1. At what age did your parents hand over all treatments to you. When did they make your meds and treatments your full responsibility?
hmmm about 10?

2. At what age did they stop going into the doctors office with you?
mum still comes with me. i cant be stuffed driving so i get her to drive. *lazy*

3. When do you feel your parents made all aspects of CF (meds, calorie intake, setting up doc appointments, etc) your full responsibility?
same as above.

like everyone elses parents they still nag me! they cant help it i guess.
 
K

kybert

New member
1. At what age did your parents hand over all treatments to you. When did they make your meds and treatments your full responsibility?
hmmm about 10?

2. At what age did they stop going into the doctors office with you?
mum still comes with me. i cant be stuffed driving so i get her to drive. *lazy*

3. When do you feel your parents made all aspects of CF (meds, calorie intake, setting up doc appointments, etc) your full responsibility?
same as above.

like everyone elses parents they still nag me! they cant help it i guess.
 
K

kswitch

New member
ever since i could remember, i was preparing my nebs and administering my pills. my dad was a single parent and was more comfortable relying on me to make sure my meds were done properly than leaving it up to babysitters and what not. also, when i was seven, my biological mother introduced herself to my life. to avoid a potentially sticky legal battle, my dad acceded to her demands of summer long visitation multiple states away. again, he felt safer knowing that i was doing my treatments than hoping my apathetic mother stepped up.

when i turned 13, i left my dad's and lived full time with my mom and sister. at that time i was pretty much on my own. my mom would ask me how things were going. she might even hound me on my enzymes on the rare occasion that we had a family meal. she did go to every doctor's appointment, and she was sure to the scoop from me on the way to the clinic.

i held good for a while, getting more proactive in the weeks surrounding the quarterly visits. compliance was nil as soon as i lost medical coverage at age 19, although my mother had quit going at least two years prior. it was 1 clinic visit, 1 inhaler, and 200-500 enzymes per year (whatever i could score in samples at clinic) until age 25. i am now 29 and the most compliant i have ever been for 3 years.

so, in a nutshell, i have been fairly independent since i was at least seven. compliance has wavered, but i have learned the value.
 
K

kswitch

New member
ever since i could remember, i was preparing my nebs and administering my pills. my dad was a single parent and was more comfortable relying on me to make sure my meds were done properly than leaving it up to babysitters and what not. also, when i was seven, my biological mother introduced herself to my life. to avoid a potentially sticky legal battle, my dad acceded to her demands of summer long visitation multiple states away. again, he felt safer knowing that i was doing my treatments than hoping my apathetic mother stepped up.

when i turned 13, i left my dad's and lived full time with my mom and sister. at that time i was pretty much on my own. my mom would ask me how things were going. she might even hound me on my enzymes on the rare occasion that we had a family meal. she did go to every doctor's appointment, and she was sure to the scoop from me on the way to the clinic.

i held good for a while, getting more proactive in the weeks surrounding the quarterly visits. compliance was nil as soon as i lost medical coverage at age 19, although my mother had quit going at least two years prior. it was 1 clinic visit, 1 inhaler, and 200-500 enzymes per year (whatever i could score in samples at clinic) until age 25. i am now 29 and the most compliant i have ever been for 3 years.

so, in a nutshell, i have been fairly independent since i was at least seven. compliance has wavered, but i have learned the value.
 
K

kswitch

New member
ever since i could remember, i was preparing my nebs and administering my pills. my dad was a single parent and was more comfortable relying on me to make sure my meds were done properly than leaving it up to babysitters and what not. also, when i was seven, my biological mother introduced herself to my life. to avoid a potentially sticky legal battle, my dad acceded to her demands of summer long visitation multiple states away. again, he felt safer knowing that i was doing my treatments than hoping my apathetic mother stepped up.

when i turned 13, i left my dad's and lived full time with my mom and sister. at that time i was pretty much on my own. my mom would ask me how things were going. she might even hound me on my enzymes on the rare occasion that we had a family meal. she did go to every doctor's appointment, and she was sure to the scoop from me on the way to the clinic.

i held good for a while, getting more proactive in the weeks surrounding the quarterly visits. compliance was nil as soon as i lost medical coverage at age 19, although my mother had quit going at least two years prior. it was 1 clinic visit, 1 inhaler, and 200-500 enzymes per year (whatever i could score in samples at clinic) until age 25. i am now 29 and the most compliant i have ever been for 3 years.

so, in a nutshell, i have been fairly independent since i was at least seven. compliance has wavered, but i have learned the value.
 
K

kswitch

New member
ever since i could remember, i was preparing my nebs and administering my pills. my dad was a single parent and was more comfortable relying on me to make sure my meds were done properly than leaving it up to babysitters and what not. also, when i was seven, my biological mother introduced herself to my life. to avoid a potentially sticky legal battle, my dad acceded to her demands of summer long visitation multiple states away. again, he felt safer knowing that i was doing my treatments than hoping my apathetic mother stepped up.

when i turned 13, i left my dad's and lived full time with my mom and sister. at that time i was pretty much on my own. my mom would ask me how things were going. she might even hound me on my enzymes on the rare occasion that we had a family meal. she did go to every doctor's appointment, and she was sure to the scoop from me on the way to the clinic.

i held good for a while, getting more proactive in the weeks surrounding the quarterly visits. compliance was nil as soon as i lost medical coverage at age 19, although my mother had quit going at least two years prior. it was 1 clinic visit, 1 inhaler, and 200-500 enzymes per year (whatever i could score in samples at clinic) until age 25. i am now 29 and the most compliant i have ever been for 3 years.

so, in a nutshell, i have been fairly independent since i was at least seven. compliance has wavered, but i have learned the value.
 
K

kswitch

New member
ever since i could remember, i was preparing my nebs and administering my pills. my dad was a single parent and was more comfortable relying on me to make sure my meds were done properly than leaving it up to babysitters and what not. also, when i was seven, my biological mother introduced herself to my life. to avoid a potentially sticky legal battle, my dad acceded to her demands of summer long visitation multiple states away. again, he felt safer knowing that i was doing my treatments than hoping my apathetic mother stepped up.

when i turned 13, i left my dad's and lived full time with my mom and sister. at that time i was pretty much on my own. my mom would ask me how things were going. she might even hound me on my enzymes on the rare occasion that we had a family meal. she did go to every doctor's appointment, and she was sure to the scoop from me on the way to the clinic.

i held good for a while, getting more proactive in the weeks surrounding the quarterly visits. compliance was nil as soon as i lost medical coverage at age 19, although my mother had quit going at least two years prior. it was 1 clinic visit, 1 inhaler, and 200-500 enzymes per year (whatever i could score in samples at clinic) until age 25. i am now 29 and the most compliant i have ever been for 3 years.

so, in a nutshell, i have been fairly independent since i was at least seven. compliance has wavered, but i have learned the value.
 
K

kswitch

New member
ever since i could remember, i was preparing my nebs and administering my pills. my dad was a single parent and was more comfortable relying on me to make sure my meds were done properly than leaving it up to babysitters and what not. also, when i was seven, my biological mother introduced herself to my life. to avoid a potentially sticky legal battle, my dad acceded to her demands of summer long visitation multiple states away. again, he felt safer knowing that i was doing my treatments than hoping my apathetic mother stepped up.

when i turned 13, i left my dad's and lived full time with my mom and sister. at that time i was pretty much on my own. my mom would ask me how things were going. she might even hound me on my enzymes on the rare occasion that we had a family meal. she did go to every doctor's appointment, and she was sure to the scoop from me on the way to the clinic.

i held good for a while, getting more proactive in the weeks surrounding the quarterly visits. compliance was nil as soon as i lost medical coverage at age 19, although my mother had quit going at least two years prior. it was 1 clinic visit, 1 inhaler, and 200-500 enzymes per year (whatever i could score in samples at clinic) until age 25. i am now 29 and the most compliant i have ever been for 3 years.

so, in a nutshell, i have been fairly independent since i was at least seven. compliance has wavered, but i have learned the value.
 
M

MCGrad2006

Guest
I was probably about the same as everyone else around 10, 11. I think that the thing is you need to be able to learn from your mistakes, and like everyone else has said, as a parent, step in only when you really need to. I hit my rebellion when I was in college. No one was watching me do my treatments or take my pills, so a lot of times I just didnt. I didnt have anyone to push me to do them so to say. I had an idiot of a room mate, and I always felt like it was bothering her when I did treatments (with the noise or whatnot...and she thought everything I did was gross). Yes I know, thats silly, why should I care what she thinks, but thats just the way I felt...I am over it now. Now that I am back home, I am much better because I honestly dont care what my family thinks. They need to accept me for me and they will. So if I bother them, they will still love me....whereas a room mate would just talk about me behind my back...hahaha.

I started seeing the doctor on my own around 14...when my old doc retired, the new one, basically wouldnt let my parents come in. I was TERRIFIED....cuz im pretty shy until I get to know someone. I was so glad he did it that way though, because otherwise, it may never have happened...lol. My parents still came with me for a while after that, b/c I didnt drive for a while and was terrified to drive into the city. But probably when I was 20 I started going in on my own, taking the train and stuff. My parents still come once in a great while, to keep me company or to say hi to the doc. haha...but they always leave me alone once I get in the office. EVERYTHING has been my full responsibility since the age of 19 or 20...when I started going there on my own.


<div class="FTQUOTE"><begin quote>or sometimes I go through bad spells of forgetting pills (lord knows why)</end quote></div>

AHAHHAHAHAHA...Debbie thats funny, I am going through that right now....cant seem to wanna take them in front of ppl at work or just 'forget' to bring them to work. *cries hysterically* Maybe I should work on that. <img src="i/expressions/pills.gif" border="0">
 
M

MCGrad2006

Guest
I was probably about the same as everyone else around 10, 11. I think that the thing is you need to be able to learn from your mistakes, and like everyone else has said, as a parent, step in only when you really need to. I hit my rebellion when I was in college. No one was watching me do my treatments or take my pills, so a lot of times I just didnt. I didnt have anyone to push me to do them so to say. I had an idiot of a room mate, and I always felt like it was bothering her when I did treatments (with the noise or whatnot...and she thought everything I did was gross). Yes I know, thats silly, why should I care what she thinks, but thats just the way I felt...I am over it now. Now that I am back home, I am much better because I honestly dont care what my family thinks. They need to accept me for me and they will. So if I bother them, they will still love me....whereas a room mate would just talk about me behind my back...hahaha.

I started seeing the doctor on my own around 14...when my old doc retired, the new one, basically wouldnt let my parents come in. I was TERRIFIED....cuz im pretty shy until I get to know someone. I was so glad he did it that way though, because otherwise, it may never have happened...lol. My parents still came with me for a while after that, b/c I didnt drive for a while and was terrified to drive into the city. But probably when I was 20 I started going in on my own, taking the train and stuff. My parents still come once in a great while, to keep me company or to say hi to the doc. haha...but they always leave me alone once I get in the office. EVERYTHING has been my full responsibility since the age of 19 or 20...when I started going there on my own.


<div class="FTQUOTE"><begin quote>or sometimes I go through bad spells of forgetting pills (lord knows why)</end quote></div>

AHAHHAHAHAHA...Debbie thats funny, I am going through that right now....cant seem to wanna take them in front of ppl at work or just 'forget' to bring them to work. *cries hysterically* Maybe I should work on that. <img src="i/expressions/pills.gif" border="0">
 
M

MCGrad2006

Guest
I was probably about the same as everyone else around 10, 11. I think that the thing is you need to be able to learn from your mistakes, and like everyone else has said, as a parent, step in only when you really need to. I hit my rebellion when I was in college. No one was watching me do my treatments or take my pills, so a lot of times I just didnt. I didnt have anyone to push me to do them so to say. I had an idiot of a room mate, and I always felt like it was bothering her when I did treatments (with the noise or whatnot...and she thought everything I did was gross). Yes I know, thats silly, why should I care what she thinks, but thats just the way I felt...I am over it now. Now that I am back home, I am much better because I honestly dont care what my family thinks. They need to accept me for me and they will. So if I bother them, they will still love me....whereas a room mate would just talk about me behind my back...hahaha.

I started seeing the doctor on my own around 14...when my old doc retired, the new one, basically wouldnt let my parents come in. I was TERRIFIED....cuz im pretty shy until I get to know someone. I was so glad he did it that way though, because otherwise, it may never have happened...lol. My parents still came with me for a while after that, b/c I didnt drive for a while and was terrified to drive into the city. But probably when I was 20 I started going in on my own, taking the train and stuff. My parents still come once in a great while, to keep me company or to say hi to the doc. haha...but they always leave me alone once I get in the office. EVERYTHING has been my full responsibility since the age of 19 or 20...when I started going there on my own.


<div class="FTQUOTE"><begin quote>or sometimes I go through bad spells of forgetting pills (lord knows why)</end quote></div>

AHAHHAHAHAHA...Debbie thats funny, I am going through that right now....cant seem to wanna take them in front of ppl at work or just 'forget' to bring them to work. *cries hysterically* Maybe I should work on that. <img src="i/expressions/pills.gif" border="0">
 
M

MCGrad2006

Guest
I was probably about the same as everyone else around 10, 11. I think that the thing is you need to be able to learn from your mistakes, and like everyone else has said, as a parent, step in only when you really need to. I hit my rebellion when I was in college. No one was watching me do my treatments or take my pills, so a lot of times I just didnt. I didnt have anyone to push me to do them so to say. I had an idiot of a room mate, and I always felt like it was bothering her when I did treatments (with the noise or whatnot...and she thought everything I did was gross). Yes I know, thats silly, why should I care what she thinks, but thats just the way I felt...I am over it now. Now that I am back home, I am much better because I honestly dont care what my family thinks. They need to accept me for me and they will. So if I bother them, they will still love me....whereas a room mate would just talk about me behind my back...hahaha.

I started seeing the doctor on my own around 14...when my old doc retired, the new one, basically wouldnt let my parents come in. I was TERRIFIED....cuz im pretty shy until I get to know someone. I was so glad he did it that way though, because otherwise, it may never have happened...lol. My parents still came with me for a while after that, b/c I didnt drive for a while and was terrified to drive into the city. But probably when I was 20 I started going in on my own, taking the train and stuff. My parents still come once in a great while, to keep me company or to say hi to the doc. haha...but they always leave me alone once I get in the office. EVERYTHING has been my full responsibility since the age of 19 or 20...when I started going there on my own.


<div class="FTQUOTE"><begin quote>or sometimes I go through bad spells of forgetting pills (lord knows why)</end quote></div>

AHAHHAHAHAHA...Debbie thats funny, I am going through that right now....cant seem to wanna take them in front of ppl at work or just 'forget' to bring them to work. *cries hysterically* Maybe I should work on that. <img src="i/expressions/pills.gif" border="0">
 
M

MCGrad2006

Guest
I was probably about the same as everyone else around 10, 11. I think that the thing is you need to be able to learn from your mistakes, and like everyone else has said, as a parent, step in only when you really need to. I hit my rebellion when I was in college. No one was watching me do my treatments or take my pills, so a lot of times I just didnt. I didnt have anyone to push me to do them so to say. I had an idiot of a room mate, and I always felt like it was bothering her when I did treatments (with the noise or whatnot...and she thought everything I did was gross). Yes I know, thats silly, why should I care what she thinks, but thats just the way I felt...I am over it now. Now that I am back home, I am much better because I honestly dont care what my family thinks. They need to accept me for me and they will. So if I bother them, they will still love me....whereas a room mate would just talk about me behind my back...hahaha.

I started seeing the doctor on my own around 14...when my old doc retired, the new one, basically wouldnt let my parents come in. I was TERRIFIED....cuz im pretty shy until I get to know someone. I was so glad he did it that way though, because otherwise, it may never have happened...lol. My parents still came with me for a while after that, b/c I didnt drive for a while and was terrified to drive into the city. But probably when I was 20 I started going in on my own, taking the train and stuff. My parents still come once in a great while, to keep me company or to say hi to the doc. haha...but they always leave me alone once I get in the office. EVERYTHING has been my full responsibility since the age of 19 or 20...when I started going there on my own.


<div class="FTQUOTE"><begin quote>or sometimes I go through bad spells of forgetting pills (lord knows why)</end quote>

AHAHHAHAHAHA...Debbie thats funny, I am going through that right now....cant seem to wanna take them in front of ppl at work or just 'forget' to bring them to work. *cries hysterically* Maybe I should work on that. <img src="i/expressions/pills.gif" border="0">
 
M

MCGrad2006

Guest
I was probably about the same as everyone else around 10, 11. I think that the thing is you need to be able to learn from your mistakes, and like everyone else has said, as a parent, step in only when you really need to. I hit my rebellion when I was in college. No one was watching me do my treatments or take my pills, so a lot of times I just didnt. I didnt have anyone to push me to do them so to say. I had an idiot of a room mate, and I always felt like it was bothering her when I did treatments (with the noise or whatnot...and she thought everything I did was gross). Yes I know, thats silly, why should I care what she thinks, but thats just the way I felt...I am over it now. Now that I am back home, I am much better because I honestly dont care what my family thinks. They need to accept me for me and they will. So if I bother them, they will still love me....whereas a room mate would just talk about me behind my back...hahaha.

I started seeing the doctor on my own around 14...when my old doc retired, the new one, basically wouldnt let my parents come in. I was TERRIFIED....cuz im pretty shy until I get to know someone. I was so glad he did it that way though, because otherwise, it may never have happened...lol. My parents still came with me for a while after that, b/c I didnt drive for a while and was terrified to drive into the city. But probably when I was 20 I started going in on my own, taking the train and stuff. My parents still come once in a great while, to keep me company or to say hi to the doc. haha...but they always leave me alone once I get in the office. EVERYTHING has been my full responsibility since the age of 19 or 20...when I started going there on my own.


<div class="FTQUOTE"><begin quote>or sometimes I go through bad spells of forgetting pills (lord knows why)</end quote>

AHAHHAHAHAHA...Debbie thats funny, I am going through that right now....cant seem to wanna take them in front of ppl at work or just 'forget' to bring them to work. *cries hysterically* Maybe I should work on that. <img src="i/expressions/pills.gif" border="0">
 
J

JazzysMom

New member
I remember being in charge of my meds about a year after dx so that was about 8 years old. My oldest nephew was born that is how I remember. I was in charge of taking my meds AND telling my parents when its was time for refills. This also included my epilepsy meds besides CF. Not to say that my parents werent secretly following up on me tho LOL! I started going to the CF doctor on my own as soon as I had my license. Now that I think about that I dont know what the hell my Mom was thinking since that meant I had to drive in the heart of Manhatten, but Dad was sick & in the hospital for a lot of time after getting my license so I am sure it just made it easier. ANYWAY what else?.....hmmm.....cant recall if Mom went into see the doctor with me in my teen years before getting my license. I didnt go often enough for that to stick in my head I guess.
 
J

JazzysMom

New member
I remember being in charge of my meds about a year after dx so that was about 8 years old. My oldest nephew was born that is how I remember. I was in charge of taking my meds AND telling my parents when its was time for refills. This also included my epilepsy meds besides CF. Not to say that my parents werent secretly following up on me tho LOL! I started going to the CF doctor on my own as soon as I had my license. Now that I think about that I dont know what the hell my Mom was thinking since that meant I had to drive in the heart of Manhatten, but Dad was sick & in the hospital for a lot of time after getting my license so I am sure it just made it easier. ANYWAY what else?.....hmmm.....cant recall if Mom went into see the doctor with me in my teen years before getting my license. I didnt go often enough for that to stick in my head I guess.
 
J

JazzysMom

New member
I remember being in charge of my meds about a year after dx so that was about 8 years old. My oldest nephew was born that is how I remember. I was in charge of taking my meds AND telling my parents when its was time for refills. This also included my epilepsy meds besides CF. Not to say that my parents werent secretly following up on me tho LOL! I started going to the CF doctor on my own as soon as I had my license. Now that I think about that I dont know what the hell my Mom was thinking since that meant I had to drive in the heart of Manhatten, but Dad was sick & in the hospital for a lot of time after getting my license so I am sure it just made it easier. ANYWAY what else?.....hmmm.....cant recall if Mom went into see the doctor with me in my teen years before getting my license. I didnt go often enough for that to stick in my head I guess.
 
J

JazzysMom

New member
I remember being in charge of my meds about a year after dx so that was about 8 years old. My oldest nephew was born that is how I remember. I was in charge of taking my meds AND telling my parents when its was time for refills. This also included my epilepsy meds besides CF. Not to say that my parents werent secretly following up on me tho LOL! I started going to the CF doctor on my own as soon as I had my license. Now that I think about that I dont know what the hell my Mom was thinking since that meant I had to drive in the heart of Manhatten, but Dad was sick & in the hospital for a lot of time after getting my license so I am sure it just made it easier. ANYWAY what else?.....hmmm.....cant recall if Mom went into see the doctor with me in my teen years before getting my license. I didnt go often enough for that to stick in my head I guess.
 
J

JazzysMom

New member
I remember being in charge of my meds about a year after dx so that was about 8 years old. My oldest nephew was born that is how I remember. I was in charge of taking my meds AND telling my parents when its was time for refills. This also included my epilepsy meds besides CF. Not to say that my parents werent secretly following up on me tho LOL! I started going to the CF doctor on my own as soon as I had my license. Now that I think about that I dont know what the hell my Mom was thinking since that meant I had to drive in the heart of Manhatten, but Dad was sick & in the hospital for a lot of time after getting my license so I am sure it just made it easier. ANYWAY what else?.....hmmm.....cant recall if Mom went into see the doctor with me in my teen years before getting my license. I didnt go often enough for that to stick in my head I guess.
 
J

JazzysMom

New member
I remember being in charge of my meds about a year after dx so that was about 8 years old. My oldest nephew was born that is how I remember. I was in charge of taking my meds AND telling my parents when its was time for refills. This also included my epilepsy meds besides CF. Not to say that my parents werent secretly following up on me tho LOL! I started going to the CF doctor on my own as soon as I had my license. Now that I think about that I dont know what the hell my Mom was thinking since that meant I had to drive in the heart of Manhatten, but Dad was sick & in the hospital for a lot of time after getting my license so I am sure it just made it easier. ANYWAY what else?.....hmmm.....cant recall if Mom went into see the doctor with me in my teen years before getting my license. I didnt go often enough for that to stick in my head I guess.
 
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